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    Last Updated: 10/30/2025

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    MediFind found 13 doctor with experience in Ehlers-Danlos Syndrome (EDS). Of these, 13 are Experienced.

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    LocationClose
    13 providers found
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | General Surgery

      Warren Clinic Inc

      6161 S Yale Ave, 
      Tulsa, OK 
      Languages Spoken:
      English
      Accepting New Patients

      Ann Hulme is a Physiatrist and a General Surgeon in Tulsa, Oklahoma. Dr. Hulme is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Congenital Mirror Movement Disorder, Tendinitis, Femoral Nerve Dysfunction, and Giant Axonal Neuropathy. Dr. Hulme is currently accepting new patients.

      Adam J. Rush
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Grand River Rehabilitation LLC

      412 Plymouth Avenue Northeast, 
      Grand Rapids, MI 
      Experience:
      27+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adam Rush is a Physiatrist in Grand Rapids, Michigan. Dr. Rush has been practicing medicine for over 27 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Cerebral Palsy, Hypermobile Joints, and Paraplegia. Dr. Rush is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Jeffrey Rabin is a Physiatrist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Rabin is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypermobile Joints, Cerebral Palsy, Alternating Hemiplegia of Childhood, and Kyphosis.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      1405 Shady Ave, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Mary Russell is a Physiatrist and a Pediatrics provider in Pittsburgh, Pennsylvania. Dr. Russell is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Cerebral Palsy, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Dysferlinopathy. Dr. Russell is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics | Anesthesiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics | Anesthesiology
      3333 Burnet Ave # Mlc4009, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Collins is a Physiatrist and a Pediatrics provider in Cincinnati, Ohio. Dr. Collins is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cerebral Palsy, Focal Dystonia, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Collins is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Hindi, Marathi
      Accepting New Patients

      Rita Ayyangar is a Physiatrist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ayyangar is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Focal Dystonia. Dr. Ayyangar is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics

      Vanderbilt University Medical Center

      1301 22nd Ave S, 
      Nashville, TN 
      Languages Spoken:
      English, Punjabi
      Accepting New Patients
      Offers Telehealth

      Gurjeet Birdee is a Physiatrist and a Pediatrics provider in Nashville, Tennessee. Dr. Birdee is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are End-Stage Renal Disease (ESRD), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), and Neuralgia. Dr. Birdee is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Addiction Medicine | Pain Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Addiction Medicine | Pain Medicine

      Multicare Medical Group PC

      701 Pinnacle Dr, Suite 105, 
      Papillion, NE 
      Languages Spoken:
      English, Swedish
      Accepting New Patients

      Kurt Gold is a Physiatrist and an Addiction Medicine provider in Papillion, Nebraska. Dr. Gold is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Chronic Pain, Fibromyalgia, Spinal Stenosis, and Sciatica. Dr. Gold is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics

      Mary Free Bed Rehabilitation Hospital

      550 Munson Ave, 
      Traverse City, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Kimberly Augenstein is a Physiatrist and a Pediatrics provider in Traverse City, Michigan. Dr. Augenstein is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Brown-Sequard Syndrome, and Moebius Syndrome. Dr. Augenstein is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | General Surgery
      8619 Chicot Rd, 
      Little Rock, AR 
      Languages Spoken:
      English
      Accepting New Patients

      Dina Dahdal is a Physiatrist and a General Surgeon in Little Rock, Arkansas. Dr. Dahdal is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Chronic Pain, Cervical Spondylosis, Invertebral Disc Disease, and Kyphosis. Dr. Dahdal is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Mary Mcmahon is a Physiatrist and a Pediatrics provider in Cincinnati, Ohio. Dr. Mcmahon is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Cerebral Palsy, and Syringobulbia. Dr. Mcmahon is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics

      Legacy Emanuel Hospital And Health Center

      2801 N Gantenbein Ave, 
      Portland, OR 
      Languages Spoken:
      English

      Mark Shih is a Physiatrist and a Pediatrics provider in Portland, Oregon. Dr. Shih is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Tethered Cord Syndrome, Moebius Syndrome, Cerebral Palsy, and Hemiplegia.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics

      Rady Children's Hospital - San Diego

      3020 Children's Way, Mc 5003, 
      San Diego, CA 
      Languages Spoken:
      English

      Mackenzie Brown is a Physiatrist and a Pediatrics provider in San Diego, California. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Cerebral Palsy, Concussion, Brachial Plexopathy, and Dysarthria.

      Showing 1-13 of 13

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near me?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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