The 20 Best Cystinosis Doctors Near Me

Find the Top Cystinosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1109 doctor with experience in Cystinosis. Of these, 917 are Experienced, 134 are Advanced, 39 are Distinguished and 18 are Elite.

Location
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1,109 providers found
    Elite in Cystinosis
    Elite in Cystinosis
    Leuven, VLG, BE 

    Elena Levtchenko practices practicing medicine in Leuven, Belgium. Ms. Levtchenko is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Hypophosphatemia, and Kidney Transplant.

    Elite in Cystinosis
    Pediatric Nephrology
    Elite in Cystinosis
    Pediatric Nephrology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Craig Langman is a Pediatric Nephrologist practicing medicine in Chicago, Illinois. Dr. Langman is rated as an Elite provider by MediFind in the treatment of Cystinosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Atypical Hemolytic Uremic Syndrome (aHUS), and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Carl Neuberg Str. 1, 
    Hannover, NI, DE 

    Katharina Hohenfellner practices practicing medicine in Hannover, Germany. Ms. Hohenfellner is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Primary Lateral Sclerosis, and Kidney Transplant.

    Learn about our expert tiers
    Elite in Cystinosis
    Elite in Cystinosis
    Leuven, VLG, BE 

    Koenraad Veys practices practicing medicine in Leuven, Belgium. Veys is rated as an Elite expert by MediFind in the treatment of Cystinosis. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Nephrocalcinosis, and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Rome, IT 

    Francesco Emma practices practicing medicine in Rome, Italy. Mr. Emma is rated as an Elite expert by MediFind in the treatment of Cystinosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Nephrotic Syndrome, Fanconi Bickel Syndrome, Fanconi Syndrome, and Kidney Transplant.

    Elite in Cystinosis
    Pediatric Nephrology
    Elite in Cystinosis
    Pediatric Nephrology

    Office

    770 Welch Rd Ste 300, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Paul Grimm is a Pediatric Nephrologist practicing medicine in Palo Alto, California. Dr. Grimm is rated as an Elite provider by MediFind in the treatment of Cystinosis. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Kidney Transplant, and Nephrectomy.

    Elite in Cystinosis
    Elite in Cystinosis
    Paris, FR 

    Aude Servais practices practicing medicine in Paris, France. Ms. Servais is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Kidney Transplant, and Gastrostomy.

    Elite in Cystinosis
    Elite in Cystinosis

    Radboud UMC

    Nijmegen, GE, NL 

    Lambertus Van Den Heuvel practices practicing medicine in Nijmegen, Netherlands. Van Den Heuvel is rated as an Elite expert by MediFind in the treatment of Cystinosis. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Cystinosis, D-Plus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Cairo, C, EG 

    Mohamed Elmonem practices practicing medicine in Cairo, Egypt. Mr. Elmonem is rated as an Elite expert by MediFind in the treatment of Cystinosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Alagille Syndrome, Lipogranulomatosis, Cholestasis, and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Paris, FR 

    Corinne Antignac practices practicing medicine in Paris, France. Ms. Antignac is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Nephrotic Syndrome, Cystinosis, Renal Tubular Dysgenesis, Kidney Transplant, and Nephrectomy.

    Elite in Cystinosis
    Elite in Cystinosis
    Paris, FR 

    Patrick Niaudet practices practicing medicine in Paris, France. Mr. Niaudet is rated as an Elite expert by MediFind in the treatment of Cystinosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Nephrotic Syndrome, and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Barcelona, CT, ES 

    Gema Ariceta practices practicing medicine in Barcelona, Spain. Ms. Ariceta is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Nephrocalcinosis, Atypical Hemolytic Uremic Syndrome (aHUS), Hemolytic-Uremic Syndrome, Kidney Transplant, and Nephrectomy.

    Elite in Cystinosis
    Elite in Cystinosis
    Ankara, TR 

    Rezan Topaloglu practices practicing medicine in Ankara, Turkey. Topaloglu is rated as an Elite expert by MediFind in the treatment of Cystinosis. They are also highly rated in 27 other conditions, according to our data. Their clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Kidney Transplant, and Bone Marrow Aspiration.

    Elite in Cystinosis
    Elite in Cystinosis
    Groupement Hospitalier Est, 
    Bron, FR 

    Aurelia Thomas-Bertholet practices practicing medicine in Bron, France. Ms. Thomas-Bertholet is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Proximal Renal Tubular Acidosis, Primary Tubular Proximal Acidosis, Renal Tubular Acidosis, Nephrocalcinosis, and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Rome, IT 

    Sara Cairoli practices practicing medicine in Rome, Italy. Ms. Cairoli is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Argininosuccinic Aciduria, Nephrogenic Diabetes Insipidus, Methylmalonic Acidemia with Homocystinuria, and Liver Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Utrecht, UT, NL 

    Rosalinde Masereeuw practices practicing medicine in Utrecht, Netherlands. Ms. Masereeuw is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Nephrectomy, and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Paris, FR 

    Georges Deschenes practices practicing medicine in Paris, France. Mr. Deschenes is rated as an Elite expert by MediFind in the treatment of Cystinosis. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Primary Hyperoxaluria, Primary Hyperoxaluria Type 1, Cystinosis, Kidney Transplant, and Liver Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Rome, IT 

    Francesco Bellomo practices practicing medicine in Rome, Italy. Mr. Bellomo is rated as an Elite expert by MediFind in the treatment of Cystinosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cystinosis.

    Experienced in Cystinosis
    Pediatric Nephrology | Pediatrics
    Experienced in Cystinosis
    Pediatric Nephrology | Pediatrics

    Atrium Health Levine Children's Nephrology

    1001 Blythe Blvd., Suite C, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Megan Yanik is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. Dr. Yanik is rated as an Experienced provider by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Cystinosis, Posterior Urethral Valves, Feingold Syndrome, Congenital Nephrotic Syndrome, and Kidney Transplant. Dr. Yanik is board certified in American Board Of Pediatrics. Dr. Yanik is currently accepting new patients.

    Distinguished in Cystinosis
    Distinguished in Cystinosis
    Groupement Hospitalier Est, 
    Bron, FR 

    Pierre Cochat practices practicing medicine in Bron, France. Mr. Cochat is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Primary Hyperoxaluria, Nephrocalcinosis, Primary Hyperoxaluria Type 1, Kidney Transplant, and Liver Transplant.

    Showing 1-20 of 1,109

    Last Updated: 04/28/2026

    What is the definition of Cystinosis?

    Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

    When should I see a Cystinosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cystinosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Cystinosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cystinosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cystinosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

    Why is it important to get a second opinion from a different Cystinosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cystinosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cystinosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cystinosis doctors near me?

    Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cystinosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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