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    Last Updated: 01/09/2026

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    MediFind found 112 doctor with experience in Cystinosis near Germany. Of these, 88 are Experienced, 16 are Advanced, 7 are Distinguished and 1 are Elite.

    Location
    LocationClose
    112 providers found
      Elite in Cystinosis
      Elite in Cystinosis
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Katharina Hohenfellner practices in Hannover, Germany. Ms. Hohenfellner is rated as an Elite expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Primary Lateral Sclerosis, and Kidney Transplant.

      Distinguished in Cystinosis
      Distinguished in Cystinosis
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Dieter Haffner practices in Hannover, Germany. Mr. Haffner is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Hypophosphatemia, Rickets, X-Linked Hypophosphatemia, Kidney Transplant, and Gastrostomy.

      Distinguished in Cystinosis
      Distinguished in Cystinosis
      Hamburg, HH, DE 

      Jun Oh practices in Hamburg, Germany. Mr. Oh is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, Kidney Transplant, and Liver Transplant.

      Learn about our expert tiers
      Distinguished in Cystinosis
      Distinguished in Cystinosis
      Essen, NW, DE 

      Anja Buscher practices in Essen, Germany. Ms. Buscher is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Cystinosis, Fanconi Syndrome, Kidney Transplant, and Liver Transplant.

      Distinguished in Cystinosis
      Distinguished in Cystinosis
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Lutz Weber practices in Koeln, Germany. Mr. Weber is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Nephrotic Syndrome, Autosomal Recessive Polycystic Kidney Disease, Fanconi Syndrome, Kidney Transplant, and Gastrostomy.

      Distinguished in Cystinosis
      Distinguished in Cystinosis
      Munich, BY, DE 

      Leonie Keidel practices in Munich, Germany. Ms. Keidel is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Central Serous Chorioretinopathy, Retinal Detachment, Spinocerebellar Degeneration and Corneal Dystrophy, and Vitrectomy.

      Distinguished in Cystinosis
      Distinguished in Cystinosis
      Muenster, NW, DE 

      Erik Harms practices in Muenster, Germany. Mr. Harms is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, and Spinal Muscular Atrophy Type 3.

      Distinguished in Cystinosis
      Distinguished in Cystinosis
      Heidelberg, BW, DE 

      Burkhard Tonshoff practices in Heidelberg, Germany. Tonshoff is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Kidney Transplant, and Liver Transplant.

      Lars E. Pape
      Advanced in Cystinosis
      Advanced in Cystinosis
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Lars Pape practices in Hannover, Germany. Mr. Pape is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cytomegalovirus Infection, Bardet-Biedl Syndrome, Hemolytic-Uremic Syndrome, Kidney Transplant, and Liver Transplant.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Berlin, BE, DE 

      Julia Thumfart practices in Berlin, Germany. Ms. Thumfart is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Autosomal Recessive Polycystic Kidney Disease, and Kidney Transplant.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Munich, BY, DE 

      Claudia Priglinger practices in Munich, Germany. Ms. Priglinger is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Cystinosis, Batten Disease, and Vitrectomy.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Maren Nestler-Leifheit practices in Hannover, Germany. Ms. Nestler-Leifheit is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Hypophosphatemia, Rickets, X-Linked Hypophosphatemia, Malnutrition, and Kidney Transplant.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Munich, BY, DE 

      Siegfried Priglinger practices in Munich, Germany. Mr. Priglinger is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cataract, Astigmatism, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Ludwigsburg, BW, DE 

      Heiko Billing practices in Ludwigsburg, Germany. Mr. Billing is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, Coach Syndrome, and Kidney Transplant.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Miroslav Zivicnjak practices in Hannover, Germany. Mr. Zivicnjak is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, Hypophosphatemia, and Kidney Transplant.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Munich, BY, DE 

      Nikolaus Luft practices in Munich, Germany. Mr. Luft is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cataract, Astigmatism, Nearsightedness, Corneal Transplant, and Vitrectomy.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Munich, BY, DE 

      Benedikt Schworm practices in Munich, Germany. Mr. Schworm is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Central Serous Chorioretinopathy, Cystinosis, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, and Vitrectomy.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Albert Schweitzer Str. 33, 
      Muenster, NW, DE 

      Thorsten Marquardt practices in Muenster, Germany. Mr. Marquardt is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, PGM1-CDG, Niemann-Pick Disease, Glutaric Acidemia Type 2, and Thrombectomy.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Luebeck, SH, DE 

      Markus Kemper practices in Luebeck, Germany. Mr. Kemper is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Primary Hyperoxaluria, Nephrotic Syndrome, Primary Hyperoxaluria Type 1, Kidney Transplant, and Liver Transplant.

      Advanced in Cystinosis
      Advanced in Cystinosis
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Nele Kanzelmeyer practices in Hannover, Germany. Kanzelmeyer is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Goodpasture Syndrome, and Kidney Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 112

      Last Updated: 01/09/2026

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cystinosis doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in Germany?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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