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    Last Updated: 10/30/2025

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    MediFind found 16 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Durham, NC. Of these, 14 are Experienced and 2 are Advanced.

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    16 providers found
      Dmitriy Niyazov
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
       (2.1 miles away)
      Experience:
      24+ years
      Languages Spoken:
      English
      Offers Telehealth

      I see patients with mitochondrial and lysosomal storage diseases, developmental delay, intellectual disability, chromosomal disorders, congenital defects, short stature, failure to thrive, and adult genetic disorders. I love the application of rapidly growing genetic knowledge to treat patients with a variety of medical problems that involve a complex interaction of genetic and environmental factors, particularly since the Human Genome Project. I find it fascinating to use the massive power of sequencing technology and artificial intelligence/machine learning to predict phenotypes from genotypes with increasing clinical relevance to human health. In my spare time, I like to hike and play sports with my wife and teenage sons, play piano, and learn famous Russian poetry of the 19th century. I see patients in person and through telehealth. Dr. Niyazov is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Early Infantile Epileptic Encephalopathy, Macroglossia, Ehlers-Danlos Syndrome (EDS), and Microcephaly.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Avance Care PA

      2400 Broad St, Suite 1, 
      Durham, NC 
       (2.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mohan Chilukuri is a primary care provider, practicing in Family Medicine in Durham, North Carolina. Dr. Chilukuri is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Obesity, Obesity in Children, High Cholesterol, and Familial Hypertension. Dr. Chilukuri is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Legacy Healthcare Services Inc

      2701 Pickett Rd, 
      Durham, NC 
       (3.1 miles away)
      Languages Spoken:
      English, Hungarian
      Accepting New Patients
      Offers Telehealth

      Feyisayo Adeyina is a primary care provider, practicing in Family Medicine in Durham, North Carolina. Dr. Adeyina is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Generalized Anxiety Disorder (GAD), High Cholesterol, Familial Hypopituitarism, and Obesity in Children. Dr. Adeyina is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine

      Avance Care PA

      1821 Martin Luther King Pkwy, 
      Durham, NC 
       (4.1 miles away)
      Languages Spoken:
      English, Thai
      Accepting New Patients
      Offers Telehealth

      David Thies is a primary care provider, practicing in Pediatrics and Internal Medicine in Durham, North Carolina. Dr. Thies is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Seasonal Affective Disorder (SAD), High Cholesterol, Generalized Anxiety Disorder (GAD), and Vitamin B12 Deficiency Anemia. Dr. Thies is currently accepting new patients.

      Jaseela Illath
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Duke University Affiliated Physicians Inc

      201 Sage Rd, 
      Chapel Hill, NC 
       (7.1 miles away)
      Experience:
      15+ years
      Languages Spoken:
      English, German
      Offers Telehealth

      I am trained in internal medicine with a specialty in geriatrics. This allows me to provide care from young to older adults. My passion has always been to provide meaningful patient care informed by evidence-based medicine and more importantly patient’s health goals. I, along with my care team, emphasize safety, overall healthy lifestyle, and prevention. We are committed to providing you with an exceptional experience. I also focus on cardiovascular management and memory assessment. Additionally, my multicultural background has allowed me to provide patient care in various parts of the world and help further broaden my perspective. Outside of work, I love spending time with my husband and two daughters, traveling, baking, and enjoying the beautiful outdoors of North Carolina. Dr. Illath is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Juvenile Primary Osteoporosis, Heart Failure with Preserved Ejection Fraction (HFpEF), Glucocorticoid-Remediable Aldosteronism, and Hypertension.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics

      Duke Health Integrated Practice Inc

      4709 Creekstone Dr, Suite 300, 
      Durham, NC 
       (8.4 miles away)
      Languages Spoken:
      English

      Ermal Aliu is a Pediatrics specialist and a Medical Genetics provider in Durham, North Carolina. Dr. Aliu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Phenylketonuria (PKU), Learman Syndrome, Microcephaly, and Symphalangism Distal.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine

