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    Last Updated: 02/22/2026

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    MediFind found 40 doctor with experience in CLN5 Disease near Parkville, VIC. Of these, 35 are Experienced, 4 are Advanced and 1 are Distinguished.

    Location
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    40 providers found
      Advanced in CLN5 Disease

      Ingrid E. Scheffer
      Advanced in CLN5 Disease

      Ingrid E. Scheffer
      50 Flemington Rd, 
      Parkville, VIC, AU 
       (1.7 km away)

      Ingrid Scheffer practices in Parkville, Australia. Ms. Scheffer is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Myoclonic Epilepsy, West Syndrome, Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Advanced in CLN5 Disease

      Michael S. Hildebrand
      Advanced in CLN5 Disease

      Michael S. Hildebrand
      50 Flemington Rd, 
      Parkville, VIC, AU 
       (1.7 km away)

      Michael Hildebrand practices in Parkville, Australia. Mr. Hildebrand is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Mosaicism, Hypothalamic Hamartomas, Epilepsy, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

      Distinguished in CLN5 Disease

      Samuel F. Berkovic
      Distinguished in CLN5 Disease

      Samuel F. Berkovic
      245 Burgundy St, 
      Heidelberg, VIC, AU 
       (10.5 km away)

      Samuel Berkovic practices in Heidelberg, Australia. Mr. Berkovic is rated as a Distinguished expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Myoclonic Epilepsy, Epilepsy, Partial Familial Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Learn about our expert tiers
      Experienced in CLN5 Disease

      Irene Volitakis
      Experienced in CLN5 Disease

      Irene Volitakis
      Parkville, VIC, AU 
       (0.8 km away)

      Irene Volitakis practices in Parkville, Australia. Ms. Volitakis is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Batten Disease, CLN2 Disease, CLN5 Disease, and CLN1 Disease.

      Experienced in CLN5 Disease

      Clare J. Duncan
      Experienced in CLN5 Disease

      Clare J. Duncan
      Parkville, VIC, AU 
       (0.8 km away)

      Clare Duncan practices in Parkville, Australia. Ms. Duncan is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Batten Disease, and CLN2 Disease.

      Experienced in CLN5 Disease

      Peter J. Crouch
      Experienced in CLN5 Disease

      Peter J. Crouch
      Parkville, VIC, AU 
       (0.8 km away)

      Peter Crouch practices in Parkville, Australia. Mr. Crouch is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Restless Legs Syndrome, and Batten Disease.

      Experienced in CLN5 Disease

      Sarah J. Parker
      Experienced in CLN5 Disease

      Sarah J. Parker
      Parkville, VIC, AU 
       (0.8 km away)

      Sarah Parker practices in Parkville, Australia. Ms. Parker is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Batten Disease, CLN1 Disease, CLN3 Disease, and CLN5 Disease.

      Experienced in CLN5 Disease

      Lottie D. Morison
      Experienced in CLN5 Disease

      Lottie D. Morison
      Parkville, VIC, AU 
       (0.8 km away)

      Lottie Morison practices in Parkville, Australia. Ms. Morison is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Apraxia, Developmental Expressive Language Disorder, Dysarthria, and Trichorhinophalangeal Syndrome Type 1 (TRPS1).

      Experienced in CLN5 Disease

      Joanna A. Phipps
      Experienced in CLN5 Disease

      Joanna A. Phipps
      Parkville, VIC, AU 
       (0.8 km away)

      Joanna Phipps practices in Parkville, Australia. Ms. Phipps is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Diabetic Retinopathy, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and CLN3 Disease.

      Experienced in CLN5 Disease

      Linda J. Fothergill
      Experienced in CLN5 Disease

      Linda J. Fothergill
      Parkville, VIC, AU 
       (0.8 km away)

      Linda Fothergill practices in Parkville, Australia. Ms. Fothergill is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Respiratory Alkalosis, Malabsorption, Celiac Disease, and CLN3 Disease.

      Experienced in CLN5 Disease

      Angela T. Morgan
      Experienced in CLN5 Disease

      Angela T. Morgan
      50 Flemington Rd, 
      Parkville, VIC, AU 
       (1.7 km away)

      Angela Morgan practices in Parkville, Australia. Ms. Morgan is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Dysarthria, Developmental Expressive Language Disorder, Apraxia, and Schinzel-Giedion Syndrome.

      Experienced in CLN5 Disease

      Stefanie Eggers
      Experienced in CLN5 Disease

      Stefanie Eggers
      50 Flemington Road, 
      Melbourne, VIC, AU 
       (1.7 km away)

      Stefanie Eggers practices in Melbourne, Australia. Ms. Eggers is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Intersex, Rommen Mueller Sybert Syndrome, West Syndrome, and Myoclonic Epilepsy.

