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    Last Updated: 10/30/2025

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    MediFind found 32 doctor with experience in CHARGE Syndrome near Portland, OR. Of these, 28 are Experienced and 4 are Advanced.

    Location
    LocationClose
    32 providers found
      Experienced in CHARGE Syndrome
      Cardiology | Pediatrics
      Experienced in CHARGE Syndrome
      Cardiology | Pediatrics
      9427 Southwest Barnes Road, Suite 598, 
      Portland, OR 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

      Advanced in CHARGE Syndrome
      Advanced in CHARGE Syndrome
      3101 Sw Sam Jackson Park Road, 
      Portland, OR 
       (1.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Michelle Welborn is an Orthopedics provider in Portland, Oregon. Dr. Welborn is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Scoliosis, Kyphosis, Collins Pope Syndrome, Osteotomy, and Spinal Fusion. Dr. Welborn is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in CHARGE Syndrome
      Ophthalmology
      Advanced in CHARGE Syndrome
      Ophthalmology

      University Professional Services

      3303 S Bond Ave, 
      Portland, OR 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Paul Yang is an Ophthalmologist in Portland, Oregon. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are X-Linked Retinitis Pigmentosa (XLRP), Retinitis Pigmentosa, Cone-Rod Dystrophy, and Usher Syndrome Type 2A. Dr. Yang is currently accepting new patients.

      Learn about our expert tiers
      Experienced in CHARGE Syndrome
      Endocrinology
      Experienced in CHARGE Syndrome
      Endocrinology

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Eric Orwoll is an Endocrinologist in Portland, Oregon. Dr. Orwoll is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Osteoporosis, Osteogenesis Imperfecta, Postmenopausal Osteoporosis, Fractured Spine, and Hormone Replacement Therapy (HRT).

      Advanced in CHARGE Syndrome
      Medical Genetics | Pediatrics
      Advanced in CHARGE Syndrome
      Medical Genetics | Pediatrics
      2801 N Gantenbein Ave Ste 2225, 
      Portland, OR 
       (2.0 miles away)
      Languages Spoken:
      English

      Andrea Petersen is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Petersen is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 2, Cardiomyopathy Hypogonadism Metabolic Anomalies, Nijmegen Breakage Syndrome, and Bosma Arhinia Microphthalmia Syndrome.

      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome
      3101 S. W. Sam Jackson Park Rd., 
      Portland, OR 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Robert Bernstein is an Orthopedics provider in Portland, Oregon. Dr. Bernstein is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Singleton-Merten Syndrome, Greenberg Dysplasia, Myhre Syndrome, and Multicentric Carpotarsal Osteolysis Syndrome. Dr. Bernstein is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Pediatric Orthopedics | Orthopedics
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics | Orthopedics
      3101 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Ellen Raney is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Raney is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, Clubfoot, Osteogenesis Imperfecta, and Osteotomy. Dr. Raney is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Pediatric Orthopedics | Orthopedics
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics | Orthopedics
      3101 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Bouton is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Bouton is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Kyphosis, and Spinal Fusion. Dr. Bouton is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Pediatric Surgery | General Surgery
      Experienced in CHARGE Syndrome
      Pediatric Surgery | General Surgery
      3181 SW Sam Jackson Park Rd L579, 
      Portland, OR 
       (1.1 miles away)
      Languages Spoken:
      English

      Minna Wieck is a Pediatric Surgeon and a General Surgeon in Portland, Oregon. Dr. Wieck is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Total Intestinal Aganglionosis, Hirschsprung Disease, Pectus Carinatum, Ileostomy, and Appendectomy.

      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome
      3181 Sw Sam Jackson Park Blvd, Ohsu, Department Of Pediatrics, 
      Portland, OR 
       (1.1 miles away)
      Languages Spoken:
      English, Czech, Portuguese
      Accepting New Patients
      Offers Telehealth

      Emily Gallagher is a Pediatrics provider in Portland, Oregon. Dr. Gallagher is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Gorlin-Chaudhry-Moss Syndrome, Multiple Epiphyseal Dysplasia, Baller-Gerold Syndrome, and Acrofacial Dysostosis Nager Type. Dr. Gallagher is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Experienced in CHARGE Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English

      Brooke Su-Velez is a Pediatric Otolaryngologist and a Pediatrics provider in Portland, Oregon. Dr. Su-Velez is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Pierre Robin Sequence, Deafness Craniofacial Syndrome, Multiple Epiphyseal Dysplasia, Thyroidectomy, and Parathyroidectomy.

      Experienced in CHARGE Syndrome
      Otolaryngology
      Experienced in CHARGE Syndrome
      Otolaryngology
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English

      Timothy Hullar is an Otolaryngologist in Portland, Oregon. Dr. Hullar is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Vertigo, Hearing Loss, Acoustic Neuroma, and Infant Hearing Loss.

