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    Last Updated: 10/30/2025

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    MediFind found 7139 doctor with experience in Clouston Syndrome. Of these, 6524 are Experienced, 507 are Advanced, 97 are Distinguished and 11 are Elite.

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    7,139 providers found
      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Erlangen, BY, DE 

      Holm Schneider practices in Erlangen, Germany. Schneider is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

      Elite in Clouston Syndrome
      Pediatrics
      Elite in Clouston Syndrome
      Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Eli Sprecher is a Pediatrics provider in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Sprecher is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Interlenkin Genetrics, Inc., 135 Beaver Street, 
      Waltham, MA 
      Languages Spoken:
      English

      Kenneth Huttner is a Neonatologist in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Learn about our expert tiers
      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Noonan Syndrome, RASopathies, Syndactyly, and Acromicric Dysplasia.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      London, ENG, GB 

      Veronica Kinsler practices in London, United Kingdom. Ms. Kinsler is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Mosaicism, Phacomatosis Pigmentovascularis, and Ectodermal Dysplasias.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Leuven, VLG, BE 

      Wim Wuyts practices in Leuven, Belgium. Wuyts is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Interstitial Lung Disease, Acute Interstitial Pneumonia, Pulmonary Fibrosis, Lung Transplant, and Endoscopy.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      CLAD Est, 
      Dijon, FR 

      Laurence Faivre practices in Dijon, France. Mr. Faivre is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cohen Syndrome, Achalasia Microcephaly Syndrome, Microcephaly, Hypotonia, and Orchiectomy.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Florence, IT 

      Michele Callea practices in Florence, Italy. Callea is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Newcastle Upon Tyne, ENG, GB 

      Neil Rajan practices in Newcastle Upon Tyne, United Kingdom. Mr. Rajan is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adenoid Cystic Carcinoma, Eccrine Porocarcinoma, Phacomatosis Pigmentokeratotica, and Aplasia Cutis Congenita.

      Elite in Clouston Syndrome
      Pediatrics | Dermatology
      Elite in Clouston Syndrome
      Pediatrics | Dermatology

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

      Elite in Clouston Syndrome
      Medical Genetics | Pediatrics
      Elite in Clouston Syndrome
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Grange is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Grange is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Barrett Zlotoff is a Dermatologist in Charlottesville, Virginia. Dr. Zlotoff is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Familial Multiple Nevi Flammei. Dr. Zlotoff is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Yale University

      800 Howard Ave, 
      New Haven, CT 
      Languages Spoken:
      English

      Keith Choate is a Dermatologist in New Haven, Connecticut. Dr. Choate is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Nonbullous Congenital Ichthyosiform Erythroderma, Darier Disease, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, and Lamellar Ichthyosis.

      Advanced in Clouston Syndrome
      Pediatric Allergy and Immunology | Pediatrics
      Advanced in Clouston Syndrome
      Pediatric Allergy and Immunology | Pediatrics
      630 W 168th St # St1, 
      New York, NY 
      Languages Spoken:
      English

      Jordan Orange is a Pediatric Allergy and Immunologist and a Pediatrics provider in New York, New York. Dr. Orange is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Common Variable Immune Deficiency, Infantile Neutropenia, Wiskott-Aldrich Syndrome, and Severe Combined Immunodeficiency (SCID).

      Richard C. Trembath
      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome
      London, ENG, GB 

      Richard Trembath practices in London, United Kingdom. Mr. Trembath is rated as a Distinguished expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Split Hand Foot Malformation.

      Sancy A. Leachman
      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      Dermatology Division University Of Utah Medical Center

      50 N Medical Dr, 
      Salt Lake City, UT 
      Languages Spoken:
      English
      Accepting New Patients

      Sancy Leachman is a Dermatologist in Salt Lake City, Utah. Dr. Leachman is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Pachyonychia Congenita, Aplasia Cutis Congenita, Clouston Syndrome, and Tissue Biopsy. Dr. Leachman is currently accepting new patients.

      Uwe Wollina
      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome
      Dresden, SN, DE 

      Uwe Wollina practices in Dresden, Germany. Mr. Wollina is rated as a Distinguished expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Epidermoid Cyst, Lipedema, Basal Cell Skin Cancer, Pyogenic Granuloma, and Abdominal Wall Surgery.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Polish, Spanish

      Lacey Kruse is a Dermatologist in Chicago, Illinois. Dr. Kruse is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Linear Hamartoma Syndrome, and Vascular Birthmark.

      Experienced in Clouston Syndrome
      Dermatology | General Surgery
      Experienced in Clouston Syndrome
      Dermatology | General Surgery

      Wk Dermatology Clinic

      2300 Hospital Dr, Suite 400, 
      Bossier City, LA 
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Baker is a Dermatologist and a General Surgeon in Bossier City, Louisiana. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Rosacea, Atopic Dermatitis, Actinic Keratosis, and Plaque Psoriasis. Dr. Baker is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neurology
      Experienced in Clouston Syndrome
      Neurology

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English, Portuguese, Spanish
      Accepting New Patients

      Jose Biller is a Neurologist in Maywood, Illinois. Dr. Biller is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, Transient Ischemic Attack (TIA), Thrombectomy, and Gastrostomy. Dr. Biller is currently accepting new patients.

      Showing 1-20 of 7,139

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near me?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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