The 20 Best Crouzon Syndrome Doctors Near Me in Massachusetts, US

Find the Top Crouzon Syndrome Experts and Specialists

The 20 Best Crouzon Syndrome Doctors in Massachusetts, US

Last Updated: 02/22/2026

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MediFind found 26 doctor with experience in Crouzon Syndrome near Massachusetts, US. Of these, 21 are Experienced and 5 are Advanced.

Location
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26 providers found
    Experienced in Crouzon Syndrome
    Radiology
    Experienced in Crouzon Syndrome
    Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Yang is a Radiologist in Boston, Massachusetts. Dr. Yang is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Cortical Dysplasia, Agyria Pachygyria Polymicrogyria, Focal or Multifocal Malformations in Neuronal Migration, and Polymicrogyria.

    Experienced in Crouzon Syndrome
    Medical Genetics
    Experienced in Crouzon Syndrome
    Medical Genetics

    Beth Israel Deaconess Hospital - Plymouth

    275 Sandwich Street, 
    Plymouth, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Jodi Hoffman is a Medical Genetics provider in Plymouth, Massachusetts. Dr. Hoffman is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Bosma Arhinia Microphthalmia Syndrome, Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Ehlers-Danlos Syndrome (EDS).

    Experienced in Crouzon Syndrome
    Experienced in Crouzon Syndrome

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Caroline Robson is a Pediatrics provider in Boston, Massachusetts. Dr. Robson is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Desmoid Tumor, Syndactyly, Pseudotumor Cerebri Syndrome, Acromicric Dysplasia, and Tenotomy.

    Learn about our expert tiers
    Experienced in Crouzon Syndrome
    Radiology | Neonatology | Obstetrics and Gynecology
    Experienced in Crouzon Syndrome
    Radiology | Neonatology | Obstetrics and Gynecology

    Office

    1 Brookline Pl Ste 506, 
    Brookline, MA 
    Languages Spoken:
    English

    Bryann Bromley is a Radiologist and a Neonatologist in Brookline, Massachusetts. Dr. Bromley is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Ovarian Cysts, Neonatal Ovarian Cyst, Angiomyoma, Uterine Fibroids, and Intrauterine Device Insertion.

    Experienced in Crouzon Syndrome
    Pediatric Radiology
    Experienced in Crouzon Syndrome
    Pediatric Radiology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Atsuhiko Handa is a Pediatric Radiologist in Boston, Massachusetts. Dr. Handa has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Spondyloepiphyseal Dysplasia Congenita, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, Chondrodystrophy, and Bone Marrow Aspiration.

    Experienced in Crouzon Syndrome
    Pediatric Radiology
    Experienced in Crouzon Syndrome
    Pediatric Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Judy Estroff is a Pediatric Radiologist in Boston, Massachusetts. Dr. Estroff is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Schizencephaly, Porencephaly, Cortical Dysplasia, and Subependymal Nodular Heterotopia.

    Experienced in Crouzon Syndrome
    Medical Genetics
    Experienced in Crouzon Syndrome
    Medical Genetics

    Beth Israel Deaconess Medical Center - Department Of Pathology

    330 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English, German

    Ulrike Kappes is a Medical Genetics provider in Boston, Massachusetts. Dr. Kappes is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Mosaicism, Micrognathia, Crouzon Syndrome, and Turner Syndrome. She is board certified in American Board Of Medical Genetics And Genomics.

    Advanced in Crouzon Syndrome
    General Surgery
    Advanced in Crouzon Syndrome
    General Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    John Meara is a General Surgeon in Boston, Massachusetts. Dr. Meara is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Craniosynostosis, Metopic Ridge, Cleft Lip and Palate, Craniectomy, and Septoplasty.

    Advanced in Crouzon Syndrome
    General Surgery
    Advanced in Crouzon Syndrome
    General Surgery

    Department Of Neurosurgery

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Mark Proctor is a General Surgeon in Boston, Massachusetts. Dr. Proctor is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Craniectomy, and Posterior Fossa Decompression.

    Advanced in Crouzon Syndrome
    Pediatric Otolaryngology
    Advanced in Crouzon Syndrome
    Pediatric Otolaryngology

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Roger Nuss is a Pediatric Otolaryngologist in Boston, Massachusetts. Dr. Nuss is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Laryngomalacia, Spasmodic Dysphonia, Perichondritis, Myringotomy, and Adenoidectomy.

