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    Last Updated: 10/30/2025

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    MediFind found 138 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Boston, MA. Of these, 127 are Experienced and 11 are Advanced.

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    138 providers found
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | General Surgery
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | General Surgery

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Matthew Eagleton is a Vascular Surgeon and a General Surgeon in Boston, Massachusetts. Dr. Eagleton is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Aortic Dissection, Carotid Artery Surgery, and Aneurysm Repair. Dr. Eagleton is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Santoro is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Santoro has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypotonia, Mosaicism, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Gastrostomy. Dr. Santoro is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics

      Child Health Foundation Of Boston Inc

      1 Boston Medical Ctr Pl, 
      Boston, MA 
       (1.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jodi Hoffman is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Hoffman is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Bosma Arhinia Microphthalmia Syndrome, Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Ehlers-Danlos Syndrome (EDS).

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics

      Atrius Health Inc

      133 Brookline Ave, 
      Boston, MA 
       (2.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Joel Krier is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Krier is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Deep Brain Stimulation.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Rheumatology | Rheumatology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Rheumatology | Rheumatology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Olha Halyabar is a Pediatric Rheumatologist and a Rheumatologist in Boston, Massachusetts. Dr. Halyabar is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Juvenile Idiopathic Arthritis (JIA), Kawasaki Disease, Mevalonate Kinase Deficiency, and Ehlers-Danlos Syndrome (EDS).

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Helen Lyon is a Medical Genetics provider in Boston, Massachusetts. Dr. Lyon is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), DOOR Syndrome, and Beare-Stevenson Cutis Gyrata Syndrome. Dr. Lyon is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Sports Medicine | Pediatric Rheumatology | Sports Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Sports Medicine | Pediatric Rheumatology | Sports Medicine

      Children's Sports Medicine Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Lo is a Pediatric Sports Medicine specialist and a Pediatric Rheumatologist in Boston, Massachusetts. Dr. Lo is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Juvenile Idiopathic Arthritis (JIA), Concussion, Hypermobile Joints, and Ehlers-Danlos Syndrome (EDS). Dr. Lo is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics
      300 Longwood Ave, Fegan 10, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      840 Memorial Dr, Suite 101, 
      Cambridge, MA 
       (3.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Jeff Milunsky is a Medical Genetics provider in Cambridge, Massachusetts. Dr. Milunsky is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Branchio-Oculo-Facial Syndrome (BOFS), Branchiootorenal Syndrome, Micrognathia, and Coffin-Siris Syndrome. Dr. Milunsky is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Davis Square Family Practice

      255 Elm St, Suite 301, 
      Somerville, MA 
       (4.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Deborah Bershel is a primary care provider, practicing in Family Medicine in Somerville, Massachusetts. Dr. Bershel is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), COVID-19, Multisystem Inflammatory Syndrome in Children (MIS-C), and Ehlers-Danlos Syndrome (EDS). Dr. Bershel is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Mass General Brigham Community Physicians Inc

      53 State St, Suite 106, 
      Boston, MA 
       (0.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Wendy Barr is a primary care provider, practicing in Family Medicine in Boston, Massachusetts. Dr. Barr is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Autonomic Neuropathy, Hyperventilation, and Intrauterine Device Insertion. Dr. Barr is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Steven Vlad is a Rheumatologist in Boston, Massachusetts. Dr. Vlad is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Necrotizing Vasculitis, Psoriatic Arthritis, and Fibromyalgia. Dr. Vlad is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Obstetrics and Gynecology | Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Obstetrics and Gynecology | Medical Genetics

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Dallas Reed is an Obstetrics and Gynecologist and a Medical Genetics provider in Boston, Massachusetts. Dr. Reed is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Glycogen Storage Disease Type 7, DICER1 Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Reed is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Kalish is a Rheumatologist in Boston, Massachusetts. Dr. Kalish is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Fibromyalgia, Rheumatoid Arthritis (RA), Scleroma, and Scleroderma. Dr. Kalish is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      William Harvey is a Rheumatologist in Boston, Massachusetts. Dr. Harvey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Granulomatosis with Polyangiitis, Necrotizing Vasculitis, and Rhizomelic Pseudopolyarthritis. Dr. Harvey is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sreelakshmi Panginikkod is a Rheumatologist in Boston, Massachusetts. Dr. Panginikkod is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Felty Syndrome, Giant Cell Arteritis (GCA), Temporal Arteritis, and Necrotizing Vasculitis. Dr. Panginikkod is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics

      Pratt Pediatric Associates Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mark Zilberman is a Pediatric Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Zilberman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Murmurs, Endocardial Cushion Defect, Atrioventricular Septal Defect, and Partial Atrioventricular Canal. Dr. Zilberman is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dineli Ahearn is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Ahearn is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Cellulitis, and Obesity in Children. Dr. Ahearn is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      260 Tremont St, 
      Boston, MA 
       (0.6 miles away)
      Languages Spoken:
      English

      James Kwan is an Ophthalmologist in Boston, Massachusetts. Dr. Kwan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Stevens-Johnson Syndrome, Erythema Multiforme, Scalded Skin Syndrome, and Papilledema.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Cardiology | Pediatrics

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Lindsay is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Lindsay is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Marfan Syndrome, Spontaneous Coronary Artery Dissection (SCAD), Myhre Syndrome, and Thoracic Aortic Aneurysm. Dr. Lindsay is currently accepting new patients.

      Showing 1-20 of 138

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Boston, MA?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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