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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Seattle, WA. Of these, 19 are Experienced, 2 are Advanced, 1 are Distinguished and 1 are Elite.

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    23 providers found
      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English, Hindi, Spanish
      Accepting New Patients
      Offers Telehealth

      Peter Byers is a Medical Genetics provider in Seattle, Washington. Dr. Byers is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and Hypotonia. Dr. Byers is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Franciscan Medical Group

      4550 Fauntleroy Way Sw, 
      Seattle, WA 
       (3.8 miles away)
      Languages Spoken:
      English, French, Hindi, Nepali, Punjabi, Spanish, Vietnamese
      Accepting New Patients
      Offers Telehealth

      Katherine Hoang is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Hoang is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Myotonia Congenita, Sciatica, Hypothyroidism, and High Cholesterol. Dr. Hoang is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Distinguished in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      1959 Ne Pacific St, Hsb, Box 357655, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English, German, Romanian
      Accepting New Patients
      Offers Telehealth

      Ulrike Schwarze is a Medical Genetics provider in Seattle, Washington. Dr. Schwarze is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Osteogenesis Imperfecta, Vascular Ehlers-Danlos Syndrome (VEDS), and De Barsy Syndrome. Dr. Schwarze is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English

      Rebecca Sorber is a Vascular Surgeon in Seattle, Washington. Dr. Sorber is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Median Arcuate Ligament Syndrome (MALS), Thoracic Aortic Aneurysm, Pancreaticoduodenectomy, and Atherectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Virginia Mason Medical Center

      1100 9th Ave, 
      Seattle, WA 
       (0.3 miles away)
      Languages Spoken:
      English, Korean, Spanish
      Accepting New Patients
      Offers Telehealth

      Lauren Crowley is a primary care provider, practicing in Internal Medicine in Seattle, Washington. Dr. Crowley is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Chronic Cough, Vertigo, and Maturity Onset Diabetes of the Young. Dr. Crowley is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      720 8th Avenue South, 
      Seattle, WA 
       (0.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kimo Hirayama is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Hirayama is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Type 2 Diabetes (T2D), Hepatitis, Jaundice, and Glucocorticoid-Remediable Aldosteronism. Dr. Hirayama is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      The Association Of University Physicians

      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English, Farsi, Korean, Spanish
      Accepting New Patients
      Offers Telehealth

      Debra Bell is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Bell is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Ehlers-Danlos Syndrome (EDS). Dr. Bell is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English

      David Siscovick is a primary care provider, practicing in Internal Medicine in Seattle, Washington. Dr. Siscovick is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Atherosclerosis, Cardiac Arrest, Type 2 Diabetes (T2D), and Coronary Heart Disease.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      The Association Of University Physicians

      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Benjamin Starnes is a Vascular Surgeon in Seattle, Washington. Dr. Starnes is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Abdominal Aortic Aneurysm (AAA), Thoracic Aortic Aneurysm, Aortic Dissection, Aneurysm Repair, and Fasciotomy. Dr. Starnes is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      1124 Columbia Street, Suite 620, 
      Seattle, WA 
       (0.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Milah Frownfelter is a primary care provider, practicing in Internal Medicine in Seattle, Washington. Dr. Frownfelter is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Obesity in Children, Hypothyroidism, and Postmenopausal Osteoporosis.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology

      Eye Associates Northwest PLLC

      1101 Madison St, Suite 600, 
      Seattle, WA 
       (0.5 miles away)
      Languages Spoken:
      English, Castilian, Korean, Mandarin, Polish, Spanish, Vietnamese
      Accepting New Patients
      Offers Telehealth

      Daniel Kelly is an Ophthalmologist in Seattle, Washington. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Glaucoma, Eyelid Bump, Meibomianitis, and Dry Eye Syndrome. Dr. Kelly is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery
      Uw Medicine 1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English

      Asmaa El-Ghazali is a General Surgeon in Seattle, Washington. Dr. El-Ghazali is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS) and Ehlers-Danlos Syndrome (EDS).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Sara Zettervall is a Vascular Surgeon in Seattle, Washington. Dr. Zettervall is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Abdominal Aortic Aneurysm (AAA), Thoracic Aortic Aneurysm, Aortic Dissection, Aneurysm Repair, and Embolectomy. Dr. Zettervall is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English, Castilian, Korean, Spanish
      Accepting New Patients
      Offers Telehealth

      Matthew Sweet is a Vascular Surgeon in Seattle, Washington. Dr. Sweet is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Aortic Dissection, Abdominal Aortic Aneurysm (AAA), Aneurysm Repair, and Thrombectomy. Dr. Sweet is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      1959 Ne Pacific St, Hsc, H-466, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English

      Michael Dorschner is a Medical Genetics provider in Seattle, Washington. Dr. Dorschner is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Mosaicism, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Increased Head Circumference, and Cleft Lip and Palate.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Franciscan Medical Group

      4550 Fauntleroy Way Sw, 
      Seattle, WA 
       (3.8 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Andrea Cistulli is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Cistulli is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), Autosomal Recessive Hypotrichosis, and Alopecia Areata. Dr. Cistulli is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Oncology | Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Oncology | Medical Genetics
      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English, Polish, Spanish

      Peter Leahy is a Pediatrics specialist and an Oncologist in Seattle, Washington. Dr. Leahy is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Maple Syrup Urine Disease, Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Beta-Ketothiolase Deficiency.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Bamshad is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Bamshad is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Distal Arthrogryposis Type 6, Distal Arthrogryposis, Arthrogryposis Multiplex Congenita, and Congenital Contractures. Dr. Bamshad is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Overlake Medical Clinics LLC

      1750 112th Ave Ne, Suite B102, 
      Bellevue, WA 
       (6.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jessee Meek is a primary care provider, practicing in Family Medicine in Bellevue, Washington. Dr. Meek is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Shingles. Dr. Meek is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology | Palliative Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology | Palliative Medicine
      11417 124th Ave Ne, Suite 103, 
      Kirkland, WA 
       (9.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Kim is a Rheumatologist and a Palliative Medicine provider in Kirkland, Washington. Dr. Kim has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Fibromyalgia, Rheumatoid Vasculitis, and Ankylosing Spondylitis. Dr. Kim is currently accepting new patients.

      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Seattle, WA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Seattle, WA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Seattle, WA?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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