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    Last Updated: 01/09/2026

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    MediFind found 39 doctor with experience in Emery-Dreifuss Muscular Dystrophy near The United Kingdom. Of these, 30 are Experienced, 6 are Advanced, 2 are Distinguished and 1 are Elite.

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    39 providers found
      Elite in Emery-Dreifuss Muscular Dystrophy

      Catherine M. Shanahan
      Elite in Emery-Dreifuss Muscular Dystrophy

      Catherine M. Shanahan
      London, ENG, GB 

      Catherine Shanahan practices in London, United Kingdom. Ms. Shanahan is rated as an Elite expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Calcinosis, Emery-Dreifuss Muscular Dystrophy, Dilated Cardiomyopathy (DCM), and Progeria.

      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Daniel Brayson
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Daniel Brayson
      London, ENG, GB 

      Daniel Brayson practices in London, United Kingdom. Mr. Brayson is rated as a Distinguished expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Emery-Dreifuss Muscular Dystrophy, Progeria, Dilated Cardiomyopathy (DCM), and Cardiomyopathy.

      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Eric C. Schirmer
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Eric C. Schirmer
      Max Born Crescent, 
      Edinburgh, SCT, GB 

      Eric Schirmer practices in Edinburgh, United Kingdom. Mr. Schirmer is rated as a Distinguished expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Oral Herpes, and Progeria.

      Learn about our expert tiers
      Perry M. Elliott
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Perry M. Elliott
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Perry M. Elliott
      Barts Heart Centre St Bartholomew's Hospital, 
      London, ENG, GB 

      Perry Elliott practices in London, United Kingdom. Mr. Elliott is rated as an Advanced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Familial Hypertrophic Cardiomyopathy, Heart Transplant, and Cardiac Ablation.

      Advanced in Emery-Dreifuss Muscular Dystrophy

      Glenn E. Morris
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Glenn E. Morris
      Birmingham, ENG, GB 

      Glenn Morris practices in Birmingham, United Kingdom. Mr. Morris is rated as an Advanced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

      Advanced in Emery-Dreifuss Muscular Dystrophy

      Ian S. Holt
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Ian S. Holt
      Oswestry, ENG, GB 

      Ian Holt practices in Oswestry, United Kingdom. Mr. Holt is rated as an Advanced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Primary Lateral Sclerosis, and Myotonic Dystrophy.

      Advanced in Emery-Dreifuss Muscular Dystrophy

      Jose I. De Las Heras
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Jose I. De Las Heras
      Edinburgh, SCT, GB 

      Jose De Las Heras practices in Edinburgh, United Kingdom. Mr. De Las Heras is rated as an Advanced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy and Emery-Dreifuss Muscular Dystrophy.

      Advanced in Emery-Dreifuss Muscular Dystrophy

      Volker W. Straub
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Volker W. Straub
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Volker Straub practices in Newcastle Upon Tyne, United Kingdom. Mr. Straub is rated as an Advanced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Dysferlinopathy.

      Advanced in Emery-Dreifuss Muscular Dystrophy

      Rafal Czapiewski
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Rafal Czapiewski
      Edinburgh, SCT, GB 

      Rafal Czapiewski practices in Edinburgh, United Kingdom. Mr. Czapiewski is rated as an Advanced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy and Emery-Dreifuss Muscular Dystrophy.

      Pier D. Lambiase
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Pier D. Lambiase
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Pier D. Lambiase
      Huntley St, 
      London, ENG, GB 

      Pier Lambiase practices in London, United Kingdom. Mr. Lambiase is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Ventricular Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Vlastimil Srsen
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Vlastimil Srsen
      Edinburgh, SCT, GB 

      Vlastimil Srsen practices in Edinburgh, United Kingdom. Srsen is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Their top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy and Emery-Dreifuss Muscular Dystrophy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Qiuping Zhang
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Qiuping Zhang
      London, ENG, GB 

      Qiuping Zhang practices in London, United Kingdom. Zhang is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Their top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy and Emery-Dreifuss Muscular Dystrophy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Caroline A. Sewry
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Caroline A. Sewry
      Manchester, ENG, GB 

      Caroline Sewry practices in Manchester, United Kingdom. Ms. Sewry is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Elena Pegoraro
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Elena Pegoraro
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Elena Pegoraro practices in Newcastle Upon Tyne, United Kingdom. Ms. Pegoraro is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal and Bulbar Muscular Atrophy, Primary Lateral Sclerosis, and Thymectomy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Iakowos Karakesisoglou
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Iakowos Karakesisoglou
      Durham, ENG, GB 

      Iakowos Karakesisoglou practices in Durham, United Kingdom. Karakesisoglou is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Their top area of expertise is Emery-Dreifuss Muscular Dystrophy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Nadia Korfali
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Nadia Korfali
      Edinburgh, SCT, GB 

      Nadia Korfali practices in Edinburgh, United Kingdom. Ms. Korfali is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy and Emery-Dreifuss Muscular Dystrophy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Douglas E. Cannie
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Douglas E. Cannie
      London, ENG, GB 

      Douglas Cannie practices in London, United Kingdom. Mr. Cannie is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Dilated Cardiomyopathy (DCM), Cardiomyopathy, X-Linked Dominant Scapuloperoneal Myopathy, and Emery-Dreifuss Muscular Dystrophy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Chiara Bettolo-Marini
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Chiara Bettolo-Marini
      Newcastle Upon Tyne, ENG, GB 

      Chiara Bettolo-Marini practices in Newcastle Upon Tyne, United Kingdom. Ms. Bettolo-Marini is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Paramyotonia Congenita, and Limb-Girdle Muscular Dystrophy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Sue Shackleton
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Sue Shackleton
      Leicester, ENG, GB 

      Sue Shackleton practices in Leicester, United Kingdom. Ms. Shackleton is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Emery-Dreifuss Muscular Dystrophy and X-Linked Dominant Scapuloperoneal Myopathy.

      Experienced in Emery-Dreifuss Muscular Dystrophy

      Petros Syrris
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Petros Syrris
      Gower Street, 
      London, ENG, GB 

      Petros Syrris practices in London, United Kingdom. Mr. Syrris is rated as an Experienced expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Dilated Cardiomyopathy (DCM), and Heart Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 39

      Last Updated: 01/09/2026

      What is the definition of Emery-Dreifuss Muscular Dystrophy?

      Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

      When should I see an Emery-Dreifuss Muscular Dystrophy doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Emery-Dreifuss Muscular Dystrophy doctor in The United Kingdom?

      You can find an Emery-Dreifuss Muscular Dystrophy doctor in any of the 10 largest U.S. cities by clicking below:

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      Emery-Dreifuss Muscular Dystrophy doctor near Boston, MA
      Emery-Dreifuss Muscular Dystrophy doctor near Dallas, TX
      Emery-Dreifuss Muscular Dystrophy doctor near San Jose, CA

      How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors in The United Kingdom?

      Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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