Distinguished in Collagen VI-Related Myopathy

Volker W. Straub

Central Parkway, 
Newcastle Upon Tyne, ENG, GB 
Clinical Trials:Currently Recruiting for 1 Trial

Distinguished in Collagen VI-Related Myopathy
Central Parkway, 
Newcastle Upon Tyne, ENG, GB 
OverviewLocationsClinical Research

Overview

Volker Straub practices in Newcastle Upon Tyne, United Kingdom. Mr. Straub is rated as a Distinguished expert by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Dysferlinopathy.

His clinical research consists of co-authoring 356 peer reviewed articles and participating in 5 clinical trials. MediFind looks at clinical research from the past 15 years. In particular, he has co-authored 11 articles in the study of Collagen VI-Related Myopathy.

Gender
Male

Locations

Central Parkway, Newcastle Upon Tyne, ENG, United Kingdom

Clinical Research

Clinical research consists of overseeing clinical studies of patients undergoing new treatments and therapies, and publishing articles in peer reviewed medical journals. Experts who actively participate in clinical research are generally at the forefront of the fields and aware of the most up-to-date advances in treatments for their patients.


5 Clinical Trials

Establishing Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1)
Establishing Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1)
Enrollment Status: Recruiting
Publish Date: June 06, 2025
A Double-Blind, Placebo-Controlled, Multi-Center Study With an Open-Label Extension to Evaluate the Efficacy and Safety of SRP-4045 and SRP-4053 in Patients With Duchenne Muscular Dystrophy
A Double-Blind, Placebo-Controlled, Multi-Center Study With an Open-Label Extension to Evaluate the Efficacy and Safety of SRP-4045 and SRP-4053 in Patients With Duchenne Muscular Dystrophy
Enrollment Status: Completed
Publish Date: November 18, 2025
Intervention Type: Drug
Study Drugs: SRP-4045 Exon 45-Skipping Treatment, SRP-4053 Exon 53-Skipping Treatment
Study Phase: Phase 3
GRASP-LGMD: Defining Clinical Endpoints in LGMD
GRASP-LGMD: Defining Clinical Endpoints in LGMD
Enrollment Status: Completed
Publish Date: August 06, 2025
Randomised, Double Blind, Placebo Controlled, Multicentre Study to Evaluate the Efficacy and Safety of Givinostat in Ambulant Patients With Duchenne Muscular Dystrophy
Randomised, Double Blind, Placebo Controlled, Multicentre Study to Evaluate the Efficacy and Safety of Givinostat in Ambulant Patients With Duchenne Muscular Dystrophy
Enrollment Status: Completed
Publish Date: February 02, 2023
Intervention Type: Drug
Study Drug: Givinostat
Study Phase: Phase 3
Duchenne Muscular Dystrophy: Double-blind Randomized Trial to Find Optimum Steroid Regimen
Duchenne Muscular Dystrophy: Double-blind Randomized Trial to Find Optimum Steroid Regimen
Enrollment Status: Completed
Publish Date: August 12, 2022
Intervention Type: Drug
Study Phase: Phase 3
View 4 Less Clinical Trials

352 Total Publications

Expert Consensus on Genetic Diagnostic Approaches for Patients With Limb-Girdle Muscular Dystrophy.
Expert Consensus on Genetic Diagnostic Approaches for Patients With Limb-Girdle Muscular Dystrophy.
Journal: Neurology
Published: October 28, 2025
View All 352 Publications

Areas of Expertise

MediFind evaluates expertise by pulling from factors such as number of articles a doctor has published in medical journals, participation in clinical trials, speaking at industry conferences, prescribing and referral patterns, and strength of connections with other experts in their field.

Learn more about MediFind’s expert tiers

Find Mr. Straub's expertise for a condition
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  • Elite
  • Limb-Girdle Muscular Dystrophy
    Mr. Straub is
    Elite
    . Learn about Limb-Girdle Muscular Dystrophy.
    See more Limb-Girdle Muscular Dystrophy experts
  • Distinguished
  • Becker Muscular Dystrophy
    Mr. Straub is
    Distinguished
    . Learn about Becker Muscular Dystrophy.
    See more Becker Muscular Dystrophy experts
  • Cardiomyopathy Hypogonadism Metabolic Anomalies
    Mr. Straub is
    Distinguished
    . Learn about Cardiomyopathy Hypogonadism Metabolic Anomalies.
    See more Cardiomyopathy Hypogonadism Metabolic Anomalies experts
  • Collagen VI-Related Myopathy
    Mr. Straub is
    Distinguished
    . Learn about Collagen VI-Related Myopathy.
    See more Collagen VI-Related Myopathy experts
  • Cramp-Fasciculation Syndrome
    Mr. Straub is
    Distinguished
    . Learn about Cramp-Fasciculation Syndrome.
    See more Cramp-Fasciculation Syndrome experts
  • Delta-Sarcoglycanopathy
    Mr. Straub is
    Distinguished
    . Learn about Delta-Sarcoglycanopathy.
    See more Delta-Sarcoglycanopathy experts
  • Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism
    Mr. Straub is
    Distinguished
    . Learn about Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism.
    See more Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism experts
View All 13 Distinguished Conditions
  • Advanced
  • Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease)
    Mr. Straub is
    Advanced
    . Learn about Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).
    See more Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease) experts
  • Arthrogryposis Multiplex Congenita
    Mr. Straub is
    Advanced
    . Learn about Arthrogryposis Multiplex Congenita.
    See more Arthrogryposis Multiplex Congenita experts
  • Bosma Arhinia Microphthalmia Syndrome
    Mr. Straub is
    Advanced
    . Learn about Bosma Arhinia Microphthalmia Syndrome.
    See more Bosma Arhinia Microphthalmia Syndrome experts
  • Centronuclear Myopathy
    Mr. Straub is
    Advanced
    . Learn about Centronuclear Myopathy.
    See more Centronuclear Myopathy experts
  • Choanal Atresia
    Mr. Straub is
    Advanced
    . Learn about Choanal Atresia.
    See more Choanal Atresia experts
  • Chromosome 6 Uniparental Disomy
    Mr. Straub is
    Advanced
    . Learn about Chromosome 6 Uniparental Disomy.
    See more Chromosome 6 Uniparental Disomy experts
View All 26 Advanced Conditions
  • Experienced
  • Acute Cerebellar Ataxia
    Mr. Straub is
    Experienced
    . Learn about Acute Cerebellar Ataxia.
    See more Acute Cerebellar Ataxia experts
  • Acute Pain
    Mr. Straub is
    Experienced
    . Learn about Acute Pain.
    See more Acute Pain experts
  • Amyotonia Congenita
    Mr. Straub is
    Experienced
    . Learn about Amyotonia Congenita.
    See more Amyotonia Congenita experts
  • Andersen Disease
    Mr. Straub is
    Experienced
    . Learn about Andersen Disease.
    See more Andersen Disease experts
  • Benign Autosomal Dominant Myopathy
    Mr. Straub is
    Experienced
    . Learn about Benign Autosomal Dominant Myopathy.
    See more Benign Autosomal Dominant Myopathy experts
  • Cardiomyopathy
    Mr. Straub is
    Experienced
    . Learn about Cardiomyopathy.
    See more Cardiomyopathy experts
View All 54 Experienced Conditions
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