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    Last Updated: 10/30/2025

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    MediFind found 37 doctor with experience in Cranioectodermal Dysplasia near Boston, MA. Of these, 19 are Experienced and 18 are Advanced.

    Location
    LocationClose
    37 providers found
      Advanced in Cranioectodermal Dysplasia
      Advanced in Cranioectodermal Dysplasia
      300 Longwood Ave, Children's Hosp. - Orthopaedics, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Samantha Spencer is an Orthopedics provider in Boston, Massachusetts. Dr. Spencer is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Acromicric Dysplasia, Brachydactyly Mononen Type, Chondrodystrophy, Achondroplasia, and Osteotomy.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Endocrinology
      Advanced in Cranioectodermal Dysplasia
      Pediatric Endocrinology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Christina Jacobsen is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Jacobsen is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Osteoporosis-Pseudoglioma Syndrome, Osteogenesis Imperfecta, Mandibuloacral Dysplasia, and Lateral Meningocele Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Ingrid Holm is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Holm is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Sudden Infant Death Syndrome (SIDS), Brachydactyly Mononen Type, Mandibuloacral Dysplasia, and Lateral Meningocele Syndrome. Dr. Holm is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Surgery | General Surgery | Vascular Surgery
      Advanced in Cranioectodermal Dysplasia
      Pediatric Surgery | General Surgery | Vascular Surgery

      Chmc Surgical Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Steven Fishman is a Pediatric Surgeon and a General Surgeon in Boston, Massachusetts. Dr. Fishman is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Aberrant Subclavian Artery, Blue Rubber Bleb Nevus Syndrome, VACTERL Association, Klippel-Trenaunay Syndrome, and Hernia Surgery. Dr. Fishman is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatrics | Medical Genetics
      Advanced in Cranioectodermal Dysplasia
      Pediatrics | Medical Genetics
      300 Longwood Ave, Fegan 10, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner
      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Leah Hecht is a Nurse Practitioner in Boston, Massachusetts. Ms. Hecht is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Osteoporosis-Pseudoglioma Syndrome, Renpenning Syndrome, Mandibuloacral Dysplasia, and Lateral Meningocele Syndrome. Ms. Hecht is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics
      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Mo is a Pediatric Orthopedics specialist and an Orthopedics provider in Boston, Massachusetts. Dr. Mo is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Clubfoot, Sandhaus Ben-Ami Syndrome, Small Patella Syndrome, and Trochlear Dysplasia. Dr. Mo is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Orthopedics
      Advanced in Cranioectodermal Dysplasia
      Orthopedics
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Michael Hresko is an Orthopedics provider in Boston, Massachusetts. Dr. Hresko is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Scoliosis, Adolescent Idiopathic Scoliosis, Kyphosis, Spinal Fusion, and Osteotomy.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Endocrinology
      Advanced in Cranioectodermal Dysplasia
      Pediatric Endocrinology

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Bat-sheva Levine is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Levine is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Short Stature (Growth Disorders), Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Osteogenesis Imperfecta.

      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner
      Advanced in Cranioectodermal Dysplasia
      Nurse Practitioner
      300 Longwood Ave, Fegan 333, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Meghan O'hare is a Nurse Practitioner in Boston, Massachusetts. Ms. O'hare is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Cantu Syndrome, Simpson-Golabi-Behmel Syndrome, Hemi 3 Syndrome, and Marshall-Smith Syndrome.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics
      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics

      Children's Orthopaedic Surgery Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Grant Hogue is a Pediatric Orthopedics specialist and an Orthopedics provider in Boston, Massachusetts. Dr. Hogue is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Adolescent Idiopathic Scoliosis, Scoliosis, Kyphosis, Spinal Fusion, and Osteotomy.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics | Hand Surgery
      Advanced in Cranioectodermal Dysplasia
      Pediatric Orthopedics | Orthopedics | Hand Surgery
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Donald Bae is a Pediatric Orthopedics specialist and an Orthopedics provider in Boston, Massachusetts. Dr. Bae is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Osteochondritis Dissecans, Syndactyly Type 2, Syndactyly, Bone Graft, and Osteotomy. Dr. Bae is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Advanced in Cranioectodermal Dysplasia

      Children's Orthopaedic Surgery Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Daniel Hedequist is an Orthopedics provider in Boston, Massachusetts. Dr. Hedequist is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Adolescent Idiopathic Scoliosis, Scoliosis, Kyphosis, Spinal Fusion, and Osteotomy.

