Jessie Nance
Experienced in Distal Myopathy 2

Dr. Jessie Nance

Neuromusculoskeletal Medicine | Pediatric Neurology
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 

Experienced in Distal Myopathy 2
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
OverviewInsuranceLocationsClinical ResearchSimilar Doctors

Overview

Dr. Jessica Nance, treats pediatric patients with neuromuscular disorders, muscular dystrophies, congenital and metabolic myopathies, Charcot-Marie-Tooth (CMT) disease, peripheral neuropathy, spinal muscular atrophy, pediatric brachial plexus and hypotonia. She has cultivated expertise in the diagnosis and management of inherited neuromuscular diseases through her experience at he National Institutes of Health with Dr. Carsten Bonnemann and in the Johns Hopkins Pediatric Neuromuscular Clinic with Dr. Tom Crawford. After completing a fellowship in neuromuscular disorders at Johns Hopkins, she is now a part of the Johns Hopkins Division of Pediatric Neurology where she will continue working in the Pediatric Neuromuscular Clinic with Dr. Crawford. She received her medical degree from Indiana University School of Medicine and completed residency training in Pediatrics and Child Neurology at Children’s National Medical Center in Washington, D.C.

Dr. Nance is rated as an Experienced provider by MediFind in the treatment of Distal Myopathy 2. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Cytoplasmic Body Myopathy, and Cramp-Fasciculation Syndrome.

Her clinical research consists of co-authoring 11 peer reviewed articles and participating in 2 clinical trials. MediFind looks at clinical research from the past 15 years.

Residency
Children's National Medical Center, Pediatric Neurology, 2012
Specialties
Neuromusculoskeletal Medicine
Pediatric Neurology
Licenses
Neurology with Special Qualifications in Neurology in DC
Board Certifications
American Board Of Psychiatry And Neurology
Fellowships
Johns Hopkins University School of Medicine, Neuromuscular Medicine, 2014
Hospital Affiliations
The Johns Hopkins Hospital
Johns Hopkins Bayview Medical Center
Languages Spoken
English
German
Gender
Female

Insurance

Accepted insurance can change. Please verify directly with the provider.

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Accepted insurance plans:

Aetna
  • EPO
  • HMO
  • POS
  • PPO
Blue Cross Blue Shield
  • EPO
  • HMO
  • POS
  • PPO
CareFirst
  • HMO
  • POS
  • PPO
Cigna
  • EPO
  • HMO
  • PPO
First Health
  • INSURANCE PLAN
  • MEDICARE PDP
  • PPO
Gateway Health Plan
  • INSURANCE PLAN
  • MANAGED MEDICAID PLAN
  • MEDICARE SNP
  • OTHER MEDICARE PART D
Geisinger
  • HMO
  • POS
  • PPO
Johns Hopkins Healthcare
  • HMO
  • MANAGED MEDICAID PLAN
  • MEDICARE MAPD
  • MEDICARE-MEDICAID PLAN
Medicaid
  • OTHER MEDICAID
  • STATE MEDICAID
Medicare
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  • MANAGED MEDICAID PLAN
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  • MEDICARE PDP
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  • MEDICARE-MEDICAID PLAN
  • OTHER MEDICARE PART D
Sentara Healthcare
  • INSURANCE PLAN
  • MANAGED MEDICAID PLAN
  • MEDICARE ASSISTANCE PROGRAM
  • MEDICARE MAPD
  • MEDICARE SNP
  • OTHER COMMERCIAL
  • OTHER MEDICARE
  • OTHER MEDICARE PART D
UnitedHealthcare
  • EPO
  • HMO
  • POS
  • PPO
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Locations

Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, Baltimore, MD 21287
Call: 410-955-4259

Additional Areas of Focus

Dr. Nance has provided the following conditions as areas of focus. Please note that we may not have enough data to validate their experience in some of these conditions.

Neurofibromatosis Type 1 (NF1)

Clinical Research

Clinical research consists of overseeing clinical studies of patients undergoing new treatments and therapies, and publishing articles in peer reviewed medical journals. Providers who actively participate in clinical research are generally at the forefront of the fields and aware of the most up-to-date advances in treatments for their patients.


