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    Last Updated: 01/09/2026

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    MediFind found 55 doctor with experience in Cockayne Syndrome near The United Kingdom. Of these, 43 are Experienced, 10 are Advanced and 2 are Distinguished.

    Location
    LocationClose
    55 providers found
      Distinguished in Cockayne Syndrome
      Distinguished in Cockayne Syndrome
      Newcastle Upon Tyne, ENG, GB 

      Brian Wilson practices in Newcastle Upon Tyne, United Kingdom. Mr. Wilson is rated as a Distinguished expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, and Hereditary Hyperekplexia.

      Distinguished in Cockayne Syndrome
      Distinguished in Cockayne Syndrome
      Brighton, ENG, GB 

      Alan Lehmann practices in Brighton, United Kingdom. Mr. Lehmann is rated as a Distinguished expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Xeroderma Pigmentosum, Sunburn, Trichothiodystrophy, and Cockayne Syndrome Type 1.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      Guy's And St Thomas' NHS Foundation Trust, 
      London, ENG, GB 

      Shehla Mohammed practices in London, United Kingdom. Mohammed is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Vici Syndrome, Cockayne Syndrome, Cockayne Syndrome Type 1, and Cockayne Syndrome Type 2.

      Learn about our expert tiers
      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      1 Midland Road, 
      London, ENG, GB 

      Jesper Svejstrup practices in London, United Kingdom. Mr. Svejstrup is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome, Cockayne Syndrome Type 2, and Xeroderma Pigmentosum.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      Robinson Way, 
      Cambridge, ENG, GB 

      Christopher Carnie practices in Cambridge, United Kingdom. Mr. Carnie is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      Oxford, ENG, GB 

      Rebecca Roddan practices in Oxford, United Kingdom. Ms. Roddan is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Her top area of expertise is Cockayne Syndrome.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      Oxford, ENG, GB 

      Peter Mchugh practices in Oxford, United Kingdom. Mr. Mchugh is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome, Fanconi Anemia, Congenital Aplastic Anemia, and Esophageal Cancer.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      Exeter, ENG, GB 

      Mattia Frontini practices in Exeter, United Kingdom. Frontini is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome, Cockayne Syndrome Type 2, and Factor 5 Deficiency.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      Roosevelt Drive, 
      Oxford, ENG, GB 

      Joseph Newman practices in Oxford, United Kingdom. Mr. Newman is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome, Poliomyelitis, Myelitis, and Chordoma.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      University Park, 
      Nottingham, ENG, GB 

      Stephen Jackson practices in Nottingham, United Kingdom. Mr. Jackson is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Progeria, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      Cambridge, ENG, GB 

      Delphine Larrieu practices in Cambridge, United Kingdom. Ms. Larrieu is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Progeria, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Advanced in Cockayne Syndrome
      Advanced in Cockayne Syndrome
      London, ENG, GB 

      Probir Chakravarty practices in London, United Kingdom. Chakravarty is rated as an Advanced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, Ovarian Cancer, and Laryngectomy.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      London, ENG, GB 

      Stefan Boeing practices in London, United Kingdom. Mr. Boeing is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome, Cockayne Syndrome Type 2, and Chondrosarcoma.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      Brighton, ENG, GB 

      Heather Fawcett practices in Brighton, United Kingdom. Ms. Fawcett is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Xeroderma Pigmentosum, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Cockayne Syndrome.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      Guy's And St Thomas' NHS Trust, 
      London, ENG, GB 

      Hiva Fassihi practices in London, United Kingdom. Fassihi is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Xeroderma Pigmentosum, Sunburn, Polymorphous Light Eruption, and Melasma.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      Leicester, ENG, GB 

      Mark Evans practices in Leicester, United Kingdom. Mr. Evans is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, Cockayne Syndrome, and Xeroderma Pigmentosum.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      London, ENG, GB 

      Rathai Anandanadesan practices in London, United Kingdom. Anandanadesan is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Cerebral Hypoxia, Cockayne Syndrome, Ataxia-Telangiectasia, and Telangiectasia.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      Weston Park Cancer Centre, 
      Sheffield, ENG, GB 

      Thomas Helleday practices in Sheffield, United Kingdom. Mr. Helleday is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Triple-Negative Breast Cancer, Epithelial-Myoepithelial Carcinoma, Cerebral Hypoxia, Prostate Cancer, and Orchiectomy.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      London, ENG, GB 

      Nabil Hajji practices in London, United Kingdom. Mr. Hajji is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Ewing Sarcoma, Osteosarcoma, Cockayne Syndrome, and Pulmonary Hypertension.

      Experienced in Cockayne Syndrome
      Experienced in Cockayne Syndrome
      Roosevelt Drive, 
      Oxford, ENG, GB 

      Darragh O'brien practices in Oxford, United Kingdom. O'brien is rated as an Experienced expert by MediFind in the treatment of Cockayne Syndrome. Their top areas of expertise are Pertussis, Retroversion of the Uterus, Obstructive Uropathy, Cockayne Syndrome, and Kidney Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 55

      Last Updated: 01/09/2026

      What is the definition of Cockayne Syndrome?

      Cockayne syndrome is a rare disorder characterized by an abnormally small head size (microcephaly), a failure to gain weight and grow at the expected rate (failure to thrive) leading to very short stature, and delayed development. The signs and symptoms of this condition are usually apparent from infancy, and they worsen over time. Most affected individuals have an increased sensitivity to sunlight (photosensitivity), and in some cases even a small amount of sun exposure can cause a sunburn or blistering of the skin. Other signs and symptoms often include hearing loss, vision loss, severe tooth decay, bone abnormalities, hands and feet that are cold all the time, and changes in the brain that can be seen on brain scans.

      When should I see a Cockayne Syndrome doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cockayne Syndrome doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cockayne Syndrome doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cockayne Syndrome doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cockayne Syndrome doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cockayne Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Cockayne Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cockayne Syndrome doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cockayne Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cockayne Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cockayne Syndrome doctors in The United Kingdom?

      Look for the filter feature on the left side of the Cockayne Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cockayne Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Cockayne Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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