The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Miami, FL

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 175 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Miami, FL. Of these, 149 are Experienced, 24 are Advanced and 1 are Distinguished.

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175 providers found
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Nemours Children's Health, Pensacola

    8331 N. Davis Highway, 
    Pensacola, FL 
    Experience:
    11+ years
    Languages Spoken:
    English

    Brandon Dorion is a Rheumatologist practicing medicine in Pensacola, Florida. He has been practicing medicine for over 11 years. Dr. Dorion is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), PFAPA, Mevalonate Kinase Deficiency, and Reactive Arthritis. Dr. Dorion is board certified in American Board Of Pediatrics.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    7+ years
    Languages Spoken:
    English

    Mary Toth is a Rheumatologist practicing medicine in Orlando, Florida. She has been practicing medicine for over 7 years. Dr. Toth is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Juvenile Idiopathic Arthritis (JIA), PFAPA, Lupus Nephritis, and Mevalonate Kinase Deficiency. Dr. Toth is board certified in American Board Of Internal Medicine.

    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Mayo Clinic Hospital In Florida

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Dacre Knight is a primary care provider, practicing in Internal Medicine in Jacksonville, Florida. Dr. Knight is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Fibromyalgia, and Headache.

    Learn about our expert tiers
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    American Arthritis & Rheumatology Associates LLC

    1025 Military Trl Ste 200, 
    Jupiter, FL 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ekaterina Simakova is a Rheumatologist practicing medicine in Jupiter, Florida. She has been practicing medicine for over 17 years. Dr. Simakova is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Undifferentiated Connective Tissue Disease (UCTD), Chondrocalcinosis 2, Fibromyalgia, and Rheumatoid Arthritis (RA). Dr. Simakova is board certified in American Board Of Internal Medicine. Dr. Simakova is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Nemours Children's Health, Pensacola

    8331 N. Davis Highway, 
    Pensacola, FL 
    Experience:
    29+ years
    Languages Spoken:
    English, Spanish

    As a society, our overall health continues to be poor. I try to make a difference by being involved in medical care individually and in the community. I enjoy working with children, especially those with congenital heart disease. This is an inherited condition and not acquired — compared to adult cardiology — so it’s not their fault. Kids’ energy is amazing — and so is all the good energy I get from their parents and my colleagues. I have a passion about using exercise as a diagnostic, prognostic and therapeutic tool. My interests include:Cardiac OncologySports Cardiology. Dr. Arevalo is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Bicuspid Aortic Valve. Dr. Arevalo is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology | Allergy and Immunology | Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology | Allergy and Immunology | Internal Medicine
    Referral may be required

    Allergy & Rheumatology Associates

    5100 Seminole Blvd, 
    Saint Petersburg, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Ginige De Silva is an Internal Medicine specialist and a Rheumatologist practicing medicine in Saint Petersburg, Florida. Dr. De Silva is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Rheumatoid Arthritis (RA), Fibromyalgia, Polymyalgia Rheumatica, and Rhizomelic Pseudopolyarthritis. Dr. De Silva is board certified in AB Internal Medicine - Internal Medicine and AB Internal Medicine (Rheumatology).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Referral may be required

    Pediatrix Cardiology Associates

    3003 Dr MLK Jr Blvd W 3rd, Floor MAB, MS #3043, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Frances Arrillaga is board certified in pediatric cardiology and is with BayCare Medical Group in Tampa Bay, Florida, where she sees patients from birth to age 21. Before joining BayCare Medical Group, she practiced at Pediatric Cardiology Associates. Dr. Arrillaga earned a medical degree at the University of Puerto Rico School of Medicine in San Juan, Puerto Rico, and completed a pediatrics internship and residency and a pediatric cardiology fellowship at Jackson Memorial Medical Center/University of Miami in Miami, Florida. She focuses on outpatient cardiology and hospital consultations and specializes in congenital heart disease and acquired heart disease. Dr. Arrillaga works closely with her patients and their families to help achieve the best possible health results for every child. She’s a member of the American College of Cardiology. Dr. Arrillaga is affiliated with St. Joseph’s Children’s Hospital and many other hospitals throughout Tampa Bay. Dr. Arrillaga is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Pulmonary Valve Stenosis. Dr. Arrillaga is board certified in Pediatric Cardiology.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    6+ years
    Languages Spoken:
    English

    Joseph Kuruvilla is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 6 years. Dr. Kuruvilla is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Familial Neurocardiogenic Syncope, and Coronary Artery Fistula. Dr. Kuruvilla is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Pediatrics
    Referral may be required

