The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Florida, US

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 170 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Florida, US. Of these, 143 are Experienced, 24 are Advanced and 1 are Distinguished.

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170 providers found
    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Mayo Clinic Hospital In Florida

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Dacre Knight is a primary care provider, practicing in Internal Medicine in Jacksonville, Florida. Dr. Knight is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Fibromyalgia, and Headache.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Haile Medical Group, PA

    4750 SW 91st Dr # A, 
    Gainesville, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kimberly Kaye is a primary care provider, practicing in Internal Medicine in Gainesville, Florida. Dr. Kaye is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Visceral Larva Migrans, Toxocariasis, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Kaye is currently accepting new patients.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology

    Bay Arthritis Institute

    2232 W. 24th Street, 
    Panama City, FL 
    Languages Spoken:
    English

    Amir Agha is a Rheumatologist in Panama City, Florida. Dr. Agha is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Psoriatic Arthritis, Psoriasis, and Bursitis.

    Learn about our expert tiers
    Bevin Weeks
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology

    Nemours Children's Health, Southeast Pensacola

    5153 9th Avenue, 
    Pensacola, FL 
    Experience:
    6+ years
    Languages Spoken:
    English

    Bevin Weeks is a Cardiologist in Pensacola, Florida. Dr. Weeks has been practicing medicine for over 6 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Patent Ductus Arteriosus, Heart Murmurs, Ventricular Septal Defects, and Pulmonary Valve Stenosis.

    Alejandro R. Arevalo
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Health, Pensacola

    8331 N. Davis Highway, 
    Pensacola, FL 
    Experience:
    29+ years
    Languages Spoken:
    English, Spanish

    As a society, our overall health continues to be poor. I try to make a difference by being involved in medical care individually and in the community. I enjoy working with children, especially those with congenital heart disease. This is an inherited condition and not acquired — compared to adult cardiology — so it’s not their fault. Kids’ energy is amazing — and so is all the good energy I get from their parents and my colleagues. I have a passion about using exercise as a diagnostic, prognostic and therapeutic tool. My interests include:Cardiac OncologySports Cardiology. Dr. Arevalo is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Bicuspid Aortic Valve.

    Joseph Kuruvilla
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    6+ years
    Languages Spoken:
    English

    Joseph Kuruvilla is a Cardiologist in Orlando, Florida. Dr. Kuruvilla has been practicing medicine for over 6 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Familial Neurocardiogenic Syncope, and Coronary Artery Fistula.

    Elena R. De Leon
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, French, Spanish

    Elena De Leon is a Cardiologist in Orlando, Florida. Dr. De Leon is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Pulmonary Atresia with Intact Ventricular Septum.

    Stephanie A. Kurtz
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Pediatric Cardiology Associates

    625 6th Avenue South, Suite 120, Suite 120, 
    St Petersburg, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Stephanie Kurtz is a Pediatric Cardiologist in St Petersburg, Florida. Dr. Kurtz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Pulmonary Atresia with Intact Ventricular Septum, Right Ventricle Hypoplasia, Patent Ductus Arteriosus, and Ventricular Septal Defects.

    Jorge Mccormack
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Pediatric Cardiology Associates

    625 6th Avenue South, Suite 120, Suite 120, 
    St Petersburg, FL 
    Experience:
    44+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Jorge Mccormack is a Pediatric Cardiologist in St Petersburg, Florida. Dr. Mccormack has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Congenital Heart Block, Heart Murmurs, Long QT Syndrome, and Wolff-Parkinson-White Syndrome.

    Gul H. Dadlani
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    19+ years
    Languages Spoken:
    English

    Gul Dadlani is a Cardiologist in Orlando, Florida. Dr. Dadlani has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Williams Syndrome, Patent Ductus Arteriosus, Heart Murmurs, and Infectious Myocarditis.

    Rochelle Rosian
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology

    Indian River Hospital Medical Office Building, Vero Beach

    1155 35th Lane, 
    Vero Beach, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rochelle Rosian is a Rheumatologist in Vero Beach, Florida. Dr. Rosian is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, Rheumatoid Arthritis (RA), and Sjogren Syndrome. Dr. Rosian is currently accepting new patients.

    Peace C. Madueme
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    22+ years
    Languages Spoken:
    English
    Offers Telehealth

    Peace Madueme is a Cardiologist in Orlando, Florida. Dr. Madueme has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Williams Syndrome, Ventricular Septal Defects, Vascular Ring, and Double Aortic Arch.

    Ben Glaspey
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Family Health Center, Stuart

    3801 South Kanner Highway, 
    Stuart, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Ben Glaspey is a primary care provider, practicing in Family Medicine in Stuart, Florida. Dr. Glaspey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypothyroidism, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

    Derek B. Hess
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology

    St Petersburg Outpatient Care Center - Hess Pediatric Ophthalmology

    601 5th Street South, 
    St Petersburg, FL 
    Languages Spoken:
    English

    Dr. Hess specializes in pediatric ophthalmology in the Johns Hopkins All Children’s Department of Pediatric Medicine. He served as chief of the medical staff from 2017-2019. He joined the Johns Hopkins All Children’s Hospital medical staff in 2004. Dr. Hess earned his medical degree from the University of South Florida Morsani College of Medicine in Tampa, Florida. He trained as an ophthalmology resident at Medical College of Virginia and completed a pediatric ophthalmology fellowship at Duke University Eye Center. Dr. Hess is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Strabismus, Esotropia, X-Linked Infantile Nystagmus, and Amblyopia.

    Fernando N. Galan
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Health, Jacksonville

    807 Children's Way, 
    Jacksonville, FL 
    Experience:
    4+ years
    Languages Spoken:
    English

    Fernando Galan is a Neurologist in Jacksonville, Florida. Dr. Galan has been practicing medicine for over 4 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Myoclonic Epilepsy, Seizures, Generalized Tonic-Clonic Seizure, and Absence Seizure.

    Katherine T. Braley
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Katherine Braley is a Cardiologist in Orlando, Florida. Dr. Braley has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ventricular Septal Defects, Cor Triatriatum, Congenital Heart Disease (CHD), and Patent Ductus Arteriosus.

    Brandon J. Dorion
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Nemours Children's Health, Pensacola

    8331 N. Davis Highway, 
    Pensacola, FL 
    Experience:
    11+ years
    Languages Spoken:
    English

    Brandon Dorion is a Rheumatologist in Pensacola, Florida. Dr. Dorion has been practicing medicine for over 11 years and is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), PFAPA, Mevalonate Kinase Deficiency, and Reactive Arthritis.

    Timothy Fignar
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    MDVIP - Englewood, FL

    900 Pine St Ste 127, 
    Englewood, FL 
    Languages Spoken:
    English

    Timothy Fignar is a primary care provider, practicing in Family Medicine in Englewood, Florida. Dr. Fignar is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Obesity, Obesity in Children, and Familial Hypertriglyceridemia.

    Mary B. Toth
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    7+ years
    Languages Spoken:
    English

    Mary Toth is a Rheumatologist in Orlando, Florida. Dr. Toth has been practicing medicine for over 7 years and is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Juvenile Idiopathic Arthritis (JIA), PFAPA, Lupus Nephritis, and Mevalonate Kinase Deficiency.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Memorial Division Of Pediatric Cardiology

    3377 S State Road 7, 
    Wellington,, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Debbie Friedman is a Pediatric Cardiologist in Wellington,, Florida. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Murmurs, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Coronary Artery Fistula.

    Showing 1-20 of 170

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Florida, US?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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