The 20 Best Cockayne Syndrome Doctors Near Me

Find the Top Cockayne Syndrome Experts and Specialists

The 20 Best Cockayne Syndrome Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 1217 doctor with experience in Cockayne Syndrome. Of these, 979 are Experienced, 193 are Advanced, 37 are Distinguished and 8 are Elite.

Location
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1,217 providers found
    Elite in Cockayne Syndrome
    Neurology
    Elite in Cockayne Syndrome
    Neurology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Peter Kang is a Neurologist in Minneapolis, Minnesota. Dr. Kang is rated as an Elite provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome, Limb-Girdle Muscular Dystrophy, Cockayne Syndrome Type 1, Mononeuritis Multiplex, and Thymectomy.

    Elite in Cockayne Syndrome
    Elite in Cockayne Syndrome
    Strasbourg, FR 

    Vincent Laugel practices in Strasbourg, France. Mr. Laugel is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome, Cockayne Syndrome Type 2, Pena-Shokeir Syndrome Type 2, and Gastrostomy.

    Elite in Cockayne Syndrome
    Elite in Cockayne Syndrome
    Strasbourg, FR 

    Nadege Calmels practices in Strasbourg, France. Ms. Calmels is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Pena-Shokeir Syndrome Type 2.

    Learn about our expert tiers
    Elite in Cockayne Syndrome
    Elite in Cockayne Syndrome
    Nagoya, JP 

    Tomoo Ogi practices in Nagoya, Japan. Ogi is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome, Xeroderma Pigmentosum, Trichothiodystrophy, and Cockayne Syndrome Type 1.

    Elite in Cockayne Syndrome
    Elite in Cockayne Syndrome
    Duesseldorf, NW, DE 

    Jean Krutmann practices in Duesseldorf, Germany. Ms. Krutmann is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Melasma, Sunburn, and Cockayne Syndrome Type 1.

    Elite in Cockayne Syndrome
    Elite in Cockayne Syndrome
    Albert Einstein Allee 23, 
    Ulm, BW, DE 

    Sebastian Iben practices in Ulm, Germany. Mr. Iben is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 2, Cockayne Syndrome Type 1, and Trichothiodystrophy.

    Elite in Cockayne Syndrome
    Elite in Cockayne Syndrome
    Utrecht, UT, NL 

    Jan Hoeijmakers practices in Utrecht, Netherlands. Hoeijmakers is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome, Xeroderma Pigmentosum, and Pena-Shokeir Syndrome Type 2.

    Elite in Cockayne Syndrome
    Elite in Cockayne Syndrome
    Albert Einstein Allee 11, 
    Ulm, BW, DE 

    Karin Kochanek-Scharffetter practices in Ulm, Germany. Ms. Kochanek-Scharffetter is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Trichothiodystrophy, and Osteotomy.

    James W. Shine
    Experienced in Cockayne Syndrome
    Family Medicine
    Experienced in Cockayne Syndrome
    Family Medicine

    BHMA Inpatient Services- JCCH

    1901 S Shady St, Ste A, 
    Mountain City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Shine is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Osteoglophonic Dysplasia, Mulibrey Nanism, Wiedemann-Steiner Syndrome, and Dubowitz Syndrome.

    Xu-dong Zhu
    Distinguished in Cockayne Syndrome
    Distinguished in Cockayne Syndrome
    Hamilton, ON, CA 

    Xu-dong Zhu practices in Hamilton, Canada. Ms. Zhu is rated as a Distinguished expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 2, and Cockayne Syndrome Type 1.

    Dana Fletcher
    Advanced in Cockayne Syndrome
    Endocrinology
    Advanced in Cockayne Syndrome
    Endocrinology

    Doctor's Approach Dermatology & Laser Center PC

    2900 Hannah Blvd Ste 114, 
    East Lansing, MI 
    Languages Spoken:
    English

    Dana Fletcher is an Endocrinologist in East Lansing, Michigan. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Hypothyroidism, Obesity in Children, Cornelia De Lange Syndrome, and Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1).

    Sarah T. Arron
    Advanced in Cockayne Syndrome
    Dermatology
    Advanced in Cockayne Syndrome
    Dermatology
    Palo Alto, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Arron is a Dermatologist in Palo Alto, California. Dr. Arron is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Actinic Keratosis, and Cockayne Syndrome Type 1. Dr. Arron is currently accepting new patients.