    BMG Pediatric Cardiology & Congenital Heart At St. Joseph's Hospital MAB

    3003 W Dr Martin Luther King Jr Blvd, Fl 3, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Kelvin Lau is fellowship trained in invasive pediatric electrophysiology and is with BayCare Medical Group in Tampa, Florida, where he sees patients newborn to age 21 and adults with congenital heart disease. Before joining BayCare Medical Group, he practiced at Pediatric Cardiology Associates in Tampa and at the University of Louisville in Kentucky. At Louisville, Dr. Lau developed the transvenous cardiac device implantation program and served as the medical director of the university’s Cardiac Pacemaker and Defibrillator Program. He earned a Doctor of Medicine degree from the Yale University School of Medicine in New Haven, Connecticut, and completed a pediatrics residency, a pediatric cardiology fellowship and an advanced fellowship in electrophysiology at The Children’s Hospital of Philadelphia in Philadelphia, Pennsylvania. Dr. Lau treats patients who have arrhythmias, and he performs minimally invasive, advanced 3-D mapping ablation procedures and the implantation of pacemakers and defibrillators. He has participated in numerous arrhythmia-related research projects and has been honored with a teaching award for educating medical students and pediatric residents. Dr. Lau is certified in pediatrics and pediatric cardiology. He’s a Fellow of the Heart Rhythm Society and is a member of the American College of Cardiology. Dr. Lau is affiliated with St. Joseph’s Hospital and is the director of pediatric electrophysiology at St. Joseph’s Children’s Hospital. Dr. Lau is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Wolff-Parkinson-White Syndrome, Pulmonary Supravalvular Stenosis, Pulmonary Valve Stenosis, and Ventricular Septal Defects. Dr. Lau is board certified in AB Pediatrics - Pediatrics and AB Pediatrics (Pediatric Cardiology).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    American Arthritis & Rheumatology Associates LLC

    12977 Southern Blvd Ste 200, 
    Loxahatchee, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Christine Savage is a Rheumatologist practicing medicine in Loxahatchee, Florida. Dr. Savage is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 43 other conditions, according to our data. Her clinical expertise encompasses Undifferentiated Connective Tissue Disease (UCTD), MASS Phenotype, Mixed Connective Tissue Disease, and Rheumatoid Arthritis (RA). Dr. Savage is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, French, Spanish

    Elena De Leon is a Cardiologist practicing medicine in Orlando, Florida. Dr. De Leon is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Pulmonary Atresia with Intact Ventricular Septum. Dr. De Leon is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Pediatrics
    Referral may be required

    BMG Pediatric Cardiology And Congenital Heart At South Tampa

    508 S Habana Ave, Ste 280, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Stephanie Kurtz is dual board certified in pediatrics and pediatric cardiology and is with BayCare Medical Group in St. Petersburg, Florida, where she sees patients newborn to age 18. Before joining BayCare Medical Group, she practiced at Pediatric Cardiology Associates. Dr. Kurtz earned a Doctor of Medicine from Michigan State University College of Human Medicine in East Lansing, Michigan, completed a pediatric residency at the University of South Florida in Tampa, Florida, and a pediatric cardiology fellowship at Children’s Hospital of Michigan/Wayne State University in Detroit, Michigan. Her clinical interests include pediatric echocardiography and noninvasive electrophysiology. Dr. Kurtz has a particular interest in caring for children with single ventricles. She’s a member of the American College of Cardiology and the American Academy of Pediatrics. Dr. Kurtz is affiliated with St. Joseph’s Hospital, St. Joseph’s Children’s Hospital and St. Joseph’s Women’s Hospital. Dr. Kurtz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 36 other conditions, according to our data. Her clinical expertise encompasses Right Ventricle Hypoplasia, Pulmonary Atresia with Intact Ventricular Septum, Patent Ductus Arteriosus, and Ventricular Septal Defects. Dr. Kurtz is board certified in AB Pediatrics - Pediatrics and AB Pediatrics (Pediatric Cardiology).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Referral may be required

    Pediatrix Cardiology Associates

    625 Sixth Ave S, Ste 120, 
    St. Petersburg, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Jorge McCormack is board certified in pediatric cardiology and pediatric cardiac electrophysiology, and is with BayCare Medical Group in Tampa Bay, Florida, where he sees patients from birth throughout adulthood. Before joining BayCare Medical Group, he practiced at Pediatric Cardiology Associates. Dr. McCormack earned a Doctor of Medicine from the University of Puerto Rico in San Juan, Puerto Rico, performed a pediatrics internship and residency at Baylor College of Medicine in Houston, Texas, and completed a research fellowship and clinical fellowship in pediatric cardiology from the University of Miami School of Medicine in Miami, Florida. Dr. McCormack has a clinical interest in electrophysiology and manages arrhythmias, pacemakers and sudden death syndromes. Dr. McCormack is a Fellow of the American Academy of Pediatrics, the American College of Cardiology and the Heart Rhythm Society and is a member of the North American Society of Pacing and Electrophysiology and the Pediatric and Congenital Electrophysiology Society. He’s affiliated with St. Joseph’s Hospital, St. Joseph’s Children’s Hospital and many other hospitals throughout Tampa Bay. Dr. Mccormack is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Block, Heart Murmurs, Long QT Syndrome, and Wolff-Parkinson-White Syndrome. Dr. Mccormack is board certified in Pediatric Cardiology and Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    19+ years
    Languages Spoken:
    English

