The 20 Best Cystinosis Doctors in Netherlands

Find the Top Cystinosis Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 52 doctor with experience in Cystinosis near Netherlands. Of these, 42 are Experienced, 4 are Advanced, 4 are Distinguished and 2 are Elite.

Location
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52 providers found
    Elite in Cystinosis
    Elite in Cystinosis
    Referral may be required

    Radboud UMC

    Nijmegen, GE, NL 

    Lambertus Van Den Heuvel practices practicing medicine in Nijmegen, Netherlands. Van Den Heuvel is rated as an Elite expert by MediFind in the treatment of Cystinosis. They are also highly rated in 12 other conditions, according to our data. Their clinical expertise encompasses Cystinosis, D-Plus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, and Kidney Transplant.

    Elite in Cystinosis
    Elite in Cystinosis
    Referral may be required
    Utrecht, UT, NL 

    Rosalinde Masereeuw practices practicing medicine in Utrecht, Netherlands. Ms. Masereeuw is rated as an Elite expert by MediFind in the treatment of Cystinosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Nephrectomy, and Kidney Transplant.

    Distinguished in Cystinosis
    Distinguished in Cystinosis
    Referral may be required
    Utrecht, UT, NL 

    Manoe Janssen practices practicing medicine in Utrecht, Netherlands. Janssen is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Cystinosis, Becker Muscular Dystrophy, and Duchenne Muscular Dystrophy.

    Learn about our expert tiers
    Distinguished in Cystinosis
    Distinguished in Cystinosis
    Referral may be required
    Groningen, GR, NL 

    Martine Besouw practices practicing medicine in Groningen, Netherlands. Ms. Besouw is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Gitelman Syndrome, and Kidney Transplant.

    Distinguished in Cystinosis
    Distinguished in Cystinosis
    Referral may be required
    Nijmegen, GE, NL 

    Mirian Janssen practices practicing medicine in Nijmegen, Netherlands. Ms. Janssen is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Classic Galactosemia, Ballinger-Wallace Syndrome, Galactose Epimerase Deficiency, Galactokinase Deficiency, and Kidney Transplant.

    Distinguished in Cystinosis
    Distinguished in Cystinosis
    Referral may be required
    Leiden Bio Science Park, 
    Oegstgeest, ZH, NL 

    Amer Jamalpoor practices practicing medicine in Oegstgeest, Netherlands. Mr. Jamalpoor is rated as a Distinguished expert by MediFind in the treatment of Cystinosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cystinosis.

    Advanced in Cystinosis
    Advanced in Cystinosis
    Referral may be required
    Nijmegen, GE, NL 

    Elisabeth Cornelissen practices practicing medicine in Nijmegen, Netherlands. Ms. Cornelissen is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Nephrotic Syndrome, and Kidney Transplant.

    Advanced in Cystinosis
    Advanced in Cystinosis
    Referral may be required
    Utrecht, UT, NL 

    Esther Zaal practices practicing medicine in Utrecht, Netherlands. Ms. Zaal is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cystinosis, Multiple Myeloma, ECHO Virus, and Ataxia-Telangiectasia.

    Advanced in Cystinosis
    Advanced in Cystinosis
    Referral may be required
    Utrecht, UT, NL 

    Celia Berkers practices practicing medicine in Utrecht, Netherlands. Ms. Berkers is rated as an Advanced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cystinosis, ECHO Virus, Multiple Myeloma, and Ataxia-Telangiectasia.

    Advanced in Cystinosis
    Advanced in Cystinosis
    Referral may be required
    Nijmegen, GE, NL 

    Lambert Van Den Heuvel practices practicing medicine in Nijmegen, Netherlands. Mr. Van Den Heuvel is rated as an Advanced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Hemolytic-Uremic Syndrome, D-Plus Hemolytic Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, Atypical Hemolytic Uremic Syndrome (aHUS), and Kidney Transplant.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Nijmegen, GE, NL 

    Alex Wetzels practices practicing medicine in Nijmegen, Netherlands. Mr. Wetzels is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His clinical expertise encompasses Cystinosis.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Utrecht, UT, NL 

    Marc Lilien practices practicing medicine in Utrecht, Netherlands. Mr. Lilien is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Nephronophthisis, Chronic Kidney Disease, Wilms Tumor, Nephrectomy, and Kidney Transplant.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Nieuwegein, UT, NL 

    Emile Cornelissen practices practicing medicine in Nieuwegein, Netherlands. Mr. Cornelissen is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His clinical expertise encompasses Cystinosis.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Amsterdam, NH, NL 

    Goran Medic practices practicing medicine in Amsterdam, Netherlands. Mr. Medic is rated as an Experienced expert by MediFind in the treatment of Cystinosis. His clinical expertise encompasses Fanconi Bickel Syndrome, Fanconi Syndrome, Cystinosis, and Congenital Hyperinsulinism.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Leiden, ZH, NL 

    Cecile Berends practices practicing medicine in Leiden, Netherlands. Ms. Berends is rated as an Experienced expert by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Cystinosis and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Utrecht, UT, NL 

    Marianne Verhaar practices practicing medicine in Utrecht, Netherlands. Ms. Verhaar is rated as an Experienced expert by MediFind in the treatment of Cystinosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Hypertension, Chronic Kidney Disease, Heart Failure with Preserved Ejection Fraction (HFpEF), Kidney Transplant, and Nephrectomy.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Uppsalalaan 8, CT, 3584, 
    Utrecht, UT, NL 

    Hans Clevers practices practicing medicine in Utrecht, Netherlands. Mr. Clevers is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Colorectal Cancer, Microvillus Inclusion Disease, Cystic Fibrosis, Anonychia Congenita, and Hepato-Pancreato-Biliary Surgery.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Utrecht, UT, NL 

    Maarten Rookmaaker practices practicing medicine in Utrecht, Netherlands. Mr. Rookmaaker is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Hypertension, Acute Kidney Failure, Chronic Kidney Disease, Congenital Mesoblastic Nephroma, and Kidney Transplant.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Groningen, GR, NL 

    Tibor Hortobagyi practices practicing medicine in Groningen, Netherlands. Mr. Hortobagyi is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Dementia, Lewy Body Dementia (LBD), Parkinson's Disease, Movement Disorders, and Corneal Transplant.

    Experienced in Cystinosis
    Experienced in Cystinosis
    Referral may be required
    Amsterdam, NH, NL 

    Arend Bokenkamp practices practicing medicine in Amsterdam, Netherlands. Mr. Bokenkamp is rated as an Experienced expert by MediFind in the treatment of Cystinosis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Lowe Syndrome, Schimke Immuno-Osseous Dysplasia, Dent Disease, Kidney Transplant, and Nephrectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 52

    Last Updated: 11/08/2026

    What is the definition of Cystinosis?

    Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

    When should I see a Cystinosis doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cystinosis doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Cystinosis doctor in Netherlands?

    You can find a Cystinosis doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Cystinosis doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cystinosis doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cystinosis doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

    Why is it important to get a second opinion from a different Cystinosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cystinosis doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cystinosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cystinosis doctors in Netherlands?

    Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cystinosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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