The 20 Best Cystinosis Doctors Near Me in North Rhine-Westphalia, DE

Find the Top Cystinosis Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 21 doctor with experience in Cystinosis near North Rhine-Westphalia, DE. Of these, 16 are Experienced, 3 are Distinguished and 2 are Advanced.

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21 providers found
    Distinguished in Cystinosis

    Lutz T. Weber
    Distinguished in Cystinosis

    Lutz T. Weber
    Referral may be required
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Lutz Weber practices practicing medicine in Koeln, Germany. Mr. Weber is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Autosomal Recessive Polycystic Kidney Disease, Fanconi Bickel Syndrome, Kidney Transplant, and Gastrostomy.

    Distinguished in Cystinosis

    Anja K. Buscher
    Distinguished in Cystinosis

    Anja K. Buscher
    Referral may be required
    Muenster, NW, DE 

    Anja Buscher practices practicing medicine in Muenster, Germany. Ms. Buscher is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Cystinosis, Fanconi Syndrome, Kidney Transplant, and Liver Transplant.

    Distinguished in Cystinosis

    Erik Harms
    Distinguished in Cystinosis

    Erik Harms
    Referral may be required
    Muenster, NW, DE 

    Erik Harms practices practicing medicine in Muenster, Germany. Mr. Harms is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, and Spinal Muscular Atrophy Type 3.

    Learn about our expert tiers
    Advanced in Cystinosis

    Thorsten Marquardt
    Advanced in Cystinosis

    Thorsten Marquardt
    Referral may be required
    Albert Schweitzer Str. 33, 
    Muenster, NW, DE 

    Thorsten Marquardt practices practicing medicine in Muenster, Germany. Mr. Marquardt is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, PGM1-CDG, Niemann-Pick Disease, Glutaric Acidemia Type 2, and Thrombectomy.

    Advanced in Cystinosis

    Marianne Gruneberg
    Advanced in Cystinosis

    Marianne Gruneberg
    Referral may be required
    Muenster, NW, DE 

    Marianne Gruneberg practices practicing medicine in Muenster, Germany. Ms. Gruneberg is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Lactic Acidosis, PMM2-Congenital Disorder of Glycosylation, West Syndrome, and Thrombectomy.

    Experienced in Cystinosis

    Julia Rohayem
    Experienced in Cystinosis

    Julia Rohayem
    Referral may be required
    Muenster, NW, DE 

    Julia Rohayem practices practicing medicine in Muenster, Germany. Ms. Rohayem is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Hypogonadism, Hypogonadotropic Hypogonadism, Klinefelter Syndrome, Intersex, and Hormone Replacement Therapy (HRT).

    Experienced in Cystinosis

    Janine Reunert
    Experienced in Cystinosis

    Janine Reunert
    Referral may be required
    Muenster, NW, DE 

    Janine Reunert practices practicing medicine in Muenster, Germany. Ms. Reunert is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, Pena-Shokeir Syndrome Type 2, Niemann-Pick Disease, and PGM1-CDG.

    Experienced in Cystinosis

    Bernd Hoppe
    Experienced in Cystinosis

    Bernd Hoppe
    Referral may be required
    Bonn, NW, DE 

    Bernd Hoppe practices practicing medicine in Bonn, Germany. Mr. Hoppe is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Primary Hyperoxaluria, Nephrocalcinosis, Primary Hyperoxaluria Type 1, Kidney Transplant, and Liver Transplant.

    Experienced in Cystinosis

    Christine E. Kurschat
    Experienced in Cystinosis

    Christine E. Kurschat
    Referral may be required
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Christine Kurschat practices practicing medicine in Koeln, Germany. Ms. Kurschat is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Cystinosis, Chronic Kidney Disease, Kidney Transplant, and Nephrectomy.

    Experienced in Cystinosis

    Karl P. Schlingmann
    Experienced in Cystinosis

    Karl P. Schlingmann
    Referral may be required
    Muenster, NW, DE 

    Karl Schlingmann practices practicing medicine in Muenster, Germany. Schlingmann is rated as an Experienced expert by MediFind in the treatment of Cystinosis. They are also highly rated in 18 other conditions, according to our data. Their clinical expertise encompasses Magnesium Deficiency, Nephrocalcinosis, Milk-Alkali Syndrome, Hypercalcemia, and Kidney Transplant.

