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    Last Updated: 10/30/2025

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    MediFind found 80 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Bethesda, MD. Of these, 75 are Experienced, 4 are Advanced and 1 are Distinguished.

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    80 providers found
      Adey A. Berhanu
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Arthritis And Rheumatism Associates PC

      5454 Wisconsin Ave, Suite 600, 
      Chevy Chase, MD 
       (1.6 miles away)
      Languages Spoken:
      English, Amharic, Spanish
      Offers Telehealth

      Adey Berhanu is a Rheumatologist in Chevy Chase, Maryland. Dr. Berhanu is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Tenosynovitis, and Gout.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Pediatric Endocrinology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Pediatric Endocrinology
      Nih Clinical Ctr, Building 10, Crc, Room 1-2740, 
      Bethesda, MD 
       (1.3 miles away)
      Languages Spoken:
      English

      Deborah Merke is a Pediatrics specialist and a Pediatric Endocrinologist in Bethesda, Maryland. Dr. Merke is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Congenital Adrenal Hyperplasia (CAH), Intersex, Ovarian Overproduction of Androgens, Familial Glucocorticoid Deficiency, and Hormone Replacement Therapy (HRT).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Alan K. Matsumoto
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Arthritis And Rheumatism Associates PC

      2730 University Blvd W, Suite 310, 
      Wheaton, MD 
       (4.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Alan Matsumoto is a Rheumatologist in Wheaton, Maryland. Dr. Matsumoto is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Osteoporosis, Postmenopausal Osteoporosis, and Juvenile Primary Osteoporosis. Dr. Matsumoto is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      110 Irving St Nw # 2a38, 
      Washington, DC 
       (4.9 miles away)
      Languages Spoken:
      English

      Federico Asch is a primary care provider, practicing in Internal Medicine in Washington, Washington, D.c.. Dr. Asch is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Bicuspid Aortic Valve, Heart Failure, Marfan Syndrome, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Distinguished in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Distinguished in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (5.9 miles away)
      Languages Spoken:
      English

      Natasha Shur is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Shur is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Pyruvate Carboxylase Deficiency, Phenylketonuria (PKU), Ehlers-Danlos Syndrome (EDS), and Lowe Syndrome.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
      Bethesda, MD 
       (0.4 miles away)
      Languages Spoken:
      English

      William Gahl is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Gahl is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      10 Center Drive, Bldg. 10, Room 4-5722, 
      Bethesda, MD 
       (0.4 miles away)
      Languages Spoken:
      English

      Asif Hitawala is a primary care provider, practicing in Internal Medicine in Bethesda, Maryland. Dr. Hitawala is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Acute Febrile Neutrophilic Dermatosis, Gallbladder Adenocarcinoma, Non-Alcoholic Fatty Liver Disease, Gastrostomy, and Hormone Replacement Therapy (HRT).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      5550 Friendship Blvd Ste 580, 
      Chevy Chase, MD 
       (0.8 miles away)
      Languages Spoken:
      English

      Marshall Summar is a Medical Genetics specialist and a Pediatrics provider in Chevy Chase, Maryland. Dr. Summar is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Propionic Acidemia, and Ornithine Translocase Deficiency.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine | Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine | Internal Medicine

      One Medstar Primary Care LLC

      8401 Connecticut Ave, Ph Suite, 
      Chevy Chase, MD 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Steven Schwartz is a primary care provider, practicing in Family Medicine and Internal Medicine in Chevy Chase, Maryland. Dr. Schwartz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are HIV/AIDS, Attention Deficit Hyperactivity Disorder (ADHD), COVID-19, and Gout. Dr. Schwartz is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      One Medstar Primary Care LLC

      8401 Connecticut Ave, Ph Suite, 
      Chevy Chase, MD 
       (1.2 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Joanna Delaney is a primary care provider, practicing in Family Medicine in Chevy Chase, Maryland. Dr. Delaney is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), High Cholesterol, Hypertension, and Familial Hypertension. Dr. Delaney is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      4801 Wisconsin Ave Nw, 
      Washington, DC 
       (2.3 miles away)
      Languages Spoken:
      English

      Ali Safayan is a primary care provider, practicing in Internal Medicine in Washington, Washington, D.c.. Dr. Safayan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Homocystinuria, Methylmalonic Acidemia with Homocystinuria, Inborn Amino Acid Metabolism Disorder, and Multiple Carboxylase Deficiency.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Privia Care Center LLC

      4910 Massachusetts Ave Nw, Suite 114 Grady Dc Office, 
      Washington, DC 
       (2.7 miles away)
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Kathryn Kelly is a primary care provider, practicing in Internal Medicine in Washington, Washington, D.c.. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Gastrostomy, and Endoscopy. Dr. Kelly is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Suburban/nrh Medical Rehabilitation Inc

