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    Last Updated: 01/09/2026

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    MediFind found 32 doctor with experience in Cockayne Syndrome near Baden-Wuerttemberg, DE. Of these, 25 are Experienced, 4 are Advanced, 2 are Distinguished and 1 are Elite.

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    32 providers found
      Elite in Cockayne Syndrome

      Sebastian Iben
      Elite in Cockayne Syndrome

      Sebastian Iben
      Albert Einstein Allee 23, 
      Ulm, BW, DE 

      Sebastian Iben practices in Ulm, Germany. Mr. Iben is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Trichothiodystrophy.

      Distinguished in Cockayne Syndrome

      Karin Kochanek-Scharffetter
      Distinguished in Cockayne Syndrome

      Karin Kochanek-Scharffetter
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Karin Kochanek-Scharffetter practices in Ulm, Germany. Ms. Kochanek-Scharffetter is rated as a Distinguished expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 1, Trichothiodystrophy, Cockayne Syndrome Type 2, and Osteotomy.

      Distinguished in Cockayne Syndrome

      Pallab Maity
      Distinguished in Cockayne Syndrome

      Pallab Maity
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Pallab Maity practices in Ulm, Germany. Maity is rated as a Distinguished expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome, Trichothiodystrophy, Cockayne Syndrome Type 1, and Cockayne Syndrome Type 2.

      Learn about our expert tiers
      Advanced in Cockayne Syndrome

      Marius C. Alupei
      Advanced in Cockayne Syndrome

      Marius C. Alupei
      Albert Einstein Allee 23, 
      Ulm, BW, DE 

      Marius Alupei practices in Ulm, Germany. Mr. Alupei is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 1, Xeroderma Pigmentosum, and Cockayne Syndrome Type 2.

      Advanced in Cockayne Syndrome

      Tamara N. Phan
      Advanced in Cockayne Syndrome

      Tamara N. Phan
      Albert Einstein Allee 23, 
      Ulm, BW, DE 

      Tamara Phan practices in Ulm, Germany. Ms. Phan is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Trichothiodystrophy, and Cockayne Syndrome.

      Advanced in Cockayne Syndrome

      Marc-alexander Rauschendorf
      Advanced in Cockayne Syndrome

      Marc-alexander Rauschendorf
      Heidelberg, BW, DE 

      Marc-alexander Rauschendorf practices in Heidelberg, Germany. Rauschendorf is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, and Waardenburg Syndrome.

      Advanced in Cockayne Syndrome

      Michael P. Schon
      Advanced in Cockayne Syndrome

      Michael P. Schon
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Michael Schon practices in Ulm, Germany. Mr. Schon is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Psoriasis, Pityriasis Rubra Pilaris, Adiposis Dolorosa, Creeping Eruption, and Hepato-Pancreato-Biliary Surgery.

      Experienced in Cockayne Syndrome

      Rosanna M. Parlato
      Experienced in Cockayne Syndrome

      Rosanna M. Parlato
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Rosanna Parlato practices in Ulm, Germany. Ms. Parlato is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Cockayne Syndrome Type 1, and Movement Disorders.

      Experienced in Cockayne Syndrome

      Stefan Kochanek
      Experienced in Cockayne Syndrome

      Stefan Kochanek
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Stefan Kochanek practices in Ulm, Germany. Mr. Kochanek is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Huntington Disease, Thrombophlebitis, Cockayne Syndrome, and Cockayne Syndrome Type 1.

      Experienced in Cockayne Syndrome

      Francesca Tuorto
      Experienced in Cockayne Syndrome

      Francesca Tuorto
      Mannheim, BW, DE 

      Francesca Tuorto practices in Mannheim, Germany. Ms. Tuorto is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Mitochondrial Complex V Deficiency, Cockayne Syndrome, Huntington Disease, and Cockayne Syndrome Type 1.

      Experienced in Cockayne Syndrome

      Robin Assfalg
      Experienced in Cockayne Syndrome

      Robin Assfalg
      Albert Einstein Allee 23, 
      Ulm, BW, DE 

      Robin Assfalg practices in Ulm, Germany. Assfalg is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome Type 1, Type 1 Diabetes (T1D), Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Cockayne Syndrome

      Sebastian Wiese
      Experienced in Cockayne Syndrome

      Sebastian Wiese
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Sebastian Wiese practices in Ulm, Germany. Mr. Wiese is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Primary Amyloidosis, Pertussis, Trichothiodystrophy, and Cockayne Syndrome Type 1.

