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    Last Updated: 01/09/2026

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    MediFind found 51 doctor with experience in Cystinosis near The United Kingdom. Of these, 48 are Experienced, 2 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    51 providers found
      Distinguished in Cystinosis

      Susmito Biswas
      Distinguished in Cystinosis

      Susmito Biswas
      Manchester, ENG, GB 

      Susmito Biswas practices in Manchester, United Kingdom. Biswas is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Coats Disease, Cystinosis, Telangiectasia, Vitrectomy, and Trabeculectomy.

      Advanced in Cystinosis

      David S. Game
      Advanced in Cystinosis

      David S. Game
      Guys And St, 
      London, ENG, GB 

      David Game practices in London, United Kingdom. Mr. Game is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinuria, Cystinosis, Chronic Kidney Disease, Kidney Transplant, and Thrombectomy.

      Advanced in Cystinosis

      Graham W. Lipkin
      Advanced in Cystinosis

      Graham W. Lipkin
      Birmingham, ENG, GB 

      Graham Lipkin practices in Birmingham, United Kingdom. Mr. Lipkin is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Nephrocalcinosis, Primary Hyperoxaluria, Primary Hyperoxaluria Type 1, Kidney Transplant, and Liver Transplant.

      Learn about our expert tiers
      Experienced in Cystinosis

      Hannah Blakey
      Experienced in Cystinosis

      Hannah Blakey
      Birmingham, ENG, GB 

      Hannah Blakey practices in Birmingham, United Kingdom. Ms. Blakey is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Chronic Kidney Disease, and Preeclampsia.

      Experienced in Cystinosis

      Sally A. Hulton
      Experienced in Cystinosis

      Sally A. Hulton
      Birmingham, ENG, GB 

      Sally Hulton practices in Birmingham, United Kingdom. Ms. Hulton is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Primary Hyperoxaluria, Primary Hyperoxaluria Type 1, Nephrocalcinosis, and Calcinosis.

      Experienced in Cystinosis

      Graeme Kay
      Experienced in Cystinosis

      Graeme Kay
      Aberdeen, SCT, GB 

      Graeme Kay practices in Aberdeen, United Kingdom. Mr. Kay is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, and Nephrotic Syndrome.

      Experienced in Cystinosis

      Detlef Bockenhauer
      Experienced in Cystinosis

      Detlef Bockenhauer
      Great Ormond Street Hospital For Children And UCL Department Of Renal Medicine, 
      London, ENG, GB 

      Detlef Bockenhauer practices in London, United Kingdom. Bockenhauer is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Nephrocalcinosis, Bartter Syndrome, Fanconi Syndrome, Lithotripsy, and Osteotomy.

      Experienced in Cystinosis

      Martin A. Lowe
      Experienced in Cystinosis

      Martin A. Lowe
      Manchester, ENG, GB 

      Martin Lowe practices in Manchester, United Kingdom. Mr. Lowe is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Lowe Syndrome, Gerodermia Osteodysplastica, Ventricular Fibrillation, and Cystinosis.

      Experienced in Cystinosis

      Fatemeh Shams
      Experienced in Cystinosis

      Fatemeh Shams
      1053 Great Western Road, 
      Glasgow, SCT, GB 

      Fatemeh Shams practices in Glasgow, United Kingdom. Ms. Shams is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Ptosis, Inclusion Body Myositis, and Interstitial Keratitis.

      Experienced in Cystinosis

      Kerr H. Matthews
      Experienced in Cystinosis

      Kerr H. Matthews
      Gordon, SCT, GB 

      Kerr Matthews practices in Gordon, United Kingdom. Mr. Matthews is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top area of expertise is Cystinosis.

      Experienced in Cystinosis

      Rachel M. Knott
      Experienced in Cystinosis

      Rachel M. Knott
      Garthdee Road, 
      Aberdeen, SCT, GB 

      Rachel Knott practices in Aberdeen, United Kingdom. Ms. Knott is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, and Fanconi Syndrome.

      Experienced in Cystinosis

      Malcolm A. Lewis
      Experienced in Cystinosis

      Malcolm A. Lewis
      Neuadd Meirionydd, Heath Park, 
      Cardiff, WLS, GB 

      Malcolm Lewis practices in Cardiff, United Kingdom. Mr. Lewis is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Fanconi Bickel Syndrome, Fanconi Syndrome, and Kidney Transplant.

      Experienced in Cystinosis

      Graham S. Devereux
      Experienced in Cystinosis

      Graham S. Devereux
      Pembroke Place, 
      Liverpool, ENG, GB 

      Graham Devereux practices in Liverpool, United Kingdom. Mr. Devereux is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Asthma in Children, Asthma, Stridor, and Chronic Obstructive Pulmonary Disease (COPD).

      Experienced in Cystinosis

      Achini K. Makuloluwa
      Experienced in Cystinosis

      Achini K. Makuloluwa
      162 City Road, 
      London, ENG, GB 

      Achini Makuloluwa practices in London, United Kingdom. Makuloluwa is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Retinal Detachment, Bullae, Episcleritis, Cystinosis, and Vitrectomy.

      Experienced in Cystinosis

      Andrew C. Browning
      Experienced in Cystinosis

      Andrew C. Browning
      Newcastle Upon Tyne, ENG, GB 

      Andrew Browning practices in Newcastle Upon Tyne, United Kingdom. Mr. Browning is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Late-Onset Retinal Degeneration, Punctate Inner Choroidopathy, Age-Related Macular Degeneration (ARMD), and Cystinosis.

      Experienced in Cystinosis

      Nour M. Elkhateeb
      Experienced in Cystinosis

      Nour M. Elkhateeb
      Cambridge, ENG, GB 

      Nour Elkhateeb practices in Cambridge, United Kingdom. Ms. Elkhateeb is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Argininosuccinic Aciduria, Increased Head Circumference, Congenital Bowing of Long Bones, and Kyphomelic Dysplasia.

      Experienced in Cystinosis

      Claire S. Allen
      Experienced in Cystinosis

      Claire S. Allen
      Tremona Road, 
      Southampton, ENG, GB 

      Claire Allen practices in Southampton, United Kingdom. Ms. Allen is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis and ADULT Syndrome.

      Experienced in Cystinosis

      Nicholas A. Webb
      Experienced in Cystinosis

      Nicholas A. Webb
      Manchester, ENG, GB 

      Nicholas Webb practices in Manchester, United Kingdom. Mr. Webb is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Membranoproliferative Glomerulonephritis, Nephrotic Syndrome, Glomerulonephritis, Kidney Transplant, and Heart Transplant.

      Experienced in Cystinosis

      Axel Petzold
      Experienced in Cystinosis

      Axel Petzold
      University College London Queen Square, 
      London, ENG, GB 

      Axel Petzold practices in London, United Kingdom. Mr. Petzold is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Optic Neuritis, Multiple Sclerosis (MS), Ganglion Cyst, Brown Syndrome, and Vitrectomy.

      Experienced in Cystinosis

      Clarissa J. Rocca
      Experienced in Cystinosis

      Clarissa J. Rocca
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Clarissa Rocca practices in London, United Kingdom. Ms. Rocca is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Hereditary Ataxia, Spastic Paraplegia Type 2, Early Infantile Epileptic Encephalopathy, and Spastic Paraplegia Type 7.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 51

      Last Updated: 01/09/2026

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cystinosis doctor in The United Kingdom?

      You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Cystinosis doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in The United Kingdom?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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