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    Last Updated: 10/30/2025

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    MediFind found 3582 doctor with experience in Ehlers-Danlos Syndrome (EDS) near The United States. Of these, 3334 are Experienced, 215 are Advanced, 20 are Distinguished and 5 are Elite.

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    3,582 providers found
      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
      Languages Spoken:
      English, Hindi, Spanish
      Accepting New Patients
      Offers Telehealth

      Peter Byers is a Medical Genetics provider in Seattle, Washington. Dr. Byers is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and Hypotonia. Dr. Byers is currently accepting new patients.

      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      University Family Physicians, Inc.

      575 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Clair Francomano is a Medical Genetics provider in Indianapolis, Indiana. Dr. Francomano is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Spinal Fusion. Dr. Francomano is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Ehlers-Danlos Syndrome (EDS)
      Elite in Ehlers-Danlos Syndrome (EDS)

      Carle Health Care Incorporated

      1818 E Windsor Rd, 
      Urbana, IL 
      Languages Spoken:
      English, French
      Offers Telehealth

      Christina Laukaitis is a Medical Genetics provider in Urbana, Illinois. Dr. Laukaitis is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Learn about our expert tiers
      Elite in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Elite in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      New York Institute Of Technology

      600 Northern Blvd, 
      Greenvale, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Bernadette Riley is a primary care provider, practicing in Family Medicine in Greenvale, New York. Dr. Riley is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Hypermobile Joints, and Prerenal Azotemia.

      Elite in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Elite in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      University Professional Services

      3303 S Bond Ave, 
      Portland, OR 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Sherene Shalhub is a Vascular Surgeon in Portland, Oregon. Dr. Shalhub is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Thoracic Aortic Aneurysm, Aortic Dissection, Aneurysm Repair, and Angioplasty. Dr. Shalhub is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      1555 Heritage Blvd, 
      West Salem, WI 
      Languages Spoken:
      English

      Jennifer Lamps is a primary care provider, practicing in Family Medicine in West Salem, Wisconsin. Dr. Lamps is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      University Of Cincinnati Physicians Company LLC

      222 Piedmont Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vincent Martin is a primary care provider, practicing in Internal Medicine in Cincinnati, Ohio. Dr. Martin is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Migraine, Headache, Cluster Headache, and Increased Intracranial Pressure. Dr. Martin is currently accepting new patients.

      Katie E. Thompson
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Aurora Internal Medicine

      2600 Kiley Way, 
      Plymouth, WI 
      Languages Spoken:
      English

      Katie Thompson is a primary care provider, practicing in Internal Medicine in Plymouth, Wisconsin. Dr. Thompson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Cirrhosis, and High Cholesterol.

      Jill Hopkins
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics

      Atrium Health Levine Children's South Lake Pediatrics

      9625 Northcross Center Court, Suite 201, 
      Huntersville, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jill Hopkins is a Pediatrics provider in Huntersville, North Carolina. Dr. Hopkins is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top area of expertise is Ehlers-Danlos Syndrome (EDS). Dr. Hopkins is currently accepting new patients.

      Amy B. Middleman
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Adolescent Medicine | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Adolescent Medicine | Pediatrics
      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English, French
      Accepting New Patients

      Amy Middleman is an Adolescent Medicine specialist and a Pediatrics provider in Houston, Texas. Dr. Middleman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Anorexia, Malnutrition, Painful Menstrual Periods, and Tetanus. Dr. Middleman is currently accepting new patients.

      Joseph P. Hart
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Interventional Radiology | General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Interventional Radiology | General Surgery

      The Medical College Of Wisconsin Inc

      9200 W Wisconsin Ave, 
      Milwaukee, WI 
      Experience:
      30+ years
      Accepting New Patients
      Offers Telehealth

      JOSEPH PATRICK HART studied medicine at Northwestern University Medical School in Chicago, became a Fellow of the American College of Surgeons in 2008, and was first appointed as an Attending Vascular Surgeon at Strong Memorial Hospital in Rochester, NY in 2006. He was a Marco Polo Scholar of the Society for Vascular Surgery in 2005. He completed the Executive Master of Healthcare Leadership program at Brown University in 2019 and has been designated a Distinguished Fellow of the Society for Vascular Surgery. He was born in Brooklyn, NY, is a Lifetime Member of the National Eagle Scout Association, and is a graduate of Regis High School, NYC. Dr. Hart is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Peripheral Artery Disease, Arterial Insufficiency, Abdominal Aortic Aneurysm (AAA), Carotid Artery Surgery, and Angioplasty.

