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    Last Updated: 01/09/2026

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    MediFind found 53 doctor with experience in CLN5 Disease near Switzerland. Of these, 50 are Experienced and 3 are Advanced.

    Location
    LocationClose
    53 providers found
      Advanced in CLN5 Disease

      Tosso Leeb
      Advanced in CLN5 Disease

      Tosso Leeb
      Bern, BE, CH 

      Tosso Leeb practices in Bern, Switzerland. Leeb is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. Their top areas of expertise are Congenital Mirror Movement Disorder, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Hypohidrotic Ectodermal Dysplasia, Linear Nevus Sebaceous Syndrome, and Herniated Disc Surgery.

      Advanced in CLN5 Disease

      Vidhya Jagannathan
      Advanced in CLN5 Disease

      Vidhya Jagannathan
      Bern, BE, CH 

      Vidhya Jagannathan practices in Bern, Switzerland. Ms. Jagannathan is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Congenital Mirror Movement Disorder, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Linear Nevus Sebaceous Syndrome, and L-2-Hydroxyglutaric Aciduria.

      Advanced in CLN5 Disease

      Robert Steinfeld
      Advanced in CLN5 Disease

      Robert Steinfeld
      Zurich, ZH, CH 

      Robert Steinfeld practices in Zurich, Switzerland. Mr. Steinfeld is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are CLN3 Disease, CLN1 Disease, CLN5 Disease, and CLN4 Disease.

      Learn about our expert tiers
      Experienced in CLN5 Disease

      Lisa M. Crowther
      Experienced in CLN5 Disease

      Lisa M. Crowther
      Zurich, ZH, CH 

      Lisa Crowther practices in Zurich, Switzerland. Ms. Crowther is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Cerebral Hypoxia, CLN3 Disease, CLN1 Disease, and CLN5 Disease.

      Experienced in CLN5 Disease

      Elisa Tinelli
      Experienced in CLN5 Disease

      Elisa Tinelli
      Zurich, ZH, CH 

      Elisa Tinelli practices in Zurich, Switzerland. Ms. Tinelli is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are CLN5 Disease, CLN3 Disease, CLN1 Disease, and CLN4 Disease.

      Experienced in CLN5 Disease

      Margarita G. Todorova
      Experienced in CLN5 Disease

      Margarita G. Todorova
      Zurich, ZH, CH 

      Margarita Todorova practices in Zurich, Switzerland. Ms. Todorova is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

      Experienced in CLN5 Disease

      Jingjing Zang
      Experienced in CLN5 Disease

      Jingjing Zang
      Zurich, ZH, CH 

      Jingjing Zang practices in Zurich, Switzerland. Zang is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Their top areas of expertise are Retinopathy Pigmentary Mental Retardation, Bardet-Biedl Syndrome, Usher Syndrome, and CLN4 Disease.

      Experienced in CLN5 Disease

      Michaela Drogemuller
      Experienced in CLN5 Disease

      Michaela Drogemuller
      Bern, BE, CH 

      Michaela Drogemuller practices in Bern, Switzerland. Ms. Drogemuller is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Cerebellar Hypoplasia, Myoclonic Epilepsy, Bernard-Soulier Syndrome, and Leigh Syndrome.

      Experienced in CLN5 Disease

      Cord Drogemuller
      Experienced in CLN5 Disease

      Cord Drogemuller
      Bern, BE, CH 

      Cord Drogemuller practices in Bern, Switzerland. Mr. Drogemuller is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Lung Agenesis, Achondrogenesis, Continuous Muscle Fiber Activity Hereditary, Isaacs' Syndrome, and Herniated Disc Surgery.

      Experienced in CLN5 Disease

      Matthias Christen
      Experienced in CLN5 Disease

      Matthias Christen
      Bern, BE, CH 

      Matthias Christen practices in Bern, Switzerland. Mr. Christen is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are L-2-Hydroxyglutaric Aciduria, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Acute Cerebellar Ataxia, and Piebaldism.

      Experienced in CLN5 Disease

      Isabelle Schmutz
      Experienced in CLN5 Disease

      Isabelle Schmutz
      Bern, BE, CH 

      Isabelle Schmutz practices in Bern, Switzerland. Ms. Schmutz is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Batten Disease, CLN2 Disease, CLN5 Disease, and CLN3 Disease.

