The 20 Best Deafness Craniofacial Syndrome Doctors in The United States

Find the Top Deafness Craniofacial Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 311 doctor with experience in Deafness Craniofacial Syndrome near The United States. Of these, 263 are Experienced, 45 are Advanced and 3 are Distinguished.

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311 providers found
    Advanced in Deafness Craniofacial Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Advanced in Deafness Craniofacial Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Referral may be required

    MUSC University Hospital

    171 Ashley Ave, 
    Charleston, SC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Phayvanh Pecha is a Pediatric Otolaryngologist and an Otolaryngologist practicing medicine in Charleston, South Carolina. Dr. Pecha is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Pierre Robin Sequence, Micrognathia, Obstructive Sleep Apnea, Adenoidectomy, and Myringotomy. Dr. Pecha is currently accepting new patients.

    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology
    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology
    Referral may be required

    Cobleskill Regional Hospital

    178 Grandview Drive, 
    Cobleskill, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Redd is an Otolaryngologist practicing medicine in Cobleskill, New York. Dr. Redd is rated as an Experienced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Infant Hearing Loss, DFNB1, Jones Syndrome, and Meniere Disease. Dr. Redd is currently accepting new patients.

    Experienced in Deafness Craniofacial Syndrome
    Family Medicine
    Experienced in Deafness Craniofacial Syndrome
    Family Medicine

    Bassett Health Center Little Falls Primary Care

    170 Burwell Street, 
    Little Falls, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Amy Grace is a primary care provider, practicing in Family Medicine in Little Falls, New York. Dr. Grace is rated as an Experienced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Hypothyroidism, Type 2 Diabetes (T2D), Obesity in Children, and Enlarged Prostate (BPH). Dr. Grace is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology | Pediatrics
    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology | Pediatrics
    Referral may be required

    LVPG Ear, Nose And Throat-1245 Cedar Crest

    1245 S Cedar Crest Blvd, Suite 101, 
    Allentown, PA 
    Languages Spoken:
    English, Telugu
    Accepting New Patients

    Sri Chennupati is an Otolaryngologist and a Pediatrics provider practicing medicine in Allentown, Pennsylvania. Dr. Chennupati is rated as an Experienced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Gorlin-Chaudhry-Moss Syndrome, Crouzon Syndrome, Acrofrontofacionasal Dysostosis Syndrome, Stridor, and Adenoidectomy. Dr. Chennupati is board certified in American Board Of Otolaryngology - Otolaryngology. Dr. Chennupati is currently accepting new patients.

    Experienced in Deafness Craniofacial Syndrome
    Internal Medicine
    Experienced in Deafness Craniofacial Syndrome
    Internal Medicine

    Bassett Health Center Cobleskill

    136 Parkway Drive, 
    Cobleskill, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Novak is a primary care provider, practicing in Internal Medicine in Cobleskill, New York. Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis. Dr. Novak is currently accepting new patients.

    Distinguished in Deafness Craniofacial Syndrome
    Internal Medicine
    Distinguished in Deafness Craniofacial Syndrome
    Internal Medicine

    Healthcare Associates

    330 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Hans Kim is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Marden Walker Like Syndrome, Greig Cephalopolysyndactyly Syndrome, Orofaciodigital Syndrome Type 2, and Craniofacial-Deafness-Hand Syndrome. Dr. Kim is board certified in American Board Of Internal Medicine. Dr. Kim is currently accepting new patients.

    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology
    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology
    Referral may be required

    University Hospitals

    11100 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English, French, Spanish
    Accepting New Patients

    Alejandro Rivas is an Otolaryngologist practicing medicine in Cleveland, Ohio. Dr. Rivas is rated as an Experienced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Ruptured Eardrum, Acoustic Neuroma, Infant Hearing Loss, Meniere Disease, and Myringotomy. Dr. Rivas is currently accepting new patients.

    Distinguished in Deafness Craniofacial Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Deafness Craniofacial Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Childrens Health Care Associates Inc

    3401 Civic Ctr Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Elaine Zackai is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Zackai is rated as a Distinguished provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 100 other conditions, according to our data. Her clinical expertise encompasses Micrognathia, DiGeorge Syndrome, Hardikar Syndrome, Myringotomy, and Gastrostomy.

    Distinguished in Deafness Craniofacial Syndrome
    Pediatrics | Medical Genetics
    Distinguished in Deafness Craniofacial Syndrome
    Pediatrics | Medical Genetics
    Referral may be required
    34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Elizabeth Bhoj is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Bhoj is rated as a Distinguished provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Hardikar Syndrome, Coffin-Siris Syndrome, Acheiropody, Hypotonia, and Myringotomy.

    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Experienced in Deafness Craniofacial Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Referral may be required

    Proliance Surgeons

    1231 116th Ave NE #915, 
    Bellevue, WA 
    Languages Spoken:
    English, Hebrew, Hindi, Japanese, Korean, Spanish, Thai
    Accepting New Patients
    Offers Telehealth

    Jonathan Kopelovich is an Otolaryngologist and a Pediatric Otolaryngologist practicing medicine in Bellevue, Washington. Dr. Kopelovich is rated as an Experienced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Enlarged Adenoids, Stridor, Myringotomy, and Adenoidectomy. Dr. Kopelovich is board certified in American Board Of Otolaryngology and American Board Of Otolaryngology - Head And Neck Surgery. Dr. Kopelovich is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Advanced in Deafness Craniofacial Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 2 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Glenn Green is a Pediatric Otolaryngologist and an Otolaryngologist practicing medicine in Ann Arbor, Michigan. Dr. Green is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Tracheobronchomalacia, Acquired Tracheomalacia, Tracheal Agenesis, Adenoidectomy, and Myringotomy. Dr. Green is board certified in Otolaryngology-Head & Neck Surgery. Dr. Green is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Pediatrics | Otolaryngology
    Advanced in Deafness Craniofacial Syndrome
    Pediatrics | Otolaryngology
    Referral may be required

