The 20 Best Coach Syndrome Doctors Near Me in Portland, OR

Find the Top Coach Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 5 doctor with experience in Coach Syndrome near Portland, OR. Of these, 5 are Experienced.

Location
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5 providers found
    Experienced in Coach Syndrome
    Nurse Practitioner
    Experienced in Coach Syndrome
    Nurse Practitioner
    3181 Sw Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    April Anderson is a Nurse Practitioner practicing medicine in Portland, Oregon. Ms. Anderson is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her clinical expertise encompasses VLDLR-Associated Cerebellar Hypoplasia, Coach Syndrome, Orofaciodigital Syndrome 6, and Lissencephaly 2. Ms. Anderson is currently accepting new patients.

    Experienced in Coach Syndrome
    Pediatric Neurology
    Experienced in Coach Syndrome
    Pediatric Neurology

    Oregon Health Sciences University

    707 SW Gaines St, 
    Portland, OR 
     (1.4 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Jenny Wilson is a Pediatric Neurologist practicing medicine in Portland, Oregon. She has been practicing medicine for over 18 years. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Spastic Paraplegia Type 7, Hereditary Spastic Paraparesis, Aphantasia, and Wolf-Hirschhorn Syndrome.

    Experienced in Coach Syndrome
    Pediatrics
    Experienced in Coach Syndrome
    Pediatrics

    Randall Children's Development And Rehabilitation-A Department Of Legacy Emanuel Medical Center

    2801 N Gantenbein Ave Ste 2223, 
    Portland, OR 
     (1.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Carrie Jones is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Moebius Syndrome, Cerebral Palsy, Koolen De Vries Syndrome, and CHARGE Syndrome.

    Learn about our expert tiers
    Experienced in Coach Syndrome
    Pediatric Neurology
    Experienced in Coach Syndrome
    Pediatric Neurology

    Randall Children's Neurology

    501 N Graham St Ste 330A Office, 
    Portland, OR 
     (1.9 miles away)
    Languages Spoken:
    English

    Jennifer Huffman is a Pediatric Neurologist practicing medicine in Portland, Oregon. Dr. Huffman is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, Generalized Tonic-Clonic Seizure, and Absence Seizure.

    Experienced in Coach Syndrome
    Pediatric Neurology
    Experienced in Coach Syndrome
    Pediatric Neurology

    Randall Children's Neurology

    501 N Graham St Ste 330A Office, 
    Portland, OR 
     (1.9 miles away)
    Languages Spoken:
    English

    Alana Golden is a Pediatric Neurologist practicing medicine in Portland, Oregon. Dr. Golden is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Seizures, Memory Loss, Continuous Spike-Wave During Slow Sleep Syndrome, and Photosensitive Epilepsy.

    Showing 1-5 of 5

    Last Updated: 04/28/2026

    What is the definition of Coach Syndrome?

    COACH syndrome is a condition that mainly affects the brain and liver. Most individuals with COACH syndrome have intellectual disability, liver problems (fibrosis), and difficulty with movement (ataxia). Some may also have an abnormality of the eye (called a coloboma) or abnormal eye movements (such as nystagmus). This condition is inherited in an autosomal recessive manner; 70% of cases are thought to be caused by genetic changes in the TMEM67 gene. COACH syndrome is considered a rare form of another condition, Joubert syndrome.

    When should I see a Coach Syndrome doctor near Portland, OR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Coach Syndrome doctor near Portland, OR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Coach Syndrome doctors near Portland, OR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Coach Syndrome doctors near Portland, OR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Coach Syndrome doctor near Portland, OR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Coach Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Coach Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Coach Syndrome doctor near Portland, OR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Coach Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Coach Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Coach Syndrome doctors near Portland, OR?

    Look for the filter feature on the left side of the Coach Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Coach Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Coach Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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