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    Last Updated: 10/30/2025

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    MediFind found 98 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Oregon, US. Of these, 94 are Experienced, 2 are Advanced and 1 are Elite.

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    LocationClose
    98 providers found
      Elite in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Elite in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      University Professional Services

      3303 S Bond Ave, 
      Portland, OR 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Sherene Shalhub is a Vascular Surgeon in Portland, Oregon. Dr. Shalhub is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Thoracic Aortic Aneurysm, Aortic Dissection, Aneurysm Repair, and Angioplasty. Dr. Shalhub is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Thoracic Surgery | General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Thoracic Surgery | General Surgery

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Howard Song is a Thoracic Surgeon and a General Surgeon in Portland, Oregon. Dr. Song is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Mitral Valve Regurgitation, Aortic Valve Stenosis, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement. Dr. Song is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Northwest Medical Foundation Of Tillamook

      1000 3rd St, 
      Tillamook, OR 
      Languages Spoken:
      English
      Accepting New Patients

      James Borden is a primary care provider, practicing in Internal Medicine in Tillamook, Oregon. Dr. Borden is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Type 2 Diabetes (T2D), Chronic Pain, Maturity Onset Diabetes of the Young, and Post-Traumatic Stress Disorder (PTSD). Dr. Borden is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Cardiology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Cardiology | Pediatrics
      9427 Southwest Barnes Road, Suite 598, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Siskiyou Pediatric Clinic (Allscripts)

      700 SW Ramsey Ave, Suite 204, 
      Grants Pass, OR 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Katherine Johnston is a Pediatrics provider in Grants Pass, Oregon. Dr. Johnston is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Van Der Woude Syndrome, Obesity in Children, Stork Bite, and Vascular Birthmark. Dr. Johnston is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Pediatric Cardiology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Pediatric Cardiology

      University Professional Services

      875 Oak St Se, 
      Salem, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Kathryn Holmes is a Pediatrics specialist and a Pediatric Cardiologist in Salem, Oregon. Dr. Holmes is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Marfan Syndrome, Bicuspid Aortic Valve, Thoracic Aortic Aneurysm, and Aortic Dissection. Dr. Holmes is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Praxis Health PC

      2195 Nw Shevlin Park Rd, Suite 100, 
      Bend, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anita Henderson is a primary care provider, practicing in Family Medicine in Bend, Oregon. Dr. Henderson is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Hypothyroidism, and Generalized Anxiety Disorder (GAD). Dr. Henderson is currently accepting new patients.

      Rebekah A. Byrne
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Albany General Hospital

      705 Elm St Sw, Suite 200, 
      Albany, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Rebekah Byrne is a primary care provider, practicing in Family Medicine in Albany, Oregon. Dr. Byrne is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypothyroidism, Hypervitaminosis D, Hashimoto Thyroiditis, and Familial Hypopituitarism. Dr. Byrne is currently accepting new patients.

      Macayla N. Richards
      General Practice | Family Medicine
      General Practice | Family Medicine
      7477 SE 52nd Ave, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Macayla Richards is a Family Medicine provider in Portland, Oregon. Her top areas of expertise are Menopause, Post-Traumatic Stress Disorder (PTSD), Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), and Hormone Replacement Therapy (HRT). Dr. Richards is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Portland Adventist Medical Center

      10101 Se Main St, Suite 2011, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ajay Wanchu is a Rheumatologist in Portland, Oregon. Dr. Wanchu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Sjogren Syndrome, Rheumatoid Arthritis (RA), Rhizomelic Pseudopolyarthritis, and Polymyalgia Rheumatica. Dr. Wanchu is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      143 Sw Shevlin Hixon Dr, Suite 203, 
      Bend, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Osvaldo Schirripa is a Medical Genetics provider in Bend, Oregon. Dr. Schirripa is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Schirripa is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      G Street Integrated Health

      1435 G St, 
      Springfield, OR 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Michelle Kaplan is a primary care provider, practicing in Family Medicine in Springfield, Oregon. Dr. Kaplan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are High Cholesterol, Cirrhosis, Familial Combined Hyperlipidemia, and Xanthoma. Dr. Kaplan is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Good Samaritan Hospital Corvallis

      3620 Nw Samaritan Dr, Suite 203a, 
      Corvallis, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jonathan Jones is a Rheumatologist in Corvallis, Oregon. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, and Psoriatic Arthritis. Dr. Jones is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Legacy Emanuel Hospital And Health Center

      2801 N Gantenbein Ave, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jane Ware is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Ware is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Meige Disease. Dr. Ware is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology | Pediatrics
      24601 Southeast Stark Street, 
      Troutdale, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Holland is a Pediatrics specialist and an Ophthalmologist in Troutdale, Oregon. Dr. Holland is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Glaucoma, Cataract, Strabismus, and Presbyopia. Dr. Holland is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      12360 E Burnside St, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Sonia Sosa is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Sosa is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Brittle Cornea Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS). Dr. Sosa is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine | General Practice
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine | General Practice

      Valley Med PC

      10 Coburg Rd, Suite 201, 
      Eugene, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Brittany Alloway is a primary care provider, practicing in Family Medicine and General Practice in Eugene, Oregon. Dr. Alloway is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Seasonal Affective Disorder (SAD), High Cholesterol, Attention Deficit Hyperactivity Disorder (ADHD), Obesity in Children, and Intrauterine Device Insertion. Dr. Alloway is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Kaiser Foundation Health Plan Of The Northwest

      10100 Se Sunnyside Rd, 
      Clackamas, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Wijan Prapong is a primary care provider, practicing in Internal Medicine in Clackamas, Oregon. Dr. Prapong is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Asthma in Children, and Asthma. Dr. Prapong is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Sky Lakes Medical Center Inc

      2865 Daggett Ave, Sky Lakes Medical Center, 
      Klamath Falls, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Duffin is a Rheumatologist in Klamath Falls, Oregon. Dr. Duffin is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Fibromyalgia, Rheumatoid Arthritis (RA), Psoriatic Arthritis, and Polymyalgia Rheumatica. Dr. Duffin is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Sports Medicine | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Sports Medicine | Pediatrics

      Slocum Orthopedics PC

      55 Coburg Rd, 
      Eugene, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Koester is a Pediatric Sports Medicine specialist and a Pediatrics provider in Eugene, Oregon. Dr. Koester is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Freiberg's Disease, Sandhaus Ben-Ami Syndrome, Small Patella Syndrome, and Osteomyelitis in Children. Dr. Koester is currently accepting new patients.

      Showing 1-20 of 98

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Oregon, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Oregon, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Oregon, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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