The 20 Best Cystinosis Doctors in Germany

Find the Top Cystinosis Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 115 doctor with experience in Cystinosis near Germany. Of these, 92 are Experienced, 15 are Advanced, 7 are Distinguished and 1 are Elite.

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115 providers found
    Elite in Cystinosis

    Katharina Hohenfellner
    Elite in Cystinosis

    Katharina Hohenfellner
    Referral may be required
    Carl Neuberg Str. 1, 
    Hannover, NI, DE 

    Katharina Hohenfellner practices practicing medicine in Hannover, Germany. Ms. Hohenfellner is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Primary Lateral Sclerosis, and Kidney Transplant.

    Distinguished in Cystinosis

    Dieter Haffner
    Distinguished in Cystinosis

    Dieter Haffner
    Referral may be required
    Carl Neuberg Str. 1, 
    Hannover, NI, DE 

    Dieter Haffner practices practicing medicine in Hannover, Germany. Mr. Haffner is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hypophosphatemia, Rickets, X-Linked Hypophosphatemia, Kidney Transplant, and Gastrostomy.

    Distinguished in Cystinosis

    Leonie F. Keidel
    Distinguished in Cystinosis

    Leonie F. Keidel
    Referral may be required
    Munich, BY, DE 

    Leonie Keidel practices practicing medicine in Munich, Germany. Ms. Keidel is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Central Serous Chorioretinopathy, Retinal Detachment, Spinocerebellar Degeneration and Corneal Dystrophy, and Vitrectomy.

    Learn about our expert tiers
    Distinguished in Cystinosis

    Lutz T. Weber
    Distinguished in Cystinosis

    Lutz T. Weber
    Referral may be required
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Lutz Weber practices practicing medicine in Koeln, Germany. Mr. Weber is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Autosomal Recessive Polycystic Kidney Disease, Fanconi Bickel Syndrome, Kidney Transplant, and Gastrostomy.

    Distinguished in Cystinosis

    Anja K. Buscher
    Distinguished in Cystinosis

    Anja K. Buscher
    Referral may be required
    Muenster, NW, DE 

    Anja Buscher practices practicing medicine in Muenster, Germany. Ms. Buscher is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Cystinosis, Fanconi Syndrome, Kidney Transplant, and Liver Transplant.

    Distinguished in Cystinosis

    Burkhard Tonshoff
    Distinguished in Cystinosis

    Burkhard Tonshoff
    Referral may be required
    Heidelberg, BW, DE 

    Burkhard Tonshoff practices practicing medicine in Heidelberg, Germany. Tonshoff is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, Kidney Transplant, and Liver Transplant.

    Distinguished in Cystinosis

    Claudia S. Priglinger
    Distinguished in Cystinosis

    Claudia S. Priglinger
    Referral may be required
    Munich, BY, DE 

    Claudia Priglinger practices practicing medicine in Munich, Germany. Ms. Priglinger is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Cystinosis, CLN4 Disease, and Vitrectomy.

    Distinguished in Cystinosis

    Erik Harms
    Distinguished in Cystinosis

    Erik Harms
    Referral may be required
    Muenster, NW, DE 

    Erik Harms practices practicing medicine in Muenster, Germany. Mr. Harms is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, and Spinal Muscular Atrophy Type 3.

    Advanced in Cystinosis

    Lars E. Pape
    Advanced in Cystinosis

    Lars E. Pape
    Referral may be required
    Carl Neuberg Str. 1, 
    Hannover, NI, DE 

    Lars Pape practices practicing medicine in Hannover, Germany. Mr. Pape is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Cytomegalovirus Infection, Bardet-Biedl Syndrome, Hemolytic-Uremic Syndrome, Kidney Transplant, and Liver Transplant.

    Advanced in Cystinosis

    Julia Thumfart
    Advanced in Cystinosis

    Julia Thumfart
    Referral may be required
    Berlin, BE, DE 

    Julia Thumfart practices practicing medicine in Berlin, Germany. Ms. Thumfart is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Autosomal Recessive Polycystic Kidney Disease, and Kidney Transplant.

