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    Last Updated: 10/30/2025

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    MediFind found 3 doctor with experience in Dystrophic Epidermolysis Bullosa near Phoenix, AZ. Of these, 2 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    3 providers found
      Distinguished in Dystrophic Epidermolysis Bullosa
      Dermatology | Pediatrics
      Distinguished in Dystrophic Epidermolysis Bullosa
      Dermatology | Pediatrics

      Phoenix Children's Hospital

      1919 E Thomas Rd, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Harper Price is a Dermatologist and a Pediatrics provider in Phoenix, Arizona. Dr. Price is rated as a Distinguished provider by MediFind in the treatment of Dystrophic Epidermolysis Bullosa. Her top areas of expertise are Dystrophic Epidermolysis Bullosa, Epidermolysis Bullosa, Neurocutaneous Melanosis, and Erythema Nodosum. Dr. Price is currently accepting new patients.

      Advanced in Dystrophic Epidermolysis Bullosa
      Advanced in Dystrophic Epidermolysis Bullosa
      1919 E Thomas Rd, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English, Portuguese
      Accepting New Patients

      Daniela Russi is a Dermatologist in Phoenix, Arizona. Dr. Russi is rated as an Advanced provider by MediFind in the treatment of Dystrophic Epidermolysis Bullosa. Her top areas of expertise are Urticaria Pigmentosa, Dystrophic Epidermolysis Bullosa, Familial Multiple Nevi Flammei, and Stork Bite. Dr. Russi is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Dystrophic Epidermolysis Bullosa
      Pediatrics | Dermatology
      Advanced in Dystrophic Epidermolysis Bullosa
      Pediatrics | Dermatology
      1919 E Thomas Rd, Main Building, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Vanessa Gildenstern is a Pediatrics specialist and a Dermatologist in Phoenix, Arizona. Dr. Gildenstern is rated as an Advanced provider by MediFind in the treatment of Dystrophic Epidermolysis Bullosa. Her top areas of expertise are Urticaria Pigmentosa, Molluscum Contagiosum, Judge Misch Wright Syndrome, and Dystrophic Epidermolysis Bullosa.

      Learn about our expert tiers
      Showing 1-3 of 3

      Last Updated: 10/30/2025

      What is the definition of Dystrophic Epidermolysis Bullosa?

      Dystrophic epidermolysis bullosa is one of the major forms of a group of conditions called epidermolysis bullosa. Epidermolysis bullosa cause the skin to be very fragile and to blister easily. Blisters and skin erosions form in response to minor injury or friction, such as rubbing or scratching. The signs and symptoms of dystrophic epidermolysis bullosa vary widely among affected individuals. In mild cases, blistering may primarily affect the hands, feet, knees, and elbows. Severe cases of this condition involve widespread blistering that can lead to vision loss, scarring, and other serious medical problems.

      When should I see a Dystrophic Epidermolysis Bullosa doctor near Phoenix, AZ?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dystrophic Epidermolysis Bullosa doctor near Phoenix, AZ?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dystrophic Epidermolysis Bullosa doctors near Phoenix, AZ?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dystrophic Epidermolysis Bullosa doctors near Phoenix, AZ?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dystrophic Epidermolysis Bullosa doctor near Phoenix, AZ?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dystrophic Epidermolysis Bullosa doctor search results page. 

      Why is it important to get a second opinion from a different Dystrophic Epidermolysis Bullosa doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dystrophic Epidermolysis Bullosa doctor near Phoenix, AZ?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dystrophic Epidermolysis Bullosa doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dystrophic Epidermolysis Bullosa doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dystrophic Epidermolysis Bullosa doctors near Phoenix, AZ?

      Look for the filter feature on the left side of the Dystrophic Epidermolysis Bullosa doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dystrophic Epidermolysis Bullosa doctor that offers video calls?

      Look for the filter feature on the left-side of the Dystrophic Epidermolysis Bullosa doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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