The 20 Best Ellis-Van Creveld Syndrome Doctors Near Me

Find the Top Ellis-Van Creveld Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 626 doctor with experience in Ellis-Van Creveld Syndrome. Of these, 528 are Experienced, 71 are Advanced, 24 are Distinguished and 3 are Elite.

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626 providers found
    Elite in Ellis-Van Creveld Syndrome
    Elite in Ellis-Van Creveld Syndrome
    Referral may be required
    Foggia, IT 

    Isabella Torrente practices practicing medicine in Foggia, Italy. Ms. Torrente is rated as an Elite expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Ellis-Van Creveld Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

    Elite in Ellis-Van Creveld Syndrome
    Elite in Ellis-Van Creveld Syndrome
    Referral may be required
    Freiburg, BW, DE 

    Miriam Schmidts practices practicing medicine in Freiburg, Germany. Ms. Schmidts is rated as an Elite expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Asphyxiating Thoracic Dystrophy, Ellis-Van Creveld Syndrome, Situs Inversus, and Aplasia Cutis Congenita.

    Elite in Ellis-Van Creveld Syndrome
    Elite in Ellis-Van Creveld Syndrome
    Referral may be required
    Paris, FR 

    Valerie Daire-Cormier practices practicing medicine in Paris, France. Ms. Daire-Cormier is rated as an Elite expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 108 other conditions, according to our data. Her clinical expertise encompasses Myhre Syndrome, Achondroplasia, Brachydactyly Mononen Type, Polydactyly, and Adenoidectomy.

    Learn about our expert tiers
    Experienced in Ellis-Van Creveld Syndrome
    Experienced in Ellis-Van Creveld Syndrome
    Referral required

    Prisma Health Cardiology Adult Congenital Heart Program – Patewood

    200C Patewood Drive, Floor 3, 
    Greenville, SC 
    Languages Spoken:
    English, Castilian, Spanish
    Accepting New Patients

    Manisha Shanbhag is a Cardiologist practicing medicine in Greenville, South Carolina. Dr. Shanbhag is rated as an Experienced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Eisenmenger Syndrome, Endocardial Cushion Defect, Atrioventricular Septal Defect, and Partial Atrioventricular Canal. Dr. Shanbhag is board certified in American Board Of Internal Medicine. Dr. Shanbhag is currently accepting new patients.

    Distinguished in Ellis-Van Creveld Syndrome
    Pulmonary Medicine | Pediatric Pulmonology
    Distinguished in Ellis-Van Creveld Syndrome
    Pulmonary Medicine | Pediatric Pulmonology
    Referral may be required

    Nemours DuPont Hospital For Children

    1600 Rockland Road, Department Of Pulmonary, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Aaron Chidekel is a Pulmonary Medicine specialist and a Pediatric Pulmonologist practicing medicine in Wilmington, Delaware. Dr. Chidekel is rated as a Distinguished provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Ellis-Van Creveld Syndrome, Cystic Fibrosis, Obstructive Sleep Apnea, and Hypochondroplasia. Dr. Chidekel is board certified in American Board Of Pediatrics. Dr. Chidekel is currently accepting new patients.

    Advanced in Ellis-Van Creveld Syndrome
    Pulmonary Medicine
    Advanced in Ellis-Van Creveld Syndrome
    Pulmonary Medicine
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Vandna Passi is a Pulmonary Medicine provider practicing medicine in Wilmington, Delaware. Dr. Passi is rated as an Advanced provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Subglottic Stenosis, Ellis-Van Creveld Syndrome, Kozlowski Warren Fisher Syndrome, and Thanatophoric Dysplasia. Dr. Passi is board certified in American Board Of Pediatrics. Dr. Passi is currently accepting new patients.

    Distinguished in Ellis-Van Creveld Syndrome
    Pediatric Cardiology
    Distinguished in Ellis-Van Creveld Syndrome
    Pediatric Cardiology
    Referral may be required

    Cardiology Care For Children

    1834 Oregon Pike, Suite 20, 
    Lancaster, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Devyani Chowdhury is a Pediatric Cardiologist practicing medicine in Lancaster, Pennsylvania. Dr. Chowdhury is rated as a Distinguished provider by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Ellis-Van Creveld Syndrome, Congenital Heart Disease (CHD), Pediatric Myocarditis, and Tetralogy of Fallot. Dr. Chowdhury is board certified in IM/Adult Congenital Heart Disease (AMA)Pediatrics/Cardiology (AMA). Dr. Chowdhury is currently accepting new patients.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    San Giovanni Rotondo, IT 