      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English, Japanese
      Accepting New Patients
      Offers Telehealth

      Shashima Nakahara is a Cardiologist in Portland, Oregon. Dr. Nakahara is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Pulmonary Edema, Heart Failure, and Atrial Fibrillation. Dr. Nakahara is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Medical Genetics | Pediatrics
      Experienced in CHARGE Syndrome
      Medical Genetics | Pediatrics

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Wojciech Wiszniewski is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Wiszniewski is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and Focal or Multifocal Malformations in Neuronal Migration.

      Experienced in CHARGE Syndrome
      Ophthalmology
      Experienced in CHARGE Syndrome
      Ophthalmology

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lesley Everett is an Ophthalmologist in Portland, Oregon. Dr. Everett is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, and X-Linked Retinitis Pigmentosa (XLRP). Dr. Everett is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Medical Genetics
      Experienced in CHARGE Syndrome
      Medical Genetics

      Legacy Good Samaritan Hospital And Medical Center

      1040 Nw 22nd Ave, Suite 30, 
      Portland, OR 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dana Simpson is a Medical Genetics provider in Portland, Oregon. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Incontinentia Pigmenti, Increased Head Circumference, Miller-Dieker Syndrome, and Smith-Magenis Syndrome. Dr. Simpson is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Cardiac Electrophysiology | Cardiology
      Experienced in CHARGE Syndrome
      Cardiac Electrophysiology | Cardiology

      Legacy Clinics LLC

      1040 Nw 22nd Ave, Suite 660, 
      Portland, OR 
       (1.4 miles away)
      Languages Spoken:
      English, Hindi, Spanish
      Accepting New Patients

      Manish Mehta is a Cardiac Electrophysiologist and a Cardiologist in Portland, Oregon. Dr. Mehta is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Sick Sinus Syndrome, Cardiac Ablation, and Pacemaker Implantation. Dr. Mehta is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Medical Genetics | Pediatrics
      Experienced in CHARGE Syndrome
      Medical Genetics | Pediatrics

      Legacy Good Samaritan Hospital And Medical Center

      1130 Nw 22nd Ave, Suite 630, 
      Portland, OR 
       (1.4 miles away)
      Languages Spoken:
      English, Greek
      Accepting New Patients

      George Anadiotis is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Anadiotis is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, Autism Spectrum Disorder, and Chromosome 2 Uniparental Disomy. Dr. Anadiotis is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Pediatric Cardiology | Pediatrics
      Experienced in CHARGE Syndrome
      Pediatric Cardiology | Pediatrics
      300 N Graham St Ste 250, 
      Portland, OR 
       (1.9 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Alisha Floyd is a Pediatric Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Floyd is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Bicuspid Aortic Valve, and Cor Triatriatum. Dr. Floyd is currently accepting new patients.

      Experienced in CHARGE Syndrome
      Plastic Surgery
      Experienced in CHARGE Syndrome
      Plastic Surgery

      Legacy Emanuel Hospital And Health Center

      501 N Graham St, Suite 300, 
      Portland, OR 
       (2.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Christopher Zarella is a Plastic Surgeon in Portland, Oregon. Dr. Zarella is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Metopic Ridge, Craniosynostosis, Orofaciodigital Syndrome 1, and Goldenhar Disease.

      Showing 1-20 of 32

      Last Updated: 10/30/2025

      What is the definition of CHARGE Syndrome?

      CHARGE syndrome is a congenital condition (present from birth) that affects many areas of the body. CHARGE stands for coloboma, heart defect, atresia choanae (also known as choanal atresia), restricted growth and development, genital abnormality, and ear abnormality. Signs and symptoms vary among people with this condition; however, infants often have multiple medical conditions. The diagnosis of CHARGE syndrome is based on a combination of major and minor characteristics. In more than half of all cases, genetic changes in the CHD7 gene cause CHARGE syndrome. When caused by a genetic change in the CHD7 gene, it can be inherited in an autosomal dominant pattern; although most cases result from new (de novo) genetic changes in the gene and occur in people with no history of the condition in their family.

      When should I see a CHARGE Syndrome doctor near Portland, OR?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CHARGE Syndrome doctor near Portland, OR?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CHARGE Syndrome doctors near Portland, OR?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CHARGE Syndrome doctors near Portland, OR?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CHARGE Syndrome doctor near Portland, OR?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CHARGE Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CHARGE Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CHARGE Syndrome doctor near Portland, OR?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CHARGE Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CHARGE Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CHARGE Syndrome doctors near Portland, OR?

      Look for the filter feature on the left side of the CHARGE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CHARGE Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CHARGE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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