    American Family Children's Hospital Pediatric Tracheostomy Clinic

    1675 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English
    Accepting New Patients

    David Zopf is a Pediatrics specialist and an Otolaryngologist practicing medicine in Madison, Wisconsin. Dr. Zopf is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Microtia, Pierre Robin Sequence, Velopharyngeal Insufficiency, Adenoidectomy, and Myringotomy. Dr. Zopf is board certified in Otolaryngology. Dr. Zopf is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Advanced in Deafness Craniofacial Syndrome
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Sergio Cervantes is an Otolaryngologist practicing medicine in Orlando, Florida. Dr. Cervantes is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Branchial Cleft Cyst, Enlarged Adenoids, Tongue Tie, and Laryngomalacia. Dr. Cervantes is board certified in American Board Of Otolaryngology. Dr. Cervantes is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Medical Genetics | Pediatrics
    Advanced in Deafness Craniofacial Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    26901 76th Avenue, 
    New Hyde Park, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider practicing medicine in New Hyde Park, New York. Dr. Fernandes is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 153 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, Chromosome 13q Deletion, Nicolaides-Baraitser Syndrome, and Early Infantile Epileptic Encephalopathy.

    Advanced in Deafness Craniofacial Syndrome
    Otolaryngology
    Advanced in Deafness Craniofacial Syndrome
    Otolaryngology
    Referral may be required

    Chicago ENT

    2522 W Peterson Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kathryn Colman is an Otolaryngologist practicing medicine in Chicago, Illinois. Dr. Colman is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Otitis, Enlarged Adenoids, Cleft Lip and Palate, and Mastoiditis. Dr. Colman is board certified in The American Board Of Otolaryngology Head And Neck Surgery - Otolaryngology and American Board Of Otolaryngology - Head And Neck Surgery. Dr. Colman is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Otolaryngology
    Advanced in Deafness Craniofacial Syndrome
    Otolaryngology
    Referral may be required

    Gillette Childrens Specialty Healthcare

    200 University Ave E, 
    Saint Paul, MN 
    Experience:
    17+ years
    Languages Spoken:
    English, Hebrew
    Accepting New Patients

    Micah Berman is an Otolaryngologist practicing medicine in Saint Paul, Minnesota. He has been practicing medicine for over 17 years. Dr. Berman is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Enlarged Adenoids, Otitis, and Dry Mouth. Dr. Berman is board certified in American Board Of Otolaryngology - Head And Neck Surgery,2015 and Otolaryngology. Dr. Berman is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Otolaryngology
    Advanced in Deafness Craniofacial Syndrome
    Otolaryngology
    Referral may be required

    Gillette Childrens Specialty Healthcare

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English, Farsi
    Accepting New Patients

    Benhoor Soumekh is an Otolaryngologist practicing medicine in Saint Paul, Minnesota. Dr. Soumekh is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Enlarged Adenoids, Otitis, Ruptured Eardrum, Tongue Tie, and Myringotomy. Dr. Soumekh is board certified in American Board Of Otolaryngology - Head And Neck Surgery,1996 and Otolaryngology. Dr. Soumekh is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Advanced in Deafness Craniofacial Syndrome
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Allison Blackwell is an Otolaryngologist practicing medicine in Wilmington, Delaware. Dr. Blackwell is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Tongue Tie, Autosomal Cleft Palate, Syngnathia Cleft Palate, Pierre Robin Sequence, and Myringotomy. Dr. Blackwell is board certified in National Commission On Certification Of Physician Assistants.

    Advanced in Deafness Craniofacial Syndrome
    Advanced in Deafness Craniofacial Syndrome
    Referral may be required

    Nemours Children's Health, Downtown Orlando

    1717 S. Orange Ave., 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Cedric Von Pritchett is an Otolaryngologist practicing medicine in Orlando, Florida. Dr. Von Pritchett is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Microtia, Enlarged Adenoids, Branchial Cleft Cyst, and Hearing Loss. Dr. Von Pritchett is board certified in American Board Of Otolaryngology. Dr. Von Pritchett is currently accepting new patients.

    Advanced in Deafness Craniofacial Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Advanced in Deafness Craniofacial Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 2 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Marc Thorne is a Pediatric Otolaryngologist and an Otolaryngologist practicing medicine in Ann Arbor, Michigan. Dr. Thorne is rated as an Advanced provider by MediFind in the treatment of Deafness Craniofacial Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Aural Polyps, Infant Hearing Loss, Myringotomy, and Adenoidectomy. Dr. Thorne is board certified in Otolaryngology-Head & Neck Surgery. Dr. Thorne is currently accepting new patients.

    Showing 1-20 of 311

    Last Updated: 11/08/2026

    What is the definition of Deafness Craniofacial Syndrome?

    Craniofacial syndrome with deafness is an extremely rare genetic (autosomal dominant) disorder in which an infant is born with facial abnormalities and profound hearing loss due to abnormal development of the inner ear. There are several types of craniofacial syndromes that include hearing impairment, such as Waardenburg syndrome.

    When should I see a Deafness Craniofacial Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Deafness Craniofacial Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Deafness Craniofacial Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Deafness Craniofacial Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Deafness Craniofacial Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Deafness Craniofacial Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Deafness Craniofacial Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Deafness Craniofacial Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Deafness Craniofacial Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Deafness Craniofacial Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Deafness Craniofacial Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Deafness Craniofacial Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Deafness Craniofacial Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Deafness Craniofacial Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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