The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Seattle, WA

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 25 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Seattle, WA. Of these, 22 are Experienced, 1 are Advanced, 1 are Distinguished and 1 are Elite.

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25 providers found
    Elite in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Elite in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics

    The Association Of University Physicians

    1959 Ne Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English, Hindi, Spanish
    Accepting New Patients
    Offers Telehealth

    Peter Byers is a Medical Genetics provider in Seattle, Washington. Dr. Byers is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and Hypotonia. Dr. Byers is currently accepting new patients.

    Jennie M. Allen
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    1229 Madison Street, Swedish Nordstrom Tower, Suite 860, 
    Seattle, WA 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Allen received her medical degree from the University of Washington. She subsequently completed her pediatric residency and cardiology fellowship training at Seattle Children's Hospital. Dr. Allen's interests include pediatric preventive cardiology and, specifically, lipid disorders and management, cardiac evaluation for sports participation, prenatal and childhood detection, and management of congenital heart disease and syndromes that include congenital heart disease. Dr. Allen joined NorthWest Congenital Heart Care in 2014 and is the Echo Lab Director as well as the Intersocietal Accreditation Commission Medical Director for NWCHC. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Interrupted Aortic Arch, Patent Ductus Arteriosus, Heart Murmurs, and Sinus of Valsalva Aneurysm.

    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    1959 Ne Pacific St, Hsb, Box 357655, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English, German, Romanian
    Accepting New Patients
    Offers Telehealth

    Ulrike Schwarze is a Medical Genetics provider in Seattle, Washington. Dr. Schwarze is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Osteogenesis Imperfecta, Vascular Ehlers-Danlos Syndrome (VEDS), and De Barsy Syndrome. Dr. Schwarze is currently accepting new patients.

    Learn about our expert tiers
    Lauren Crowley
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Lauren Crowley, MD, is a board-certified internal medicine physician offering primary care for adults, with particular emphasis on preventive care and the management of chronic medical conditions. A calm presence, Dr. Crowley enjoys connecting with patients, building trusted relationships, and ensuring patients feel heard and well cared for. In fact, she considers the art of medicine to be the ability to listen to patients and understand their unique stories.Dr. Crowley strives to involve her patients in their own care through a process of open negotiation. Fluent in Spanish, she enjoys working with Spanish-speaking patients.Away from work, Dr. Crowley enjoys cooking, walking her Australian Shepard, reading novels with her book club, and watching her two children play club soccer.Dr. Crowley is a member of the Concierge Medicine team.Learn more aboutConcierge Medicine. Dr. Crowley is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Chronic Cough, Vertigo, and Maturity Onset Diabetes of the Young.

    Kimo C. Hirayama
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    720 8th Avenue South, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    I have always wanted to work at a community health center with an Asian American clientele. I enjoy the diversity of cultures here, and the mission of the organization matches my philosophy of medical care. I enjoy the full spectrum of my practice, including pediatrics, obstetrics and geriatrics. believe that each individual should be viewed within the lens of his or her family, culture and circumstances. I see my role as helping patients lead healthier lives through partnership and education around health issues.I was born in Pennsylvania, and I moved to Seattle for residency training. My hobbies include fly-fishing and volleyball. Dr. Hirayama is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Type 2 Diabetes (T2D), Hepatitis, Jaundice, and Glucocorticoid-Remediable Aldosteronism.

    Milah B. Frownfelter
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    1124 Columbia Street, Suite 620, 
    Seattle, WA 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    I believe strongly in working with patients to develop shared goals of health through compassionate communication, and attention to detail and personalized care. As a dedicated patient advocate, I look forward to empowering patients in meeting those goals and achieving optimal wellness by providing access to evidence-based and comprehensive care and resources that are tailored to the individual. Dr. Frownfelter is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Obesity in Children, Hypothyroidism, and Osteoporosis.

