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    Last Updated: 01/09/2026

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    MediFind found 189 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Massachusetts, US. Of these, 175 are Experienced and 14 are Advanced.

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    189 providers found
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Laura Bevilacqua is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Bevilacqua is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Block, Long QT Syndrome, Long QT Syndrome 1, and Timothy Syndrome.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Massachusetts General Hospital

      55 Fruit St, 
      Boston,, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Mark Lindsay is a Pediatric Cardiologist in Boston,, Massachusetts. Dr. Lindsay is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Marfan Syndrome, Spontaneous Coronary Artery Dissection (SCAD), Myhre Syndrome, and Thoracic Aortic Aneurysm.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Mark Alexander is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Alexander is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Block, Wolff-Parkinson-White Syndrome, Arrhythmias, Congenital Heart Block, and Cardiac Ablation.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Daniel Castellanos is a Pediatrics provider in Boston, Massachusetts. Dr. Castellanos is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Aberrant Subclavian Artery, Congenital Heart Disease (CHD), Tetralogy of Fallot, and Double Aortic Arch.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Jami Levine is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Marfan Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Congenital Heart Disease (CHD).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      David Brown is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Bicuspid Aortic Valve, Pulmonary Atresia, Congenital Mitral Stenosis, and Pulmonary Valves Agenesis.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Meena Bolourchi is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Bolourchi is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Block, Heart Murmurs, Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B), and Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Kathy Jenkins is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Jenkins is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Pulmonary Vein Stenosis, Congenital Heart Disease (CHD), Infantile Pneumothorax, Coarctation of the Aorta, and Angioplasty.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Elizabeth Dewitt is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Dewitt is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Block, Wolff-Parkinson-White Syndrome, Congenital Heart Block, Arrhythmias, and Cardiac Ablation.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston,, MA 
      Languages Spoken:
      English

      Robert Geggel is a Pediatric Cardiologist in Boston,, Massachusetts. Dr. Geggel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Murmurs, Total Anomalous Pulmonary Venous Return, Heart Block, and Double Aortic Arch.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Safwat Aly is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Aly is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ebstein's Anomaly, Coarctation of the Aorta, Anomalous Left Coronary Artery from the Pulmonary Artery, and Patent Ductus Arteriosus.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Wayne Tworetzky is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Tworetzky is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Ebstein's Anomaly, Pulmonary Atresia, and Congenital Heart Disease (CHD).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      David Schidlow is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Schidlow is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heterotaxy Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Total Anomalous Pulmonary Venous Return, Transposition of the Great Arteries, and Septoplasty.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Sunil Ghelani is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Ghelani is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Tetralogy of Fallot, Congenital Heart Disease (CHD), Pulmonary Atresia, Pulmonary Valve Stenosis, and Heart Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Naomi Gauthier is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Gauthier is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Tetralogy of Fallot, Congenital Heart Disease (CHD), Coronary Artery Fistula, and Coronary Artery Aneurysm.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Danielle Sganga is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Sganga is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Double Discordia, Subpulmonary Stenosis, Pulmonary Valve Stenosis, Pacemaker Implantation, and Heart Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Rebecca Beroukhim is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Beroukhim is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ebstein's Anomaly, Pulmonary Atresia, Hypoplastic Left Heart Syndrome (HLHS), Myringotomy, and Heart Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Edward Oleary is a Pediatrics provider in Boston, Massachusetts. Dr. Oleary is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Block, Wolff-Parkinson-White Syndrome, Long QT Syndrome 5, Jervell Lange-Nielsen Syndrome (JLNS), and Cardiac Ablation.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Rahul Rathod is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Rathod is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Pulmonary Supravalvular Stenosis, Heart Transplant, and Gastric Bypass.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Susan Saleeb is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Saleeb is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Block, Heart Murmurs, Ventricular Septal Defects, Pulmonary Atresia, and Myringotomy.

      Showing 1-20 of 189

      Last Updated: 01/09/2026

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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