The 20 Best CHARGE Syndrome Doctors Near Me in Madison, WI

Find the Top CHARGE Syndrome Experts and Specialists

The 20 Best CHARGE Syndrome Doctors near Madison, WI

Last Updated: 02/22/2026

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MediFind found 9 doctor with experience in CHARGE Syndrome near Madison, WI. Of these, 8 are Experienced and 1 are Advanced.

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9 providers found
    Roger Kulstad
    Experienced in CHARGE Syndrome
    Endocrinology | Internal Medicine
    Experienced in CHARGE Syndrome
    Endocrinology | Internal Medicine

    SSM Health Dean Medical Group Specialty Services

    1821 S. Stoughton Road, 
    Madison, WI 
     (4.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    "Dr. Kulstad is board certified in endocrinology, diabetes, and metabolism, pediatrics and adolescent medicine, and internal medicine. He earned his medical degree from Instituto Technologico de Santo Domingo in Santo Domingo, Dominican Republic. He completed his residency in internal medicine and pediatrics at Marshfield Clinic in Marshfield, WI and his fellowship in adult endocrinology and metabolism at the University of Wisconsin Hospital and Clinics-Madison. Dr. Kulstad practices at SSM Health Dean Medical Group in Baraboo, Beaver Dam, and Janesville, WI. He also sees patients at SSM Health St. Clare Hospital in Baraboo, SSM Health St. Mary's Hospital in Janesville, and at Columbus Community Hospital in Columbus. Dr. Kulstad is a member of the Endocrine Society, the American Association of Clinical Endocrinologists, the American Thyroid Association, the American Diabetes Association, and the National Lipid Association. He is also a member of the American College of Physicians, the American Academy of Pediatrics, and the National Med-Peds Residency Association. In his free time, Dr. Kulstad enjoys spending time with his wife and children, bilingual education and language acquisition, and bicultural child development. He is bilingual in Spanish. Dr. Kulstad also enjoys hiking, canoeing, wood splitting, woodworking, running, digital photography and editing, travel, and reading. He is interested in environmental conservation and green energy technology. ""I am most concerned with identifying what is important to the patient and how their condition affects them. In connecting with my patients, I emphasize that the goal is not perfection, such as perfect glucose levels, but to make sure that my patients can achieve the things in life that are important to them and without their medical condition holding them back."" - Roger Kulstad, MD". Dr. Kulstad is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Thyroid Cancer, Anaplastic Thyroid Cancer, Hyperparathyroidism, and Parathyroid Hyperplasia.

    Blaise Nemeth
    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    American Family Children's Hospital

    1675 Highland Ave, 
    Madison, WI 
     (1.7 miles away)
    Languages Spoken:
    English

    Blaise Nemeth is a Pediatrics provider in Madison, Wisconsin. Dr. Nemeth is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Clubfoot, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Scoliosis, and Tenotomy.

    Advanced in CHARGE Syndrome
    Ophthalmology
    Advanced in CHARGE Syndrome
    Ophthalmology

    UW Health Remote Dispensing Services

    2880 University Ave, 
    Madison, WI 
     (1.9 miles away)
    Languages Spoken:
    English

    Kimberly Stepien is an Ophthalmologist in Madison, Wisconsin. Dr. Stepien is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Usher Syndrome, Choroideremia, Stargardt Macular Degeneration, and Jalili Syndrome.

    Learn about our expert tiers
    Experienced in CHARGE Syndrome
    General Surgery | Pediatric Surgery
    Experienced in CHARGE Syndrome
    General Surgery | Pediatric Surgery

    SSM Health Dean Medical Group - General Surgery

    700 S. Park St., 
    Madison, WI 
     (0.9 miles away)
    Languages Spoken:
    English

    Sarah Tracy is a General Surgeon and a Pediatric Surgeon in Madison, Wisconsin. Dr. Tracy is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Esophageal Atresia, Hernia, Congenital Diaphragmatic Hernia, Diaphragmatic Hernia, and Appendectomy.

    Experienced in CHARGE Syndrome
    General Surgery
    Experienced in CHARGE Syndrome
    General Surgery

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    David Zopf is a General Surgeon in Madison, Wisconsin. Dr. Zopf is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Microtia, Velopharyngeal Insufficiency, Laryngeal Cleft, Adenoidectomy, and Myringotomy.

    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    American Family Children's Hospital

    1675 Highland Ave, 
    Madison, WI 
     (1.7 miles away)
    Languages Spoken:
    English

    Derek Spindler is a Pediatrics provider in Madison, Wisconsin. Dr. Spindler is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Delayed Growth, Rotor Syndrome, Malnutrition, and Microcephaly Deafness Syndrome.

    Experienced in CHARGE Syndrome
    Medical Genetics | Pediatrics
    Experienced in CHARGE Syndrome
    Medical Genetics | Pediatrics
    1500 Highland Ave, 
    Madison, WI 
     (1.7 miles away)
    Languages Spoken:
    English

    David Wargowski is a Medical Genetics specialist and a Pediatrics provider in Madison, Wisconsin. Dr. Wargowski is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Ehlers-Danlos Syndrome (EDS).

    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    University Of Wisconsin Medical Foundation Inc

    2402 Winnebago St, 
    Madison, WI 
     (3.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Edwin Abel is a Urologist in Madison, Wisconsin. Dr. Abel is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Chromophobe Renal Cell Carcinoma, Ureterocele, Nephrectomy, and Reconstructive Urology Surgery. Dr. Abel is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Nephrology
    Experienced in CHARGE Syndrome
    Nephrology

    UW Health Kidney Clinic

    3034 Fish Hatchery Rd, 
    Fitchburg, WI 
     (3.3 miles away)
    Languages Spoken:
    English

    Micah Chan is a Nephrologist in Fitchburg, Wisconsin. Dr. Chan is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Acute Kidney Failure, Angioplasty, and Kidney Transplant.

    Showing 1-9 of 9

    Last Updated: 02/22/2026

    What is the definition of CHARGE Syndrome?

    CHARGE syndrome is a congenital condition (present from birth) that affects many areas of the body. CHARGE stands for coloboma, heart defect, atresia choanae (also known as choanal atresia), restricted growth and development, genital abnormality, and ear abnormality. Signs and symptoms vary among people with this condition; however, infants often have multiple medical conditions. The diagnosis of CHARGE syndrome is based on a combination of major and minor characteristics. In more than half of all cases, genetic changes in the CHD7 gene cause CHARGE syndrome. When caused by a genetic change in the CHD7 gene, it can be inherited in an autosomal dominant pattern; although most cases result from new (de novo) genetic changes in the gene and occur in people with no history of the condition in their family.

    When should I see a CHARGE Syndrome doctor near Madison, WI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CHARGE Syndrome doctor near Madison, WI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CHARGE Syndrome doctors near Madison, WI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CHARGE Syndrome doctors near Madison, WI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CHARGE Syndrome doctor near Madison, WI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CHARGE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CHARGE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CHARGE Syndrome doctor near Madison, WI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CHARGE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CHARGE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CHARGE Syndrome doctors near Madison, WI?

    Look for the filter feature on the left side of the CHARGE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CHARGE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CHARGE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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