The 20 Best Costello Syndrome Doctors in The United States

Find the Top Costello Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1279 doctor with experience in Costello Syndrome near The United States. Of these, 1106 are Experienced, 159 are Advanced, 12 are Distinguished and 2 are Elite.

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1,279 providers found
    Elite in Costello Syndrome
    Medical Genetics
    Elite in Costello Syndrome
    Medical Genetics

    Nemours DuPont Hospital For Children

    1600 Rockland Road, Department Of General Pediatrics, 
    Wilmington, DE 
    Languages Spoken:
    English

    Karen Gripp is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Gripp is rated as an Elite provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 122 other conditions, according to our data. Her clinical expertise encompasses Costello Syndrome, RASopathies, Noonan Syndrome, and Gingival Fibromatosis with Hypertrichosis.

    Elite in Costello Syndrome
    Medical Genetics | Pediatrics
    Elite in Costello Syndrome
    Medical Genetics | Pediatrics
    2825 50th St Rm 2284, Uc Davis Mind Institute, 
    Sacramento, CA 
    Languages Spoken:
    English

    Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Rauen is rated as an Elite provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Advanced in Costello Syndrome
    Advanced in Costello Syndrome

    ETSU Physicians & Associates- Pediatrics

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Russi is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 125 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Ehlers-Danlos Syndrome (EDS), Chromosome 8p Deletion, and Chromosome 6q Duplication. Dr. Russi is board certified in American Board Of Pediatrics and American Board Of Medical Genetics.

    Learn about our expert tiers
    Experienced in Costello Syndrome
    Cardiac Electrophysiology | Cardiology | Thoracic Surgery
    Experienced in Costello Syndrome
    Cardiac Electrophysiology | Cardiology | Thoracic Surgery

    Advocate Heart Institute

    3825 Highland Ave, Ste 400, 
    Downers Grove, IL 
    Languages Spoken:
    English, Spanish

    Justin Mao is a Cardiac Electrophysiologist and a Cardiologist practicing medicine in Downers Grove, Illinois. Dr. Mao is rated as an Experienced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Atrial Fibrillation, Arrhythmias, Hypertensive Heart Disease, Pacemaker Implantation, and Cardiac Ablation. Dr. Mao is board certified in American Board Of Internal Medicine, Cardiovascular Disease.

    Experienced in Costello Syndrome
    Advanced Heart Failure and Transplant Cardiology
    Experienced in Costello Syndrome
    Advanced Heart Failure and Transplant Cardiology

    Advocate Heart Institute

    10837 S Cicero Ave, Ste 200, 
    Oak Lawn, IL 
    Languages Spoken:
    English

    Sunil Pauwaa is an Advanced Heart Failure and Transplant Cardiologist practicing medicine in Oak Lawn, Illinois. Dr. Pauwaa is rated as an Experienced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Pulmonary Hypertension, Pulmonary Veno-Occlusive Disease, Hypertensive Heart Disease, and Heart Transplant. Dr. Pauwaa is board certified in American Board Of Internal Medicine, Advanced Heart Failure And Transplant Cardiology.

    Experienced in Costello Syndrome
    Pediatrics | Pediatric Cardiology
    Experienced in Costello Syndrome
    Pediatrics | Pediatric Cardiology

    Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

    1001 Blythe Blvd., Suite 500, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jacob Hartz is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Charlotte, North Carolina. Dr. Hartz is rated as an Experienced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Homozygous Familial Hypercholesterolemia (HoFH), High Cholesterol, Defective Apolipoprotein B-100, Familial Hypertriglyceridemia, and Pacemaker Implantation. Dr. Hartz is board certified in American Board Of Pediatrics, Pediatric Cardiology and American Board Of Pediatrics/Pediatric Cardiology, Pediatrics. Dr. Hartz is currently accepting new patients.

    Experienced in Costello Syndrome
    Cardiology | Internal Medicine
    Experienced in Costello Syndrome
    Cardiology | Internal Medicine

    Hospital Of The University Of Pennsylvania

    Radiology Cardiovascular Imaging Section, 3400 Spruce Street, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Lefebvre is rated as an Experienced provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Patent Foramen Ovale, Sengers Syndrome, Heart Failure, Familial Hypertrophic Cardiomyopathy, and Patent Foramen Ovale Repair. Dr. Lefebvre is board certified in American Board Of Internal Medicine.

