Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 01/09/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 35 doctor with experience in Cockayne Syndrome near North Rhine-Westphalia, DE. Of these, 31 are Experienced, 3 are Advanced and 1 are Elite.

    Location
    LocationClose
    35 providers found
      Elite in Cockayne Syndrome

      Jean Krutmann
      Elite in Cockayne Syndrome

      Jean Krutmann
      Duesseldorf, NW, DE 

      Jean Krutmann practices in Duesseldorf, Germany. Ms. Krutmann is rated as an Elite expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome, Melasma, Cockayne Syndrome Type 1, and Sunburn.

      Bjorn Schumacher
      Advanced in Cockayne Syndrome

      Bjorn Schumacher
      Advanced in Cockayne Syndrome

      Bjorn Schumacher
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Bjorn Schumacher practices in Koeln, Germany. Schumacher is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Xeroderma Pigmentosum.

      Advanced in Cockayne Syndrome

      Julia Kapr
      Advanced in Cockayne Syndrome

      Julia Kapr
      Duesseldorf, NW, DE 

      Julia Kapr practices in Duesseldorf, Germany. Ms. Kapr is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, and Neurotoxicity Syndromes.

      Learn about our expert tiers
      Advanced in Cockayne Syndrome

      Ellen Fritsche
      Advanced in Cockayne Syndrome

      Ellen Fritsche
      Duesseldorf, NW, DE 

      Ellen Fritsche practices in Duesseldorf, Germany. Ms. Fritsche is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Neurotoxicity Syndromes, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Cockayne Syndrome

      Janine Reunert
      Experienced in Cockayne Syndrome

      Janine Reunert
      Muenster, NW, DE 

      Janine Reunert practices in Muenster, Germany. Ms. Reunert is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, Pena-Shokeir Syndrome Type 2, Niemann-Pick Disease, and DPAGT1-CDG.

      Experienced in Cockayne Syndrome

      Stephan Rust
      Experienced in Cockayne Syndrome

      Stephan Rust
      Muenster, NW, DE 

      Stephan Rust practices in Muenster, Germany. Mr. Rust is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, Pena-Shokeir Syndrome Type 2, DPAGT1-CDG, and PGM1-CDG.

      Experienced in Cockayne Syndrome

      Demet Onder
      Experienced in Cockayne Syndrome

      Demet Onder
      Bonn, NW, DE 

      Demet Onder practices in Bonn, Germany. Onder is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Spinocerebellar Ataxia Type 3, Drug Induced Dyskinesia, Olivopontocerebellar Atrophy, and Spinocerebellar Ataxia.

      Experienced in Cockayne Syndrome

      James Adjaye
      Experienced in Cockayne Syndrome

      James Adjaye
      Heine, NW, DE 

      James Adjaye practices in Heine, Germany. Mr. Adjaye is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Atelosteogenesis Type 1, Nijmegen Breakage Syndrome, Eccrine Porocarcinoma, and Bartter Syndrome.

      Experienced in Cockayne Syndrome

      Xenia Kobeleva
      Experienced in Cockayne Syndrome

      Xenia Kobeleva
      Bonn, NW, DE 

      Xenia Kobeleva practices in Bonn, Germany. Ms. Kobeleva is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spastic Paraplegia Type 7, and Spastic Paraplegia Type 2.

      Experienced in Cockayne Syndrome

      Matthias Rieckher
      Experienced in Cockayne Syndrome

      Matthias Rieckher
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Matthias Rieckher practices in Koeln, Germany. Mr. Rieckher is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, and Fanconi Anemia.

      Experienced in Cockayne Syndrome

      Kirsten Cremer
      Experienced in Cockayne Syndrome

      Kirsten Cremer
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Kirsten Cremer practices in Bonn, Germany. Ms. Cremer is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Increased Head Circumference, Cortical Dysplasia, Lacrimo-Auriculo-Dento-Digital Syndrome, Beta-Propeller Protein-Associated Neurodegeneration, and Gallbladder Removal.

      Experienced in Cockayne Syndrome

      Syeda S. Waseem
      Experienced in Cockayne Syndrome

      Syeda S. Waseem
      Koeln, NW, DE 

      Syeda Waseem practices in Koeln, Germany. Ms. Waseem is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Autosomal Recessive Primary Microcephaly, Microcephaly, Achalasia Microcephaly Syndrome, and Cortical Dysplasia.

