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    Last Updated: 01/09/2026

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    MediFind found 18 doctor with experience in Cystinosis near Lower Saxony, DE. Of these, 11 are Experienced, 5 are Advanced, 1 are Distinguished and 1 are Elite.

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    18 providers found
      Elite in Cystinosis

      Katharina Hohenfellner
      Elite in Cystinosis

      Katharina Hohenfellner
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Katharina Hohenfellner practices in Hannover, Germany. Ms. Hohenfellner is rated as an Elite expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Primary Lateral Sclerosis, and Kidney Transplant.

      Distinguished in Cystinosis

      Dieter Haffner
      Distinguished in Cystinosis

      Dieter Haffner
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Dieter Haffner practices in Hannover, Germany. Mr. Haffner is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Hypophosphatemia, Rickets, X-Linked Hypophosphatemia, Kidney Transplant, and Gastrostomy.

      Lars E. Pape
      Advanced in Cystinosis

      Lars E. Pape
      Advanced in Cystinosis

      Lars E. Pape
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Lars Pape practices in Hannover, Germany. Mr. Pape is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cytomegalovirus Infection, Bardet-Biedl Syndrome, Hemolytic-Uremic Syndrome, Kidney Transplant, and Liver Transplant.

      Learn about our expert tiers
      Advanced in Cystinosis

      Maren Nestler-Leifheit
      Advanced in Cystinosis

      Maren Nestler-Leifheit
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Maren Nestler-Leifheit practices in Hannover, Germany. Ms. Nestler-Leifheit is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Hypophosphatemia, Rickets, X-Linked Hypophosphatemia, Malnutrition, and Kidney Transplant.

      Advanced in Cystinosis

      Miroslav Zivicnjak
      Advanced in Cystinosis

      Miroslav Zivicnjak
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Miroslav Zivicnjak practices in Hannover, Germany. Mr. Zivicnjak is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, Hypophosphatemia, and Kidney Transplant.

      Advanced in Cystinosis

      Nele K. Kanzelmeyer
      Advanced in Cystinosis

      Nele K. Kanzelmeyer
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Nele Kanzelmeyer practices in Hannover, Germany. Kanzelmeyer is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Goodpasture Syndrome, and Kidney Transplant.

      Advanced in Cystinosis

      Kerstin Froede
      Advanced in Cystinosis

      Kerstin Froede
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Kerstin Froede practices in Hannover, Germany. Ms. Froede is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Magnesium Deficiency, and Kidney Transplant.

      Jochen H. Ehrich
      Experienced in Cystinosis

      Jochen H. Ehrich
      Experienced in Cystinosis

      Jochen H. Ehrich
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Jochen Ehrich practices in Hannover, Germany. Mr. Ehrich is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cytomegalovirus Infection, Urinary Tract Infection in Children, Cystinosis, Nephrotic Syndrome, and Kidney Transplant.

      Experienced in Cystinosis

      Jessica K. Kaufeld
      Experienced in Cystinosis

      Jessica K. Kaufeld
      Hannover, NI, DE 

      Jessica Kaufeld practices in Hannover, Germany. Ms. Kaufeld is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Thrombocytopenia, Fabry Disease, Purpura, Blood Clots, and Kidney Transplant.

      Experienced in Cystinosis

      Ludwig Patzer
      Experienced in Cystinosis

      Ludwig Patzer
      Elisabeth And St, 
      Halle, NI, DE 

      Ludwig Patzer practices in Halle, Germany. Mr. Patzer is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are X-Linked Hypophosphatemia, Hypophosphatemia, Autosomal Recessive Polycystic Kidney Disease, and Rickets.

      Experienced in Cystinosis

      Anibh M. Das
      Experienced in Cystinosis

      Anibh M. Das
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Anibh Das practices in Hannover, Germany. Das is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Niemann-Pick Disease, Transcobalamin Deficiency, Classic Galactosemia, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, and Liver Transplant.

      Experienced in Cystinosis

      Gabriele I. Stangl
      Experienced in Cystinosis

      Gabriele I. Stangl
      Theodor Lieser Str. 11, 
      Halle, NI, DE 

      Gabriele Stangl practices in Halle, Germany. Ms. Stangl is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Malnutrition, Obesity, Fanconi Bickel Syndrome, and Fanconi Syndrome.

      Experienced in Cystinosis

      Matthias Kettwig
      Experienced in Cystinosis

      Matthias Kettwig
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Matthias Kettwig practices in Goettingen, Germany. Mr. Kettwig is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Alport Syndrome, Zellweger Syndrome, Retinopathy Pigmentary Mental Retardation, and Krabbe Disease.

      Experienced in Cystinosis

      Nils H. Janzen
      Experienced in Cystinosis

      Nils H. Janzen
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Nils Janzen practices in Hannover, Germany. Mr. Janzen is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, Metachromatic Leukodystrophy, Glutaric Acidemia Type 2, and Leukodystrophy.

      Experienced in Cystinosis

      Christian Lerch
      Experienced in Cystinosis

      Christian Lerch
      Hannover, NI, DE 

      Christian Lerch practices in Hannover, Germany. Mr. Lerch is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Alport Syndrome, Cystinosis, Interstitial Nephritis, Kidney Transplant, and Liver Transplant.

      Experienced in Cystinosis

      Karin S. Lange
      Experienced in Cystinosis

      Karin S. Lange
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Karin Lange practices in Hannover, Germany. Ms. Lange is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Type 1 Diabetes (T1D), Diabetic Ketoacidosis, Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), and Liver Transplant.

      Experienced in Cystinosis

      Anja C. Baur
      Experienced in Cystinosis

      Anja C. Baur
      Theodor Lieser Str. 11, 
      Halle, NI, DE 

      Anja Baur practices in Halle, Germany. Ms. Baur is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, and Malnutrition.

      Experienced in Cystinosis

      Jens Drube
      Experienced in Cystinosis

      Jens Drube
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Jens Drube practices in Hannover, Germany. Mr. Drube is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Primary Lateral Sclerosis, Nephronophthisis, Cystinosis, Chronic Kidney Disease, and Kidney Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-18 of 18

      Last Updated: 01/09/2026

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in Lower Saxony, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in Lower Saxony, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cystinosis doctor in Lower Saxony, DE?

      You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Cystinosis doctors in Lower Saxony, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in Lower Saxony, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in Lower Saxony, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in Lower Saxony, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in Lower Saxony, DE?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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