    Distinguished in Costello Syndrome
    Dermatology
    Distinguished in Costello Syndrome
    Dermatology

    UC Davis Dermatology Clinic

    3301 C St Ste 1300, 
    Sacramento, CA 
    Languages Spoken:
    English

    Maija Kiuru is a Dermatologist practicing medicine in Sacramento, California. Dr. Kiuru is rated as a Distinguished provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Basal Cell Skin Cancer, Melanoma, Giant Congenital Nevus, and Costello Syndrome.

    Distinguished in Costello Syndrome
    Cardiology
    Distinguished in Costello Syndrome
    Cardiology

    Stanford Hospital And Clinics

    300 Pasteur Dr, 
    Stanford, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Joshua Spin is a Cardiologist practicing medicine in Stanford, California. Dr. Spin is rated as a Distinguished provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 107 other conditions, according to our data. His clinical expertise encompasses Abdominal Aortic Aneurysm (AAA), Thoracic Aortic Aneurysm, Inappropriate Sinus Tachycardia (IST), Familial Ventricular Tachycardia, and Pacemaker Implantation.

    Advanced in Costello Syndrome
    Medical Genetics | Pediatrics
    Advanced in Costello Syndrome
    Medical Genetics | Pediatrics

    State University Of Iowa

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English, French
    Accepting New Patients

    Amy Calhoun is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Iowa City, Iowa. Dr. Calhoun is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Wolf-Hirschhorn Syndrome, Otospondylomegaepiphyseal Dysplasia, MELAS Syndrome, and Costello Syndrome. Dr. Calhoun is currently accepting new patients.

    Experienced in Costello Syndrome
    Family Medicine
    Experienced in Costello Syndrome
    Family Medicine

    Aurora Family Medicine

    1565 Allouez Ave, 
    Green Bay, WI 
    Languages Spoken:
    English

    Philip Goolsby is a primary care provider, practicing in Family Medicine in Green Bay, Wisconsin. Dr. Goolsby is rated as an Experienced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Schnitzler Syndrome, Monoclonal Gammopathy of Undetermined Significance (MGUS), Movement Disorders, and Parkinson's Disease. Dr. Goolsby is board certified in American Board Of Family Medicine.

    Experienced in Costello Syndrome
    Family Medicine
    Experienced in Costello Syndrome
    Family Medicine

    Aurora Family Medicine

    2424 S 90th St, Ste 200, 
    West Allis, WI 
    Languages Spoken:
    English
    Offers Telehealth

    David Stolp is a primary care provider, practicing in Family Medicine in West Allis, Wisconsin. Dr. Stolp is rated as an Experienced provider by MediFind in the treatment of Costello Syndrome. His clinical expertise encompasses Cerebral Palsy, Grix Blankenship Peterson Syndrome, Cockayne Syndrome Type 2, and KBG Syndrome. Dr. Stolp is board certified in American Board Of Family Medicine.

    Experienced in Costello Syndrome
    Family Medicine
    Experienced in Costello Syndrome
    Family Medicine

    Reading Hospital

    420 South 5th Avenue, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Chelius is rated as an Experienced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Infant Hyperglycemia. Dr. Chelius is board certified in American Board Of Family Medicine.

    Advanced in Costello Syndrome
    Advanced in Costello Syndrome

    Frankel Cardiovascular Center

    1425 E Ann St, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Marion Bowman is a Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Bowman is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 108 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Aortic Dissection, Familial Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation. Dr. Bowman is board certified in Cardiovascular Disease.

    Advanced in Costello Syndrome
    Advanced in Costello Syndrome

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    39+ years
    Languages Spoken:
    English, Hindi, Tamil, Telugu
    Offers Telehealth

    Vidyasagar Kalahasti is a Cardiologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 39 years. Dr. Kalahasti is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 112 other conditions, according to our data. His clinical expertise encompasses Bicuspid Aortic Valve, Aortic Dissection, Aortic Regurgitation, Marfan Syndrome, and Heart Valve Repair. Dr. Kalahasti is board certified in National Board Of Echocardiography, 2006.