    Advanced in Cystinosis

    Siegfried G. Priglinger
    Advanced in Cystinosis

    Siegfried G. Priglinger
    Referral may be required
    Munich, BY, DE 

    Siegfried Priglinger practices practicing medicine in Munich, Germany. Mr. Priglinger is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Cataract, Astigmatism, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

    Advanced in Cystinosis

    Maren Nestler-Leifheit
    Advanced in Cystinosis

    Maren Nestler-Leifheit
    Referral may be required
    Carl Neuberg Str. 1, 
    Hannover, NI, DE 

    Maren Nestler-Leifheit practices practicing medicine in Hannover, Germany. Ms. Nestler-Leifheit is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Hypophosphatemia, Rickets, X-Linked Hypophosphatemia, Malnutrition, and Kidney Transplant.

    Advanced in Cystinosis

    Nikolaus Luft
    Advanced in Cystinosis

    Nikolaus Luft
    Referral may be required
    Munich, BY, DE 

    Nikolaus Luft practices practicing medicine in Munich, Germany. Mr. Luft is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cataract, Astigmatism, Nearsightedness, Corneal Transplant, and Vitrectomy.

    Advanced in Cystinosis

    Miroslav Zivicnjak
    Advanced in Cystinosis

    Miroslav Zivicnjak
    Referral may be required
    Carl Neuberg Str. 1, 
    Hannover, NI, DE 

    Miroslav Zivicnjak practices practicing medicine in Hannover, Germany. Mr. Zivicnjak is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Fanconi Bickel Syndrome, Fanconi Syndrome, Hypophosphatemia, Cystinosis, and Kidney Transplant.

    Advanced in Cystinosis

    Benedikt Schworm
    Advanced in Cystinosis

    Benedikt Schworm
    Referral may be required
    Munich, BY, DE 

    Benedikt Schworm practices practicing medicine in Munich, Germany. Mr. Schworm is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Central Serous Chorioretinopathy, Cystinosis, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, and Vitrectomy.

    Advanced in Cystinosis

    Heiko Billing
    Advanced in Cystinosis

    Heiko Billing
    Referral may be required
    Ludwigsburg, BW, DE 

    Heiko Billing practices practicing medicine in Ludwigsburg, Germany. Mr. Billing is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, Coach Syndrome, and Kidney Transplant.

    Advanced in Cystinosis

    Thorsten Marquardt
    Advanced in Cystinosis

    Thorsten Marquardt
    Referral may be required
    Albert Schweitzer Str. 33, 
    Muenster, NW, DE 

    Thorsten Marquardt practices practicing medicine in Muenster, Germany. Mr. Marquardt is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, PGM1-CDG, Niemann-Pick Disease, Glutaric Acidemia Type 2, and Thrombectomy.

    Advanced in Cystinosis

    Nele K. Kanzelmeyer
    Advanced in Cystinosis

    Nele K. Kanzelmeyer
    Referral may be required
    Carl Neuberg Str. 1, 
    Hannover, NI, DE 

    Nele Kanzelmeyer practices practicing medicine in Hannover, Germany. Kanzelmeyer is rated as an Advanced expert by MediFind in the treatment of Cystinosis. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Goodpasture Syndrome, and Kidney Transplant.

    Advanced in Cystinosis

    Markus J. Kemper
    Advanced in Cystinosis

    Markus J. Kemper
    Referral may be required
    Hamburg, HH, DE 

    Markus Kemper practices practicing medicine in Hamburg, Germany. Mr. Kemper is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Diffuse Mesangial Sclerosis, Primary Hyperoxaluria, Kidney Transplant, and Liver Transplant.

    Advanced in Cystinosis

    Elke S. Wuhl
    Advanced in Cystinosis

    Elke S. Wuhl
    Referral may be required
    Heidelberg, BW, DE 

    Elke Wuhl practices practicing medicine in Heidelberg, Germany. Ms. Wuhl is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, X-Linked Hypophosphatemia, Nephrocalcinosis, Hypertension, and Kidney Transplant.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 115

    Last Updated: 06/30/2026

    What is the definition of Cystinosis?

    Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

    When should I see a Cystinosis doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cystinosis doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Cystinosis doctor in Germany?

    You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Cystinosis doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cystinosis doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cystinosis doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

    Why is it important to get a second opinion from a different Cystinosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cystinosis doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cystinosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cystinosis doctors in Germany?

    Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cystinosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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