The 20 Best Cystinosis Doctors Near Me in California, US

Find the Top Cystinosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 12 doctor with experience in Cystinosis near California, US. Of these, 9 are Experienced, 2 are Advanced and 1 are Distinguished.

Location
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12 providers found
    Distinguished in Cystinosis
    Pediatric Nephrology
    Distinguished in Cystinosis
    Pediatric Nephrology
    Referral may be required

    UC San Diego Student Health SVC Pharmacy

    9500 Gilman Dr, 
    La Jolla, CA 
    Languages Spoken:
    English

    Robert Kwong is a Pediatric Nephrologist practicing medicine in La Jolla, California. Dr. Kwong is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Hydronephrosis, High Blood Pressure in Infants, Posterior Urethral Valves, and Nephrectomy.

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    That Ton is a Pediatric Nephrologist practicing medicine in Orange, California. Dr. Ton is rated as an Experienced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Alport Syndrome, Glomerulonephritis, and Minimal Change Disease. Dr. Ton is currently accepting new patients.

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Shoba Narayan is a Pediatric Nephrologist practicing medicine in Orange, California. Dr. Narayan is rated as an Experienced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Congenital Nephrotic Syndrome, Nephrotic Syndrome, Feingold Syndrome, and Alport Syndrome. Dr. Narayan is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Cystinosis
    Pediatric Nephrology
    Advanced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    Office

    770 Welch Rd Ste 300, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Abanti Chaudhuri is a Pediatric Nephrologist practicing medicine in Palo Alto, California. Dr. Chaudhuri is rated as an Advanced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Williams Syndrome, Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, Autosomal Dominant Tubulointerstitial Kidney Disease, and Kidney Transplant.

    Advanced in Cystinosis
    Pediatric Nephrology
    Advanced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    Office

    770 Welch Rd Ste 300, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Mary Leonard is a Pediatric Nephrologist practicing medicine in Palo Alto, California. Dr. Leonard is rated as an Advanced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Osteoporosis-Pseudoglioma Syndrome, Malnutrition, Chronic Kidney Disease, Kidney Transplant, and Parathyroidectomy.

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    Office

    453 Quarry Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Ruby Patel is a Pediatric Nephrologist practicing medicine in Palo Alto, California. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 35 other conditions, according to our data. Her clinical expertise encompasses Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Feingold Syndrome, and Nephrotic Syndrome.

    Experienced in Cystinosis
    Pediatric Nephrology | Pediatrics
    Experienced in Cystinosis
    Pediatric Nephrology | Pediatrics
    Referral may be required

    UCLA Pediatric Nephrology

    10833 LeConte Ave, Rm A2-383, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Isidro Salusky is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Los Angeles, California. Dr. Salusky is rated as an Experienced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Malnutrition, Anemia, End-Stage Renal Disease (ESRD), Cerebral Hypoxia, and Kidney Transplant. Dr. Salusky is board certified in Pediatrics (Sub: Pediatric Nephrology).

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    Office

    770 Welch Rd Ste 300, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Steven Alexander is a Pediatric Nephrologist practicing medicine in Palo Alto, California. Dr. Alexander is rated as an Experienced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Nephrotic Syndrome, Early Infantile Epileptic Encephalopathy, and Kidney Transplant.

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    CHOC Children's Hospital

    1201 W La Veta Ave, 
    Orange, CA 
    Languages Spoken:
    English

    John Nguyen is a Pediatric Nephrologist practicing medicine in Orange, California. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Alport Syndrome, Nephrotic Syndrome, Minimal Change Disease, and Glomerulonephritis.

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    Lucile Packard Children's Hospital Stanford

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Sara Kibrom is a Pediatric Nephrologist practicing medicine in Palo Alto, California. Dr. Kibrom is rated as an Experienced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Feingold Syndrome, and Nephrotic Syndrome.

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    Office

    3030 Childrens Way Fl 1, 
    San Diego, CA 
    Languages Spoken:
    English

    Nadine Benador is a Pediatric Nephrologist practicing medicine in San Diego, California. Dr. Benador is rated as an Experienced provider by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Cystinosis, Lupus Nephritis, Chronic Kidney Disease, and Glomerulonephritis.

    Experienced in Cystinosis
    Pediatric Nephrology
    Experienced in Cystinosis
    Pediatric Nephrology
    Referral may be required

    Office

    8001 Frost St, 
    San Diego, CA 
    Languages Spoken:
    English

    Elliot Perens is a Pediatric Nephrologist practicing medicine in San Diego, California. Dr. Perens is rated as an Experienced provider by MediFind in the treatment of Cystinosis. His clinical expertise encompasses Henoch-Schonlein Purpura, Cystinosis, and Posterior Urethral Valves.

    Showing 1-12 of 12

    Last Updated: 04/28/2026

    When should I see a Cystinosis doctor in California, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cystinosis doctor in California, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Cystinosis doctors in California, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cystinosis doctors in California, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cystinosis doctor in California, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

    Why is it important to get a second opinion from a different Cystinosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cystinosis doctor in California, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cystinosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cystinosis doctors in California, US?

    Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cystinosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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