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    Last Updated: 10/30/2025

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    MediFind found 29 doctor with experience in Emery-Dreifuss Muscular Dystrophy near Boston, MA. Of these, 26 are Experienced and 3 are Advanced.

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    29 providers found
      Anthony A. Amato
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Brigham And Women's Hospital, Neurosciences Center

      60 Fenwood Road, Hale Building For Transformative Medicine, 1st Floor, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Aimee Boegle is a Neurologist in Boston, Massachusetts. Dr. Boegle has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Boegle is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Neurology | Medical Genetics | Pediatrics
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Neurology | Medical Genetics | Pediatrics

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Basil Darras is a Pediatric Neurologist and a Medical Genetics provider in Boston, Massachusetts. Dr. Darras is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 1, and Gastrostomy. Dr. Darras is currently accepting new patients.

      Learn about our expert tiers
      Neal K. Lakdawala
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiology | Advanced Heart Failure and Transplant Cardiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiology | Advanced Heart Failure and Transplant Cardiology

      Brigham And Womens Physicians Organization Inc

      70 Francis St, 
      Boston, MA 
       (3.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Neal Lakdawala is a Cardiologist and an Advanced Heart Failure and Transplant Cardiologist in Boston, Massachusetts. Dr. Lakdawala is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Familial Hypertrophic Cardiomyopathy, Heart Transplant, and Cardiac Ablation. Dr. Lakdawala is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Pratt Neurology Associates Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mithila Vullaganti is a Neurologist in Boston, Massachusetts. Dr. Vullaganti is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Stroke, Stent Placement, and Transmyocardial Revascularization.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Doreen Ho is a Neurologist in Boston, Massachusetts. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Cramp-Fasciculation Syndrome, and Myasthenia Gravis. Dr. Ho is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Steven Lubitz is a Cardiac Electrophysiologist and a Cardiologist in Boston, Massachusetts. Dr. Lubitz is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Sick Sinus Syndrome, Cardiac Ablation, and Pacemaker Implantation. Dr. Lubitz is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Bart Chwalisz is a Neurologist in Boston, Massachusetts. Dr. Chwalisz is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Optic Neuritis, Increased Intracranial Pressure, Orbital Pseudotumor, and Meningitis. Dr. Chwalisz is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology
      725 Albany St, Suite 7b, Shapiro Bldg, 
      Boston, MA 
       (1.4 miles away)
      Languages Spoken:
      English

      Kwan Lau is a Neurologist in Boston, Massachusetts. Dr. Lau is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Primary Amyloidosis, Transthyretin Amyloidosis, Transthyretin Amyloid Cardiomyopathy, and Peripheral Neuropathy.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine
      10 Gove St, 
      East Boston, MA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      James Mccann is a primary care provider, practicing in Internal Medicine in East Boston, Massachusetts. Dr. Mccann is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Fukuyama Type Muscular Dystrophy, Walker-Warburg Syndrome, Distal Myopathy 2, and Delta-Sarcoglycanopathy. Dr. Mccann is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Raynor is a Neurologist in Boston, Massachusetts. Dr. Raynor is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Peripheral Neuropathy, Post Polio Syndrome, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Raynor is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English
      Accepting New Patients

      Courtney Mcilduff is a Neurologist in Boston, Massachusetts. Dr. Mcilduff has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Peripheral Neuropathy, and Herpes Simplex Encephalitis. Dr. Mcilduff is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Geriatrics | Internal Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Geriatrics | Internal Medicine

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Suzanne Salamon is a primary care provider, practicing in Geriatrics and Internal Medicine in Boston, Massachusetts. Dr. Salamon is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Meige Disease, Primary Intestinal Lymphangiectasia, and Heart Failure. Dr. Salamon is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Gregory Michaud is a Cardiac Electrophysiologist and a Cardiologist in Boston, Massachusetts. Dr. Michaud is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation. Dr. Michaud is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Pushpa Narayanaswami is a Neurologist in Boston, Massachusetts. Dr. Narayanaswami is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Myasthenia Gravis, Limb-Girdle Muscular Dystrophy, Polymyositis, Vein of Galen Aneurysm, and Thymectomy. Dr. Narayanaswami is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Patricia Greenstein is a Neurologist in Boston, Massachusetts. Dr. Greenstein is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Spinocerebellar Ataxia, Cervical Myelopathy, Spinocerebellar Degeneration and Corneal Dystrophy, and Spastic Ataxia Charlevoix-Saguenay Type.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Fernanda Wajnsztajn-Yungher is a Neurologist in Boston, Massachusetts. Dr. Wajnsztajn-Yungher is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Peripheral Neuropathy, Myasthenia Gravis, Foot Drop, and VEXAS Syndrome. Dr. Wajnsztajn-Yungher is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Orthopedics | Physiatry | Orthopedics
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Orthopedics | Physiatry | Orthopedics

      Children's Orthopaedic Surgery Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Rebecca Siegel is a Pediatric Orthopedics specialist and a Physiatrist in Boston, Massachusetts. Dr. Siegel is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy with Arthrogryposis, Spinal Muscular Atrophy Type 2, and Spasticity. Dr. Siegel is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatric Neurology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatric Neurology
      300 Longwood Ave, Boston Children's Hospital, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Leslie Hayes is a Neurologist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Hayes is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 1, and Gastrostomy. Dr. Hayes is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Children's Sports Medicine Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mary Dubon is a Physiatrist in Boston, Massachusetts. Dr. Dubon is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy with Arthrogryposis, Spinal Muscular Atrophy Type 2, and Dysferlinopathy. Dr. Dubon is currently accepting new patients.

      Showing 1-20 of 29

      Last Updated: 10/30/2025

      What is the definition of Emery-Dreifuss Muscular Dystrophy?

      Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

      When should I see an Emery-Dreifuss Muscular Dystrophy doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors near Boston, MA?

      Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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