The 20 Best Cystinosis Doctors Near Me in Hesse, DE

Find the Top Cystinosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 25 doctor with experience in Cystinosis near Hesse, DE. Of these, 19 are Experienced, 5 are Advanced and 1 are Distinguished.

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25 providers found
    Distinguished in Cystinosis

    Leonie F. Keidel
    Distinguished in Cystinosis

    Leonie F. Keidel
    Munich, BY, DE 

    Leonie Keidel practices practicing medicine in Munich, Germany. Ms. Keidel is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Central Serous Chorioretinopathy, Retinal Detachment, Spinocerebellar Degeneration and Corneal Dystrophy, and Vitrectomy.

    Advanced in Cystinosis

    Claudia S. Priglinger
    Advanced in Cystinosis

    Claudia S. Priglinger
    Munich, BY, DE 

    Claudia Priglinger practices practicing medicine in Munich, Germany. Ms. Priglinger is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Cystinosis, CLN1 Disease, and Vitrectomy.

    Advanced in Cystinosis

    Siegfried G. Priglinger
    Advanced in Cystinosis

    Siegfried G. Priglinger
    Munich, BY, DE 

    Siegfried Priglinger practices practicing medicine in Munich, Germany. Mr. Priglinger is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Cataract, Astigmatism, Retinal Detachment, Vitrectomy, and Cataract Removal.

    Learn about our expert tiers
    Advanced in Cystinosis

    Nikolaus Luft
    Advanced in Cystinosis

    Nikolaus Luft
    Munich, BY, DE 

    Nikolaus Luft practices practicing medicine in Munich, Germany. Mr. Luft is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cataract, Astigmatism, Nearsightedness, Corneal Transplant, and Vitrectomy.

    Advanced in Cystinosis

    Benedikt Schworm
    Advanced in Cystinosis

    Benedikt Schworm
    Munich, BY, DE 

    Benedikt Schworm practices practicing medicine in Munich, Germany. Mr. Schworm is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Central Serous Chorioretinopathy, Cystinosis, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, and Vitrectomy.

    Advanced in Cystinosis

    Katharina Vill
    Advanced in Cystinosis

    Katharina Vill
    Dr. Von Haunersches Kinderspital, 
    Munich, BY, DE 

    Katharina Vill practices practicing medicine in Munich, Germany. Ms. Vill is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Thrombectomy.

    Experienced in Cystinosis

    Christoph Wanner
    Experienced in Cystinosis

    Christoph Wanner
    Oberduerrbacher Str. 6, 
    Wuerzburg, BY, DE 

    Christoph Wanner practices practicing medicine in Wuerzburg, Germany. Mr. Wanner is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, Type 2 Diabetes (T2D), Chronic Kidney Disease, Heart Failure, and Kidney Transplant.

    Experienced in Cystinosis

    Siegfried Burggraf
    Experienced in Cystinosis

    Siegfried Burggraf
    Munich, BY, DE 

    Siegfried Burggraf practices practicing medicine in Munich, Germany. Mr. Burggraf is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Cystinosis, and Severe Combined Immunodeficiency (SCID).

    Experienced in Cystinosis

    Ludwig Czibere
    Experienced in Cystinosis

    Ludwig Czibere
    Munich, BY, DE 

    Ludwig Czibere practices practicing medicine in Munich, Germany. Mr. Czibere is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His clinical expertise encompasses Spinal Muscular Atrophy (SMA), Cystinosis, Severe Combined Immunodeficiency (SCID), and Primary Lateral Sclerosis.

    Experienced in Cystinosis

    Wulf Roschinger
    Experienced in Cystinosis

    Wulf Roschinger
    Munich, BY, DE 

    Wulf Roschinger practices practicing medicine in Munich, Germany. Mr. Roschinger is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Spinal Muscular Atrophy (SMA), Vitamin B12 Deficiency Anemia, Propionic Acidemia, and Primary Lateral Sclerosis.

    Experienced in Cystinosis

    Jozef Zustin
    Experienced in Cystinosis

    Jozef Zustin
    Dechbettener Str. 5, 
    Regensburg, BY, DE 

    Jozef Zustin practices practicing medicine in Regensburg, Germany. Mr. Zustin is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Osteosclerosis Autosomal Dominant, Osteopetrosis, Cherubism, Hip Resurfacing, and Hip Replacement.