2 Clinical Trials

A Phase 3 Multinational, Randomized, Double-Blind, Placebo-Controlled Systemic Gene Delivery Study to Evaluate the Safety and Efficacy of SRP-9001 in Subjects With Duchenne Muscular Dystrophy (EMBARK)
A Phase 3 Multinational, Randomized, Double-Blind, Placebo-Controlled Systemic Gene Delivery Study to Evaluate the Safety and Efficacy of SRP-9001 in Subjects With Duchenne Muscular Dystrophy (EMBARK)
Enrollment Status: Completed
Publish Date: July 08, 2025
Intervention Type: Genetic
Study Phase: Phase 3
A Randomized, Double-Blind, Placebo-Controlled, Global Phase 3 Study of Edasalonexent in Pediatric Patients With Duchenne Muscular Dystrophy
A Randomized, Double-Blind, Placebo-Controlled, Global Phase 3 Study of Edasalonexent in Pediatric Patients With Duchenne Muscular Dystrophy
Enrollment Status: Completed
Publish Date: June 21, 2022
Intervention Type: Drug
Study Phase: Phase 3
View 1 Less Clinical Trial

11 Total Publications

The Historical Case for a Strong and Diverse Neurology Clerkship Leadership Team.
The Historical Case for a Strong and Diverse Neurology Clerkship Leadership Team.
Journal: Neurology. Education
Published: January 08, 2024
View All 11 Publications
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Ricardo Roda
Experienced in Distal Myopathy 2
Dr. Ricardo Roda
Neuromusculoskeletal Medicine
Experienced in Distal Myopathy 2
Dr. Ricardo Roda
Neuromusculoskeletal Medicine

Johns Hopkins Outpatient Center

Baltimore, MD 
 (1.2 miles away)
410-955-9441
Languages Spoken:
English, French, Spanish
See accepted insurances
Offers Telehealth

Dr. Ricardo Roda earned a combined MD/PhD degree from University of Rochester and completed an adult neurology residency, followed by a clinical neuromuscular fellowship at Johns Hopkins University School of Medicine. During residency, Dr. Roda developed a special interest in both auto-immune disorders and genetic disorders. Following residency, he spent three years in neurogenetics branch of National Institute of Neurological Disorders and Stroke (NINDS) working with Dr. Craig Blackstone, focusing on the use of the newer DNA sequencing techniques in genetic diagnosis, and in establishing genotype/phenotype correlations neuromuscular disorders. His current clinical interests include developing testing strategies for undiagnosed genetic disorders and myasthenia gravis. Dr. Roda is rated as a Distinguished provider by MediFind in the treatment of Distal Myopathy 2. His top areas of expertise are Spastic Paraplegia Type 7, Hereditary Spastic Paraparesis, Myasthenia Gravis, and Spastic Paraplegia Type 2.

Brenda L. Banwell
Experienced in Distal Myopathy 2
Dr. Brenda L. Banwell
Pediatric Neurology | Neurology
Experienced in Distal Myopathy 2
Dr. Brenda L. Banwell
Pediatric Neurology | Neurology

Johns Hopkins Outpatient Center

601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
 (1.2 miles away)
410-955-4259
Languages Spoken:
English
See accepted insurances

Brenda Banwell is the director of the Department of Pediatrics, as well as pediatrician-in-chief and co-director of Johns Hopkins Children’s Center, where she helps manage the hospital’s many clinical and research centers. Dr. Banwell is a renowned expert in the research and treatment of pediatric multiple sclerosis (MS) and other neuroimmune disorders. She specializes in and studies the use of neuroimaging to assess the clinical and cognitive impact of the conditions, as well as the function of the immune system in children with these disorders. She also created a standardized clinical care algorithm and clinical database in order to evaluate the clinical impact of MS. Dr. Banwell has published more than 250 manuscripts in high-impact journals, along with over 25 book chapters. In addition, she has over 200 national and international invited lectureships and visiting professorships. An advocate for pediatric multiple sclerosis needs and research, Dr. Banwell serves as chair of the International Medical and Scientific Board of the Multiple Sclerosis International Federation, and the Myelin Oligodendrocyte Glycoprotein Antibody–Associated Disease (MOGAD) International Research Consortium. She is also chair of the pediatric committee of the National Institutes of Health NeuroNEXT program, which conducts studies on treatments for neurological diseases through academic, private, and industry collaborations. Dr. Banwell currently serves as past-chair of the International Pediatric Multiple Sclerosis Study Group, Dr. Banwell earned her medical degree from the University of Western Ontario. She later completed a residency in pediatrics at the University of Western Ontario-Children's Hospital of Western Ontario and a second residency in pediatric neurology at University of Toronto – The Hospital for Sick Children. Her residencies were followed by a fellowship in neuromuscular research at Mayo Clinic. Dr. Banwell is rated as an Elite provider by MediFind in the treatment of Distal Myopathy 2. Her top areas of expertise are Multiple Sclerosis (MS), CACH Syndrome, Optic Neuritis, and Transverse Myelitis.

