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    Last Updated: 01/09/2026

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    MediFind found 22 doctor with experience in Ellis-Van Creveld Syndrome near Delaware, US. Of these, 11 are Experienced, 10 are Advanced and 1 are Elite.

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    22 providers found
      Elite in Ellis-Van Creveld Syndrome
      Pediatrics | Pediatric Pulmonology
      Elite in Ellis-Van Creveld Syndrome
      Pediatrics | Pediatric Pulmonology

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of Pulmonary, 
      Wilmington, DE 
      Languages Spoken:
      English

      Aaron Chidekel is a Pediatrics specialist and a Pediatric Pulmonologist in Wilmington, Delaware. Dr. Chidekel is rated as an Elite provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Ellis-Van Creveld Syndrome, Cystic Fibrosis, Hypochondroplasia, and Subglottic Stenosis.

      Robert A. Heinle
      Advanced in Ellis-Van Creveld Syndrome
      Pediatrics | Pediatric Pulmonology | Pulmonary Medicine
      Advanced in Ellis-Van Creveld Syndrome
      Pediatrics | Pediatric Pulmonology | Pulmonary Medicine

      Nemours Children’s Health – Wilmington

      1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Heinle is a Pediatrics specialist and a Pediatric Pulmonologist in Wilmington, Delaware. Dr. Heinle is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Subglottic Stenosis, Duchenne Muscular Dystrophy, Hypochondroplasia, Osteotomy, and Adenoidectomy. Dr. Heinle is currently accepting new patients.

      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington,, DE 
      Languages Spoken:
      English

      Aisha Frazier is a Pediatric Cardiologist in Wilmington,, Delaware. Dr. Frazier is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Ellis-Van Creveld Syndrome, Cardiac Arrest, Mitral Atresia, and Hypoplastic Left Heart Syndrome (HLHS).

      Learn about our expert tiers
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of Pulmonary, 
      Wilmington, DE 
      Languages Spoken:
      English

      Abigail Strang is a Pediatric Pulmonologist in Wilmington, Delaware. Dr. Strang is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Hypochondroplasia, Ellis-Van Creveld Syndrome, Kozlowski Warren Fisher Syndrome, Thanatophoric Dysplasia, and Posterior Fossa Decompression.

      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington,, DE 
      Languages Spoken:
      English

      Deepika Thacker is a Pediatric Cardiologist in Wilmington,, Delaware. Dr. Thacker is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Kawasaki Disease, Pediatric Myocarditis, Myocarditis, and Heart Transplant.

      Kirk W. Reichard
      Experienced in Ellis-Van Creveld Syndrome
      General Surgery | Pediatrics
      Experienced in Ellis-Van Creveld Syndrome
      General Surgery | Pediatrics

      Nemours Children’s Health – Wilmington

      1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Kirk Reichard is a General Surgeon and a Pediatrics provider in Wilmington, Delaware. Dr. Reichard is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Pectus Excavatum, Pectus Carinatum, Retroperitoneal Inflammation, Appendicitis, and Appendectomy. Dr. Reichard is currently accepting new patients.

      Experienced in Ellis-Van Creveld Syndrome
      Pediatric Radiology | Radiology
      Experienced in Ellis-Van Creveld Syndrome
      Pediatric Radiology | Radiology

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Billing Extracts, 
      Wilmington, DE 
      Languages Spoken:
      English

      Mary Harty is a Pediatric Radiologist and a Radiologist in Wilmington, Delaware. Dr. Harty is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Caffey Disease, X-Linked Spondyloepiphyseal Dysplasia Tarda, Kniest Dysplasia, and Spondyloenchondrodysplasia.

      Experienced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology
      Experienced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Joel Temple is a Pediatric Cardiologist in Wilmington, Delaware. Dr. Temple is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Timothy Syndrome, Wolff-Parkinson-White Syndrome, Long QT Syndrome 5, and Ventricular Fibrillation.

      Experienced in Ellis-Van Creveld Syndrome
      Physician Assistant
      Experienced in Ellis-Van Creveld Syndrome
      Physician Assistant

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of General Pediatrics, 
      Wilmington, DE 
      Languages Spoken:
      English

      Adam Alberts is a Physician Assistant in Wilmington, Delaware. Mr. Alberts is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top area of expertise is Ellis-Van Creveld Syndrome. He is board certified in National Commission On Certification Of Physician Assistants, Physician Assistant.

      Experienced in Ellis-Van Creveld Syndrome
      Experienced in Ellis-Van Creveld Syndrome

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Jeffrey Demare is a Pediatrics provider in Wilmington, Delaware. Dr. Demare is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Ellis-Van Creveld Syndrome, Mucopolysaccharidoses (MPS), and Heart Failure with Preserved Ejection Fraction (HFpEF).