    Experienced in Cystinosis

    Thurid Ahlenstiel-Grunow
    Experienced in Cystinosis

    Thurid Ahlenstiel-Grunow
    Referral may be required
    Essen, NW, DE 

    Thurid Ahlenstiel-Grunow practices practicing medicine in Essen, Germany. Ahlenstiel-Grunow is rated as an Experienced expert by MediFind in the treatment of Cystinosis. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses D-Minus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, D-Plus Hemolytic Uremic Syndrome, Thrombocytopenia, and Kidney Transplant.

    Experienced in Cystinosis

    Marcus R. Benz
    Experienced in Cystinosis

    Marcus R. Benz
    Referral may be required
    Koeln, NW, DE 

    Marcus Benz practices practicing medicine in Koeln, Germany. Mr. Benz is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Autosomal Dominant Distal Renal Tubular Acidosis, Focal Segmental Glomerulosclerosis, and Distal Renal Tubular Acidosis.

    Experienced in Cystinosis

    Bodo B. Beck
    Experienced in Cystinosis

    Bodo B. Beck
    Referral may be required
    Robert Koch Str. 21, 
    Koeln, NW, DE 

    Bodo Beck practices practicing medicine in Koeln, Germany. Beck is rated as an Experienced expert by MediFind in the treatment of Cystinosis. They are also highly rated in 24 other conditions, according to our data. Their clinical expertise encompasses Primary Hyperoxaluria, Primary Hyperoxaluria Type 1, Nephrocalcinosis, Kidney Transplant, and Liver Transplant.

    Experienced in Cystinosis

    Sabine Kliesch
    Experienced in Cystinosis

    Sabine Kliesch
    Referral may be required
    Muenster, NW, DE 

    Sabine Kliesch practices practicing medicine in Muenster, Germany. Ms. Kliesch is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Hypogonadism, Klinefelter Syndrome, Infertility, Vasectomy, and Orchiectomy.

    Experienced in Cystinosis

    Martin Kreuzer
    Experienced in Cystinosis

    Martin Kreuzer
    Referral may be required
    Essen, NW, DE 

    Martin Kreuzer practices practicing medicine in Essen, Germany. Mr. Kreuzer is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Hemolytic-Uremic Syndrome, D-Plus Hemolytic Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, HELLP Syndrome, and Kidney Transplant.

    Experienced in Cystinosis

    Eva A. Brand
    Experienced in Cystinosis

    Eva A. Brand
    Referral may be required
    Muenster, NW, DE 

    Eva Brand practices practicing medicine in Muenster, Germany. Ms. Brand is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Fabry Disease, N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Transient Ischemic Attack (TIA), and Erythromelalgia.

    Experienced in Cystinosis

    Julien H. Park
    Experienced in Cystinosis

    Julien H. Park
    Referral may be required
    Muenster, NW, DE 

    Julien Park practices practicing medicine in Muenster, Germany. Mr. Park is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Hereditary Hyperekplexia, Congenital Nephrotic Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    Experienced in Cystinosis

    Jann-frederik F. Cremers
    Experienced in Cystinosis

    Jann-frederik F. Cremers
    Referral may be required
    Muenster, NW, DE 

    Jann-frederik Cremers practices practicing medicine in Muenster, Germany. Cremers is rated as an Experienced expert by MediFind in the treatment of Cystinosis. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Hypogonadism, Isolated Hypogonadotropic Hypogonadism, Hypogonadotropic Hypogonadism, Hormone Replacement Therapy (HRT), and Vasectomy.

    Experienced in Cystinosis

    Joachim Wistuba
    Experienced in Cystinosis

    Joachim Wistuba
    Referral may be required
    Muenster, NW, DE 

    Joachim Wistuba practices practicing medicine in Muenster, Germany. Mr. Wistuba is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Klinefelter Syndrome, Hypogonadism, Intersex, and Spermatogenesis Arrest.

    Experienced in Cystinosis

    Kerstin K. Rauwolf
    Experienced in Cystinosis

    Kerstin K. Rauwolf
    Referral may be required
    Muenster, NW, DE 

    Kerstin Rauwolf practices practicing medicine in Muenster, Germany. Ms. Rauwolf is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Cat Scratch Disease, Histiocytosis, Reticulohistiocytoma, and Cystinosis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 21

    Last Updated: 06/30/2026

    What is the definition of Cystinosis?

    Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

    When should I see a Cystinosis doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cystinosis doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Cystinosis doctor in North Rhine-Westphalia, DE?

    You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Cystinosis doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cystinosis doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cystinosis doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

    Why is it important to get a second opinion from a different Cystinosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cystinosis doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cystinosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cystinosis doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cystinosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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