Charlotte J. Sumner
Experienced in Distal Myopathy 2
Dr. Charlotte J. Sumner
Neuromusculoskeletal Medicine
Experienced in Distal Myopathy 2
Dr. Charlotte J. Sumner
Neuromusculoskeletal Medicine

Johns Hopkins Outpatient Center

Baltimore, MD 
 (1.2 miles away)
410-955-9441
Languages Spoken:
English
See accepted insurances

Dr. Charlotte Sumner is a Professor of Neurology and Neuroscience at Johns Hopkins University School of Medicine. Dr. Sumner cares for patients with genetically-mediated neuromuscular diseases. Her practice is notable for a focus on individuals with inherited neuromuscular disorders of peripheral nerves and motor neurons, including spinal muscular atrophy (SMA) and Charcot-Marie-Tooth (CMT) disease. She co-directs the Johns Hopkins Muscular Dystrophy Association Care Center, the Spinal Muscular Atrophy (SMA), and the Charcot-Marie-Tooth (CMT) clinics, which deliver multidisciplinary clinical care, engage in international natural history studies, and provide cutting edge therapeutics. Dr. Sumner’s research focuses on developing treatments for degenerative disorders of motor neurons and peripheral nerves. Her laboratory uses human tissues and induced pluripotent cell lines, mouse models and cultured cells to characterize disease mechanisms and develop treatments. Dr. Charlotte Sumner received her medical degree from the University of Pennsylvania School of Medicine following undergraduate studies at Princeton University. She completed internal medicine internship and neurology residency at the University of California San Francisco, after which she returned to the east coast for a neuromuscular fellowship at Johns Hopkins and a neurogenetics fellowship in the Neurogenetics Branch at the National Institute of Neurological Disorders and Stroke. She joined the neurology faculty at Johns Hopkins in 2006. Dr. Sumner is rated as a Distinguished provider by MediFind in the treatment of Distal Myopathy 2. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Charcot-Marie-Tooth Disease, Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, and Gastrostomy.

VIEW MORE DISTAL MYOPATHY 2 DOCTORS

Areas of Expertise

MediFind evaluates expertise by pulling from factors such as number of articles a doctor has published in medical journals, participation in clinical trials, speaking at industry conferences, prescribing and referral patterns, and strength of connections with other experts in their field.

Learn more about MediFind’s expert tiers

Find Dr. Nance's expertise for a condition
ConditionClose
      • Advanced
      • Duchenne Muscular Dystrophy
        Dr. Nance is
        Advanced
        . Learn about Duchenne Muscular Dystrophy.
        See more Duchenne Muscular Dystrophy experts
      • Dysferlinopathy
        Dr. Nance is
        Advanced
        . Learn about Dysferlinopathy.
        See more Dysferlinopathy experts
      • Experienced
      • Acute Flaccid Myelitis (AFM)
        Dr. Nance is
        Experienced
        . Learn about Acute Flaccid Myelitis (AFM).
        See more Acute Flaccid Myelitis (AFM) experts
      • Becker Muscular Dystrophy
        Dr. Nance is
        Experienced
        . Learn about Becker Muscular Dystrophy.
        See more Becker Muscular Dystrophy experts
      • Brain Stem Cancer
        Dr. Nance is
        Experienced
        . Learn about Brain Stem Cancer.
        See more Brain Stem Cancer experts
      • Congenital Fiber-Type Disproportion
        Dr. Nance is
        Experienced
        . Learn about Congenital Fiber-Type Disproportion.
        See more Congenital Fiber-Type Disproportion experts
      • Cramp-Fasciculation Syndrome
        Dr. Nance is
        Experienced
        . Learn about Cramp-Fasciculation Syndrome.
        See more Cramp-Fasciculation Syndrome experts
      • Cytoplasmic Body Myopathy
        Dr. Nance is
        Experienced
        . Learn about Cytoplasmic Body Myopathy.
        See more Cytoplasmic Body Myopathy experts
      View All 20 Experienced Conditions
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