      Experienced in Ellis-Van Creveld Syndrome
      Experienced in Ellis-Van Creveld Syndrome

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Michael Luceri is a Pediatrics provider in Wilmington, Delaware. Dr. Luceri is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Fainting, Heart Murmurs, Patent Ductus Arteriosus, and Ventricular Septal Defects.

      Experienced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology
      Experienced in Ellis-Van Creveld Syndrome
      Pediatric Cardiology

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Sean Connolly is a Pediatric Cardiologist in Wilmington, Delaware. Dr. Connolly is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Tetralogy of Fallot, and Kawasaki Disease.

      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Orthopedics | Orthopedics
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Orthopedics | Orthopedics

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      William Mackenzie is a Pediatric Orthopedics specialist and an Orthopedics provider in Wilmington, Delaware. Dr. Mackenzie is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Fibrochondrogenesis, Kyphomelic Dysplasia, Mucopolysaccharidoses (MPS), and Kniest Dysplasia. Dr. Mackenzie is currently accepting new patients.

      Advanced in Ellis-Van Creveld Syndrome
      Hospital Medicine | Pediatrics
      Advanced in Ellis-Van Creveld Syndrome
      Hospital Medicine | Pediatrics

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Ricki Carroll is a Hospital Medicine specialist and a Pediatrics provider in Wilmington, Delaware. Dr. Carroll is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Thanatophoric Dysplasia, Spondyloepiphyseal Dysplasia, Diastrophic Dysplasia, Acromicric Dysplasia, and Osteotomy. Dr. Carroll is currently accepting new patients.

      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology | Rheumatology | Pulmonary Medicine
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology | Rheumatology | Pulmonary Medicine

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Vandna Passi is a Pediatric Pulmonologist and a Rheumatologist in Wilmington, Delaware. Dr. Passi is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Subglottic Stenosis, Ellis-Van Creveld Syndrome, Kozlowski Warren Fisher Syndrome, and Thanatophoric Dysplasia. Dr. Passi is currently accepting new patients.

      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Radiology
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Radiology

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Offers Telehealth

      Archana Malik is a Pediatric Radiologist in Wilmington, Delaware. Dr. Malik is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Scoliosis, and Caffey Disease.

      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology | Sleep Medicine | Pulmonary Medicine
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology | Sleep Medicine | Pulmonary Medicine

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Seema Rani is a Pediatric Pulmonologist and a Sleep Medicine provider in Wilmington, Delaware. Dr. Rani is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Obstructive Sleep Apnea, Subglottic Stenosis, Hypochondroplasia, and Ellis-Van Creveld Syndrome. Dr. Rani is currently accepting new patients.

      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology | Pediatrics | Emergency Medicine
      Advanced in Ellis-Van Creveld Syndrome
      Pediatric Pulmonology | Pediatrics | Emergency Medicine

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Jodi Gustave is a Pediatric Pulmonologist and a Pediatrics provider in Wilmington, Delaware. Dr. Gustave is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Hypochondroplasia, Ellis-Van Creveld Syndrome, Subglottic Stenosis, and Irregular Sleep-Wake Syndrome. Dr. Gustave is currently accepting new patients.

      Experienced in Ellis-Van Creveld Syndrome
      Hospital Medicine | Pediatrics
      Experienced in Ellis-Van Creveld Syndrome
      Hospital Medicine | Pediatrics
      1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Chalanda Jones is a Hospital Medicine specialist and a Pediatrics provider in Wilmington, Delaware. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. Her top areas of expertise are Hypochondroplasia, Cerebral Hypoxia, Ellis-Van Creveld Syndrome, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Jones is currently accepting new patients.

      Experienced in Ellis-Van Creveld Syndrome
      Experienced in Ellis-Van Creveld Syndrome

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Manish Purohit is a Pediatrics provider in Wilmington, Delaware. Dr. Purohit is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. His top areas of expertise are Dyggve-Melchior-Clausen Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, Otospondylomegaepiphyseal Dysplasia, and Kniest Dysplasia.

      Showing 1-20 of 22

      Last Updated: 01/09/2026

      What is the definition of Ellis-Van Creveld Syndrome?

      Ellis-van Creveld syndrome is a rare genetic disorder that affects bone growth.

      When should I see an Ellis-Van Creveld Syndrome doctor in Delaware, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ellis-Van Creveld Syndrome doctor in Delaware, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ellis-Van Creveld Syndrome doctors in Delaware, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ellis-Van Creveld Syndrome doctors in Delaware, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ellis-Van Creveld Syndrome doctor in Delaware, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ellis-Van Creveld Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Ellis-Van Creveld Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ellis-Van Creveld Syndrome doctor in Delaware, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ellis-Van Creveld Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ellis-Van Creveld Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ellis-Van Creveld Syndrome doctors in Delaware, US?

      Look for the filter feature on the left side of the Ellis-Van Creveld Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ellis-Van Creveld Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Ellis-Van Creveld Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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