The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Rochester, NY

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 171 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Rochester, NY. Of these, 153 are Experienced, 16 are Advanced, 1 are Distinguished and 1 are Elite.

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171 providers found
    Elite in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Elite in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Office

    600 Northern Blvd, 
    Greenvale, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Bernadette Riley is a primary care provider, practicing in Family Medicine in Greenvale, New York. Dr. Riley is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Hypermobile Joints, and Prerenal Azotemia.

    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    St Camillus Home Care Agency

    813 Fay Rd, 
    Syracuse, NY 
    Languages Spoken:
    English
    Offers Telehealth

    David Kanter is a Pediatrics provider practicing medicine in Syracuse, New York. Dr. Kanter is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), and Muscle Spasms.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Allergy and Immunology | Rheumatology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Allergy and Immunology | Rheumatology
    Referral may be required
    47 East 77th Street, Suite 201, 
    New York, NY 
    Languages Spoken:
    English, Russian
    Accepting New Patients

    Olga Belostotsky is an Allergy and Immunologist and a Rheumatologist practicing medicine in New York, New York. Dr. Belostotsky is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Fibromyalgia, Undifferentiated Connective Tissue Disease (UCTD), Ehlers-Danlos Syndrome (EDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Belostotsky is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Cayuga Rheumatology | Ithaca Mall

    40 Catherwood Rd Ste C, 
    Ithaca, NY 
    Languages Spoken:
    English

    Anthony Sidari is a Rheumatologist practicing medicine in Ithaca, New York. Dr. Sidari is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Rheumatoid Arthritis (RA), Ehlers-Danlos Syndrome (EDS), Polymyalgia Rheumatica, and Rhizomelic Pseudopolyarthritis.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Alden Medical Group PLLC

    12845 Broadway St, 
    Alden, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Yellamraju Kumar is a primary care provider, practicing in Internal Medicine in Alden, New York. Dr. Kumar is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Generalized Anxiety Disorder (GAD), Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Referral may be required

    Western New York Dental Group PC

    1020 Youngs Rd, 
    Buffalo, NY 
    Languages Spoken:
    English

    Richard Chou is a Rheumatologist practicing medicine in Buffalo, New York. Dr. Chou is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Psoriasis, Psoriatic Arthritis, Ehlers-Danlos Syndrome (EDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Cayuga Rheumatology | Trumansburg Road

    1301 Trumansburg Rd Ste R, 
    Ithaca, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Meador is a Rheumatologist practicing medicine in Ithaca, New York. Dr. Meador is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Rheumatoid Arthritis (RA), Rhizomelic Pseudopolyarthritis, Polymyalgia Rheumatica, and Dermatomyositis.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    The Workplace St. Francis Hospital

    243 North Rd, 
    Poughkeepsie, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Anita Pavels is a primary care provider, practicing in Internal Medicine in Poughkeepsie, New York. Dr. Pavels is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Vitamin B12 Deficiency Anemia, Folate Deficiency, Multiple Carboxylase Deficiency, and Subacute Combined Degeneration.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Referral may be required

    Office

    2095 Kensington Ave, 
    Buffalo, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Rajitha Mallela is a Rheumatologist practicing medicine in Buffalo, New York. Dr. Mallela is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Fibromyalgia, Rheumatoid Arthritis (RA), Bursitis, and Systemic Sclerosis (SSc).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Referral may be required

    Weill Cornell Medicine Brain And Spine Center

    240 East 59th Street, 2nd Floor, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Roger Hartl is a General Surgeon practicing medicine in New York, New York. Dr. Hartl is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Spinal Stenosis, Spondylolisthesis, Herniated Disk, Hernia, and Herniated Disc Surgery. Dr. Hartl is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    WPHPA Of Hawthorne

    24 Saw Mill River Road,, Suite 206, 
    Hawthorne, NY 
    Languages Spoken:
    English, Hebrew, Spanish
    Accepting New Patients
    Offers Telehealth

