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    Last Updated: 01/09/2026

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    MediFind found 50 doctor with experience in Cystinosis near Netherlands. Of these, 39 are Experienced, 5 are Advanced, 4 are Distinguished and 2 are Elite.

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    50 providers found
      Elite in Cystinosis

      Lambertus P. Van Den Heuvel
      Elite in Cystinosis

      Lambertus P. Van Den Heuvel
      Nijmegen, GE, NL 

      Lambertus Van Den Heuvel practices in Nijmegen, Netherlands. Van Den Heuvel is rated as an Elite expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cystinosis, D-Plus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, and Kidney Transplant.

      Elite in Cystinosis

      Rosalinde Masereeuw
      Elite in Cystinosis

      Rosalinde Masereeuw
      Utrecht, UT, NL 

      Rosalinde Masereeuw practices in Utrecht, Netherlands. Ms. Masereeuw is rated as an Elite expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Nephrectomy, and Kidney Transplant.

      Distinguished in Cystinosis

      Manoe J. Janssen
      Distinguished in Cystinosis

      Manoe J. Janssen
      Utrecht, UT, NL 

      Manoe Janssen practices in Utrecht, Netherlands. Janssen is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cystinosis, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

      Learn about our expert tiers
      Distinguished in Cystinosis

      Martine P. Besouw
      Distinguished in Cystinosis

      Martine P. Besouw
      Groningen, GR, NL 

      Martine Besouw practices in Groningen, Netherlands. Ms. Besouw is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Gitelman Syndrome, and Kidney Transplant.

      Distinguished in Cystinosis

      Mirian C. Janssen
      Distinguished in Cystinosis

      Mirian C. Janssen
      Nijmegen, GE, NL 

      Mirian Janssen practices in Nijmegen, Netherlands. Ms. Janssen is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Classic Galactosemia, Ballinger-Wallace Syndrome, MELAS Syndrome, Galactosemia, and Kidney Transplant.

      Distinguished in Cystinosis

      Amer Jamalpoor
      Distinguished in Cystinosis

      Amer Jamalpoor
      Leiden Bioscience Park, 
      Oegstgeest, ZH, NL 

      Amer Jamalpoor practices in Oegstgeest, Netherlands. Mr. Jamalpoor is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. His top area of expertise is Cystinosis.

      Advanced in Cystinosis

      Elisabeth M. Cornelissen
      Advanced in Cystinosis

      Elisabeth M. Cornelissen
      Nijmegen, GE, NL 

      Elisabeth Cornelissen practices in Nijmegen, Netherlands. Ms. Cornelissen is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Chronic Kidney Disease, and Kidney Transplant.

      Advanced in Cystinosis

      Celia R. Berkers
      Advanced in Cystinosis

      Celia R. Berkers
      Utrecht, UT, NL 

      Celia Berkers practices in Utrecht, Netherlands. Ms. Berkers is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, ECHO Virus, Multiple Myeloma, and Rhabdoid Tumor.

      Advanced in Cystinosis

      Esther A. Zaal
      Advanced in Cystinosis

      Esther A. Zaal
      Utrecht, UT, NL 

      Esther Zaal practices in Utrecht, Netherlands. Ms. Zaal is rated as an Advanced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Multiple Myeloma, ECHO Virus, and Rhabdoid Tumor.

      Advanced in Cystinosis

      Martijn J. Wilmer
      Advanced in Cystinosis

      Martijn J. Wilmer
      Nijmegen, GE, NL 

      Martijn Wilmer practices in Nijmegen, Netherlands. Mr. Wilmer is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Dent Disease, Cystinosis, X-Linked Hypophosphatemia, and Hypophosphatemia.

      Advanced in Cystinosis

      Lambert P. Van Den Heuvel
      Advanced in Cystinosis

      Lambert P. Van Den Heuvel
      Nijmegen, GE, NL 

      Lambert Van Den Heuvel practices in Nijmegen, Netherlands. Mr. Van Den Heuvel is rated as an Advanced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Hemolytic-Uremic Syndrome, D-Plus Hemolytic Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, Atypical Hemolytic Uremic Syndrome (aHUS), and Kidney Transplant.

      Experienced in Cystinosis

      Alex M. Wetzels
      Experienced in Cystinosis

      Alex M. Wetzels
      Nijmegen, GE, NL 

      Alex Wetzels practices in Nijmegen, Netherlands. Mr. Wetzels is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top area of expertise is Cystinosis.

      Experienced in Cystinosis

      Marc R. Lilien
      Experienced in Cystinosis

      Marc R. Lilien
      Utrecht, UT, NL 

      Marc Lilien practices in Utrecht, Netherlands. Mr. Lilien is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Nephronophthisis, Chronic Kidney Disease, Wilms Tumor, Kidney Transplant, and Nephrectomy.

      Experienced in Cystinosis

      Emile R. Cornelissen
      Experienced in Cystinosis

      Emile R. Cornelissen
      Nieuwegein, UT, NL 

      Emile Cornelissen practices in Nieuwegein, Netherlands. Mr. Cornelissen is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top area of expertise is Cystinosis.

      Experienced in Cystinosis

      Goran Medic
      Experienced in Cystinosis

      Goran Medic
      Amsterdam, NH, NL 

      Goran Medic practices in Amsterdam, Netherlands. Mr. Medic is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, and Congenital Hyperinsulinism.

      Experienced in Cystinosis

      Maryam Najafi
      Experienced in Cystinosis

      Maryam Najafi
      Nijmegen, GE, NL 

      Maryam Najafi practices in Nijmegen, Netherlands. Ms. Najafi is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Fountain Syndrome, Apparent Mineralocorticoid Excess, Pterygium, and Stickler Syndrome.

      Experienced in Cystinosis

      Cecile L. Berends
      Experienced in Cystinosis

      Cecile L. Berends
      Leiden, ZH, NL 

      Cecile Berends practices in Leiden, Netherlands. Ms. Berends is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis and Facioscapulohumeral Muscular Dystrophy (FSHD).

      Experienced in Cystinosis

      Maarten B. Rookmaaker
      Experienced in Cystinosis

      Maarten B. Rookmaaker
      Utrecht, UT, NL 

      Maarten Rookmaaker practices in Utrecht, Netherlands. Mr. Rookmaaker is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His top areas of expertise are Hypertension, Chronic Kidney Disease, Congenital Mesoblastic Nephroma, Acute Kidney Failure, and Kidney Transplant.

      Experienced in Cystinosis

      Marianne C. Verhaar
      Experienced in Cystinosis

      Marianne C. Verhaar
      Utrecht, UT, NL 

      Marianne Verhaar practices in Utrecht, Netherlands. Ms. Verhaar is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her top areas of expertise are Hypertension, Chronic Kidney Disease, Heart Failure with Preserved Ejection Fraction (HFpEF), Kidney Transplant, and Nephrectomy.

      Experienced in Cystinosis

      Junling He
      Experienced in Cystinosis

      Junling He
      Leiden, ZH, NL 

      Junling He practices in Leiden, Netherlands. He is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Their top areas of expertise are Cystinosis, Wilson Disease, and Diabetic Nephropathy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 50

      Last Updated: 01/09/2026

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cystinosis doctor in Netherlands?

      You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Cystinosis doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in Netherlands?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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