    Experienced in Cystinosis

    Susanne Pozza-Dalla
    Experienced in Cystinosis

    Susanne Pozza-Dalla
    Division Of Neonatology IS, Dr. Von Hauner Children's Hospital, 
    Munich, BY, DE 

    Susanne Pozza-Dalla practices practicing medicine in Munich, Germany. Ms. Pozza-Dalla is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Congenital Adrenal Hyperplasia (CAH), Intersex, Type 1 Diabetes (T1D), and Cystinosis.

    Experienced in Cystinosis

    Nils Briel
    Experienced in Cystinosis

    Nils Briel
    Munich, BY, DE 

    Nils Briel practices practicing medicine in Munich, Germany. Mr. Briel is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Progressive Supranuclear Palsy Atypical, Progressive Supranuclear Palsy, Corticobasal Degeneration, and Supranuclear Ophthalmoplegia.

    Experienced in Cystinosis

    Marcus R. Benz
    Experienced in Cystinosis

    Marcus R. Benz
    Dachau, BY, DE 

    Marcus Benz practices practicing medicine in Dachau, Germany. Mr. Benz is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Autosomal Dominant Distal Renal Tubular Acidosis, Focal Segmental Glomerulosclerosis, and Distal Renal Tubular Acidosis.

    Experienced in Cystinosis

    Marc Becker
    Experienced in Cystinosis

    Marc Becker
    Munich, BY, DE 

    Marc Becker practices practicing medicine in Munich, Germany. Mr. Becker is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Zellweger Syndrome, and Spinal Muscular Atrophy Type 3.

    Experienced in Cystinosis

    Matthias Galiano
    Experienced in Cystinosis

    Matthias Galiano
    Erlangen, BY, DE 

    Matthias Galiano practices practicing medicine in Erlangen, Germany. Mr. Galiano is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Alport Syndrome, Homozygous Familial Hypercholesterolemia (HoFH), Polycystic Kidney Disease, and Kidney Transplant.

    Experienced in Cystinosis

    Ursula Schrehardt-Schlotzer
    Experienced in Cystinosis

    Ursula Schrehardt-Schlotzer
    Erlangen, BY, DE 

    Ursula Schrehardt-Schlotzer practices practicing medicine in Erlangen, Germany. Ms. Schrehardt-Schlotzer is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, Glaucoma, Corneal Transplant, and Cataract Removal.

    Experienced in Cystinosis

    Wolfgang Felber-Muller
    Experienced in Cystinosis

    Wolfgang Felber-Muller
    Munich, BY, DE 

    Wolfgang Felber-Muller practices practicing medicine in Munich, Germany. Mr. Felber-Muller is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, Spinal Muscular Atrophy (SMA), and Thymectomy.

    Experienced in Cystinosis

    Jurgen Durner
    Experienced in Cystinosis

    Jurgen Durner
    Munich, BY, DE 

    Jurgen Durner practices practicing medicine in Munich, Germany. Durner is rated as an Experienced expert by MediFind in the treatment of Cystinosis. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Severe Acute Respiratory Syndrome (SARS), and Spinal Muscular Atrophy Type 3.

    Experienced in Cystinosis

    Susanne M. Bechtold
    Experienced in Cystinosis

    Susanne M. Bechtold
    Dr. Von Hauner Children's Hospital, LMU Munich, 
    Munich, BY, DE 

    Susanne Bechtold practices practicing medicine in Munich, Germany. Ms. Bechtold is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Congenital Adrenal Hyperplasia (CAH), Intersex, Fanconi Syndrome, and Fanconi Bickel Syndrome.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 25

    Last Updated: 04/28/2026

    What is the definition of Cystinosis?

    Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

    When should I see a Cystinosis doctor in Hesse, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cystinosis doctor in Hesse, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Cystinosis doctor in Hesse, DE?

    You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Cystinosis doctors in Hesse, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cystinosis doctors in Hesse, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cystinosis doctor in Hesse, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

    Why is it important to get a second opinion from a different Cystinosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cystinosis doctor in Hesse, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cystinosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cystinosis doctors in Hesse, DE?

    Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cystinosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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