      6410 Rockledge Dr, Suite 600, 
      Bethesda, MD 
       (3.4 miles away)
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Eugene Miknowski is a Rheumatologist in Bethesda, Maryland. Dr. Miknowski is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Fibromyalgia, Vitamin B12 Deficiency, Rhizomelic Pseudopolyarthritis, and Polymyalgia Rheumatica. Dr. Miknowski is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Suburban/nrh Medical Rehabilitation Inc

      6410 Rockledge Dr, Suite 600, 
      Bethesda, MD 
       (3.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kelly Tanenholz is a primary care provider, practicing in Internal Medicine in Bethesda, Maryland. Dr. Tanenholz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Infant Hyperglycemia, High Cholesterol, Sitosterolemia, and Folate Deficiency. Dr. Tanenholz is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics

      Suburban/nrh Medical Rehabilitation Inc

      6410 Rockledge Dr, Suite 600, 
      Bethesda, MD 
       (3.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Michelle Nino is a Pediatrics specialist and a Medical Genetics provider in Bethesda, Maryland. Dr. Nino is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Vitamin D Deficiency, Obesity in Children, and Hypertension.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology

      Capital Eye Care LLC

      6720 A Rockledge Dr, Suite 200, 
      Bethesda, MD 
       (3.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Omar Chaudhary is an Ophthalmologist in Bethesda, Maryland. Dr. Chaudhary is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Meibomianitis, Eyelid Bump, Blepharitis, and Vernal Keratoconjunctivitis. Dr. Chaudhary is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Johns Hopkins Community Physicians, Inc

      6000 Executive Blvd, Suite 625, 
      North Bethesda, MD 
       (4.6 miles away)
      Languages Spoken:
      English, Malayalam, Tamil
      Accepting New Patients
      Offers Telehealth

      Annie George is a primary care provider, practicing in Internal Medicine in North Bethesda, Maryland. Dr. George is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vernal Keratoconjunctivitis, Von Willebrand Disease (VWD), Heyde Syndrome, Hypertension, and Hormone Replacement Therapy (HRT). Dr. George is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Obstetrics and Gynecology | Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Obstetrics and Gynecology | Medical Genetics
      106 Irving St Nw Ste 3800, Dept. Of Ob/gyn, 
      Washington, DC 
       (4.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Melissa Fries is an Obstetrics and Gynecologist and a Medical Genetics provider in Washington, Washington, D.c.. Dr. Fries is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Methimazole Antenatal Exposure, Premature Infant, Tubal Disease, and Gestational Diabetes. Dr. Fries is currently accepting new patients.

      Sonia D. Silinsky-Krupnikova
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Arthritis And Rheumatism Associates PC

      2730 University Blvd West, Ste 310, 
      Wheaton, MD 
       (5.1 miles away)
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Dr. Silinsky Krupnikova is a native of the DC metro area. She graduated magna cum laude from the University of Maryland College Park, where she was a Phi Beta Kappa scholar and received her BS degree in Neurobiology and Physiology with a minor in Jewish Studies. She received her medical degree with a focus on medical humanities from George Washington University, where she stayed to complete her residency in primary care internal medicine and her fellowship in rheumatology.Dr. Silinsky Krupnikova has been involved in several research projects and publications, ranging in subject matter from rheumatology training and education to viral adverse events in patients taking antirheumatic therapies. Her work has been published in Seminars in Arthritis and Rheumatism, The International Journal of Rheumatic Diseases, and The International Journal of Rheumatology. She has been actively involved in the DC Rheumatism Society since her medical school training and serves on its executive board. Dr. Silinsky Krupnikova has been involved in several research projects and publications, ranging in subject matter from rheumatology training and education to viral adverse events in patients taking antirheumatic therapies. Her work has been published in Seminars in Arthritis and Rheumatism, The International Journal of Rheumatic Diseases, and The International Journal of Rheumatology. Dr. Silinsky-Krupnikova is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Tenosynovitis, and Fibromyalgia.

      Shari B. Diamond
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Arthritis And Rheumatism Associates PC

      2021 K Street NW, Suite 300, 
      Washington, DC 
       (6.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Shari Diamond is a Rheumatologist in Washington, Washington, D.c.. Dr. Diamond is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Reactive Arthritis, and Psoriasis.

      Showing 1-20 of 80

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Bethesda, MD?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Bethesda, MD?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Bethesda, MD?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Bethesda, MD?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Bethesda, MD?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Bethesda, MD?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Bethesda, MD?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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