      Unc Physicians Network LLC

      940 Martin Luther King Jr Blvd, 
      Chapel Hill, NC 
       (9.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kimberly Kylstra is a primary care provider, practicing in Pediatrics and Internal Medicine in Chapel Hill, North Carolina. Dr. Kylstra is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Kylstra is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Unc Physicians Network LLC

      6715 Mccrimmon Pkwy, Suite 300, 
      Cary, NC 
       (11.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Deborah Rasmus is a primary care provider, practicing in Family Medicine in Cary, North Carolina. Dr. Rasmus is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS) and Ehlers-Danlos Syndrome (EDS). Dr. Rasmus is currently accepting new patients.

      Nicole Nisly
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Duke Primary Care Wellesley

      351 Wellesley Trade Ln, 
      Cary, NC 
       (14.3 miles away)
      Languages Spoken:
      English, Portuguese
      Offers Telehealth

      I am a primary care physician who provides care for adult patients of all ages and genders. I am very passionate about providing inclusive care for all. While I am a primary care physician, I also offer comprehensive care for LGBTQ+ identified people, including gender-affirming care for adult patients and PrEP. I grew up in Recife, Brazil. In my free time, I greatly enjoy nature, hiking, bird watching, and spending time with my family. Dr. Nisly is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Peripheral Neuropathy, Brittle Cornea Syndrome, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Intrauterine Device Insertion.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery | Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery | Vascular Surgery

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ehsan Benrashid is a General Surgeon and a Vascular Surgeon in Chapel Hill, North Carolina. Dr. Benrashid is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Deep Vein Thrombosis, Carotid Artery Disease, Idiopathic Edema, Thrombectomy, and Angioplasty. Dr. Benrashid is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English

      Amy Weil is a primary care provider, practicing in Internal Medicine in Chapel Hill, North Carolina. Dr. Weil is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Brittle Cornea Syndrome, Maturity Onset Diabetes of the Young, and Familial Hypertension.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Geriatrics | Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Geriatrics | Internal Medicine

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lindsay Wilson is a primary care provider, practicing in Geriatrics and Internal Medicine in Chapel Hill, North Carolina. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Atrial Fibrillation, Chronic Fatigue Syndrome, Severe Acute Respiratory Syndrome (SARS), and Hypothyroidism. Dr. Wilson is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Generations Family Practice PA

      610 Jones Ferry Rd, Suite 102, 
      Carrboro, NC 
       (12.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Yulia Neyman is a primary care provider, practicing in Family Medicine in Carrboro, North Carolina. Dr. Neyman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Type 2 Diabetes (T2D). Dr. Neyman is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Avance Care PA

      12341 Strickland Rd, Ste102, 
      Raleigh, NC 
       (12.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ayesha Nasir is a primary care provider, practicing in Family Medicine in Raleigh, North Carolina. Dr. Nasir is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Generalized Anxiety Disorder (GAD), High Cholesterol, Seasonal Affective Disorder (SAD), Obesity, and Intrauterine Device Insertion. Dr. Nasir is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Generations Family Practice PA

      1021 Darrington Dr, Suite 101, 
      Cary, NC 
       (14.4 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mary Notaro is a primary care provider, practicing in Family Medicine in Cary, North Carolina. Dr. Notaro has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Type 2 Diabetes (T2D), Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Notaro is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Cary Rheumatology And Arthritis Associates PA

      1720 Nw Maynard Rd, 
      Cary, NC 
       (15.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sanjay Chaudhary is a Rheumatologist in Cary, North Carolina. Dr. Chaudhary is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Generalized Pustular Psoriasis (GPP), Rheumatoid Vasculitis, Ankylosing Spondylitis, Axial Spondyloarthritis (AxSpA), and Cataract Removal. Dr. Chaudhary is currently accepting new patients.

      Showing 1-16 of 16

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Durham, NC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Durham, NC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Durham, NC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Durham, NC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Durham, NC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Durham, NC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Durham, NC?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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