    Andrea Cistulli
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Franciscan Medical Clinic - West Seattle

    3400 California Ave SW, 
    Seattle, WA 
     (3.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Andrea Cistulli, DO, is a family medicine physician providing full spectrum primary care. Dr. Cistulli has experience serving urban, underserved and multicultural patients. She served as a clinical team leader during her residency with Valley Family Medicine.Dr. Cistulli is a member of the American Academy of Family Physicians, Washington Academy of Family Physicians and King County Academy of Family Physicians. Dr. Cistulli is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), Autosomal Recessive Hypotrichosis, and Alopecia Areata.

    Katherine Hoang
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Franciscan Medical Clinic - West Seattle

    3400 California Ave SW, 
    Seattle, WA 
     (3.4 miles away)
    Languages Spoken:
    English, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Dr. Katherine Hoang is a board-certified family medicine physician. She enjoys family medicine because it allows her to take a holistic approach in caring for her patients. She likes getting to know her patients and their families over time. She works hard to establish an atmosphere of respect, compassion and trust, while providing comprehensive care to all patients. With an established relationship, she feels they can work together to achieve the patients best possible health and well-being. Dr. Hoang is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Myotonia Congenita, Sciatica, Hypothyroidism, and High Cholesterol.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology

    Eye Associates Northwest PLLC

    1101 Madison St Ste 600, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Daniel Kelly is an Ophthalmologist in Seattle, Washington. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Glaucoma, Eyelid Bump, Meibomianitis, and Dry Eye Syndrome.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery

    Harborview Division-KC Public Health

    908 Jefferson St, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Benjamin Starnes is a Vascular Surgeon in Seattle, Washington. Dr. Starnes is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Aortic Dissection, Aneurysm Repair, and Fasciotomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Limited To Univ Of WA Med Facilities Onl

    325 9th Ave, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English

    David Siscovick is a primary care provider, practicing in Internal Medicine in Seattle, Washington. Dr. Siscovick is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Atherosclerosis, Cardiac Arrest, Type 2 Diabetes (T2D), and Coronary Heart Disease.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Advanced Integrative Medicine Of Seattle Institute PLLC

    2825 Eastlake Ave E Ste 115, 
    Seattle, WA 
     (2.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Gina Perez is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Perez is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Chronic Pain, Opioid Use Disorder, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Uw Medicine 1959 Ne Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English

    Asmaa El-Ghazali is a General Surgeon in Seattle, Washington. Dr. El-Ghazali is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS) and Ehlers-Danlos Syndrome (EDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Sara Zettervall is a General Surgeon in Seattle, Washington. Dr. Zettervall is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Abdominal Aortic Aneurysm (AAA), Thoracic Aortic Aneurysm, Aortic Dissection, Aneurysm Repair, and Embolectomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Matthew Sweet is a Vascular Surgeon in Seattle, Washington. Dr. Sweet is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Aortic Dissection, Abdominal Aortic Aneurysm (AAA), Thrombectomy, and Aneurysm Repair.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    1959 Ne Pacific St, Hsc, H-466, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English

    Michael Dorschner is a Medical Genetics provider in Seattle, Washington. Dr. Dorschner is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Mosaicism, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Increased Head Circumference, and Cleft Lip and Palate.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Oncology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Oncology | Pediatrics
    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English, Polish, Spanish

    Peter Leahy is a Medical Genetics specialist and an Oncologist in Seattle, Washington. Dr. Leahy is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Maple Syrup Urine Disease, Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Beta-Ketothiolase Deficiency.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics

    The Association Of Chrmc And University Physicians

    4800 Sand Point Way Ne, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Bamshad is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Bamshad is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Distal Arthrogryposis Type 6, Distal Arthrogryposis, Arthrogryposis Multiplex Congenita, and Congenital Contractures. Dr. Bamshad is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Holly Park Medical And Dental Clinic

    3815 S Othello St Fl 2, 
    Seattle, WA 
     (5.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Abrams is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Abrams is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Vertigo.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    UW Medicine Primary Care At Northgate

    314 NE Thornton Pl, 
    Seattle, WA 
     (6.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Debra Bell is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Bell is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Ehlers-Danlos Syndrome (EDS).

    Showing 1-20 of 25

    Last Updated: 02/22/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Seattle, WA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Seattle, WA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Seattle, WA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Seattle, WA?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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