    Advanced in Cockayne Syndrome
    Pediatric Cardiology
    Advanced in Cockayne Syndrome
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist in Minneapolis, Minnesota. Dr. Lohr is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Craniofrontonasal Dysplasia.

    Advanced in Cockayne Syndrome
    Endocrinology
    Advanced in Cockayne Syndrome
    Endocrinology

    Clinical Cancer Center-Froedtert Hospital

    8800 W Doyne Ave, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Gilbert Fareau is an Endocrinologist in Milwaukee, Wisconsin. Dr. Fareau is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Thyroid Cancer, Papillary Thyroid Cancer, Medullary Thyroid Carcinoma, Anaplastic Thyroid Cancer, and Thyroidectomy.

    Bhavin Shastri
    Advanced in Cockayne Syndrome
    Endocrinology
    Advanced in Cockayne Syndrome
    Endocrinology

    Aurora Endocrinology

    N84W16889 Menomonee Ave, 
    Menomonee Falls, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Bhavin Shastri is an Endocrinologist in Menomonee Falls, Wisconsin. Dr. Shastri is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Type 1 Diabetes (T1D), and Cockayne Syndrome.

    Andrew Sakiewicz
    Advanced in Cockayne Syndrome
    Advanced in Cockayne Syndrome

    West Valley Medical Building

    20455 Lorain Road, 
    Fairview Park, OH 
    Languages Spoken:
    English, German

    Andrew Sakiewicz is a Cardiologist in Fairview Park, Ohio. Dr. Sakiewicz is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Coronary Heart Disease, Angina, Atrial Fibrillation, and Atherosclerosis.

    Chun Lim
    Advanced in Cockayne Syndrome
    Neurology
    Advanced in Cockayne Syndrome
    Neurology

    BIDMC Department Of Neurology

    330 Brookline Avenue, Kirstein 253, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Chun Lim is a Neurologist in Boston, Massachusetts. Dr. Lim is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cerebellar Degeneration, Lewy Body Dementia (LBD), Memory Loss, and Alzheimer's Disease.

    Distinguished in Cockayne Syndrome
    Distinguished in Cockayne Syndrome
    Viterbo, IT 

    Elena Paccosi practices in Viterbo, Italy. Ms. Paccosi is rated as a Distinguished expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Werner Syndrome.

    Distinguished in Cockayne Syndrome
    Distinguished in Cockayne Syndrome
    Rome, IT 

    Barbara Pascucci practices in Rome, Italy. Ms. Pascucci is rated as a Distinguished expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 2, Cockayne Syndrome Type 1, and Xeroderma Pigmentosum.

    Distinguished in Cockayne Syndrome
    Internal Medicine
    Distinguished in Cockayne Syndrome
    Internal Medicine

    Mayo Clinic-Rochester

    5716 Cleveland St Ste 200, 
    Virginia Beach, VA 
    Languages Spoken:
    English

    Skylar Rizzo is a primary care provider, practicing in Internal Medicine in Virginia Beach, Virginia. Dr. Rizzo is rated as a Distinguished provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Myocarditis, Cardiomyopathy, and Xeroderma Pigmentosum.

    Showing 1-20 of 1,217

    Last Updated: 02/22/2026

    What is the definition of Cockayne Syndrome?

    Cockayne syndrome is a rare disorder characterized by an abnormally small head size (microcephaly), a failure to gain weight and grow at the expected rate (failure to thrive) leading to very short stature, and delayed development. The signs and symptoms of this condition are usually apparent from infancy, and they worsen over time. Most affected individuals have an increased sensitivity to sunlight (photosensitivity), and in some cases even a small amount of sun exposure can cause a sunburn or blistering of the skin. Other signs and symptoms often include hearing loss, vision loss, severe tooth decay, bone abnormalities, hands and feet that are cold all the time, and changes in the brain that can be seen on brain scans.

    When should I see a Cockayne Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cockayne Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Cockayne Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cockayne Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cockayne Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cockayne Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Cockayne Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cockayne Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cockayne Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cockayne Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cockayne Syndrome doctors near me?

    Look for the filter feature on the left side of the Cockayne Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cockayne Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Cockayne Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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