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    Last Updated: 01/09/2026

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    MediFind found 131 doctor with experience in Cranioectodermal Dysplasia near The United States. Of these, 92 are Experienced, 38 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    131 providers found
      Distinguished in Cranioectodermal Dysplasia
      Family Medicine
      Distinguished in Cranioectodermal Dysplasia
      Family Medicine
      148 Sauls St, 
      Lake City, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Albert Mims is a primary care provider, practicing in Family Medicine in Lake City, South Carolina. Dr. Mims is rated as a Distinguished provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Cranioectodermal Dysplasia, Lateral Meningocele Syndrome, Osteoporosis-Pseudoglioma Syndrome, and Renpenning Syndrome. Dr. Mims is currently accepting new patients.

      Leemor B. Rotberg
      Advanced in Cranioectodermal Dysplasia
      Ophthalmology
      Advanced in Cranioectodermal Dysplasia
      Ophthalmology

      Children's Eye Care PC

      7001 Orchard Lake Road, Suite 200, 
      West Bloomfield, MI 
      Experience:
      26+ years
      Languages Spoken:
      English, Hebrew, Spanish
      Accepting New Patients

      Leemor Rotberg is an Ophthalmologist in West Bloomfield, Michigan. Dr. Rotberg has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Strabismus, Brown Syndrome, Amblyopia, and Esotropia. Dr. Rotberg is currently accepting new patients.

      Experienced in Cranioectodermal Dysplasia
      Experienced in Cranioectodermal Dysplasia

      Pediatric Associates Of Western CT

      41 Germantown Rd, 
      Danbury, CT 
      Languages Spoken:
      English

      Jamie Alon is a Pediatrics provider in Danbury, Connecticut. Dr. Alon is rated as an Experienced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Obesity in Children, Cranioectodermal Dysplasia, Renpenning Syndrome, and Mandibuloacral Dysplasia.

      Learn about our expert tiers
      Advanced in Cranioectodermal Dysplasia
      Advanced in Cranioectodermal Dysplasia
      300 Longwood Ave, Children's Hosp. - Orthopaedics, 
      Boston, MA 
      Languages Spoken:
      English

      Samantha Spencer is an Orthopedics provider in Boston, Massachusetts. Dr. Spencer is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Acromicric Dysplasia, Brachydactyly Mononen Type, Chondrodystrophy, Achondroplasia, and Osteotomy.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Endocrinology
      Advanced in Cranioectodermal Dysplasia
      Pediatric Endocrinology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Christina Jacobsen is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Jacobsen is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Osteoporosis-Pseudoglioma Syndrome, Osteogenesis Imperfecta, Lateral Meningocele Syndrome, and Cranioectodermal Dysplasia.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Cardiology
      Advanced in Cranioectodermal Dysplasia
      Pediatric Cardiology
      3500 Brooktree Rd, Suite 204, 
      Wexford, PA 
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Prapti Kanani is a Pediatric Cardiologist in Wexford, Pennsylvania. Dr. Kanani is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Patent Ductus Arteriosus, Atrioventricular Septal Defect, Endocardial Cushion Defect, and Partial Atrioventricular Canal. Dr. Kanani is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Ingrid Holm is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Holm is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Sudden Infant Death Syndrome (SIDS), Brachydactyly Mononen Type, Lateral Meningocele Syndrome, and Cranioectodermal Dysplasia. Dr. Holm is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Advanced in Cranioectodermal Dysplasia

      Children's Clinics For Rehabilitative Services

      2600 N Wyatt Dr, 
      Tucson, AZ 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Kent Vincent is an Orthopedics provider in Tucson, Arizona. Dr. Vincent is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Renpenning Syndrome, Osteoporosis-Pseudoglioma Syndrome, Lateral Meningocele Syndrome, and Brachydactyly Mononen Type. Dr. Vincent is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Surgery | General Surgery | Vascular Surgery
      Advanced in Cranioectodermal Dysplasia
      Pediatric Surgery | General Surgery | Vascular Surgery
      300 Longwood Ave Fegan 3, Children's Hospital Boston, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Steven Fishman is a Pediatric Surgeon and a General Surgeon in Boston, Massachusetts. Dr. Fishman is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Aberrant Subclavian Artery, Blue Rubber Bleb Nevus Syndrome, VACTERL Association, Klippel-Trenaunay Syndrome, and Hernia Surgery. Dr. Fishman is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatrics | Medical Genetics
      Advanced in Cranioectodermal Dysplasia
      Pediatrics | Medical Genetics
      300 Longwood Ave, Fegan 10, 
      Boston, MA 
      Languages Spoken:
      English

      Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

      Advanced in Cranioectodermal Dysplasia
      Advanced in Cranioectodermal Dysplasia
      El Paso, TX 
      Languages Spoken:
      English, Arabic, French, Spanish
      Accepting New Patients

      Hassan Salloum is a Pediatrics provider in El Paso, Texas. Dr. Salloum is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Obesity in Children, Croup, Roseola, and Anorchia. Dr. Salloum is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner
      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Leah Hecht is a Nurse Practitioner in Boston, Massachusetts. Ms. Hecht is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Renpenning Syndrome, Osteoporosis-Pseudoglioma Syndrome, Cranioectodermal Dysplasia, and Lateral Meningocele Syndrome. Ms. Hecht is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner
      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner

      Atlanticare Regional Medical Center

      2500 English Creek Ave, Building 400, 
      Egg Harbor Township, NJ 
      Languages Spoken:
      English
      Accepting New Patients

      Mary Redmond is a Nurse Practitioner in Egg Harbor Township, New Jersey. Ms. Redmond is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Osteoporosis-Pseudoglioma Syndrome, Lateral Meningocele Syndrome, Mandibuloacral Dysplasia, and Cranioectodermal Dysplasia. Ms. Redmond is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, EEC Syndrome, and Clouston Syndrome. Dr. Tan is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Cardiology
      Advanced in Cranioectodermal Dysplasia
      Pediatric Cardiology

      Children's Medical Center/Children's Health

      1935 Medical District Dr, 
      Dallas, TX 
      Languages Spoken:
      English

      Mansi Gaitonde is a Pediatric Cardiologist in Dallas, Texas. Dr. Gaitonde is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Myocardial Contusion.

      Advanced in Cranioectodermal Dysplasia
      Family Medicine
      Advanced in Cranioectodermal Dysplasia
      Family Medicine

      Public Hospital District No 2 Skagit County Washington

      2511 M Ave, Suite B, 
      Anacortes, WA 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Caitlin Maccoun is a primary care provider, practicing in Family Medicine in Anacortes, Washington. Dr. Maccoun has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Osteoporosis-Pseudoglioma Syndrome, Renpenning Syndrome, Lateral Meningocele Syndrome, and Cranioectodermal Dysplasia. Dr. Maccoun is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Ellen Elias is a Medical Genetics specialist and a Pediatrics provider in Aurora, Colorado. Dr. Elias is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Smith-Lemli-Opitz Syndrome, Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Delayed Growth. Dr. Elias is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Amelle Shillington is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Shillington is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Chromosome 13q Deletion, Acrodermatitis Enteropathica, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, and Caudal Appendage Deafness. Dr. Shillington is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics
      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Mo is a Pediatric Orthopedics specialist and an Orthopedics provider in Boston, Massachusetts. Dr. Mo is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Clubfoot, Small Patella Syndrome, Sandhaus Ben-Ami Syndrome, and Trochlear Dysplasia. Dr. Mo is currently accepting new patients.

      Showing 1-20 of 131

      Last Updated: 01/09/2026

      What is the definition of Cranioectodermal Dysplasia?

      Cranioectodermal dysplasia is a disorder that affects many parts of the body. The most common features involve bone abnormalities and abnormal development of certain tissues known as ectodermal tissues, which include the skin, hair, nails, and teeth. The signs and symptoms of this condition vary among affected individuals, even among members of the same family.

      When should I see a Cranioectodermal Dysplasia doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cranioectodermal Dysplasia doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cranioectodermal Dysplasia doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cranioectodermal Dysplasia doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cranioectodermal Dysplasia doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cranioectodermal Dysplasia doctor search results page. 

      Why is it important to get a second opinion from a different Cranioectodermal Dysplasia doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cranioectodermal Dysplasia doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cranioectodermal Dysplasia doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cranioectodermal Dysplasia doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cranioectodermal Dysplasia doctors in The United States?

      Look for the filter feature on the left side of the Cranioectodermal Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cranioectodermal Dysplasia doctor that offers video calls?

      Look for the filter feature on the left-side of the Cranioectodermal Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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