    Advanced in Costello Syndrome
    Advanced in Costello Syndrome

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
    Languages Spoken:
    English

    Dr. Michael N. Singh is a cardiovascular medicine specialist at Brigham and Women’s Hospital (BWH) and an instructor in pediatrics at Harvard Medical School.Dr. Singh received his medical degree from Loma Linda University School of Medicine. He completed a combined residency in medicine/pediatrics at Medical College of Ohio Hospital (now The University of Toledo Medical Center). Dr. Singh then completed a cardiology fellowship at Baystate Medical Center and fellowships in adult congenital heart disease, congenital echocardiography, Marfan syndrome/related connective tissue disorders, and pulmonary hypertension at BWH and Boston Children's Hospital. He is board certified in internal medicine, pediatrics and cardiovascular disease.Dr. Singh’s clinical interests include congenital heart disease, connective tissue disorder and Marfan syndrome. The author of 11 peer-reviewed publications, his research focuses on Marfan syndrome, adults with congenital heart disease and aortic valve dysfunction. Dr. Singh is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 120 other conditions, according to our data. His clinical expertise encompasses Marfan Syndrome, Bicuspid Aortic Valve, Congenital Heart Disease (CHD), and Truncus Arteriosus. Dr. Singh is board certified in Adult Congenital Heart Disease, Cardiovascular Disease, Internal Medicine, and Pediatrics.

    Advanced in Costello Syndrome
    Medical Genetics | Pediatrics
    Advanced in Costello Syndrome
    Medical Genetics | Pediatrics
    26901 76th Avenue, 
    New Hyde Park, NY 
    Languages Spoken:
    English

    Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider practicing medicine in New Hyde Park, New York. Dr. Fernandes is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 153 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, Chromosome 13q Deletion, Hennekam Syndrome, and Acrodermatitis Enteropathica.

    Advanced in Costello Syndrome
    Pediatric Cardiology
    Advanced in Costello Syndrome
    Pediatric Cardiology

    Betty Irene Moore Children's Heart Center

    725 Welch Rd Ste 120, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Elif Selamet is a Pediatric Cardiologist practicing medicine in Palo Alto, California. Dr. Selamet is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. She is also highly rated in 105 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Kawasaki Disease, Coronary Artery Aneurysm, Tetralogy of Fallot, and Heart Transplant.

    Advanced in Costello Syndrome
    Pediatrics | Medical Genetics
    Advanced in Costello Syndrome
    Pediatrics | Medical Genetics

    Rubenstein Child Health Building

    200 North Wolfe Street, Rubenstein BLDG Lower Level, Rubenstein BLDG Lower Level, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Harry “Hal” Dietz is a professor of pediatrics, an associate professor of medicine and an assistant professor of neurological surgery at the Johns Hopkins University School of Medicine. He is the Victor A. McKusick Professor of Genetics and also serves as the director of the William S. Smilow Center for Marfan Syndrome Research. Recognized as the world’s leading authority on Marfan syndrome, Dr. Dietz conducted genomic mapping and research on therapeutic agents for deficiencies in the genetic protein fibrillin, which is linked to Marfan syndrome. His research contributions have made diagnosis of the condition patient-specific and accurate. He has received more than 50 national and international awards and honors, including the Antoine Marfan Award from the National Marfan Foundation and the Art of Listening Award from the American Heart Association. Dr. Dietz is an ad hoc reviewer for 19 different organizations, including the American Journal of Cardiology, the Archives of Pediatric and Adolescent Medicine, and the Journal of Clinical Investigation. Over more than two decades, Dr. Dietz has mentored 75 predoctoral and postdoctoral researchers. He has authored 282 original publications in peer-reviewed journals, 25 textbook chapters, and 239 abstracts, and has also delivered more than 440 lectures on Marfan syndrome and related genetic disorders. Dr. Dietz completed his B.S. at Duke University and received his M.D. from the SUNY Upstate School of Medicine. He completed a pediatric residency and a cardiology fellowship at Johns Hopkins University before joining the faculty in 1992. Dr. Dietz is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 81 other conditions, according to our data. His clinical expertise encompasses Snyder-Robinson Syndrome, WAGR Syndrome, Vici Syndrome, and Cohen Syndrome.

    Advanced in Costello Syndrome
    Pediatric Cardiology | Pediatrics
    Advanced in Costello Syndrome
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Jimmy Lu is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Lu is rated as an Advanced provider by MediFind in the treatment of Costello Syndrome. He is also highly rated in 129 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Double Discordia, Transposition of the Great Arteries, and Heart Transplant. Dr. Lu is board certified in Pediatric Cardiology.

    Showing 1-20 of 1,279

    Last Updated: 04/28/2026

    What is the definition of Costello Syndrome?

    Costello syndrome is a rare disorder that affects many parts of the body. This condition is characterized by delayed development, loose folds of skin (which are especially noticeable on the hands and feet), unusually flexible joints, heart problems, short stature, and distinctive facial features.

    When should I see a Costello Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Costello Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Costello Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Costello Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Costello Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Costello Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Costello Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Costello Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Costello Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Costello Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Costello Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Costello Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Costello Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Costello Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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