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    Last Updated: 01/09/2026

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    MediFind found 20 doctor with experience in Cystinosis near North Rhine-Westphalia, DE. Of these, 15 are Experienced, 3 are Distinguished and 2 are Advanced.

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    20 providers found
      Distinguished in Cystinosis

      Anja K. Buscher
      Distinguished in Cystinosis

      Anja K. Buscher
      Essen, NW, DE 

      Anja Buscher practices in Essen, Germany. Ms. Buscher is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Cystinosis, Fanconi Syndrome, Kidney Transplant, and Liver Transplant.

      Distinguished in Cystinosis

      Lutz T. Weber
      Distinguished in Cystinosis

      Lutz T. Weber
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Lutz Weber practices in Koeln, Germany. Mr. Weber is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Nephrotic Syndrome, Autosomal Recessive Polycystic Kidney Disease, Fanconi Syndrome, Kidney Transplant, and Gastrostomy.

      Distinguished in Cystinosis

      Erik Harms
      Distinguished in Cystinosis

      Erik Harms
      Muenster, NW, DE 

      Erik Harms practices in Muenster, Germany. Mr. Harms is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, and Spinal Muscular Atrophy Type 3.

      Learn about our expert tiers
      Advanced in Cystinosis

      Thorsten Marquardt
      Advanced in Cystinosis

      Thorsten Marquardt
      Albert Schweitzer Str. 33, 
      Muenster, NW, DE 

      Thorsten Marquardt practices in Muenster, Germany. Mr. Marquardt is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, PGM1-CDG, Niemann-Pick Disease, Glutaric Acidemia Type 2, and Thrombectomy.

      Advanced in Cystinosis

      Marianne Gruneberg
      Advanced in Cystinosis

      Marianne Gruneberg
      Muenster, NW, DE 

      Marianne Gruneberg practices in Muenster, Germany. Ms. Gruneberg is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Lactic Acidosis, West Syndrome, PMM2-Congenital Disorder of Glycosylation, and Thrombectomy.

      Experienced in Cystinosis

      Janine Reunert
      Experienced in Cystinosis

      Janine Reunert
      Muenster, NW, DE 

      Janine Reunert practices in Muenster, Germany. Ms. Reunert is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, Pena-Shokeir Syndrome Type 2, Niemann-Pick Disease, and DPAGT1-CDG.

      Experienced in Cystinosis

      Bernd Hoppe
      Experienced in Cystinosis

      Bernd Hoppe
      Bonn, NW, DE 

      Bernd Hoppe practices in Bonn, Germany. Mr. Hoppe is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Primary Hyperoxaluria, Nephrocalcinosis, Primary Hyperoxaluria Type 1, Kidney Transplant, and Liver Transplant.

      Experienced in Cystinosis

      Christine E. Kurschat
      Experienced in Cystinosis

      Christine E. Kurschat
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Christine Kurschat practices in Koeln, Germany. Ms. Kurschat is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Fabry Disease, Cystinosis, ABO Incompatibility, Kidney Transplant, and Nephrectomy.

      Experienced in Cystinosis

      Karl P. Schlingmann
      Experienced in Cystinosis

      Karl P. Schlingmann
      Muenster, NW, DE 

      Karl Schlingmann practices in Muenster, Germany. Schlingmann is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Magnesium Deficiency, Nephrocalcinosis, Hypercalcemia, and Milk-Alkali Syndrome.

      Experienced in Cystinosis

      Julia Rohayem
      Experienced in Cystinosis

      Julia Rohayem
      Muenster, NW, DE 

      Julia Rohayem practices in Muenster, Germany. Ms. Rohayem is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Hypogonadism, Hypogonadotropic Hypogonadism, Klinefelter Syndrome, Wolfram Syndrome, and Hormone Replacement Therapy (HRT).

      Experienced in Cystinosis

      Thurid Ahlenstiel-Grunow
      Experienced in Cystinosis

      Thurid Ahlenstiel-Grunow
      Essen, NW, DE 

      Thurid Ahlenstiel-Grunow practices in Essen, Germany. Ahlenstiel-Grunow is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are D-Minus Hemolytic Uremic Syndrome, D-Plus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, Thrombocytopenia, and Kidney Transplant.

      Experienced in Cystinosis

      Sabine Kliesch
      Experienced in Cystinosis

      Sabine Kliesch
      Muenster, NW, DE 

      Sabine Kliesch practices in Muenster, Germany. Ms. Kliesch is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Hypogonadism, Klinefelter Syndrome, Infertility, Vasectomy, and Orchiectomy.

      Experienced in Cystinosis

      Martin Kreuzer
      Experienced in Cystinosis

      Martin Kreuzer
      Essen, NW, DE 

      Martin Kreuzer practices in Essen, Germany. Mr. Kreuzer is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are D-Minus Hemolytic Uremic Syndrome, D-Plus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, HELLP Syndrome, and Kidney Transplant.

      Experienced in Cystinosis

      Bodo B. Beck
      Experienced in Cystinosis

      Bodo B. Beck
      Robert Koch Str. 21, 
      Koeln, NW, DE 

      Bodo Beck practices in Koeln, Germany. Beck is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Primary Hyperoxaluria, Primary Hyperoxaluria Type 1, Nephrocalcinosis, Kidney Transplant, and Liver Transplant.

      Experienced in Cystinosis

      Eva A. Brand
      Experienced in Cystinosis

      Eva A. Brand
      Muenster, NW, DE 

      Eva Brand practices in Muenster, Germany. Ms. Brand is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Fabry Disease, N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Transient Ischemic Attack (TIA), and Erythromelalgia.

      Experienced in Cystinosis

      Julien H. Park
      Experienced in Cystinosis

      Julien H. Park
      Muenster, NW, DE 

      Julien Park practices in Muenster, Germany. Mr. Park is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Hereditary Hyperekplexia, Congenital Nephrotic Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Ileostomy.

      Experienced in Cystinosis

      Jann-frederik F. Cremers
      Experienced in Cystinosis

      Jann-frederik F. Cremers
      Muenster, NW, DE 

      Jann-frederik Cremers practices in Muenster, Germany. Cremers is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Hypogonadism, Isolated Hypogonadotropic Hypogonadism, Eunuchoidism Familial Hypogonadotropic, Hormone Replacement Therapy (HRT), and Vasectomy.

      Experienced in Cystinosis

      Joachim Wistuba
      Experienced in Cystinosis

      Joachim Wistuba
      Muenster, NW, DE 

      Joachim Wistuba practices in Muenster, Germany. Mr. Wistuba is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Klinefelter Syndrome, Hypogonadism, Spermatogenesis Arrest, and Intersex.

      Experienced in Cystinosis

      Kerstin K. Rauwolf
      Experienced in Cystinosis

      Kerstin K. Rauwolf
      Muenster, NW, DE 

      Kerstin Rauwolf practices in Muenster, Germany. Ms. Rauwolf is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cat Scratch Disease, Reticulohistiocytoma, Histiocytosis, and Cystinosis.

      Experienced in Cystinosis

      Ulrike Kroegel-John
      Experienced in Cystinosis

      Ulrike Kroegel-John
      Muenster, NW, DE 

      Ulrike Kroegel-John practices in Muenster, Germany. Ms. Kroegel-John is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Alport Syndrome, X-Linked Hypophosphatemia, Hypophosphatemia, and Rickets.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 20

      Last Updated: 01/09/2026

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cystinosis doctor in North Rhine-Westphalia, DE?

      You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Cystinosis doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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