The 20 Best CLN5 Disease Doctors Near Me in Giessen, HE

Find the Top CLN5 Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 12 doctor with experience in CLN5 Disease near Giessen, HE. Of these, 11 are Experienced and 1 are Advanced.

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12 providers found
    Experienced in CLN5 Disease

    Christiane Herden
    Experienced in CLN5 Disease

    Christiane Herden
    Frankfurter Str. 96, 
    Giessen, HE, DE 
     (0.4 km away)

    Christiane Herden practices practicing medicine in Giessen, Germany. Ms. Herden is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Rat-Bite Fever, Encephalitis, Cerebral Hypoxia, and Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius.

    Advanced in CLN5 Disease

    Antje Banning
    Advanced in CLN5 Disease

    Antje Banning
    Giessen, HE, DE 
     (0.4 km away)

    Antje Banning practices practicing medicine in Giessen, Germany. Ms. Banning is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Aspartylglucosaminuria, CLN4 Disease, CLN3 Disease, and CLN1 Disease.

    Experienced in CLN5 Disease

    Kernt I. Kohler
    Experienced in CLN5 Disease

    Kernt I. Kohler
    Frankfurter Str. 96, 
    Giessen, HE, DE 
     (0.4 km away)

    Kernt Kohler practices practicing medicine in Giessen, Germany. Kohler is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Glossitis, Hydranencephaly, Triple A Syndrome, and Horner Syndrome.

    Learn about our expert tiers
    Experienced in CLN5 Disease

    Ritva Tikkanen
    Experienced in CLN5 Disease

    Ritva Tikkanen
    Giessen, HE, DE 
     (0.4 km away)

    Ritva Tikkanen practices practicing medicine in Giessen, Germany. Tikkanen is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Aspartylglucosaminuria, Pemphigus Vulgaris, Pemphigus, and Pemphigus Foliaceus.

    Experienced in CLN5 Disease

    Markus N. Preising
    Experienced in CLN5 Disease

    Markus N. Preising
    Giessen, HE, DE 
     (0.4 km away)

    Markus Preising practices practicing medicine in Giessen, Germany. Mr. Preising is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses X-Linked Infantile Nystagmus, X-Linked Congenital Stationary Night Blindness, Late-Onset Retinal Degeneration, Color Blindness, and Vitrectomy.

    Experienced in CLN5 Disease

    Birgit Lorenz
    Experienced in CLN5 Disease

    Birgit Lorenz
    Giessen, HE, DE 
     (0.4 km away)

    Birgit Lorenz practices practicing medicine in Giessen, Germany. Ms. Lorenz is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses X-Linked Infantile Nystagmus, Late-Onset Retinal Degeneration, Retinopathy of Prematurity, Vitrectomy, and Cataract Removal.

    Experienced in CLN5 Disease

    Werner Hecht
    Experienced in CLN5 Disease

    Werner Hecht
    Giessen, HE, DE 
     (0.4 km away)

    Werner Hecht practices practicing medicine in Giessen, Germany. Mr. Hecht is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His clinical expertise encompasses CLN3 Disease, CLN4 Disease, CLN2 Disease, and CLN5 Disease.

    Experienced in CLN5 Disease

    Anna T. Zakrzewicz
    Experienced in CLN5 Disease

    Anna T. Zakrzewicz
    Giessen, HE, DE 
     (0.4 km away)

    Anna Zakrzewicz practices practicing medicine in Giessen, Germany. Ms. Zakrzewicz is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Pemphigus, Pemphigus Foliaceus, Pemphigus Vulgaris, and Sialuria.

    Experienced in CLN5 Disease

    Melanie Jager
    Experienced in CLN5 Disease

    Melanie Jager
    Giessen, HE, DE 
     (0.4 km away)

    Melanie Jager practices practicing medicine in Giessen, Germany. Ms. Jager is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her clinical expertise encompasses Rhabdoid Tumor, Retinopathy of Prematurity, CLN4 Disease, and CLN5 Disease.

    Experienced in CLN5 Disease

    Anne Schanzer
    Experienced in CLN5 Disease

    Anne Schanzer
    Giessen, HE, DE 
     (0.4 km away)

    Anne Schanzer practices practicing medicine in Giessen, Germany. Ms. Schanzer is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, RASopathies, Noonan Syndrome, Myositis, and Heart Transplant.

    Experienced in CLN5 Disease

    Manuela Hirz
    Experienced in CLN5 Disease

    Manuela Hirz
    Frankfurter Str. 110, 
    Giessen, HE, DE 
     (1.8 km away)

    Manuela Hirz practices practicing medicine in Giessen, Germany. Ms. Hirz is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her clinical expertise encompasses Rhabdomyolysis, CLN4 Disease, CLN2 Disease, and CLN3 Disease.

    Experienced in CLN5 Disease

    Martin J. Schmidt
    Experienced in CLN5 Disease

    Martin J. Schmidt
    Frankfurter Str. 108, 
    Giessen, HE, DE 
     (1.9 km away)

    Martin Schmidt practices practicing medicine in Giessen, Germany. Mr. Schmidt is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses VLDLR-Associated Cerebellar Hypoplasia, Hydrocephalus, Cerebellar Hypoplasia, Syringomyelia, and Laminectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-12 of 12

    Last Updated: 04/28/2026

    What is the definition of CLN5 Disease?

    CLN5 disease is an inherited disorder that primarily affects the nervous system. The signs and symptoms of this condition can begin anytime between childhood and early adulthood, but they typically appear around age 5. Children with CLN5 disease often have normal development until they experience the first signs of the condition, which are usually problems with movement that might seem like clumsiness, and a loss of previously acquired motor skills (developmental regression). Other features of the condition include recurrent seizures that involve uncontrollable muscle jerks (myoclonic epilepsy), difficulty coordinating movements (ataxia), vision loss, speech problems, and a decline in intellectual function. The life expectancy of people with CLN5 disease varies; affected individuals usually survive into adolescence or mid-adulthood.

    When should I see a CLN5 Disease doctor near Giessen, HE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CLN5 Disease doctor near Giessen, HE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best CLN5 Disease doctor near Giessen, HE?

    You can find a CLN5 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank CLN5 Disease doctors near Giessen, HE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CLN5 Disease doctors near Giessen, HE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CLN5 Disease doctor near Giessen, HE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN5 Disease doctor search results page. 

    Why is it important to get a second opinion from a different CLN5 Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CLN5 Disease doctor near Giessen, HE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CLN5 Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CLN5 Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CLN5 Disease doctors near Giessen, HE?

    Look for the filter feature on the left side of the CLN5 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CLN5 Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the CLN5 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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