The 20 Best Castleman Disease Doctors Near Me in chicago, IL

Find the Top Castleman Disease Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 35 doctor with experience in Castleman Disease near chicago, IL. Of these, 25 are Experienced, 8 are Advanced and 2 are Distinguished.

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35 providers found
    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology
    Referral may be required
    233 E Superior St 1st Fl, Olson Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Young Chae is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Chae is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Lung Adenocarcinoma, Small Cell Lung Cancer (SCLC), and Tissue Biopsy. Dr. Chae is board certified in American Board Of Internal Medicine - Medical Oncology (Certified). Dr. Chae is currently accepting new patients.

    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology
    Referral may be required

    Advocate Medical Group Oncology

    900 W Nelson St Ground Fl, 
    Chicago, IL 
     (4.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Denise Levitan is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Levitan is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Chronic Lymphocytic Leukemia (CLL), Cervical Cancer, Breast Cancer, and Myelodysplastic Syndrome (MDS). Dr. Levitan is board certified in American Board Of Internal Medicine, Medical Oncology. Dr. Levitan is currently accepting new patients.

    Distinguished in Castleman Disease
    Distinguished in Castleman Disease
    Referral may be required

    Office

    675 N Saint Clair St Ste 21-100, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    James Wade is an Oncologist practicing medicine in Chicago, Illinois. Dr. Wade is rated as a Distinguished provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Multicentric Castleman Disease (MCD), Unicentric Castleman Disease (UCD), Lung Cancer, Cervical Cancer, and Bone Marrow Aspiration. Dr. Wade is currently accepting new patients.

    Are you looking for a specific type of Castleman Disease?

    Common conditions include: Multicentric Castleman Disease (MCD), Unicentric Castleman Disease (UCD)

    Learn about our expert tiers
    Advanced in Castleman Disease
    Advanced in Castleman Disease
    Referral may be required
    675 N St Clair St Ste 21-100, Galter Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English, Hindi, Marathi
    Accepting New Patients
    Offers Telehealth

    Jayesh Mehta is a Hematologist practicing medicine in Chicago, Illinois. Dr. Mehta is rated as an Advanced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Smoldering Multiple Myeloma, Monoclonal Gammopathy of Undetermined Significance (MGUS), Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Mehta is board certified in American Board Of Internal Medicine - Hematology (Certified). Dr. Mehta is currently accepting new patients.

    Advanced in Castleman Disease
    Hematology | Oncology
    Advanced in Castleman Disease
    Hematology | Oncology
    Referral may be required
    675 N St Clair St Ste 21-100, Galter Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    Experience:
    53+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Leo Gordon is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 53 years. Dr. Gordon is rated as an Advanced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Non-Hodgkin Lymphoma, Hodgkin Lymphoma, B-Cell Lymphoma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Gordon is board certified in American Board Of Internal Medicine - Hematology (Certified). Dr. Gordon is currently accepting new patients.

    Distinguished in Castleman Disease
    Hematology | Oncology
    Distinguished in Castleman Disease
    Hematology | Oncology
    Referral may be required

    The University Of Chicago

    5758 S Maryland Ave, 
    Chicago, IL 
     (6.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Olatoyosi Odenike is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Odenike is rated as a Distinguished provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), Myelofibrosis, Bone Marrow Aspiration, and Bone Marrow Transplant. Dr. Odenike is board certified in Practicing Since2000 and Medical Oncology. Dr. Odenike is currently accepting new patients.

    Experienced in Castleman Disease
    Internal Medicine
    Experienced in Castleman Disease
    Internal Medicine

    UChicago Medicine River East

    355 E. Grand Ave., 
    Chicago, IL 
     (0.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Susan Glick is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Glick is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. Her clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Spasticity. Dr. Glick is board certified in Internal Medicine. Dr. Glick is currently accepting new patients.

    Advanced in Castleman Disease
    Hematology | Oncology
    Advanced in Castleman Disease
    Hematology | Oncology
    Referral may be required

    Northwestern Medical Faculty Foundation Oncology

    675 N Saint Clair St Fl 4, 
    Chicago, IL 
     (1.3 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Reem Karmali is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. She has been practicing medicine for over 20 years. Dr. Karmali is rated as an Advanced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Diffuse Large B-Cell Lymphoma (DLBCL), Large-Cell Immunoblastic Lymphoma, Hodgkin Lymphoma, Non-Hodgkin Lymphoma, and Bone Marrow Aspiration. Dr. Karmali is board certified in American Board Of Internal Medicine - Hematology (Certified). Dr. Karmali is currently accepting new patients.

    Experienced in Castleman Disease
    Experienced in Castleman Disease
    Referral may be required

    Robert H Lurie Comprehensive Cancer Ctr

    675 N Saint Clair St Ste 21-100, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Sosman is an Oncologist practicing medicine in Chicago, Illinois. Dr. Sosman is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Melanoma, Renal Cell Carcinoma (RCC), Clear Cell Sarcoma, Chromophobe Renal Cell Carcinoma, and Nephrectomy. Dr. Sosman is currently accepting new patients.

    Experienced in Castleman Disease
    Internal Medicine
    Experienced in Castleman Disease
    Internal Medicine

    Nancy Gracin MD SC

    233 E Erie St Ste 500, 
    Chicago,, IL 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anne Kudelka is a primary care provider, practicing in Internal Medicine in Chicago,, Illinois. Dr. Kudelka is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Hyperlipidemia Type 3, Hypertensive Heart Disease, Pediatric Myocarditis, and Enlarged Liver. Dr. Kudelka is currently accepting new patients.

