The 20 Best Cockayne Syndrome Doctors Near Me in Minnesota, US

Find the Top Cockayne Syndrome Experts and Specialists

The 20 Best Cockayne Syndrome Doctors in Minnesota, US

Last Updated: 02/22/2026

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MediFind found 16 doctor with experience in Cockayne Syndrome near Minnesota, US. Of these, 11 are Experienced, 4 are Advanced and 1 are Elite.

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16 providers found
    Elite in Cockayne Syndrome
    Neurology
    Elite in Cockayne Syndrome
    Neurology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Peter Kang is a Neurologist in Minneapolis, Minnesota. Dr. Kang is rated as an Elite provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Cockayne Syndrome, Limb-Girdle Muscular Dystrophy, Cockayne Syndrome Type 1, Mononeuritis Multiplex, and Thymectomy.

    Advanced in Cockayne Syndrome
    Pediatric Cardiology
    Advanced in Cockayne Syndrome
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist in Minneapolis, Minnesota. Dr. Lohr is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Craniofrontonasal Dysplasia.

    Advanced in Cockayne Syndrome
    Endocrinology
    Advanced in Cockayne Syndrome
    Endocrinology

    St. Paul Heart Clinic P.A.

    225 Smith Ave N Ste 300, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Luke Benedict is an Endocrinologist in Saint Paul, Minnesota. Dr. Benedict is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Pediatric Growth Hormone Deficiency, Kallmann Syndrome, and Hypopituitarism.

    Learn about our expert tiers
    Advanced in Cockayne Syndrome
    Endocrinology
    Advanced in Cockayne Syndrome
    Endocrinology

    Essentia Health-Duluth Clinic 2nd Street (Building C)

    502 E 2nd St, 
    Duluth, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Nahi Kiblawi is an Endocrinologist in Duluth, Minnesota. Dr. Kiblawi is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Klinefelter Syndrome, Hyperparathyroidism, Obesity in Children, and Addison's Disease.

    Experienced in Cockayne Syndrome
    Experienced in Cockayne Syndrome

    Minnesota Heart Clinic P.A.

    6405 France Ave S Ste W200, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Shamane March is a Cardiologist in Minneapolis, Minnesota. Dr. March is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Sengers Syndrome, Mosaic Trisomy 7, Trisomy 3 Mosaicism, and Trisomy 12 Mosaicism.

    Advanced in Cockayne Syndrome
    Medical Genetics | Pediatrics
    Advanced in Cockayne Syndrome
    Medical Genetics | Pediatrics
    347 Smith Ave N, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Nancy Mendelsohn is a Medical Genetics specialist and a Pediatrics provider in Saint Paul, Minnesota. Dr. Mendelsohn is rated as an Advanced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Mucopolysaccharidoses (MPS), Cockayne Syndrome, and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

    Experienced in Cockayne Syndrome
    Family Medicine
    Experienced in Cockayne Syndrome
    Family Medicine

    Mayo Clinic Health System Fairmont

    800 Medical Center Dr, 
    Fairmont, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Green is a primary care provider, practicing in Family Medicine in Fairmont, Minnesota. Dr. Green is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Lung Cancer, Maturity Onset Diabetes of the Young, Hypothyroidism, and Type 2 Diabetes (T2D).

    Experienced in Cockayne Syndrome
    Internal Medicine
    Experienced in Cockayne Syndrome
    Internal Medicine

    Office

    600 W 98th St, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Kevin Wycoff is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Wycoff is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Type 2 Diabetes (T2D), High Cholesterol, Maturity Onset Diabetes of the Young, and Obesity in Children.

    Experienced in Cockayne Syndrome
    Pediatrics | Medical Genetics
    Experienced in Cockayne Syndrome
    Pediatrics | Medical Genetics

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Whitley is currently accepting new patients.

    Experienced in Cockayne Syndrome
    Family Medicine
    Experienced in Cockayne Syndrome
    Family Medicine

    Perham Health

    1000 Coney St W, 
    Perham, MN 
    Languages Spoken:
    English

    Jeffrey Blickenstaff is a primary care provider, practicing in Family Medicine in Perham, Minnesota. Dr. Blickenstaff is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Peripheral Neuropathy, Parkinson's Disease, Seasonal Affective Disorder (SAD), Lung Adenocarcinoma, and Endoscopy.