      Experienced in CLN5 Disease

      Richard D. Welford
      Experienced in CLN5 Disease

      Richard D. Welford
      Allschwil, BL, CH 

      Richard Welford practices in Allschwil, Switzerland. Mr. Welford is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Experienced in CLN5 Disease

      Eline Vrieseling-Pecho
      Experienced in CLN5 Disease

      Eline Vrieseling-Pecho
      Basel, BS, CH 

      Eline Vrieseling-Pecho practices in Basel, Switzerland. Ms. Vrieseling-Pecho is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are Huntington Disease, Batten Disease, CLN2 Disease, and CLN3 Disease.

      Experienced in CLN5 Disease

      Konstantinos Varvagiannis
      Experienced in CLN5 Disease

      Konstantinos Varvagiannis
      Geneve, GE, CH 

      Konstantinos Varvagiannis practices in Geneve, Switzerland. Mr. Varvagiannis is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Myoclonic Epilepsy, Progressive Myoclonic Epilepsy, Dysgraphia, and Batten Disease.

      Experienced in CLN5 Disease

      Peter A. Groenen
      Experienced in CLN5 Disease

      Peter A. Groenen
      Allschwil, BL, CH 

      Peter Groenen practices in Allschwil, Switzerland. Mr. Groenen is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Eosinophilic Asthma, GM1 Gangliosidosis, Niemann-Pick Disease, and Tay-Sachs Disease.

      Experienced in CLN5 Disease

      Silvia Arber
      Experienced in CLN5 Disease

      Silvia Arber
      Basel, BS, CH 

      Silvia Arber practices in Basel, Switzerland. Ms. Arber is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her top areas of expertise are CLN3 Disease, CLN1 Disease, CLN5 Disease, and CLN4 Disease.

      Experienced in CLN5 Disease

      Andreas Luthi
      Experienced in CLN5 Disease

      Andreas Luthi
      Basel, BS, CH 

      Andreas Luthi practices in Basel, Switzerland. Mr. Luthi is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Epidural Abscess, Autism Spectrum Disorder, CLN3 Disease, and CLN1 Disease.

      Experienced in CLN5 Disease

      Joel Fluss
      Experienced in CLN5 Disease

      Joel Fluss
      Geneve, GE, CH 

      Joel Fluss practices in Geneve, Switzerland. Mr. Fluss is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Myoclonic Epilepsy, Spastic Diplegia Infantile Type, Cerebral Palsy, and Stroke.

      Experienced in CLN5 Disease

      Peter C. Rimensberger
      Experienced in CLN5 Disease

      Peter C. Rimensberger
      Geneve, GE, CH 

      Peter Rimensberger practices in Geneve, Switzerland. Mr. Rimensberger is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His top areas of expertise are Infant Respiratory Distress Syndrome, Acute Respiratory Distress Syndrome (ARDS), Premature Infant, and Multisystem Inflammatory Syndrome in Children (MIS-C).

      Experienced in CLN5 Disease

      Siv Fokstuen
      Experienced in CLN5 Disease

      Siv Fokstuen
      Geneve, GE, CH 

      Siv Fokstuen practices in Geneve, Switzerland. Fokstuen is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Their top areas of expertise are Supernumerary Nipples, Cardiomyopathy, Dilated Cardiomyopathy (DCM), and Arrhythmogenic Right Ventricular Cardiomyopathy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 53

      Last Updated: 01/09/2026

      What is the definition of CLN5 Disease?

      CLN5 disease is an inherited disorder that primarily affects the nervous system. The signs and symptoms of this condition can begin anytime between childhood and early adulthood, but they typically appear around age 5. Children with CLN5 disease often have normal development until they experience the first signs of the condition, which are usually problems with movement that might seem like clumsiness, and a loss of previously acquired motor skills (developmental regression). Other features of the condition include recurrent seizures that involve uncontrollable muscle jerks (myoclonic epilepsy), difficulty coordinating movements (ataxia), vision loss, speech problems, and a decline in intellectual function. The life expectancy of people with CLN5 disease varies; affected individuals usually survive into adolescence or mid-adulthood.

      When should I see a CLN5 Disease doctor in Switzerland?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CLN5 Disease doctor in Switzerland?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best CLN5 Disease doctor in Switzerland?

      You can find a CLN5 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank CLN5 Disease doctors in Switzerland?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CLN5 Disease doctors in Switzerland?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CLN5 Disease doctor in Switzerland?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN5 Disease doctor search results page. 

      Why is it important to get a second opinion from a different CLN5 Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CLN5 Disease doctor in Switzerland?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CLN5 Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CLN5 Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CLN5 Disease doctors in Switzerland?

      Look for the filter feature on the left side of the CLN5 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CLN5 Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the CLN5 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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