The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Oregon, US

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 102 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Oregon, US. Of these, 98 are Experienced, 2 are Advanced and 1 are Elite.

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102 providers found
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Sherene Shalhub is a Vascular Surgeon practicing medicine in Portland, Oregon. Dr. Shalhub is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Vascular Ehlers-Danlos Syndrome (VEDS), Thoracic Aortic Aneurysm, Aortic Dissection, Ehlers-Danlos Syndrome (EDS), and Angioplasty.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Kathryn Holmes is a Pediatric Cardiologist practicing medicine in Portland, Oregon. Dr. Holmes is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Bicuspid Aortic Valve, Thoracic Aortic Aneurysm, Aortic Dissection, and Angioplasty.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Samaritan Heartspring Wellness Center

    534 Pleasant View Way NW Ste 100, 
    Albany, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Rebekah Byrne is a primary care provider, practicing in Family Medicine in Albany, Oregon. Dr. Byrne is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Hypothyroidism, Hypervitaminosis D, Hashimoto Thyroiditis, and Familial Hypopituitarism.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics

    Central Oregon Clinical Genetics Center LLC

    143 SW Shevlin Hixon Dr Ste 203, 
    Bend, OR 
    Languages Spoken:
    English

    Osvaldo Schirripa is a Medical Genetics provider practicing medicine in Bend, Oregon. Dr. Schirripa is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology | Pediatrics
    24601 Southeast Stark Street, 
    Troutdale, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Holland is a Pediatrics specialist and an Ophthalmologist practicing medicine in Troutdale, Oregon. Dr. Holland is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Cataract, Strabismus, and Presbyopia. Dr. Holland is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Pediatric Cardiology Center Of Oregon PC

    300 N Graham St Ste 250, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Lindsay Urbinelli is a Pediatric Cardiologist practicing medicine in Portland, Oregon. Dr. Urbinelli is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Heart Murmurs, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Patent Foramen Ovale Repair.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology | Pediatrics
    9427 Southwest Barnes Road, Suite 598, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marc Legras is a Cardiologist and a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Orthopedics | Pediatric Orthopedics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Orthopedics | Pediatric Orthopedics
    9135 Southwest Barnes Road, Suite 763, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Dominique Laron is a Pediatric Orthopedics specialist and an Orthopedics provider practicing medicine in Portland, Oregon. Dr. Laron is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Clubfoot, Claw Foot, Beukes Familial Hip Dysplasia, and Legg-Calve-Perthes Disease (LCPD). Dr. Laron is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Pediatric Cardiology Center Of Oregon PC

    300 N Graham St Ste 250, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Margie Tucker is a Pediatric Cardiologist practicing medicine in Portland, Oregon. Dr. Tucker is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Patent Foramen Ovale Repair.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Colorectal Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Colorectal Surgery

    Legacy Medical Group-Colon & Rectal Surgery At Good Samaritan

    2222 NW Lovejoy St Ste 601 Office, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Alizah Rotramel is a Colorectal Surgeon practicing medicine in Portland, Oregon. Dr. Rotramel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Rectal Prolapse, Bowel Incontinence, Anal Fissure, Colostomy, and Ileostomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    11086 Southeast Oak Street, 
    Milwaukie, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Charles Bock is an Ophthalmologist practicing medicine in Milwaukie, Oregon. Dr. Bock is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Strabismus, Cataract, Presbyopia, and Esotropia. Dr. Bock is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    24601 Southeast Stark Street, 
    Troutdale, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Shane Kim is an Ophthalmologist practicing medicine in Troutdale, Oregon. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Cataract, Pterygium, Glaucoma, and Astigmatism. Dr. Kim is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Siskiyou Pediatric Clinic (Allscripts)

    700 SW Ramsey Ave, Suite 204, 
    Grants Pass, OR 
    Languages Spoken:
    English

    Katherine Johnston is a Pediatrics provider practicing medicine in Grants Pass, Oregon. Dr. Johnston is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Van Der Woude Syndrome, Obesity in Children, Stork Bite, and Vascular Birthmark.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    24601 Southeast Stark Street, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Jonathan Kemp is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Kemp is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Cataract, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Glaucoma. Dr. Kemp is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    18345 Southwest Alexander Street, Suite A, 
    Aloha, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Jacqueline Ng is an Ophthalmologist practicing medicine in Aloha, Oregon. Dr. Ng is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Dry Eye Syndrome, Meibomianitis, Cataract, and Glaucoma. Dr. Ng is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics

    Office

    3303 S Bond Ave Bldg 1, 
    Portland, OR 
    Languages Spoken:
    English

    Seema Gupta is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Gyrate Atrophy of the Choroid and Retina, Glaucoma, Cataract, and Ocular Hypertension (OHT).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    8645 Southeast Sunnybrook Boulevard, Suite 200, 
    Clackamas, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Kristen Ell is a Pediatrics provider practicing medicine in Clackamas, Oregon. Dr. Ell is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Delayed Growth, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Ehlers-Danlos Syndrome (EDS), and Short Stature (Growth Disorders). Dr. Ell is currently accepting new patients.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    High Lakes Health Care

    929 SW Simpson Ave Ste 300, 
    Bend, OR 
    Languages Spoken:
    English

    Anita Henderson is a primary care provider, practicing in Family Medicine in Bend, Oregon. Dr. Henderson is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Hypothyroidism, and Generalized Anxiety Disorder (GAD).

    General Practice | Family Medicine
    General Practice | Family Medicine
    7477 SE 52nd Ave, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Macayla Richards is a Family Medicine provider practicing medicine in Portland, Oregon. Dr. Richards is rated as undefined provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Menopause, Post-Traumatic Stress Disorder (PTSD), Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), and Hormone Replacement Therapy (HRT). Dr. Richards is board certified in Dr Macayla Richards. Dr. Richards is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Adventist Health Diabetes Center

    10101 SE Main St Ste 2011, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Ajay Wanchu is an Internal Medicine provider practicing medicine in Portland, Oregon. Dr. Wanchu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Sjogren Syndrome, Rheumatoid Arthritis (RA), Rhizomelic Pseudopolyarthritis, and Polymyalgia Rheumatica.

    Showing 1-20 of 102

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Oregon, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Oregon, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Oregon, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Oregon, US?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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