    Experienced in Castleman Disease
    Internal Medicine
    Experienced in Castleman Disease
    Internal Medicine

    Northwestern Memorial Hospital

    251 E Huron St, 
    Chicago, IL 
     (0.9 miles away)
    Languages Spoken:
    English

    Fatemeh Behnia is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Behnia is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. Her clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Neuroendocrine Tumor, and Castleman Disease.

    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Hannah Lust is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Lust is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Graft Versus Host Disease (GvHD), Ewing Sarcoma, and Multicentric Castleman Disease (MCD).

    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Jenna Rossoff is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Rossoff is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Febrile Neutropenia, Agranulocytosis, Langerhans Cell Histiocytosis, and Bone Marrow Transplant.

    Experienced in Castleman Disease
    Experienced in Castleman Disease
    Referral may be required

    Office

    1520 W Harrison St, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nadia Khan is a Hematologist practicing medicine in Chicago, Illinois. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Non-Hodgkin Lymphoma, Hodgkin Lymphoma, Chronic Lymphocytic Leukemia (CLL), and B-Cell Lymphoma. Dr. Khan is currently accepting new patients.

    Experienced in Castleman Disease
    Experienced in Castleman Disease
    Referral may be required

    University Of Illinois At Chicago

    840 S Wood St, 
    Chicago, IL 
     (2.2 miles away)
    Languages Spoken:
    English

    Frederick Behm is a Hematologist practicing medicine in Chicago, Illinois. Dr. Behm is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 62 other conditions, according to our data. His clinical expertise encompasses Sickle Cell Disease, Anemia, Hemoglobinopathy, and Hemoglobin C Disease.

    Experienced in Castleman Disease
    Experienced in Castleman Disease
    Referral may be required

    Presence St Joseph Hospital

    2900 N Lake Shore Dr, 
    Chicago, IL 
     (3.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Douglas Rovira is an Oncologist practicing medicine in Chicago, Illinois. Dr. Rovira is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Chronic B-Cell Leukemia (CBCL), Chronic Lymphocytic Leukemia (CLL), Richter Syndrome, and Familial Colorectal Cancer. Dr. Rovira is currently accepting new patients.

    Experienced in Castleman Disease
    Experienced in Castleman Disease
    Referral may be required

    Ascension St. Joseph Chicago-UChicago Medicine Comprehensive Cancer Center

    331 W Surf St, Ste 1300, 
    Chicago, IL 
     (3.5 miles away)
    Languages Spoken:
    English, Mandarin
    Accepting New Patients
    Offers Telehealth

    May Chen is an Oncologist practicing medicine in Chicago, Illinois. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Angiosarcoma, Inflammatory Breast Cancer, Breast Cancer, and Paget Disease of the Breast. Dr. Chen is board certified in The American Board Of Internal Medicine - Medical Oncology. Dr. Chen is currently accepting new patients.

    Advanced in Castleman Disease
    Hematology | Oncology
    Advanced in Castleman Disease
    Hematology | Oncology
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
     (6.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Kline is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Kline is rated as an Advanced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Non-Hodgkin Lymphoma, Diffuse Large B-Cell Lymphoma (DLBCL), Hodgkin Lymphoma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Kline is board certified in Practicing Since2000 and Medical Oncology. Dr. Kline is currently accepting new patients.

    Advanced in Castleman Disease
    Hematology | Oncology
    Advanced in Castleman Disease
    Hematology | Oncology
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
     (6.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Satyajit Kosuri is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Kosuri is rated as an Advanced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Acute Myeloid Leukemia (AML), Multiple Myeloma, Acute Myeloblastic Leukemia without Maturation, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Kosuri is currently accepting new patients.

    Advanced in Castleman Disease
    Hematology | Oncology
    Advanced in Castleman Disease
    Hematology | Oncology
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
     (6.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Thirman is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Thirman is rated as an Advanced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Chronic Lymphocytic Leukemia (CLL), Chronic B-Cell Leukemia (CBCL), Leukemia, Acute Myeloid Leukemia (AML), and Bone Marrow Aspiration. Dr. Thirman is board certified in Internal Medicine and Practicing Since1989. Dr. Thirman is currently accepting new patients.

    Showing 1-20 of 35

    Last Updated: 09/26/2026

    What is the definition of Castleman Disease?

    Castleman disease is a rare condition that is characterized by an abnormal growth of multiple cells in a single lymph node or multiple lymph nodes (depending on the type of disease), causing them to enlarge. There are two main types of Castleman disease: 1) Unicentric Castleman disease (UCD) affects a single lymph node, usually in the chest or abdomen and is the most common form of the disease. 2) Multicentric Castleman disease (MCD) affects multiple lymph nodes and has two subtypes which are commonly associated with having been infected with the human immunodeficiency virus (HIV): 2a) Human herpes virus type 8 (HHV-8-associated MCD) 2b) Human herpes virus type-8 (HHV-negative or idiopathic MCD ), which is also known as Kaposi sarcoma-associated herpesvirus.

    When should I see a Castleman Disease doctor near chicago, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Castleman Disease doctor near chicago, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Castleman Disease doctors near chicago, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Castleman Disease doctors near chicago, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Castleman Disease doctor near chicago, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Castleman Disease doctor search results page. 

    Why is it important to get a second opinion from a different Castleman Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Castleman Disease doctor near chicago, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Castleman Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Castleman Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Castleman Disease doctors near chicago, IL?

    Look for the filter feature on the left side of the Castleman Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Castleman Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Castleman Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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