    Laura Bernardini practices practicing medicine in San Giovanni Rotondo, Italy. Ms. Bernardini is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Dandy-Walker Syndrome, Ellis-Van Creveld Syndrome, Smith-Magenis Syndrome, Aplasia Cutis Congenita, and Pancreaticoduodenectomy.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    Madrid, MD, ES 

    Victor Perez-Ruiz practices practicing medicine in Madrid, Spain. Mr. Perez-Ruiz is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Ellis-Van Creveld Syndrome, Acrofacial Dysostosis Weyers Type, Polydactyly, and Clouston Syndrome.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    30 Guilford Street, 
    London, ENG, GB 

    Philip Beales practices practicing medicine in London, United Kingdom. Beales is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Bardet-Biedl Syndrome, Polydactyly, Curry Jones Syndrome, and Acrocallosal Syndrome.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    San Giovanni Rotondo, IT 

    Alessandro De Luca practices practicing medicine in San Giovanni Rotondo, Italy. Mr. De Luca is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Ellis-Van Creveld Syndrome, RASopathies, Noonan Syndrome, and Aplasia Cutis Congenita.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    San Giovanni Rotondo, IT 

    Francesca Sparascio-Piceci practices practicing medicine in San Giovanni Rotondo, Italy. Ms. Sparascio-Piceci is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Ellis-Van Creveld Syndrome, Polydactyly, Aplasia Cutis Congenita, and Clouston Syndrome.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    Rome, IT 

    Maria Digilio practices practicing medicine in Rome, Italy. Ms. Digilio is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 66 other conditions, according to our data. Her clinical expertise encompasses KBG Syndrome, Kabuki Syndrome, Partial Atrioventricular Canal, and Noonan Syndrome.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    Madrid, MD, ES 

    Pablo Lapunzina-Badia practices practicing medicine in Madrid, Spain. Mr. Lapunzina-Badia is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Beckwith-Wiedemann Syndrome, Wolf-Hirschhorn Syndrome, Orchiectomy, and Lung Transplant.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    Madrid, MD, ES 

    Adrian Campos-Palencia practices practicing medicine in Madrid, Spain. Mr. Campos-Palencia is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Acrofacial Dysostosis Weyers Type, Ellis-Van Creveld Syndrome, Polydactyly, and Acrofacial Dysostosis Catania Type.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    Paris, FR 

    Genevieve Baujat practices practicing medicine in Paris, France. Ms. Baujat is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 70 other conditions, according to our data. Her clinical expertise encompasses Fibrodysplasia Ossificans Progressiva, Brachydactyly Mononen Type, Acromicric Dysplasia, Acromesomelic Dysplasia Campailla Martinelli Type, and Adenoidectomy.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    Istanbul, TR 

    Hulya Kayserili practices practicing medicine in Istanbul, Turkey. Kayserili is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. They are also highly rated in 59 other conditions, according to our data. Their clinical expertise encompasses Acromicric Dysplasia, Aarskog Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    San Giovanni Rotondo, IT 

    Valentina Guida practices practicing medicine in San Giovanni Rotondo, Italy. Ms. Guida is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Ellis-Van Creveld Syndrome, Pena-Shokeir Syndrome Type 2, Goldenhar Disease, and Treacher Collins Syndrome.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    37 Kent St, 
    Woolloongabba, QLD, AU 

    Aideen Leo-Mcinerney practices practicing medicine in Woolloongabba, Australia. Leo-Mcinerney is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. They are also highly rated in 12 other conditions, according to our data. Their clinical expertise encompasses Asphyxiating Thoracic Dystrophy, Ellis-Van Creveld Syndrome, Marfan Syndrome, and Melanoma.

    Distinguished in Ellis-Van Creveld Syndrome
    Distinguished in Ellis-Van Creveld Syndrome
    Referral may be required
    Paris, FR 

    Celine Huber practices practicing medicine in Paris, France. Ms. Huber is rated as a Distinguished expert by MediFind in the treatment of Ellis-Van Creveld Syndrome. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Polydactyly, Acromesomelic Dysplasia Campailla Martinelli Type, Acromesomelic Dysplasia, and Acromesomelic Dysplasia Maroteaux Type.

    Showing 1-20 of 626

    Last Updated: 09/26/2026

    What is the definition of Ellis-Van Creveld Syndrome?

    Ellis-van Creveld (EVC) syndrome is a rare genetic condition that affects bone growth.

    When should I see an Ellis-Van Creveld Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ellis-Van Creveld Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ellis-Van Creveld Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ellis-Van Creveld Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ellis-Van Creveld Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ellis-Van Creveld Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Ellis-Van Creveld Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ellis-Van Creveld Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ellis-Van Creveld Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ellis-Van Creveld Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ellis-Van Creveld Syndrome doctors near me?

    Look for the filter feature on the left side of the Ellis-Van Creveld Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ellis-Van Creveld Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Ellis-Van Creveld Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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