      Experienced in CLN5 Disease

      Cas P. Simons
      Experienced in CLN5 Disease

      Cas P. Simons
      50 Flemington Road, 
      Parkville, VIC, AU 
       (1.7 km away)

      Cas Simons practices in Parkville, Australia. Mr. Simons is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are CACH Syndrome, Leukodystrophy, Cerebellar Hypoplasia, and Spasticity.

      Experienced in CLN5 Disease

      Paul S. Donnelly
      Experienced in CLN5 Disease

      Paul S. Donnelly
      30 Flemington Road, 
      Parkville, VIC, AU 
       (2.3 km away)

      Paul Donnelly practices in Parkville, Australia. Mr. Donnelly is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Cerebral Hypoxia, and Alzheimer's Disease.

      Experienced in CLN5 Disease

      Erica L. Fletcher
      Experienced in CLN5 Disease

      Erica L. Fletcher
      Grattan St, 
      Parkville, VIC, AU 
       (3.0 km away)

      Erica Fletcher practices in Parkville, Australia. Ms. Fletcher is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinopathy Pigmentary Mental Retardation, and Ganglion Cyst.

      Experienced in CLN5 Disease

      Kirstan A. Vessey
      Experienced in CLN5 Disease

      Kirstan A. Vessey
      Grattan St, 
      Parkville, VIC, AU 
       (3.0 km away)

      Kirstan Vessey practices in Parkville, Australia. Ms. Vessey is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Diabetic Retinopathy, and Retinopathy Pigmentary Mental Retardation.

      Experienced in CLN5 Disease

      Andrew I. Jobling
      Experienced in CLN5 Disease

      Andrew I. Jobling
      Grattan Street, 
      Melbourne, VIC, AU 
       (3.0 km away)

      Andrew Jobling practices in Melbourne, Australia. Mr. Jobling is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Diabetic Retinopathy, and Vasoconstriction.

      Experienced in CLN5 Disease

      Marzena Walkiewicz
      Experienced in CLN5 Disease

      Marzena Walkiewicz
      Melbourne Austin Branch, 
      Melbourne, VIC, AU 
       (3.1 km away)

      Marzena Walkiewicz practices in Melbourne, Australia. Ms. Walkiewicz is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Mesothelioma, Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), and Small Cell Lung Cancer (SCLC).

      Experienced in CLN5 Disease

      Adam P. Vogel
      Experienced in CLN5 Disease

      Adam P. Vogel
      550 Swanston Street, 
      Carlton, VIC, AU 
       (3.3 km away)

      Adam Vogel practices in Carlton, Australia. Mr. Vogel is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Dysarthria, Hereditary Ataxia, Spinocerebellar Ataxia, and Drug Induced Dyskinesia.

      Experienced in CLN5 Disease

      Wendy E. Heywood
      Experienced in CLN5 Disease

      Wendy E. Heywood
      215 Franklin Street, 
      Melbourne, VIC, AU 
       (3.7 km away)

      Wendy Heywood practices in Melbourne, Australia. Ms. Heywood is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Fabry Disease, CLN3 Disease, CLN4 Disease, and CLN5 Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 40

      Last Updated: 02/22/2026

      What is the definition of CLN5 Disease?

      CLN5 disease is an inherited disorder that primarily affects the nervous system. The signs and symptoms of this condition can begin anytime between childhood and early adulthood, but they typically appear around age 5. Children with CLN5 disease often have normal development until they experience the first signs of the condition, which are usually problems with movement that might seem like clumsiness, and a loss of previously acquired motor skills (developmental regression). Other features of the condition include recurrent seizures that involve uncontrollable muscle jerks (myoclonic epilepsy), difficulty coordinating movements (ataxia), vision loss, speech problems, and a decline in intellectual function. The life expectancy of people with CLN5 disease varies; affected individuals usually survive into adolescence or mid-adulthood.

      When should I see a CLN5 Disease doctor near Parkville, VIC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CLN5 Disease doctor near Parkville, VIC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best CLN5 Disease doctor near Parkville, VIC?

      You can find a CLN5 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank CLN5 Disease doctors near Parkville, VIC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CLN5 Disease doctors near Parkville, VIC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CLN5 Disease doctor near Parkville, VIC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN5 Disease doctor search results page. 

      Why is it important to get a second opinion from a different CLN5 Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CLN5 Disease doctor near Parkville, VIC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CLN5 Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CLN5 Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CLN5 Disease doctors near Parkville, VIC?

      Look for the filter feature on the left side of the CLN5 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CLN5 Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the CLN5 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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