Clouston SyndromeSymptoms, Doctors, Treatments, Advances & More
Clouston Syndrome Overview
Learn About Clouston Syndrome
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However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.
Holm Schneider practices practicing medicine in Erlangen, Germany. Schneider is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Hypohidrotic Ectodermal Dysplasia, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.
Children's Hospital Primary Care Center (CHPCC)
Eli Sprecher is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Ectodermal Dysplasias, Aplasia Cutis Congenita, Clouston Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome.
Summary: The goal of this research study is to identify genes and regulatory elements on chromosomes that cause ACC. The investigators also study tissue samples from patients to learn about the processes that lead to this disorder.
Summary: Objective With this prospective natural experiment trial on neurofibromatosis type 2 (NF2) study, we hope to understand the factors leading to tumor progression and neurological disease burden in NF2. Study Population A total of 269 participants, ages 8-75, with a clinical or genetic diagnosis of NF2 will participate in this study. Design Study participants will be evaluated with a thorough physic...