    Experienced in Cockayne Syndrome
    Family Medicine
    Experienced in Cockayne Syndrome
    Family Medicine

    Winona Health Services

    855 Mankato Ave, 
    Winona, MN 
    Languages Spoken:
    English

    Mary Michener is a primary care provider, practicing in Family Medicine in Winona, Minnesota. Dr. Michener is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Brown-Sequard Syndrome.

    Experienced in Cockayne Syndrome
    Family Medicine
    Experienced in Cockayne Syndrome
    Family Medicine

    Avera Medical Group Worthington

    1216 Ryans Rd, 
    Worthington, MN 
    Languages Spoken:
    English

    Gerardo Lantoria is a primary care provider, practicing in Family Medicine in Worthington, Minnesota. Dr. Lantoria is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Heterozygous Familial Hypercholesterolemia (HeFH), Familial Hypercholesterolemia, Defective Apolipoprotein B-100, and Homozygous Familial Hypercholesterolemia (HoFH).

    Experienced in Cockayne Syndrome
    Palliative Medicine
    Experienced in Cockayne Syndrome
    Palliative Medicine

    John L Bonner Eye Clinic LTD

    3605 Mayfair Ave, 
    Hibbing, MN 
    Languages Spoken:
    English

    Jeffrey Copeman is a primary care provider, practicing in Palliative Medicine in Hibbing, Minnesota. Dr. Copeman is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Maturity Onset Diabetes of the Young, and Type 2 Diabetes (T2D).

    Experienced in Cockayne Syndrome
    Pediatric Neurology
    Experienced in Cockayne Syndrome
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Deborah Renaud is a Pediatric Neurologist in Rochester, Minnesota. Dr. Renaud is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis.

    Experienced in Cockayne Syndrome
    Experienced in Cockayne Syndrome

    University Of Minnesota Physicians

    5775 Wayzata Blvd Ste 255, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    William Mantyh is a Neurologist in Minneapolis, Minnesota. Dr. Mantyh is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. His top areas of expertise are Erythromelalgia, Alzheimer's Disease, Lewy Body Dementia (LBD), and Dementia.

    Experienced in Cockayne Syndrome
    Medical Genetics | Pediatrics | Otolaryngology
    Experienced in Cockayne Syndrome
    Medical Genetics | Pediatrics | Otolaryngology

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Schimmenti is a Medical Genetics specialist and a Pediatrics provider in Rochester, Minnesota. Dr. Schimmenti is rated as an Experienced provider by MediFind in the treatment of Cockayne Syndrome. Her top areas of expertise are Hearing Loss, Bosma Arhinia Microphthalmia Syndrome, Coloboma, Gastrostomy, and Laryngectomy. Dr. Schimmenti is currently accepting new patients.

    Showing 1-16 of 16

    Last Updated: 02/22/2026

    What is the definition of Cockayne Syndrome?

    Cockayne syndrome is a rare disorder characterized by an abnormally small head size (microcephaly), a failure to gain weight and grow at the expected rate (failure to thrive) leading to very short stature, and delayed development. The signs and symptoms of this condition are usually apparent from infancy, and they worsen over time. Most affected individuals have an increased sensitivity to sunlight (photosensitivity), and in some cases even a small amount of sun exposure can cause a sunburn or blistering of the skin. Other signs and symptoms often include hearing loss, vision loss, severe tooth decay, bone abnormalities, hands and feet that are cold all the time, and changes in the brain that can be seen on brain scans.

    When should I see a Cockayne Syndrome doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cockayne Syndrome doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Cockayne Syndrome doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cockayne Syndrome doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cockayne Syndrome doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cockayne Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Cockayne Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cockayne Syndrome doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cockayne Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cockayne Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cockayne Syndrome doctors in Minnesota, US?

    Look for the filter feature on the left side of the Cockayne Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cockayne Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Cockayne Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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