      Experienced in Cockayne Syndrome

      Katarzyna Bozek
      Experienced in Cockayne Syndrome

      Katarzyna Bozek
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Katarzyna Bozek practices in Koeln, Germany. Ms. Bozek is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, and Diffuse Large B-Cell Lymphoma (DLBCL).

      Experienced in Cockayne Syndrome

      Wasco Wruck
      Experienced in Cockayne Syndrome

      Wasco Wruck
      Duesseldorf, NW, DE 

      Wasco Wruck practices in Duesseldorf, Germany. Mr. Wruck is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Nijmegen Breakage Syndrome, Atelosteogenesis Type 1, Crigler-Najjar Syndrome, and Rotor Syndrome.

      Experienced in Cockayne Syndrome

      Thomas Klockgether
      Experienced in Cockayne Syndrome

      Thomas Klockgether
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Thomas Klockgether practices in Bonn, Germany. Mr. Klockgether is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Spinocerebellar Ataxia, Olivopontocerebellar Atrophy, Drug Induced Dyskinesia, Thrombectomy, and Thalamotomy.

      Experienced in Cockayne Syndrome

      Christian Gallrein
      Experienced in Cockayne Syndrome

      Christian Gallrein
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Christian Gallrein practices in Koeln, Germany. Mr. Gallrein is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, and Alzheimer's Disease.

      Experienced in Cockayne Syndrome

      Akos Gyenis
      Experienced in Cockayne Syndrome

      Akos Gyenis
      Koeln, NW, DE 

      Akos Gyenis practices in Koeln, Germany. Mr. Gyenis is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Progeria, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Cockayne Syndrome

      Martina Kreiss
      Experienced in Cockayne Syndrome

      Martina Kreiss
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Martina Kreiss practices in Bonn, Germany. Ms. Kreiss is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Naegeli-Franceschetti-Jadassohn Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Simpson-Golabi-Behmel Syndrome.

      Experienced in Cockayne Syndrome

      Urs U. Graf
      Experienced in Cockayne Syndrome

      Urs U. Graf
      Zülpicher Str. 77, 
      Koeln, NW, DE 

      Urs Graf practices in Koeln, Germany. Graf is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome Type 1, Spondyloepimetaphyseal Dysplasia Strudwick Type, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Cockayne Syndrome

      Aleksandra Trifunovic
      Experienced in Cockayne Syndrome

      Aleksandra Trifunovic
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Aleksandra Trifunovic practices in Koeln, Germany. Ms. Trifunovic is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Microcephaly with Spastic Quadriplegia, Cytochrome C Oxidase Deficiency, CACH Syndrome, and Cockayne Syndrome Type 1.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 35

      Last Updated: 01/09/2026

      What is the definition of Cockayne Syndrome?

      Cockayne syndrome is a rare disorder characterized by an abnormally small head size (microcephaly), a failure to gain weight and grow at the expected rate (failure to thrive) leading to very short stature, and delayed development. The signs and symptoms of this condition are usually apparent from infancy, and they worsen over time. Most affected individuals have an increased sensitivity to sunlight (photosensitivity), and in some cases even a small amount of sun exposure can cause a sunburn or blistering of the skin. Other signs and symptoms often include hearing loss, vision loss, severe tooth decay, bone abnormalities, hands and feet that are cold all the time, and changes in the brain that can be seen on brain scans.

      When should I see a Cockayne Syndrome doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cockayne Syndrome doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cockayne Syndrome doctor in North Rhine-Westphalia, DE?

      You can find a Cockayne Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

      Cockayne Syndrome doctor near New York, NY
      Cockayne Syndrome doctor near Los Angeles, CA
      Cockayne Syndrome doctor near Chicago, IL
      Cockayne Syndrome doctor near Houston, TX
      Cockayne Syndrome doctor near Phoenix, AZ
      Cockayne Syndrome doctor near Philadelphia, PA
      Cockayne Syndrome doctor near Atlanta, GA
      Cockayne Syndrome doctor near Boston, MA
      Cockayne Syndrome doctor near Dallas, TX
      Cockayne Syndrome doctor near San Jose, CA

      How does MediFind rank Cockayne Syndrome doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cockayne Syndrome doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cockayne Syndrome doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cockayne Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Cockayne Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cockayne Syndrome doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cockayne Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cockayne Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cockayne Syndrome doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Cockayne Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cockayne Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Cockayne Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy.