The 20 Best CLN5 Disease Doctors Near Me in North Rhine-Westphalia, DE

Find the Top CLN5 Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 26 doctor with experience in CLN5 Disease near North Rhine-Westphalia, DE. Of these, 23 are Experienced and 3 are Advanced.

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26 providers found
    Advanced in CLN5 Disease

    Thomas Langmann
    Advanced in CLN5 Disease

    Thomas Langmann
    Referral may be required
    Koeln, NW, DE 

    Thomas Langmann practices practicing medicine in Koeln, Germany. Mr. Langmann is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

    Advanced in CLN5 Disease

    Andre A. Marques
    Advanced in CLN5 Disease

    Andre A. Marques
    Referral may be required
    Koeln, NW, DE 

    Andre Marques practices practicing medicine in Koeln, Germany. Mr. Marques is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Farber Lipogranulomatosis, Krabbe Disease, CLN1 Disease, and CLN3 Disease.

    Advanced in CLN5 Disease

    Enzo Scifo
    Advanced in CLN5 Disease

    Enzo Scifo
    Referral may be required
    Bonn, NW, DE 

    Enzo Scifo practices practicing medicine in Bonn, Germany. Mr. Scifo is rated as an Advanced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses CLN3 Disease, CLN4 Disease, CLN5 Disease, and CLN1 Disease.

    Learn about our expert tiers
    Experienced in CLN5 Disease

    Stefan John-Rose
    Experienced in CLN5 Disease

    Stefan John-Rose
    Referral may be required
    St. Josef Hospital, 
    Bochum, NW, DE 

    Stefan John-Rose practices practicing medicine in Bochum, Germany. Mr. John-Rose is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Obesity, Mucolipidosis Type 4, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, CLN5 Disease, and Osteotomy.

    Experienced in CLN5 Disease

    Melanie Thelen
    Experienced in CLN5 Disease

    Melanie Thelen
    Referral may be required
    Koeln, NW, DE 

    Melanie Thelen practices practicing medicine in Koeln, Germany. Ms. Thelen is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Mucolipidosis Type 4, CLN1 Disease, CLN3 Disease, and CLN4 Disease.

    Experienced in CLN5 Disease

    Johannes K. Knobloch
    Experienced in CLN5 Disease

    Johannes K. Knobloch
    Referral may be required
    Walter Flex Str. 3, 
    Siegen, NW, DE 

    Johannes Knobloch practices practicing medicine in Siegen, Germany. Mr. Knobloch is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His clinical expertise encompasses D-Plus Hemolytic Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, and Severe Acute Respiratory Syndrome (SARS).

    Experienced in CLN5 Disease

    Hans R. Scholer
    Experienced in CLN5 Disease

    Hans R. Scholer
    Referral may be required
    Muenster, NW, DE 

    Hans Scholer practices practicing medicine in Muenster, Germany. Mr. Scholer is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Pelizaeus-Merzbacher Disease, Retinal Vasculopathy with Cerebral Leukodystrophy, Hairy Cell Leukemia (HCL), and Denys-Drash Syndrome (DDS).

    Experienced in CLN5 Disease

    Max Anstotz
    Experienced in CLN5 Disease

    Max Anstotz
    Referral may be required
    Duesseldorf, NW, DE 

    Max Anstotz practices practicing medicine in Duesseldorf, Germany. Mr. Anstotz is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. His clinical expertise encompasses CLN3 Disease, CLN4 Disease, CLN5 Disease, and CLN1 Disease.

    Experienced in CLN5 Disease

    Katharina Dannhausen
    Experienced in CLN5 Disease

    Katharina Dannhausen
    Referral may be required
    Koeln, NW, DE 

    Katharina Dannhausen practices practicing medicine in Koeln, Germany. Ms. Dannhausen is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and CLN1 Disease.

    Experienced in CLN5 Disease

    Daniel Bender
    Experienced in CLN5 Disease

    Daniel Bender
    Referral may be required
    Koeln, NW, DE 

    Daniel Bender practices practicing medicine in Koeln, Germany. Mr. Bender is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Sulfite Oxidase Deficiency, CLN5 Disease, CLN3 Disease, and CLN1 Disease.

    Experienced in CLN5 Disease

    Nahal Ahmadinejad-Brocke
    Experienced in CLN5 Disease

    Nahal Ahmadinejad-Brocke
    Referral may be required
    Duesseldorf, NW, DE 

    Nahal Ahmadinejad-Brocke practices practicing medicine in Duesseldorf, Germany. Ms. Ahmadinejad-Brocke is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her clinical expertise encompasses CLN3 Disease, CLN4 Disease, CLN5 Disease, and CLN1 Disease.

    Experienced in CLN5 Disease

    Carsten Korth
    Experienced in CLN5 Disease

    Carsten Korth
    Referral may be required
    Duesseldorf, NW, DE 

    Carsten Korth practices practicing medicine in Duesseldorf, Germany. Mr. Korth is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Schizophrenia, Alzheimer's Disease, Dementia, and Parkinson's Disease.

    Experienced in CLN5 Disease

    Dagmar Zeuschner
    Experienced in CLN5 Disease

    Dagmar Zeuschner
    Referral may be required
    Von Esmarch Str. 54, 
    Muenster, NW, DE 

    Dagmar Zeuschner practices practicing medicine in Muenster, Germany. Ms. Zeuschner is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her clinical expertise encompasses Retinal Vasculopathy with Cerebral Leukodystrophy, CLN1 Disease, CLN3 Disease, and CLN4 Disease.

    Experienced in CLN5 Disease

    Caroline May
    Experienced in CLN5 Disease

    Caroline May
    Referral may be required
    St. Josef Hospital, 
    Bochum, NW, DE 

    Caroline May practices practicing medicine in Bochum, Germany. Ms. May is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Parkinson's Disease, and Movement Disorders.

    Experienced in CLN5 Disease

    Boris Zernikow
    Experienced in CLN5 Disease

    Boris Zernikow
    Referral may be required
    Dr. Friedrich Steiner Str. 5, 
    Datteln, NW, DE 

    Boris Zernikow practices practicing medicine in Datteln, Germany. Mr. Zernikow is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Chronic Pain, Acute Pain, Headache, and Complex Regional Pain Syndrome.

    Experienced in CLN5 Disease

    Svenja Caspers
    Experienced in CLN5 Disease

    Svenja Caspers
    Referral may be required
    Wilhelm Johnen Str, 
    Juelich, NW, DE 

    Svenja Caspers practices practicing medicine in Juelich, Germany. Caspers is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Movement Disorders, Parkinson's Disease, Schizophrenia, and Agyria Pachygyria Polymicrogyria.

    Experienced in CLN5 Disease

    Maren D. Lange
    Experienced in CLN5 Disease

    Maren D. Lange
    Referral may be required

    Mathias Spital Rheine

    Rheine, NW, DE 

    Maren Lange practices practicing medicine in Rheine, Germany. Ms. Lange is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Her clinical expertise encompasses Bowel Incontinence, Erb's Palsy, CLN3 Disease, and CLN4 Disease.

    Experienced in CLN5 Disease

    Holm Zaehres
    Experienced in CLN5 Disease

    Holm Zaehres
    Referral may be required
    Bochum, NW, DE 

    Holm Zaehres practices practicing medicine in Bochum, Germany. Zaehres is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Their clinical expertise encompasses Retinal Vasculopathy with Cerebral Leukodystrophy, Pompe Disease, Frontotemporal Dementia, and Becker Muscular Dystrophy.

    Experienced in CLN5 Disease

    Marc D. Sylvester
    Experienced in CLN5 Disease

    Marc D. Sylvester
    Referral may be required
    Bonn, NW, DE 

    Marc Sylvester practices practicing medicine in Bonn, Germany. Mr. Sylvester is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Glutaric Acidemia Type 1.

    Experienced in CLN5 Disease

    Kay Hofmann
    Experienced in CLN5 Disease

    Kay Hofmann
    Referral may be required
    Zülpicher Str. 47a, 
    Koeln, NW, DE 

    Kay Hofmann practices practicing medicine in Koeln, Germany. Hofmann is rated as an Experienced expert by MediFind in the treatment of CLN5 Disease. Their clinical expertise encompasses Epidermodysplasia Verruciformis, Chlamydia, Warts, and CLN5 Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 26

    Last Updated: 06/30/2026

    What is the definition of CLN5 Disease?

    CLN5 disease is an inherited disorder that primarily affects the nervous system. The signs and symptoms of this condition can begin anytime between childhood and early adulthood, but they typically appear around age 5. Children with CLN5 disease often have normal development until they experience the first signs of the condition, which are usually problems with movement that might seem like clumsiness, and a loss of previously acquired motor skills (developmental regression). Other features of the condition include recurrent seizures that involve uncontrollable muscle jerks (myoclonic epilepsy), difficulty coordinating movements (ataxia), vision loss, speech problems, and a decline in intellectual function. The life expectancy of people with CLN5 disease varies; affected individuals usually survive into adolescence or mid-adulthood.

    When should I see a CLN5 Disease doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CLN5 Disease doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best CLN5 Disease doctor in North Rhine-Westphalia, DE?

    You can find a CLN5 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank CLN5 Disease doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CLN5 Disease doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CLN5 Disease doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN5 Disease doctor search results page. 

    Why is it important to get a second opinion from a different CLN5 Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CLN5 Disease doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CLN5 Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CLN5 Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CLN5 Disease doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the CLN5 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CLN5 Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the CLN5 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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