    Advanced in Crouzon Syndrome
    Pediatric Otolaryngology
    Advanced in Crouzon Syndrome
    Pediatric Otolaryngology

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Gi Lee is a Pediatric Otolaryngologist in Boston, Massachusetts. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Microtia, Enlarged Adenoids, Male Pattern Baldness, Adenoidectomy, and Myringotomy.

    Advanced in Crouzon Syndrome
    Plastic Surgery
    Advanced in Crouzon Syndrome
    Plastic Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    John Mulliken is a Plastic Surgeon in Boston, Massachusetts. Dr. Mulliken is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Vascular Birthmark, Apert Syndrome, Acrocephalopolydactyly, Osteotomy, and Bone Graft.

    Experienced in Crouzon Syndrome
    Pediatrics | Medical Genetics
    Experienced in Crouzon Syndrome
    Pediatrics | Medical Genetics
    300 Longwood Ave, Fegan 10, 
    Boston, MA 
    Languages Spoken:
    English

    Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

    Experienced in Crouzon Syndrome
    General Surgery
    Experienced in Crouzon Syndrome
    General Surgery

    Department Of Plastic & Oral Surgery

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Carolyn Rogers is a General Surgeon in Boston, Massachusetts. Dr. Rogers is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Pierre Robin Sequence, Breast Enlargement In Males, Plagiocephaly, Osteotomy, and Myringotomy.

    Experienced in Crouzon Syndrome
    Plastic Surgery
    Experienced in Crouzon Syndrome
    Plastic Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Daniel Balkin is a Plastic Surgeon in Boston, Massachusetts. Dr. Balkin is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Aseptic and Alopecic Nodules of Scalp (AANS), Arteriovenous Malformation, Congenital Athymia, Tissue Biopsy, and Osteotomy.

    Experienced in Crouzon Syndrome
    Internal Medicine
    Experienced in Crouzon Syndrome
    Internal Medicine
    20 Edwards Rd, 
    Natick, MA 
    Languages Spoken:
    English

    Maria Guillen-Sacoto is a primary care provider, practicing in Internal Medicine in Natick, Massachusetts. Dr. Guillen-Sacoto is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Muenke Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

    Experienced in Crouzon Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Experienced in Crouzon Syndrome
    Pediatric Otolaryngology | Otolaryngology

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Jacob Brodsky is a Pediatric Otolaryngologist and an Otolaryngologist in Boston, Massachusetts. Dr. Brodsky is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Vertigo, Benign Paroxysmal Positional Vertigo, Hearing Loss, Myringotomy, and Adenoidectomy.

    Experienced in Crouzon Syndrome
    Neurosurgery
    Experienced in Crouzon Syndrome
    Neurosurgery

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Benjamin Warf is a Neurosurgery provider in Boston, Massachusetts. Dr. Warf is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Hydrocephalus, Myelomeningocele, Syringomyelia, Posterior Fossa Decompression, and Endoscopy.

    Experienced in Crouzon Syndrome
    Pediatric Otolaryngology
    Experienced in Crouzon Syndrome
    Pediatric Otolaryngology

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Laurie Ohlms is a Pediatric Otolaryngologist in Boston, Massachusetts. Dr. Ohlms is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Hearing Loss, Enlarged Adenoids, Otitis, Myringotomy, and Adenoidectomy.

    Experienced in Crouzon Syndrome
    General Surgery
    Experienced in Crouzon Syndrome
    General Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Amir Taghinia is a General Surgeon in Boston, Massachusetts. Dr. Taghinia is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Syndactyly, Apert Syndrome, Acrocephalopolydactyly, Osteotomy, and Tissue Biopsy.

    Showing 1-20 of 26

    Last Updated: 02/22/2026

    What is the definition of Crouzon Syndrome?

    Crouzon syndrome is a genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). This early fusion prevents the skull from growing normally and affects the shape of the head and face.

    When should I see a Crouzon Syndrome doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Crouzon Syndrome doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Crouzon Syndrome doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Crouzon Syndrome doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Crouzon Syndrome doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Crouzon Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Crouzon Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Crouzon Syndrome doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Crouzon Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Crouzon Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Crouzon Syndrome doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Crouzon Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Crouzon Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Crouzon Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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