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    Last Updated: 02/22/2026

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    MediFind found 7152 doctor with experience in Clouston Syndrome. Of these, 6541 are Experienced, 503 are Advanced, 96 are Distinguished and 12 are Elite.

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    7,152 providers found
      Elite in Clouston Syndrome
      Elite in Clouston Syndrome

      Office

      1701 Divisadero St # 340, 
      San Francisco, CA 
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics provider in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Erlangen, BY, DE 

      Holm Schneider practices in Erlangen, Germany. Schneider is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Clouston Syndrome, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Elite in Clouston Syndrome
      Pediatrics
      Elite in Clouston Syndrome
      Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Eli Sprecher is a Pediatrics provider in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Sprecher is currently accepting new patients.

      Learn about our expert tiers
      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Dijon, FR 

      Pierre Vabres practices in Dijon, France. Mr. Vabres is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Hypomelanosis of Ito.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Interlenkin Genetrics, Inc., 135 Beaver Street, 
      Waltham, MA 
      Languages Spoken:
      English

      Kenneth Huttner is a Neonatologist in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Noonan Syndrome, RASopathies, Syndactyly, and Acromicric Dysplasia.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      London, ENG, GB 

      Veronica Kinsler practices in London, United Kingdom. Ms. Kinsler is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Mosaicism, Phacomatosis Pigmentovascularis, and Clouston Syndrome.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Leuven, VLG, BE 

      Wim Wuyts practices in Leuven, Belgium. Wuyts is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Acute Interstitial Pneumonia, Interstitial Lung Disease, Pulmonary Fibrosis, Lung Transplant, and Endoscopy.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      CLAD Est, 
      Dijon, FR 

      Laurence Faivre practices in Dijon, France. Mr. Faivre is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cohen Syndrome, Achalasia Microcephaly Syndrome, Microcephaly, Hypotonia, and Orchiectomy.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Newcastle Upon Tyne, ENG, GB 

      Neil Rajan practices in Newcastle Upon Tyne, United Kingdom. Mr. Rajan is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adenoid Cystic Carcinoma, Eccrine Porocarcinoma, Phacomatosis Pigmentokeratotica, and Aplasia Cutis Congenita.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Florence, IT 

      Michele Callea practices in Florence, Italy. Callea is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      London, ENG, GB 

      Satyamaanasa Polubothu practices in London, United Kingdom. Polubothu is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Phacomatosis Pigmentovascularis, Giant Congenital Melanocytic Nevus, Mosaicism, and Linear Nevus Sebaceous Syndrome.

      Anita P. Bhansali
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Texas Health Neurosurgery And Spine Specialists

      800 5th Ave, Ste 500, 
      Fort Worth, TX 
      Languages Spoken:
      English
      Offers Telehealth

      Neurosurgeon Anita Bhansali, M.D., is fellowship-trained in functional neurosurgery from the esteemed Swedish Neuroscience Institute, which is a leader in the comprehensive clinical care of neurological disorders. She is a Fellow of the American Association of Neurological Surgeons. Dr. Bhansali's areas of specialization include the evaluation and treatment of functional neurosurgical disorders such as epilepsy, movement disorders, and pain syndromes. Her additional areas of special interest and focus include the treatment of cervical spine instability and degenerative spine disease, and deep brain and nerve stimulation for Parkinson's disease and other neurological conditions.Dr. Bhansali earned her medical degree at the University of Washington School of Medicine in Seattle. She completed her neurological surgery residency at the University of Chicago Medical Center in Illinois before going on to complete her fellowship training at the Swedish Neuroscience Institute, also in Seattle. She is published in numerous medical journals and publications on a wide variety of topics in neurosurgery. Dr. Bhansali is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Subarachnoid Hemorrhage, Chronic Subdural Hematoma, Delirium, Deep Brain Stimulation, and Gastrostomy.

      Sancy Leachman
      Distinguished in Clouston Syndrome
      Dermatology
      Distinguished in Clouston Syndrome
      Dermatology

      Primary Childrens Medical Center Dermatology

      100 N Mario Capecchi Dr, 
      Salt Lake City, UT 
      Languages Spoken:
      English
      Accepting New Patients

      Sancy Leachman is a Dermatologist in Salt Lake City, Utah. Dr. Leachman is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Pachyonychia Congenita, Sunburn, Aplasia Cutis Congenita, and Tissue Biopsy. Dr. Leachman is currently accepting new patients.

      Distinguished in Clouston Syndrome
      Pediatrics
      Distinguished in Clouston Syndrome
      Pediatrics

      Child And Adolescent Mental Health-Stanford Children's Health Specialty Services-Sunnyvale

      1195 W Fremont Ave, 
      Sunnyvale, CA 
      Languages Spoken:
      English

      Dawn Siegel is a Pediatrics provider in Sunnyvale, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Vascular Birthmark.

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome
      676 N St Clair St Ste 1600, Arkes Pavilion, 
      Chicago, IL 
      Experience:
      48+ years
      Languages Spoken:
      English

      Amy Paller is a Pediatrics provider in Chicago, Illinois. Dr. Paller has been practicing medicine for over 48 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Plaque Psoriasis, Discoid Lupus Erythematosus (DLE), and Gastrostomy.

      Distinguished in Clouston Syndrome
      Dermatology
      Distinguished in Clouston Syndrome
      Dermatology

      University Of Wisconsin Medical Foundation Inc

      1 S Park St, 
      Madison, WI 
      Languages Spoken:
      English

      Beth Drolet is a Dermatologist in Madison, Wisconsin. Dr. Drolet is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, Sternal Cleft, PHACE Syndrome, and Clouston Syndrome.

      Distinguished in Clouston Syndrome
      Dermatology
      Distinguished in Clouston Syndrome
      Dermatology

      U Of U Dermatology-Midvalley

      Murray, UT 
      Languages Spoken:
      English
      Accepting New Patients

      C Hansen is a Dermatologist in Murray, Utah. Dr. Hansen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pachyonychia Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita. Dr. Hansen is currently accepting new patients.

      Distinguished in Clouston Syndrome
      Pediatrics
      Distinguished in Clouston Syndrome
      Pediatrics

      Driscoll Children's Hospital

      3533 S Alameda St, 
      Corpus Christi, TX 
      Languages Spoken:
      English

      Denise Metry is a Pediatrics provider in Corpus Christi, Texas. Dr. Metry is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

      Distinguished in Clouston Syndrome
      Neuroradiology
      Distinguished in Clouston Syndrome
      Neuroradiology

      Kaiser Permanente Santa Clara Medical Center

      700 Lawrence Expy, 
      Santa Clara, CA 
      Experience:
      18+ years
      Languages Spoken:
      English

      Mark Mamlouk is a Neuroradiologist in Santa Clara, California. Dr. Mamlouk has been practicing medicine for over 18 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Cerebrospinal Fluid Leak, Aplasia Cutis Congenita, Clouston Syndrome, and Tissue Biopsy.

      Showing 1-20 of 7,152

      Last Updated: 02/22/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near me?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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