      Joseph S. Coselli
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery | Thoracic Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery | Thoracic Surgery

      Baylor College Of Medicine

      7200 Cambridge St, Fl 9, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Coselli is a General Surgeon and a Thoracic Surgeon in Houston, Texas. Dr. Coselli is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Aortic Dissection, Marfan Syndrome, Coronary Artery Bypass Graft (CABG), and Aortic Valve Replacement. Dr. Coselli is currently accepting new patients in some locations.

      Megan Sofka
      Neuromusculoskeletal Medicine
      Neuromusculoskeletal Medicine

      Desert Sky Osteopathy

      1208 Princeton Dr Se, 
      Albuquerque, NM 
      Experience:
      5+ years
      Languages Spoken:
      English
      Accepting New Patients

      Megan Sofka is a Neuromusculoskeletal Medicine provider in Albuquerque, New Mexico. Her top areas of expertise are Chronic Pain, Neuralgia, Coccydynia, and Painful Menstrual Periods. Dr. Sofka is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Neurology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Neurology | Pediatrics
      2401 Gillham Rd, 
      Kansas City, MO 
      Languages Spoken:
      English

      Brian Aalbers is a Pediatric Neurologist and a Pediatrics provider in Kansas City, Missouri. Dr. Aalbers is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, Periventricular Heterotopia, and Seizures.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Sentara Medical Group

      3920 Bridge Rd, Suite 207, 
      Suffolk, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sarai Morrison is a primary care provider, practicing in Family Medicine in Suffolk, Virginia. Dr. Morrison is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Infant Hyperglycemia. Dr. Morrison is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Indiana University Health Care Associates Inc

      1520 N Senate Ave, Iu Health Physicians, 
      Indianapolis, IN 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Carol Dellinger is a primary care provider, practicing in Family Medicine in Indianapolis, Indiana. Dr. Dellinger is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Chronic Pain, Fibromyalgia, Opioid Use Disorder, and Maturity Onset Diabetes of the Young. Dr. Dellinger is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | General Surgery

      Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc

      W168n11237 Western Ave, 
      Germantown, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Rossi is a Vascular Surgeon and a General Surgeon in Germantown, Wisconsin. Dr. Rossi is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Abdominal Aortic Aneurysm (AAA), Arterial Insufficiency, Peripheral Artery Disease, Carotid Artery Surgery, and Gastrostomy. Dr. Rossi is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine

      University Of Cincinnati Physicians Company LLC

      3188 Bellevue Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Mary Mccarty is a primary care provider, practicing in Pediatrics and Internal Medicine in Cincinnati, Ohio. Dr. Mccarty is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Type 2 Diabetes (T2D), Hypothyroidism, Osteoporosis, and Postmenopausal Osteoporosis. Dr. Mccarty is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Indiana University Health Fort Wayne Physicians, LLC

      10215 Auburn Park Dr, 
      Fort Wayne, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Jan De Guzman is a primary care provider, practicing in Family Medicine in Fort Wayne, Indiana. Dr. De Guzman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Multiple Carboxylase Deficiency, Vitamin B12 Deficiency Anemia, Folate Deficiency, and Attention Deficit Hyperactivity Disorder (ADHD). Dr. De Guzman is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      University Of Cincinnati Physicians Company LLC

      2123 Auburn Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English, Arabic, Arabic - Jordanian, Spanish
      Accepting New Patients

      Lina Nasr-Anaissie is a primary care provider, practicing in Family Medicine in Cincinnati, Ohio. Dr. Nasr-Anaissie is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypothyroidism, Sitosterolemia, Hypertension, and Familial Hypertension. Dr. Nasr-Anaissie is currently accepting new patients.

      Showing 1-20 of 3,582

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in The United States?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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