      Advanced in Cranioectodermal Dysplasia
      Advanced in Cranioectodermal Dysplasia

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Atsuhiko Handa is a Radiologist in Boston, Massachusetts. Dr. Handa has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Spondyloepiphyseal Dysplasia Congenita, Chondrodystrophy, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Bone Marrow Aspiration.

      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Advanced in Cranioectodermal Dysplasia
      Medical Genetics | Pediatrics
      Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, EEC Syndrome, and AEC Syndrome. Dr. Tan is currently accepting new patients.

      Advanced in Cranioectodermal Dysplasia
      Pediatric Neurology | Neurology
      Advanced in Cranioectodermal Dysplasia
      Pediatric Neurology | Neurology

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English

      Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Advanced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

      Experienced in Cranioectodermal Dysplasia
      Nurse Practitioner
      Experienced in Cranioectodermal Dysplasia
      Nurse Practitioner
      300 Longwood Avenue, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Lucia Bastianelli is a Nurse Practitioner in Boston, Massachusetts. Ms. Bastianelli is rated as an Experienced provider by MediFind in the treatment of Cranioectodermal Dysplasia. Her top areas of expertise are Osteoporosis-Pseudoglioma Syndrome, Mandibuloacral Dysplasia, Cranioectodermal Dysplasia, and Lateral Meningocele Syndrome.

      Experienced in Cranioectodermal Dysplasia
      Pediatric Pulmonology | Pediatrics
      Experienced in Cranioectodermal Dysplasia
      Pediatric Pulmonology | Pediatrics
      300 Longwood Ave, Division Of Respiratory Diseases, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kenan Haver is a Pediatric Pulmonologist and a Pediatrics provider in Boston, Massachusetts. Dr. Haver is rated as an Experienced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Situs Inversus, Ciliary Dyskinesia-Bronchiectasis, Early Infantile Epileptic Encephalopathy, and Wildervanck Syndrome. Dr. Haver is currently accepting new patients.

      Experienced in Cranioectodermal Dysplasia
      Pediatric Endocrinology
      Experienced in Cranioectodermal Dysplasia
      Pediatric Endocrinology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Daniel Zeve is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Zeve is rated as an Experienced provider by MediFind in the treatment of Cranioectodermal Dysplasia. His top areas of expertise are Precocious Puberty, Diabetes Insipidus (DI), Neurohypophyseal Diabetes Insipidus, and Short Stature (Growth Disorders).

      Showing 1-20 of 37

      Last Updated: 10/30/2025

      What is the definition of Cranioectodermal Dysplasia?

      Cranioectodermal dysplasia is a disorder that affects many parts of the body. The most common features involve bone abnormalities and abnormal development of certain tissues known as ectodermal tissues, which include the skin, hair, nails, and teeth. The signs and symptoms of this condition vary among affected individuals, even among members of the same family.

      When should I see a Cranioectodermal Dysplasia doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cranioectodermal Dysplasia doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cranioectodermal Dysplasia doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cranioectodermal Dysplasia doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cranioectodermal Dysplasia doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cranioectodermal Dysplasia doctor search results page. 

      Why is it important to get a second opinion from a different Cranioectodermal Dysplasia doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cranioectodermal Dysplasia doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cranioectodermal Dysplasia doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cranioectodermal Dysplasia doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cranioectodermal Dysplasia doctors near Boston, MA?

      Look for the filter feature on the left side of the Cranioectodermal Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cranioectodermal Dysplasia doctor that offers video calls?

      Look for the filter feature on the left-side of the Cranioectodermal Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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