The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors in The United States

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 3595 doctor with experience in Ehlers-Danlos Syndrome (EDS) near The United States. Of these, 3351 are Experienced, 210 are Advanced, 20 are Distinguished and 5 are Elite.

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3,595 providers found
    Elite in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Elite in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics

    The Association Of University Physicians

    1959 Ne Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English, Hindi, Spanish
    Accepting New Patients
    Offers Telehealth

    Peter Byers is a Medical Genetics provider practicing medicine in Seattle, Washington. Dr. Byers is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and Hypotonia. Dr. Byers is currently accepting new patients.

    Elite in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Elite in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics

    Iu Health Medical Group LLC

    1701 N Senate Blvd, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Clair Francomano is a Medical Genetics provider practicing medicine in Indianapolis, Indiana. Dr. Francomano is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Spinal Fusion. Dr. Francomano is currently accepting new patients.

    Elite in Ehlers-Danlos Syndrome (EDS)
    Elite in Ehlers-Danlos Syndrome (EDS)

    Carle Health Care Incorporated

    1818 E Windsor Rd, 
    Urbana, IL 
    Languages Spoken:
    English, French

    Christina Laukaitis is a Medical Genetics provider practicing medicine in Urbana, Illinois. Dr. Laukaitis is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

    Learn about our expert tiers
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Sherene Shalhub is a Vascular Surgeon practicing medicine in Portland, Oregon. Dr. Shalhub is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Vascular Ehlers-Danlos Syndrome (VEDS), Thoracic Aortic Aneurysm, Aortic Dissection, Ehlers-Danlos Syndrome (EDS), and Angioplasty.

    Elite in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Elite in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Office

    600 Northern Blvd, 
    Greenvale, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Bernadette Riley is a primary care provider, practicing in Family Medicine in Greenvale, New York. Dr. Riley is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Hypermobile Joints, and Prerenal Azotemia.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)

    ETSU Physicians & Associates- Pediatrics

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Russi is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 125 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Ehlers-Danlos Syndrome (EDS), Chromosome 8p Deletion, and Chromosome 6q Duplication. Dr. Russi is board certified in American Board Of Pediatrics and American Board Of Medical Genetics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Cardiology

    Heart And Vascular Center At Durham Outpatient Center

    4400 Emile St., 
    Omaha, NE 
    Experience:
    35+ years
    Languages Spoken:
    English

    Angela Yetman is a Cardiologist and a Pediatric Cardiologist practicing medicine in Omaha, Nebraska. She has been practicing medicine for over 35 years. Dr. Yetman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Turner Syndrome, Marfan Syndrome, Congenital Contractural Arachnodactyly, and Congenital Heart Disease (CHD).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Rampart Clinic Neurology & Neuro-Ophthalmology

    130 Rampart Way, Suite 150, 
    Denver, CO 
    Experience:
    15+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Kung was born and raised in Arlington, Texas and completed his undergraduate studies at Rice University in Houston. He attended medical school at Washington University in St. Louis, Missouri. After obtaining his medical degree, Dr. Kung stayed at Washington University for residency training in Adult Neurology and fellowship training in both Epilepsy and Neuro-Ophthalmology. Dr. Kung is board certified in Neurology and Epilepsy and has a special interest in seeing patients with refractory headaches, dizziness and brain injury. He also uses Botox to treat patients with chronic migraine.“I will invest the time that it takes to take care of you.”Outside of the office, Dr. Kung enjoys spending time with family and friends, playing with his children, and working on his indoor climbing skills. Dr. Kung is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Migraine, Epilepsy, Seizures, and Optic Neuritis. Dr. Kung is board certified in American Board Of Psychiatry And Neurology. Dr. Kung is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics

    Atrium Health Levine Children's South Lake Pediatrics

    9625 Northcross Center Court, Suite 201, 
    Huntersville, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jill Hopkins is a Pediatrics provider practicing medicine in Huntersville, North Carolina. Dr. Hopkins is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS). Dr. Hopkins is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery

    General Surgery Clinic At Lauritzen Outpatient Center

    4014 Leavenworth St., 
    Omaha, NE 
    Experience:
    26+ years
    Languages Spoken:
    English

    Brett Waibel is a General Surgeon practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 26 years. Dr. Waibel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Delirium, Chronic Subdural Hematoma, Gastrointestinal Perforation, Hernia Surgery, and Gastrostomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Johnson City Pediatrics

    301 Med Tech Pkwy, Ste 180, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Bullman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Obesity in Children, Delayed Growth, Croup, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Bullman is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Holston Medical Group- Orthopedics & Sports Medicine

    105 W Stone Dr, Ste 4B, 
    Kingsport, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Remy is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Osteoarthritis, Tendinitis, Bursitis, and Tenosynovitis. Dr. Remy is board certified in American Board Of Orthopaedic Surgery.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Tri-City Pediatric Cardiology P.C.

    2312 Knob Creek Rd, Ste 208, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Walkup is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Heart Murmurs, Pulmonary Supravalvular Stenosis, Pulmonary Valve Stenosis, and Patent Ductus Arteriosus. Dr. Walkup is board certified in American Board Of Pediatrics.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics

    St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Perszyk is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, Maternal Hyperphenylalaninemia, Dihydropteridine Reductase Deficiency, and Mucolipidosis 3. Dr. Perszyk is board certified in American Board Of Medical Genetics And Genomics.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics

    St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Melnyk is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), 3p Deletion Syndrome, and Chromosome 4q Deletion. Dr. Melnyk is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Pinnacle Family Medicine

    303 Med Tech Pkwy, Ste 150, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Colyar is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Colyar is board certified in American Board Of Family Medicine.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics | Sports Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics | Sports Medicine

    St. Christopher's Pediatric Associates Orthopedics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Wolf is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Concussion, Hypermobile Joints, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Chronic Pain. Dr. Wolf is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Tri-City Pediatric Cardiology P.C.

    935 Wilcox Court, Suite 150, 
    Kingsport, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Madhok is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Subpulmonary Stenosis. Dr. Madhok is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Texas Health Family Care

    2701 Panhandle St, 
    Denton, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Shane Ashford is a primary care provider, practicing in Family Medicine in Denton, Texas. Dr. Ashford is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Cirrhosis, Xanthoma, Familial Combined Hyperlipidemia, and Hypertension.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Aurora Internal Medicine

    2600 Kiley Way, 
    Plymouth, WI 
    Languages Spoken:
    English

    Katie Thompson is a primary care provider, practicing in Internal Medicine in Plymouth, Wisconsin. Dr. Thompson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Cirrhosis, and High Cholesterol. Dr. Thompson is board certified in American Board Of Internal Medicine.

    Showing 1-20 of 3,595

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in The United States?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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