    Farrah Gutwein is a Rheumatologist practicing medicine in Hawthorne, New York. Dr. Gutwein is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Psoriatic Arthritis, Psoriasis, Rheumatoid Arthritis (RA), and Postmenopausal Osteoporosis. Dr. Gutwein is board certified in American Board Of Internal Medicine. Dr. Gutwein is currently accepting new patients.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Northwell Health Physician Partners Rheumatology At Bay Shore

    180 East Main Street, Suite A, 
    Bay Shore, NY 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Richard Adamski is a Rheumatologist practicing medicine in Bay Shore, New York. Dr. Adamski is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Raynaud Phenomenon, Rheumatoid Arthritis (RA), and Sjogren Syndrome. Dr. Adamski is currently accepting new patients.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Neurosurgery | General Surgery
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Neurosurgery | General Surgery
    Referral may be required

    Weill Cornell Medicine Brain And Spine Center At Upper East Side Campus

    525 East 68 Street, Box 99, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Greenfield is a Neurosurgery specialist and a General Surgeon practicing medicine in New York, New York. Dr. Greenfield is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation, Chiari Malformation Type 2, Syringomyelia, Chiari Malformation Type 1, and Gastrostomy. Dr. Greenfield is board certified in American Board Of Neurological Surgery and American Board Of Pediatric Neurological Surgery.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Referral may be required

    Crystal Run Healthcare LLP

    155 Crystal Run Rd, 
    Middletown, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Can Hu is a Rheumatologist practicing medicine in Middletown, New York. Dr. Hu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Raynaud Phenomenon, Erythema Nodosum, Gout, and Rhizomelic Pseudopolyarthritis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Office

    425 W 59th St Fl 5, 
    New York, NY 
    Experience:
    10+ years
    Languages Spoken:
    English

    Kristaq Koci is a primary care provider, practicing in Internal Medicine in New York, New York. He has been practicing medicine for over 10 years. Dr. Koci is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Scleredema, Sjogren Syndrome, Raynaud Phenomenon, and Rheumatoid Lung Disease.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Mount Sinai

    1 Gustave L Levy Pl, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Margrit Wiesendanger is a primary care provider, practicing in Internal Medicine in New York, New York. Dr. Wiesendanger is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 35 other conditions, according to our data. Her clinical expertise encompasses Scleredema, Ankylosing Spondylitis, Axial Spondyloarthritis (AxSpA), and Lupus Nephritis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Carlos L. Martinez MD PC

    2291 Union Rd, 
    West Seneca, NY 
    Experience:
    44+ years
    Languages Spoken:
    English

    Carlos Martinez-Ii is a Rheumatologist practicing medicine in West Seneca, New York. He has been practicing medicine for over 44 years. Dr. Martinez-Ii is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Rheumatoid Arthritis (RA), Raynaud Phenomenon, Fibromyalgia, and Lymphocytic Vasculitis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Arthritis Care PC

    2414 15th St, 
    Troy, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Allen is a Rheumatologist practicing medicine in Troy, New York. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Scleredema, Scleroma, Systemic Sclerosis (SSc), and Scleroderma.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Dermatology | Medical Genetics | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Dermatology | Medical Genetics | Pediatrics
    Referral may be required

    Kaleida Health

    818 Ellicott St, 
    Buffalo, NY 
    Languages Spoken:
    English

    Jennifer Hand is a Dermatologist and a Medical Genetics provider practicing medicine in Buffalo, New York. Dr. Hand is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses X-Linked Ichthyosis, Vascular Birthmark, Dystrophic Epidermolysis Bullosa, and Melkersson-Rosenthal Syndrome.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Gramercy Park Physicians LLP

    10 Union Sq E, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Brittany Banbury is a Rheumatologist practicing medicine in New York, New York. Dr. Banbury is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Arthritis, Fibromyalgia, Raynaud Phenomenon, and Psoriasis.

    Showing 1-20 of 171

    Last Updated: 09/19/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Rochester, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Rochester, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Rochester, NY?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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