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    Last Updated: 01/09/2026

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    MediFind found 18 doctor with experience in Cystinosis near Baden-Wuerttemberg, DE. Of these, 15 are Experienced, 2 are Advanced and 1 are Distinguished.

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    18 providers found
      Distinguished in Cystinosis

      Burkhard Tonshoff
      Distinguished in Cystinosis

      Burkhard Tonshoff
      Heidelberg, BW, DE 

      Burkhard Tonshoff practices in Heidelberg, Germany. Tonshoff is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Kidney Transplant, and Liver Transplant.

      Advanced in Cystinosis

      Heiko Billing
      Advanced in Cystinosis

      Heiko Billing
      Ludwigsburg, BW, DE 

      Heiko Billing practices in Ludwigsburg, Germany. Mr. Billing is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, Coach Syndrome, and Kidney Transplant.

      Advanced in Cystinosis

      Elke S. Wuhl
      Advanced in Cystinosis

      Elke S. Wuhl
      Heidelberg, BW, DE 

      Elke Wuhl practices in Heidelberg, Germany. Ms. Wuhl is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Hypertension, Nephrocalcinosis, X-Linked Hypophosphatemia, and Kidney Transplant.

      Learn about our expert tiers
      Experienced in Cystinosis

      Franz W. Schaefer
      Experienced in Cystinosis

      Franz W. Schaefer
      Heidelberg, BW, DE 

      Franz Schaefer practices in Heidelberg, Germany. Mr. Schaefer is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are High Blood Pressure in Infants, Autosomal Recessive Polycystic Kidney Disease, Nephrotic Syndrome, Kidney Transplant, and Nephrectomy.

      Experienced in Cystinosis

      Lorena Villar-Gallego
      Experienced in Cystinosis

      Lorena Villar-Gallego
      Freiburg, BW, DE 

      Lorena Villar-Gallego practices in Freiburg, Germany. Ms. Villar-Gallego is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Homocystinuria, Propionic Acidemia, Juvenile Myelomonocytic Leukemia (JMML), and Cystinosis.

      Experienced in Cystinosis

      Christian M. Wertheimer
      Experienced in Cystinosis

      Christian M. Wertheimer
      Ulm, BW, DE 

      Christian Wertheimer practices in Ulm, Germany. Mr. Wertheimer is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Retinal Detachment, Cataract, Astigmatism, Vitrectomy, and Cataract Removal.

      Experienced in Cystinosis

      Saadettin Sel
      Experienced in Cystinosis

      Saadettin Sel
      Heidelberg, BW, DE 

      Saadettin Sel practices in Heidelberg, Germany. Sel is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Dry Eye Syndrome, Endophthalmitis, Cystinosis, Vitrectomy, and Corneal Transplant.

      Experienced in Cystinosis

      Miriam Schmidts
      Experienced in Cystinosis

      Miriam Schmidts
      Freiburg, BW, DE 

      Miriam Schmidts practices in Freiburg, Germany. Ms. Schmidts is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Asphyxiating Thoracic Dystrophy, Ellis-Van Creveld Syndrome, Situs Inversus, and Ectodermal Dysplasias.

      Experienced in Cystinosis

      Tamer Tandogan
      Experienced in Cystinosis

      Tamer Tandogan
      Heidelberg, BW, DE 

      Tamer Tandogan practices in Heidelberg, Germany. Tandogan is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cataract, Presbyopia, Nearsightedness, Cataract Removal, and Vitrectomy.

      Experienced in Cystinosis

      Martin Bald
      Experienced in Cystinosis

      Martin Bald
      Stuttgart, BW, DE 

      Martin Bald practices in Stuttgart, Germany. Mr. Bald is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Kenny-Caffey Syndrome Type 2, Coach Syndrome, Nephronophthisis, Cytomegalovirus Infection, and Kidney Transplant.

      Experienced in Cystinosis

      Matthias Zirngibl
      Experienced in Cystinosis

      Matthias Zirngibl
      Tuebingen, BW, DE 

      Matthias Zirngibl practices in Tuebingen, Germany. Mr. Zirngibl is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Obstructive Uropathy, Fanconi Bickel Syndrome, Fanconi Syndrome, Urinary Tract Infection (UTI), and Kidney Transplant.

      Experienced in Cystinosis

      Martin Pohl
      Experienced in Cystinosis

      Martin Pohl
      Freiburg, BW, DE 

      Martin Pohl practices in Freiburg, Germany. Mr. Pohl is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Henoch-Schonlein Purpura, Fanconi Syndrome, Fanconi Bickel Syndrome, Kidney Transplant, and Angioplasty.

      Experienced in Cystinosis

      Hermann-josef J. Grone
      Experienced in Cystinosis

      Hermann-josef J. Grone
      Heidelberg, BW, DE 

      Hermann-josef Grone practices in Heidelberg, Germany. Grone is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Glomerulonephritis, Diabetic Nephropathy, Focal Segmental Glomerulosclerosis, Autosomal Dominant Tubulointerstitial Kidney Disease, and Kidney Transplant.

      Experienced in Cystinosis

      Gerd U. Auffarth
      Experienced in Cystinosis

      Gerd U. Auffarth
      Heidelberg, BW, DE 

      Gerd Auffarth practices in Heidelberg, Germany. Auffarth is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cataract, Astigmatism, Presbyopia, Cataract Removal, and Corneal Transplant.

      Experienced in Cystinosis

      Martina Feger
      Experienced in Cystinosis

      Martina Feger
      Gmelinstr.5/Otfried Mueller Str. 10, 
      Tuebingen, BW, DE 

      Martina Feger practices in Tuebingen, Germany. Ms. Feger is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Nephrocalcinosis, Calcinosis, Chorea-Acanthocytosis, Metabolic Acidosis, and Nephrectomy.

      Experienced in Cystinosis

      Michael Foller
      Experienced in Cystinosis

      Michael Foller
      Stuttgart, BW, DE 

      Michael Foller practices in Stuttgart, Germany. Mr. Foller is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Chorea-Acanthocytosis, Hemolysis, Hypophosphatemia, and Fanconi Syndrome.

      Experienced in Cystinosis

      Carolin Elhardt
      Experienced in Cystinosis

      Carolin Elhardt
      Ulm, BW, DE 

      Carolin Elhardt practices in Ulm, Germany. Ms. Elhardt is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Interstitial Keratitis, Fuchs Dystrophy, Macular Corneal Dystrophy Type 1, Amebiasis, and Corneal Transplant.

      Experienced in Cystinosis

      Marcus Weitz
      Experienced in Cystinosis

      Marcus Weitz
      Tuebingen, BW, DE 

      Marcus Weitz practices in Tuebingen, Germany. Mr. Weitz is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Congenital Giant Megaureter, Hypophosphatemia, Obstructive Uropathy, Kidney Transplant, and Bone Marrow Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-18 of 18

      Last Updated: 01/09/2026

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in Baden-Wuerttemberg, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in Baden-Wuerttemberg, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cystinosis doctor in Baden-Wuerttemberg, DE?

      You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Cystinosis doctors in Baden-Wuerttemberg, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in Baden-Wuerttemberg, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in Baden-Wuerttemberg, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in Baden-Wuerttemberg, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in Baden-Wuerttemberg, DE?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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