      Experienced in Cockayne Syndrome

      Marc B. Sturm
      Experienced in Cockayne Syndrome

      Marc B. Sturm
      Hoppe Seyler Str. 3, 
      Tuebingen, BW, DE 

      Marc Sturm practices in Tuebingen, Germany. Mr. Sturm is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Spasticity, Spastic Paraplegia Type 5A, Hereditary Ataxia, Drug Induced Dyskinesia, and Gastrostomy.

      Experienced in Cockayne Syndrome

      Natalie Deininger
      Experienced in Cockayne Syndrome

      Natalie Deininger
      Hoppe Seyler Str. 3, 
      Tuebingen, BW, DE 

      Natalie Deininger practices in Tuebingen, Germany. Ms. Deininger is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Acute Cerebellar Ataxia, Andermann Syndrome, Spasticity, and Sensorimotor Polyneuropathy.

      Experienced in Cockayne Syndrome

      Saskia Biskup
      Experienced in Cockayne Syndrome

      Saskia Biskup
      Paul Ehrlich Str. 23, 
      Tuebingen, BW, DE 

      Saskia Biskup practices in Tuebingen, Germany. Ms. Biskup is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Camptodactyly Fibrous Tissue Hyperplasia Skeletal Dysplasia, Camptodactyly Syndrome Guadalajara Type 2, Camptodactyly Syndrome Guadalajara Type 1, Camptodactyly Taurinuria, and Gastrostomy.

      Experienced in Cockayne Syndrome

      Maren Rautenberg
      Experienced in Cockayne Syndrome

      Maren Rautenberg
      Tuebingen, BW, DE 

      Maren Rautenberg practices in Tuebingen, Germany. Ms. Rautenberg is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Andermann Syndrome, Spasticity, Spastic Paraplegia Type 2, and Spastic Paraplegia Type 7.

      Experienced in Cockayne Syndrome

      Medhanie A. Mulaw
      Experienced in Cockayne Syndrome

      Medhanie A. Mulaw
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Medhanie Mulaw practices in Ulm, Germany. Mulaw is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, Acute Erythroid Leukemia (AEL), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in Cockayne Syndrome

      Mathias J. Krause
      Experienced in Cockayne Syndrome

      Mathias J. Krause
      Karlsruhe, BW, DE 

      Mathias Krause practices in Karlsruhe, Germany. Mr. Krause is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Pena-Shokeir Syndrome Type 2, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Cockayne Syndrome

      Ludmila Lupu
      Experienced in Cockayne Syndrome

      Ludmila Lupu
      Ulm, BW, DE 

      Ludmila Lupu practices in Ulm, Germany. Ms. Lupu is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Glucocorticoid Resistance, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Cockayne Syndrome

      Katrin S. Lindenberg
      Experienced in Cockayne Syndrome

      Katrin S. Lindenberg
      Ulm, BW, DE 

      Katrin Lindenberg practices in Ulm, Germany. Ms. Lindenberg is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Huntington Disease, Dysarthria, Movement Disorders, and Dementia.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 32

      Last Updated: 01/09/2026

      What is the definition of Cockayne Syndrome?

      Cockayne syndrome is a rare disorder characterized by an abnormally small head size (microcephaly), a failure to gain weight and grow at the expected rate (failure to thrive) leading to very short stature, and delayed development. The signs and symptoms of this condition are usually apparent from infancy, and they worsen over time. Most affected individuals have an increased sensitivity to sunlight (photosensitivity), and in some cases even a small amount of sun exposure can cause a sunburn or blistering of the skin. Other signs and symptoms often include hearing loss, vision loss, severe tooth decay, bone abnormalities, hands and feet that are cold all the time, and changes in the brain that can be seen on brain scans.

      When should I see a Cockayne Syndrome doctor in Baden-Wuerttemberg, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cockayne Syndrome doctor in Baden-Wuerttemberg, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cockayne Syndrome doctor in Baden-Wuerttemberg, DE?

      You can find a Cockayne Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Cockayne Syndrome doctors in Baden-Wuerttemberg, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cockayne Syndrome doctors in Baden-Wuerttemberg, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cockayne Syndrome doctor in Baden-Wuerttemberg, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cockayne Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Cockayne Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cockayne Syndrome doctor in Baden-Wuerttemberg, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cockayne Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cockayne Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cockayne Syndrome doctors in Baden-Wuerttemberg, DE?

      Look for the filter feature on the left side of the Cockayne Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cockayne Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Cockayne Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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