The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Portland, OR

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 52 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Portland, OR. Of these, 49 are Experienced, 1 are Advanced and 1 are Elite.

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52 providers found
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery

    University Professional Services

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English, Arabic
    Accepting New Patients
    Offers Telehealth

    Sherene Shalhub is a Vascular Surgeon in Portland, Oregon. Dr. Shalhub is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Thoracic Aortic Aneurysm, Aortic Dissection, Ehlers-Danlos Syndrome (EDS), and Angioplasty. Dr. Shalhub is currently accepting new patients.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Kathryn Holmes is a Pediatric Cardiologist in Portland, Oregon. Dr. Holmes is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Marfan Syndrome, Bicuspid Aortic Valve, Thoracic Aortic Aneurysm, and Aortic Dissection.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics

    Office

    3303 S Bond Ave Bldg 1, 
    Portland, OR 
     (1.8 miles away)
    Languages Spoken:
    English

    Seema Gupta is a Pediatrics provider in Portland, Oregon. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Glaucoma, Cataract, and Ocular Hypertension (OHT).

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Pediatric Cardiology Center Of Oregon PC

    300 N Graham St Ste 250, 
    Portland, OR 
     (1.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Lindsay Urbinelli is a Pediatric Cardiologist in Portland, Oregon. Dr. Urbinelli is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ventricular Septal Defects, Heart Murmurs, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Patent Foramen Ovale Repair.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Pediatric Cardiology Center Of Oregon PC

    300 N Graham St Ste 250, 
    Portland, OR 
     (1.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Margie Tucker is a Pediatric Cardiologist in Portland, Oregon. Dr. Tucker is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Patent Foramen Ovale Repair.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Colorectal Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Colorectal Surgery

    Legacy Medical Group-Colon & Rectal Surgery At Good Samaritan

    2222 NW Lovejoy St Ste 601 Office, 
    Portland, OR 
     (3.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alizah Rotramel is a Colorectal Surgeon in Portland, Oregon. Dr. Rotramel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rectal Prolapse, Bowel Incontinence, Anal Fissure, Colostomy, and Ileostomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology | Pediatrics
    9427 Southwest Barnes Road, Suite 598, 
    Portland, OR 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Orthopedics | Pediatric Orthopedics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Orthopedics | Pediatric Orthopedics
    9135 Southwest Barnes Road, Suite 763, 
    Portland, OR 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Dominique Laron is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Laron is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Clubfoot, Claw Foot, Beukes Familial Hip Dysplasia, and Legg-Calve-Perthes Disease (LCPD). Dr. Laron is currently accepting new patients.

    Macayla N. Richards
    General Practice | Family Medicine
    General Practice | Family Medicine
    7477 SE 52nd Ave, 
    Portland, OR 
     (4.6 miles away)
    Experience:
    4+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    I’m a PNW native with a passion for LGBTQ+ care, Body Positive, and Mental Healthcare. My approach combines modern medicine with naturopathic options, based on what works best for each individual. With a warm, open style, I encourage questions to understand your whole story. Outside the clinic, I enjoy life with my wife and our two lively dogs, Lilo and Zelda.Specialties:LGBTQ+ CareHAES TrainedGender-Affirming CareTrauma-Informed CareHormone TherapyAreas of Practice:Preventative Care including annual adult and pediatric exams, vaccines, breast exams & paps, STI screenings, and both contraceptive & fertility.Lifestyle Foundations such as nutrition, movement & activity, sleep quality, and stress management.Gynecologic CareMenopausal Hormone TherapyAcute & Chronic CareMental Health & Wellness including ADHD, Anxiety, Autism, Bipolar, Depression, Eating Disorders, OCD, and othersLabs - diagnostic, nutritional status, hormone, and annual labsGenetic Testing such as GeneSight for personalized psychiatric medication prescribing, MyRisk for breast and colon cancer genetic mutations, MTHFR and COMT genetic mutations, DUTCH testing for hormones, and comprehensive, functional GI panelsPharmaceutical and Herbal Treatment optionsWhole-Patient PrescribingPatient Letters including work accommodations, letters for school, supporting transgender rights, ESA letters, transgender surgery support letters WPATH, and FMLA letters. . Her top areas of expertise are Menopause, Post-Traumatic Stress Disorder (PTSD), Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), and Hormone Replacement Therapy (HRT).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Providence St Vincent Heart Clinics Cardiology Portland Clinic

    800 SW 13th Ave, 
    Portland, OR 
     (0.5 miles away)
    Languages Spoken:
    English

    Thomas Dudrey is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Dudrey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), High Cholesterol, Herpetic Stomatitis, and Oral Herpes.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Oregon Health & Science University

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English

    Shawn Blanchard is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Blanchard is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Post Polio Syndrome, Ankylosing Vertebral Hyperostosis with Tylosis, Diffuse Idiopathic Skeletal Hyperostosis, and Rheumatic Fever.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Howard Song is a General Surgeon in Portland, Oregon. Dr. Song is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Mitral Valve Regurgitation, Aortic Valve Stenosis, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jane Zhu is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Zhu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Severe Acute Respiratory Syndrome (SARS) and Ehlers-Danlos Syndrome (EDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology

    Eye Health Northwest PC

    1955 Nw Northrup St, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jocelyn Lam is an Ophthalmologist in Portland, Oregon. Dr. Lam is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Strabismus, Amblyopia, Cataract, and Presbyopia. Dr. Lam is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology

    Eye Health Northwest PC

    1955 NW Northrup St, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Sarah Glass is an Ophthalmologist in Portland, Oregon. Dr. Glass is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Cataract, Presbyopia, Choroid Plexus Carcinoma, and Glaucoma.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology

    Eye Health Northwest PC

    1955 NW Northrup St, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Michael Page is an Ophthalmologist in Portland, Oregon. Dr. Page is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cataract, Pterygium, Presbyopia, and Corneal Dystrophy and Perceptive Deafness.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology

    Eye Health Northwest PC

    1955 NW Northrup St, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Amy Tong is an Ophthalmologist in Portland, Oregon. Dr. Tong is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Cataract, Sjogren Syndrome, Meibomianitis, and Dry Eye Syndrome.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Legacy Medical Group-Northwest

    1130 NW 22nd Ave Ste 220, 
    Portland, OR 
     (1.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ben Ly is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Ly is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Sitosterolemia, High Cholesterol, Hypothyroidism, and Cirrhosis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Legacy Medical Group-Good Samaritan

    1200 NW 23rd Ave, 
    Portland, OR 
     (1.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Anne Weinsoft is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Weinsoft is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Sciatica, Hyperhidrosis, Scoliosis, and Type 2 Diabetes (T2D).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Legacy Medical Group-Good Samaritan

    1200 NW 23rd Ave, 
    Portland, OR 
     (1.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Melinda Muller is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Muller is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Myelitis, and HIV/AIDS.

    Showing 1-20 of 52

    Last Updated: 02/22/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Portland, OR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Portland, OR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Portland, OR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Portland, OR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Portland, OR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Portland, OR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Portland, OR?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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