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    Last Updated: 01/09/2026

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    MediFind found 25 doctor with experience in Cystinosis near Hesse, DE. Of these, 19 are Experienced, 5 are Advanced and 1 are Distinguished.

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    25 providers found
      Distinguished in Cystinosis

      Leonie F. Keidel
      Distinguished in Cystinosis

      Leonie F. Keidel
      Munich, BY, DE 

      Leonie Keidel practices in Munich, Germany. Ms. Keidel is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Central Serous Chorioretinopathy, Retinal Detachment, Spinocerebellar Degeneration and Corneal Dystrophy, and Vitrectomy.

      Advanced in Cystinosis

      Claudia S. Priglinger
      Advanced in Cystinosis

      Claudia S. Priglinger
      Munich, BY, DE 

      Claudia Priglinger practices in Munich, Germany. Ms. Priglinger is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Cystinosis, Batten Disease, and Vitrectomy.

      Advanced in Cystinosis

      Siegfried G. Priglinger
      Advanced in Cystinosis

      Siegfried G. Priglinger
      Munich, BY, DE 

      Siegfried Priglinger practices in Munich, Germany. Mr. Priglinger is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cataract, Astigmatism, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

      Learn about our expert tiers
      Advanced in Cystinosis

      Nikolaus Luft
      Advanced in Cystinosis

      Nikolaus Luft
      Munich, BY, DE 

      Nikolaus Luft practices in Munich, Germany. Mr. Luft is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cataract, Astigmatism, Nearsightedness, Corneal Transplant, and Vitrectomy.

      Advanced in Cystinosis

      Benedikt Schworm
      Advanced in Cystinosis

      Benedikt Schworm
      Munich, BY, DE 

      Benedikt Schworm practices in Munich, Germany. Mr. Schworm is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Central Serous Chorioretinopathy, Cystinosis, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, and Vitrectomy.

      Advanced in Cystinosis

      Katharina Vill
      Advanced in Cystinosis

      Katharina Vill
      Dr. Von Haunersches Kinderspital, 
      Munich, BY, DE 

      Katharina Vill practices in Munich, Germany. Ms. Vill is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 3, and Thrombectomy.

      Christoph Wanner
      Experienced in Cystinosis

      Christoph Wanner
      Experienced in Cystinosis

      Christoph Wanner
      Oberduerrbacher Str. 6, 
      Wuerzburg, BY, DE 

      Christoph Wanner practices in Wuerzburg, Germany. Mr. Wanner is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fabry Disease, Type 2 Diabetes (T2D), Chronic Kidney Disease, Heart Failure, and Kidney Transplant.

      Experienced in Cystinosis

      Siegfried Burggraf
      Experienced in Cystinosis

      Siegfried Burggraf
      Munich, BY, DE 

      Siegfried Burggraf practices in Munich, Germany. Mr. Burggraf is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Cystinosis, and Severe Combined Immunodeficiency (SCID).

      Experienced in Cystinosis

      Ludwig Czibere
      Experienced in Cystinosis

      Ludwig Czibere
      Munich, BY, DE 

      Ludwig Czibere practices in Munich, Germany. Mr. Czibere is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Spinal Muscular Atrophy (SMA), Cystinosis, Severe Combined Immunodeficiency (SCID), and Primary Lateral Sclerosis.

      Experienced in Cystinosis

      Jozef Zustin
      Experienced in Cystinosis

      Jozef Zustin
      Dechbettener Str. 5, 
      Regensburg, BY, DE 

      Jozef Zustin practices in Regensburg, Germany. Mr. Zustin is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Osteosclerosis Autosomal Dominant, Osteopetrosis, Fibrous Dysplasia, Hip Resurfacing, and Hip Replacement.

      Experienced in Cystinosis

      Wulf Roschinger
      Experienced in Cystinosis

      Wulf Roschinger
      Munich, BY, DE 

      Wulf Roschinger practices in Munich, Germany. Mr. Roschinger is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Vitamin B12 Deficiency Anemia, and Propionic Acidemia.

      Experienced in Cystinosis

      Susanne Pozza-Dalla
      Experienced in Cystinosis

      Susanne Pozza-Dalla
      Division Of Neonatology IS, Dr. Von Hauner Children's Hospital, 
      Munich, BY, DE 

      Susanne Pozza-Dalla practices in Munich, Germany. Ms. Pozza-Dalla is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Congenital Adrenal Hyperplasia (CAH), Intersex, Type 1 Diabetes (T1D), and Cystinosis.

      Experienced in Cystinosis

      Nils Briel
      Experienced in Cystinosis

      Nils Briel
      Munich, BY, DE 

      Nils Briel practices in Munich, Germany. Mr. Briel is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Corticobasal Degeneration, Supranuclear Ophthalmoplegia, Progressive Supranuclear Palsy Atypical, and Progressive Supranuclear Palsy.

      Experienced in Cystinosis

      Marcus R. Benz
      Experienced in Cystinosis

      Marcus R. Benz
      Dachau, BY, DE 

      Marcus Benz practices in Dachau, Germany. Mr. Benz is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Autosomal Dominant Distal Renal Tubular Acidosis, Nephrotic Syndrome, Primary Tubular Proximal Acidosis, and Proximal Renal Tubular Acidosis.

      Experienced in Cystinosis

      Marc Becker
      Experienced in Cystinosis

      Marc Becker
      Munich, BY, DE 

      Marc Becker practices in Munich, Germany. Mr. Becker is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Zellweger Syndrome, and Spinal Muscular Atrophy Type 3.

      Experienced in Cystinosis

      Uta Nennstiel-Ratzel
      Experienced in Cystinosis

      Uta Nennstiel-Ratzel
      Oberschleissheim, BY, DE 

      Uta Nennstiel-Ratzel practices in Oberschleissheim, Germany. Ms. Nennstiel-Ratzel is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Infant Hearing Loss, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Rubella.

      Experienced in Cystinosis

      Matthias Galiano
      Experienced in Cystinosis

      Matthias Galiano
      Erlangen, BY, DE 

      Matthias Galiano practices in Erlangen, Germany. Mr. Galiano is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Alport Syndrome, Homozygous Familial Hypercholesterolemia (HoFH), Polycystic Kidney Disease, and Kidney Transplant.

      Experienced in Cystinosis

      Jurgen Durner
      Experienced in Cystinosis

      Jurgen Durner
      Munich, BY, DE 

      Jurgen Durner practices in Munich, Germany. Durner is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Severe Acute Respiratory Syndrome (SARS), and Spinal Muscular Atrophy Type 3.

      Experienced in Cystinosis

      Susanne M. Bechtold
      Experienced in Cystinosis

      Susanne M. Bechtold
      Dr. Von Hauner Children's Hospital, LMU Munich, 
      Munich, BY, DE 

      Susanne Bechtold practices in Munich, Germany. Ms. Bechtold is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Congenital Adrenal Hyperplasia (CAH), Intersex, Fanconi Syndrome, and Fanconi Bickel Syndrome.

      Experienced in Cystinosis

      Wolfgang Felber-Muller
      Experienced in Cystinosis

      Wolfgang Felber-Muller
      Munich, BY, DE 

      Wolfgang Felber-Muller practices in Munich, Germany. Mr. Felber-Muller is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Spinal Muscular Atrophy (SMA), and Thymectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 25

      Last Updated: 01/09/2026

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in Hesse, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in Hesse, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cystinosis doctor in Hesse, DE?

      You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Cystinosis doctors in Hesse, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in Hesse, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in Hesse, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in Hesse, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in Hesse, DE?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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