The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Rochester, NY

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 10 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Rochester, NY. Of these, 9 are Experienced and 1 are Advanced.

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10 providers found
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Dr. Chin-to T. Fong
    Medical Genetics | Pediatrics
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Dr. Chin-to T. Fong
    Medical Genetics | Pediatrics
    601 Elmwood Ave Box, 
    Rochester, NY 
     (2.4 miles away)
    585-275-3461
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Chin-to Fong is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Rochester, New York. Dr. Fong is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Phenylketonuria (PKU), Ehlers-Danlos Syndrome (EDS), Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Annamaria Kontor
    Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Annamaria Kontor
    Pediatrics

    Compeer Rochester Inc.

    259 Monroe Ave, 
    Rochester, NY 
     (0.7 miles away)
    585-545-7200
    Languages Spoken:
    English
    See accepted insurances

    Annamaria Kontor is a Pediatrics provider practicing medicine in Rochester, New York. Dr. Kontor is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Processing Deficient Progeroid Laminopathies (PDPL), Seasonal Affective Disorder (SAD), Zoon Vulvitis, and Ehlers-Danlos Syndrome (EDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Colleen Fogarty
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Colleen Fogarty
    Family Medicine

    Westside Health Services

    480 Genesee St, 
    Rochester, NY 
     (1.8 miles away)
    585-254-6480
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Colleen Fogarty is a primary care provider, practicing in Family Medicine in Rochester, New York. Dr. Fogarty is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Thrush, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), and Brittle Cornea Syndrome.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Richard Looney
    Rheumatology
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Richard Looney
    Rheumatology

    Ur Medicine/ Allergy & Immunology Clinic

    125 Lattimore Rd Ste G110, 
    Rochester, NY 
     (2.0 miles away)
    585-486-0930
    Languages Spoken:
    English
    See accepted insurances

    Richard Looney is a Rheumatologist practicing medicine in Rochester, New York. Dr. Looney is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Systemic Lupus Erythematosus (SLE), Common Variable Immune Deficiency, Sarcoidosis, and Neurosarcoidosis.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Francis Coyne
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Francis Coyne
    Internal Medicine

    Highland Hospital

    905 Culver Rd, 
    Rochester, NY 
     (2.2 miles away)
    585-276-7900
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Francis Coyne is an Internal Medicine provider practicing medicine in Rochester, New York. Dr. Coyne is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Sickle Cell Disease, Hemoglobinopathy, Hemoglobin SC Disease, and Hemoglobin C Disease.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Christopher A. Friedrich
    Medical Genetics
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Christopher A. Friedrich
    Medical Genetics
    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    585-275-5857
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Christopher Friedrich is a Medical Genetics provider practicing medicine in Rochester, New York. Dr. Friedrich is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Brittle Cornea Syndrome, Ehlers-Danlos Syndrome (EDS), and Vascular Ehlers-Danlos Syndrome (VEDS). Dr. Friedrich is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Karina Newhall
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Karina Newhall
    General Surgery

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    585-275-6772
    Languages Spoken:
    English
    See accepted insurances

    Karina Newhall is a General Surgeon practicing medicine in Rochester, New York. Dr. Newhall is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Peripheral Artery Disease, Carotid Artery Disease, Arterial Insufficiency, Leg or Foot Amputation, and Carotid Artery Surgery.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Tiffany Pulcino
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Tiffany Pulcino
    Internal Medicine

    Office

    30 Hagen Dr Ste 320, 
    Rochester, NY 
     (5.2 miles away)
    585-922-9277
    Languages Spoken:
    English
    See accepted insurances

    Tiffany Pulcino is an Internal Medicine provider practicing medicine in Rochester, New York. Dr. Pulcino is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Wolf-Hirschhorn Syndrome, Chronic Graft Versus Host Disease (cGvHD), Secondary Immunodeficiency (SID), and Discoid Lupus Erythematosus (DLE).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Richard Kennedy
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Richard Kennedy
    Family Medicine

    Medical Associates Of Penfield

    1835 Fairport Nine Mile Point Rd Ste 100, 
    Penfield, NY 
     (8.3 miles away)
    585-758-0777
    Languages Spoken:
    English
    See accepted insurances

    Richard Kennedy is a primary care provider, practicing in Family Medicine in Penfield, New York. Dr. Kennedy is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Chronic Pain, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Marionito Montalbo
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Marionito Montalbo
    Internal Medicine

    Primary Care-Spencerport

    42 Nichols St Ste 10, 
    Spencerport, NY 
     (10.8 miles away)
    585-276-7575
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Marionito Montalbo is a primary care provider, practicing in Internal Medicine in Spencerport, New York. Dr. Montalbo is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Shingles, and Glucocorticoid-Remediable Aldosteronism.

    Showing 1-10 of 10

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Rochester, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Rochester, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Rochester, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Rochester, NY?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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