    Gul Dadlani is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 19 years. Dr. Dadlani is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 110 other conditions, according to our data. His clinical expertise encompasses Williams Syndrome, Patent Ductus Arteriosus, Heart Murmurs, and Infectious Myocarditis. Dr. Dadlani is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Referral may be required

    Indian River Hospital Medical Office Building, Vero Beach

    1155 35th Lane, 
    Vero Beach, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rochelle Rosian is a Rheumatologist practicing medicine in Vero Beach, Florida. Dr. Rosian is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Rhizomelic Pseudopolyarthritis, Polymyalgia Rheumatica, Rheumatoid Arthritis (RA), and Sjogren Syndrome. Dr. Rosian is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    22+ years
    Languages Spoken:
    English
    Offers Telehealth

    Peace Madueme is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 22 years. Dr. Madueme is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 116 other conditions, according to our data. His clinical expertise encompasses Williams Syndrome, Ventricular Septal Defects, Vascular Ring, and Double Aortic Arch. Dr. Madueme is board certified in American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology | Pediatrics
    Referral may be required

    BMG Pediatric Cardiology And Adult Congenital Heart At Lakeland

    808 E Main St, 
    Lakeland, FL 
    Languages Spoken:
    English, Arabic, Hebrew, Italian
    Offers Telehealth

    Dr. Fouad Butto is a board-certified pediatric cardiologist and is with BayCare Medical Group in Tampa Bay, Florida, where he sees patients from birth to age 21. Before joining BayCare Medical Group, he practiced at Pediatric Cardiology Associates. Dr. Butto earned a Doctor of Medicine from Sackler’s School of Medicine/Tel Aviv University in Tel Aviv, Israel, completed a pediatric residency at Central Emek Medical Center in Afula, Israel, and completed a pediatric cardiology fellowship at the University of Minnesota in Minneapolis, Minnesota. Dr, Butto has a special interest in fetal cardiology, echocardiography and adults with congenital heart disease. Dr. Butto is involved in all aspects of pediatric cardiology and performs diagnostic evaluations on patients who have congenital heart defects. He’s a member of the American Heart Association, the American College of Cardiology and the American Society of Echocardiography. Dr. Butto is affiliated with St. Joseph’s Hospital, St. Joseph’s Children’s Hospital, St. Joseph’s Women’s Hospital and many other hospitals throughout Tampa Bay. Dr. Butto is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Familial Dilated Cardiomyopathy, Heart Murmurs, Pulmonary Supravalvular Stenosis, and Pulmonary Valve Stenosis. Dr. Butto is board certified in AB Pediatrics (Pediatric Cardiology) and AB Pediatrics - Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology | Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology | Internal Medicine
    Referral may be required

    Brandon Rheumatology, LLC

    3180 Curlew Rd, Unit 205, 
    Oldsmar, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Priya Ramani is an Internal Medicine specialist and a Rheumatologist practicing medicine in Oldsmar, Florida. Dr. Ramani is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Rheumatoid Arthritis (RA), Psoriatic Arthritis, Fibromyalgia, and Ankylosing Spondylitis. Dr. Ramani is board certified in AB Internal Medicine (Rheumatology).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Family Health Center, Stuart

    3801 South Kanner Highway, 
    Stuart, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Ben Glaspey is a primary care provider, practicing in Family Medicine in Stuart, Florida. Dr. Glaspey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Hypothyroidism, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Glaspey is board certified in American Board Of Family Medicine, 1996.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Referral may be required

    Hess Pediatric Ophthalmology Specialists, PA

    710 94th Ave N, Ste 309, 
    Saint Petersburg, FL 
    Languages Spoken:
    English

    Derek Hess is an Ophthalmologist practicing medicine in Saint Petersburg, Florida. Dr. Hess is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, X-Linked Infantile Nystagmus, and Amblyopia. Dr. Hess is board certified in AB Ophthalmology - Ophthalmology.

    Showing 1-20 of 175

    Last Updated: 06/30/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Miami, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Miami, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Miami, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Miami, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Miami, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Miami, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Miami, FL?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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